Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers / Leontine W. TEN HOOPEN in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4665-4678 Titre : Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Leontine W. TEN HOOPEN, Auteur ; Pieter F. A. DE NIJS, Auteur ; Jorieke DUVEKOT, Auteur ; Kirstin GREAVES-LORD, Auteur ; Manon H. J. HILLEGERS, Auteur ; Werner B. F. BROUWER, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur Article en page(s) : p.4665-4678 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Caregivers  Child  Humans  Parenting  Quality of Life  Surveys and Questionnaires  Autism spectrum disorder (ASD)  Caregiver  CarerQol  Children  Eq-5d  Health-related quality of life  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver's internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver's health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver's mental health, coping, and parenting stress in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-021-05336-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Caring for Children with an Autism Spectrum Disorder: Factors Associating with Health- and Care-Related Quality of Life of the Caregivers [Texte imprimé et/ou numérique] / Leontine W. TEN HOOPEN, Auteur ; Pieter F. A. DE NIJS, Auteur ; Jorieke DUVEKOT, Auteur ; Kirstin GREAVES-LORD, Auteur ; Manon H. J. HILLEGERS, Auteur ; Werner B. F. BROUWER, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur . - p.4665-4678. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4665-4678 Mots-clés : Autism Spectrum Disorder  Caregivers  Child  Humans  Parenting  Quality of Life  Surveys and Questionnaires  Autism spectrum disorder (ASD)  Caregiver  CarerQol  Children  Eq-5d  Health-related quality of life  research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : This study investigated the association of child, caregiver, and caregiving measurements with the quality of life (QoL) in 81 caregivers (mostly parents) of clinically referred children with autism spectrum disorder (ASD). We used the EuroQol five-dimensional (EQ-5D) questionnaire and the care-related QoL questionnaire (CarerQol) to respectively assess health-related QoL and care-related QoL. Health-related QoL was associated with the caregiver's internalizing problems and adaptive coping, explaining 38% of the variance. Parenting stress and adaptive coping were associated with the care-related QoL and explained 60% of the variance. Child variables were not associated with the caregiver's health- and care-related QoL if caregiver and caregiving variables were taken into account. Findings indicate the importance of the caregiver's mental health, coping, and parenting stress in caring for children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-021-05336-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life / Leontine W. TEN HOOPEN in Journal of Autism and Developmental Disorders, 50-1 (January 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.263-277 Titre : Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life Type de document : Texte imprimé et/ou numérique Auteurs : Leontine W. TEN HOOPEN, Auteur ; Pieter F. A. DE NIJS, Auteur ; Jorieke DUVEKOT, Auteur ; Kirstin GREAVES-LORD, Auteur ; Manon H. J. HILLEGERS, Auteur ; Werner B. F. BROUWER, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur Article en page(s) : p.263-277 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Caregiver burden  CarerQol  Children  EuroQol five-dimensional (EQ-5D) questionnaire  Health-related quality of life Index. décimale : PER Périodiques Résumé : This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment. En ligne : http://dx.doi.org/10.1007/s10803-019-04249-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Children with an Autism Spectrum Disorder and Their Caregivers: Capturing Health-Related and Care-Related Quality of Life [Texte imprimé et/ou numérique] / Leontine W. TEN HOOPEN, Auteur ; Pieter F. A. DE NIJS, Auteur ; Jorieke DUVEKOT, Auteur ; Kirstin GREAVES-LORD, Auteur ; Manon H. J. HILLEGERS, Auteur ; Werner B. F. BROUWER, Auteur ; Leona HAKKAART-VAN ROIJEN, Auteur . - p.263-277. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.263-277 Mots-clés : Autism spectrum disorder (ASD)  Caregiver burden  CarerQol  Children  EuroQol five-dimensional (EQ-5D) questionnaire  Health-related quality of life Index. décimale : PER Périodiques Résumé : This study investigated health-related QoL (HRQoL) and care-related quality of life (CarerQol) in clinically referred children with an autism spectrum disorder (ASD), and their primary and secondary caregivers. The EuroQol five-dimensional (EQ-5D) and the CarerQol questionnaires were used to respectively measure health-related QoL and care-related QoL. Primary caregivers reported pain/discomfort (42%) and anxiety/depression (40%). In caring, they mostly experienced problems in the relationship with the child (84%), and in combining care with daily activities (51%). Children with ASD had a relevantly lower QoL. Despite negative effects, almost all caregivers (96%) derived fulfillment from caring for their affected children. HRQoL and CarerQol reports of primary caregivers and children were correlated, both providing useful information to ASD measurement and treatment. En ligne : http://dx.doi.org/10.1007/s10803-019-04249-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children / Jorieke DUVEKOT in Journal of Autism and Developmental Disorders, 47-1 (January 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-1 (January 2017) . - p.33-48 Titre : Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children Type de document : Texte imprimé et/ou numérique Auteurs : Jorieke DUVEKOT, Auteur ; Leontine W. TEN HOOPEN, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.33-48 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Multicenter  Design  Clinical cohort  Attrition  Longitudinal Index. décimale : PER Périodiques Résumé : This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5–10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n?=?428) and a random selection of screen negatives (n?=?240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society. En ligne : http://dx.doi.org/10.1007/s10803-016-2919-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298 [article] Design and Cohort Characteristics of the Social Spectrum Study: A Multicenter Study of the Autism Spectrum Among Clinically Referred Children [Texte imprimé et/ou numérique] / Jorieke DUVEKOT, Auteur ; Leontine W. TEN HOOPEN, Auteur ; Geerte SLAPPENDEL, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Ad VAN DER SIJDE, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.33-48. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-1 (January 2017) . - p.33-48 Mots-clés : Autism spectrum disorder  Multicenter  Design  Clinical cohort  Attrition  Longitudinal Index. décimale : PER Périodiques Résumé : This paper provides an overview of the design and cohort characteristics of the Social Spectrum Study: a clinical cohort study that used a two-phase sampling design to identify children at risk for ASD. After screening 1281 children aged 2.5–10 years who had been consecutively referred to one of six mental health services in the Netherlands, children who screened positive for ASD (n?=?428) and a random selection of screen negatives (n?=?240) were invited to participate in diagnostic assessments and questionnaires regarding the child, family and society. A 1-year follow-up was also conducted. Results from this study may contribute to knowledge of the identification and characterization of children with ASD, family processes, and the impact of ASD on the family and society. En ligne : http://dx.doi.org/10.1007/s10803-016-2919-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298

Examining bidirectional effects between the autism spectrum disