Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia / Sandy MAGAÑA ; Fabricio BALCAZAR in Autism, 28-1 (January 2024)  

Public ISBD [article]  inAutism > 28-1 (January 2024) . - p.149?154 Titre : Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia Type de document : texte imprimé Auteurs : Sandy MAGAÑA, Auteur ; Fabricio BALCAZAR, Auteur Article en page(s) : p.149?154 Mots-clés : adolescents  autism spectrum disorders  Colombian families  Latino  parent education  preadolescents with autism spectrum disorder  puberty  sexuality Index. décimale : PER Périodiques Résumé : The aim of this study was to evaluate the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia, using a quasi-experimental design. We hypothesized that parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies related to topics of adolescence and sexuality compared to the control group. We recruited 25 Colombian parents of pre/adolescent youth with autism spectrum disorder between the ages of 10 and 17 in Bogota. The intervention included four weekly sessions in which the new content about sexuality and adolescence was delivered. Twelve parents were in the intervention group and 13 were in the control group. Intervention participants significantly improved in Knowledge (t 4.37 p?< 0.001), Self-Efficacy (t 7.15, p?< 0.001), Use of Strategies (t 4.29, p?< 0.001), and Family Empowerment (t 3.82, p?< 0.005) between baseline and follow-up. The control group did not improve on any of the outcome measures, and the mean differences between baseline and follow-up scores were significant between intervention and control groups. The program has potential for high impact as information is scarce and parents do not have resources related to pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to support families. Lay abstract We evaluated the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia. This program aims to provide information, resources, and strategies about topics of puberty, sexuality, and adolescence for parents of preadolescents with autism spectrum disorder. We examined whether parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies compared to the control group. We recruited two groups of Colombian parents of pre/adolescent with autism spectrum disorder between the ages of 10 and 17 in the city of Bogota, Colombia, through a community-based organization. One of the groups received the intervention and the other served as a control group. Parents in the control group received the intervention after the 4-month follow-up. The intervention included four 3-h weekly sessions in which the curriculum with nine topic areas was delivered providing parents with a space to practice strategies, learn from others, and set goals. Parents in the intervention group reported significantly greater knowledge, self-efficacy, use of strategies, and empowerment compared to the control/waitlist group. Parents were also highly satisfied with the content, materials, and peer connections that the program offered. The program has potential for high impact as information is scarce and parents do not have resources related to the complicated developmental stages of pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to provide extra support to families of youth with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613231155773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Brief report: Evaluation of an adapted youth version of Parents Taking Action for parents of pre/adolescents with autism spectrum disorder in Colombia [texte imprimé] / Sandy MAGAÑA, Auteur ; Fabricio BALCAZAR, Auteur . - p.149?154. in Autism > 28-1 (January 2024) . - p.149?154 Mots-clés : adolescents  autism spectrum disorders  Colombian families  Latino  parent education  preadolescents with autism spectrum disorder  puberty  sexuality Index. décimale : PER Périodiques Résumé : The aim of this study was to evaluate the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia, using a quasi-experimental design. We hypothesized that parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies related to topics of adolescence and sexuality compared to the control group. We recruited 25 Colombian parents of pre/adolescent youth with autism spectrum disorder between the ages of 10 and 17 in Bogota. The intervention included four weekly sessions in which the new content about sexuality and adolescence was delivered. Twelve parents were in the intervention group and 13 were in the control group. Intervention participants significantly improved in Knowledge (t 4.37 p?< 0.001), Self-Efficacy (t 7.15, p?< 0.001), Use of Strategies (t 4.29, p?< 0.001), and Family Empowerment (t 3.82, p?< 0.005) between baseline and follow-up. The control group did not improve on any of the outcome measures, and the mean differences between baseline and follow-up scores were significant between intervention and control groups. The program has potential for high impact as information is scarce and parents do not have resources related to pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to support families. Lay abstract We evaluated the efficacy of the youth version of the program Parents Taking Action in Bogota, Colombia. This program aims to provide information, resources, and strategies about topics of puberty, sexuality, and adolescence for parents of preadolescents with autism spectrum disorder. We examined whether parents in the treatment groups would improve in levels of knowledge, empowerment, self-efficacy, and use of strategies compared to the control group. We recruited two groups of Colombian parents of pre/adolescent with autism spectrum disorder between the ages of 10 and 17 in the city of Bogota, Colombia, through a community-based organization. One of the groups received the intervention and the other served as a control group. Parents in the control group received the intervention after the 4-month follow-up. The intervention included four 3-h weekly sessions in which the curriculum with nine topic areas was delivered providing parents with a space to practice strategies, learn from others, and set goals. Parents in the intervention group reported significantly greater knowledge, self-efficacy, use of strategies, and empowerment compared to the control/waitlist group. Parents were also highly satisfied with the content, materials, and peer connections that the program offered. The program has potential for high impact as information is scarce and parents do not have resources related to the complicated developmental stages of pre/adolescence. The program shows promise as an efficacious tool for community organizations and health providers to provide extra support to families of youth with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613231155773 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder / Meghan M. BURKE in Journal of Autism and Developmental Disorders, 46-7 (July 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-7 (July 2016) . - p.2532-2538 Titre : Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Meghan M. BURKE, Auteur ; Sandra MAGAÑA, Auteur ; Marlene GARCIA, Auteur ; Maria P. MELLO, Auteur Article en page(s) : p.2532-2538 Langues : Anglais (eng) Mots-clés : Advocacy  Empowerment  Family–School Partnership  Family  Services Index. décimale : PER Périodiques Résumé : Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2765-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Brief Report: The Feasibility and Effectiveness of an Advocacy Program for Latino Families of Children with Autism Spectrum Disorder [texte imprimé] / Meghan M. BURKE, Auteur ; Sandra MAGAÑA, Auteur ; Marlene GARCIA, Auteur ; Maria P. MELLO, Auteur . - p.2532-2538. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-7 (July 2016) . - p.2532-2538 Mots-clés : Advocacy  Empowerment  Family–School Partnership  Family  Services Index. décimale : PER Périodiques Résumé : Latino, Spanish-speaking families of children with autism spectrum disorder (ASD) face unique barriers in special education advocacy. Although advocacy programs are becoming more common in the United States, none of these programs target Latino families. This is a pilot study to examine the feasibility and effectiveness of an advocacy program for Latino families of children with ASD. Using a quasi-experimental design, 40 Latino family members of children with ASD participated in this study. Results demonstrated consistent attendance, low attrition, and high participant satisfaction. Intervention (versus control) group participants demonstrated significantly increased empowerment and special education knowledge, and stronger family–school partnerships. Findings provide preliminary support for advocacy programs for Latino families of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2765-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Clinical Validity of the ADI-R in a US-Based Latino Population / Sandra B. VANEGAS in Journal of Autism and Developmental Disorders, 46-5 (May 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1623-1635 Titre : Clinical Validity of the ADI-R in a US-Based Latino Population Type de document : texte imprimé Auteurs : Sandra B. VANEGAS, Auteur ; Sandra MAGAÑA, Auteur ; Miguel MORALES, Auteur ; Ellyn MCNAMARA, Auteur Article en page(s) : p.1623-1635 Langues : Anglais (eng) Mots-clés : ADI-R  Latino  Spanish version  Autism Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Interview-Revised (ADI-R) has been validated as a tool to aid in the diagnosis of Autism; however, given the growing diversity in the United States, the ADI-R must be validated for different languages and cultures. This study evaluates the validity of the ADI-R in a US-based Latino, Spanish-speaking population of 50 children and adolescents with ASD and developmental disability. Sensitivity and specificity of the ADI-R as a diagnostic tool were moderate, but lower than previously reported values. Validity of the social reciprocity and restrictive and repetitive behaviors domains was high, but low in the communication domain. Findings suggest that language discordance between caregiver and child may influence reporting of communication symptoms and contribute to lower sensitivity and specificity. En ligne : http://dx.doi.org/10.1007/s10803-015-2690-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288 [article] Clinical Validity of the ADI-R in a US-Based Latino Population [texte imprimé] / Sandra B. VANEGAS, Auteur ; Sandra MAGAÑA, Auteur ; Miguel MORALES, Auteur ; Ellyn MCNAMARA, Auteur . - p.1623-1635. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-5 (May 2016) . - p.1623-1635 Mots-clés : ADI-R  Latino  Spanish version  Autism Index. décimale : PER Périodiques Résumé : The Autism Diagnostic Interview-Revised (ADI-R) has been validated as a tool to aid in the diagnosis of Autism; however, given the growing diversity in the United States, the ADI-R must be validated for different languages and cultures. This study evaluates the validity of the ADI-R in a US-based Latino, Spanish-speaking population of 50 children and adolescents with ASD and developmental disability. Sensitivity and specificity of the ADI-R as a diagnostic tool were moderate, but lower than previously reported values. Validity of the social reciprocity and restrictive and repetitive behaviors domains was high, but low in the communication domain. Findings suggest that language discordance between caregiver and child may influence reporting of communication symptoms and contribute to lower sensitivity and specificity. En ligne : http://dx.doi.org/10.1007/s10803-015-2690-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=288

Diagnostic Utility of the ADI-R and DSM-5 in the Assessment of Latino Children and Adolescents / Sandy MAGAÑA in Journal of Autism and Developmental Disorders, 47-5 (May 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1278-1287 Titre : Diagnostic Utility of the ADI-R and DSM-5 in the Assessment of Latino Children and Adolescents Type de document : texte imprimé Auteurs : Sandy MAGAÑA, Auteur ; Sandra B. VANEGAS, Auteur Article en page(s) : p.1278-1287 Langues : Anglais (eng) Mots-clés : DSM-5  ADI-R  Latino  ASD  Diagnosis Index. décimale : PER Périodiques Résumé : Latino children in the US are systematically underdiagnosed with Autism Spectrum Disorder (ASD); therefore, it is important that recent changes to the diagnostic process do not exacerbate this pattern of under-identification. Previous research has found that the Autism Diagnostic Interview-Revised (ADI-R) algorithm, based on the Diagnostic and Statistical Manual of Mental Disorder, Fourth Edition, Text Revision (DSM-IV-TR), has limitations with Latino children of Spanish speaking parents. We evaluated whether an ADI-R algorithm based on the new DSM-5 classification for ASD would be more sensitive in identifying Latino children of Spanish speaking parents who have a clinical diagnosis of ASD. Findings suggest that the DSM-5 algorithm shows better sensitivity than the DSM-IV-TR algorithm for Latino children. En ligne : http://dx.doi.org/10.1007/s10803-017-3043-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305 [article] Diagnostic Utility of the ADI-R and DSM-5 in the Assessment of Latino Children and Adolescents [texte imprimé] / Sandy MAGAÑA, Auteur ; Sandra B. VANEGAS, Auteur . - p.1278-1287. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-5 (May 2017) . - p.1278-1287 Mots-clés : DSM-5  ADI-R  Latino  ASD  Diagnosis Index. décimale : PER Périodiques Résumé : Latino children in the US are systematically underdiagnosed with Autism Spectrum Disorder (ASD); therefore, it is important that recent changes to the diagnostic process do not exacerbate this pattern of under-identification. Previous research has found that the Autism Diagnostic Interview-Revised (ADI-R) algorithm, based on the Diagnostic and Statistical Manual of Mental Disorder, Fourth Edition, Text Revision (DSM-IV-TR), has limitations with Latino children of Spanish speaking parents. We evaluated whether an ADI-R algorithm based on the new DSM-5 classification for ASD would be more sensitive in identifying Latino children of Spanish speaking parents who have a clinical diagnosis of ASD. Findings suggest that the DSM-5 algorithm shows better sensitivity than the DSM-IV-TR algorithm for Latino children. En ligne : http://dx.doi.org/10.1007/s10803-017-3043-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305

Implementing a Parent Education Intervention in Colombia: Assessing Parent Outcomes and Perceptions Across Delivery Modes / Sandra MAGAÑA in Focus on Autism and Other Developmental Disabilities, 36-3 (September 2021)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 36-3 (September 2021) . - p.165-175 Titre : Implementing a Parent Education Intervention in Colombia: Assessing Parent Outcomes and Perceptions Across Delivery Modes Type de document : texte imprimé Auteurs : Sandra MAGAÑA, Auteur ; Marie TEJERO HUGHES, Auteur ; Kristen SALKAS, Auteur ; Wendy GONZALES, Auteur ; Giselle NÚÑEZ, Auteur ; Miguel MORALES, Auteur ; Mariana GARCIA TORRES, Auteur ; Marisol MORENO-ANGARITA, Auteur Article en page(s) : p.165-175 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  parent training  multicultural issues Index. décimale : PER Périodiques Résumé : Knowledge and identification of autism spectrum disorder (ASD) are increasing in Latin America, yet there are limited resources available to help families of children with ASD. For this study, researchers adapted and tested a parent educational program created for Latino immigrant parents of children with ASD in the United States to the needs of parents of children with ASD in Colombia. Parents were randomized into two intervention delivery modes, one led by parents and the other by students. All measures were self-reported by parents (n = 20). Parents improved in understanding their child’s strengths and needs and frequency of using evidence-based strategies. Parents in the student-led group reported significantly lower depressive symptoms between baseline and follow-up. In focus groups, parents expressed satisfaction with the intervention and described ways they were using the information. This study demonstrated promising results to improve the experience of parents of children with ASD in Colombia. En ligne : http://dx.doi.org/10.1177/1088357620986947 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460 [article] Implementing a Parent Education Intervention in Colombia: Assessing Parent Outcomes and Perceptions Across Delivery Modes [texte imprimé] / Sandra MAGAÑA, Auteur ; Marie TEJERO HUGHES, Auteur ; Kristen SALKAS, Auteur ; Wendy GONZALES, Auteur ; Giselle NÚÑEZ, Auteur ; Miguel MORALES, Auteur ; Mariana GARCIA TORRES, Auteur ; Marisol MORENO-ANGARITA, Auteur . - p.165-175. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 36-3 (September 2021) . - p.165-175 Mots-clés : autism spectrum disorders  parent training  multicultural issues Index. décimale : PER Périodiques Résumé : Knowledge and identification of autism spectrum disorder (ASD) are increasing in Latin America, yet there are limited resources available to help families of children with ASD. For this study, researchers adapted and tested a parent educational program created for Latino immigrant parents of children with ASD in the United States to the needs of parents of children with ASD in Colombia. Parents were randomized into two intervention delivery modes, one led by parents and the other by students. All measures were self-reported by parents (n = 20). Parents improved in understanding their child’s strengths and needs and frequency of using evidence-based strategies. Parents in the student-led group reported significantly lower depressive symptoms between baseline and follow-up. In focus groups, parents expressed satisfaction with the intervention and described ways they were using the information. This study demonstrated promising results to improve the experience of parents of children with ASD in Colombia. En ligne : http://dx.doi.org/10.1177/1088357620986947 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460

Perceptions of Family Problems and Pessimism Among Latina and Non-Latina White Mothers Raising Children with Autism Spectrum Disorder / Kristina LOPEZ in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

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Pilot study of a strengths-based education program for Diné (Navajo) families of autistic children: Feasibility, fidelity, acceptability, and initial outcomes / Candi Running BEAR ; Davis E. HENDERSON ; Brianna R. KIRBY ; Vernyllia BEGAY ; Amy SHUI ; Sarah DABABNAH ; Sandy MAGAÑA in Research in Autism, 127 (September 2025)  

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A Randomized Waitlist-Control Group Study of a Culturally Tailored Parent Education Intervention for Latino Parents of Children with ASD / Sandy MAGAÑA in Journal of Autism and Developmental Disorders, 50-1 (January 2020)  

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Revisiting an RCT study of a parent education program for Latinx parents in the United States: Are treatment effects maintained over time? / Weiwen ZENG in Autism, 26-2 (February 2022)  

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The development and utilization of a diversity advisory board in an intervention to support social skill development for autistic transition-aged youth / Ed-Dee G. WILLIAMS in Autism, 29-8 (August 2025)  

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The Use of the Autism Diagnostic Interview-Revised with a Latino Population of Adolescents and Adults with Autism / Sandy MAGAÑA in Journal of Autism and Developmental Disorders, 43-5 (May 2013)  

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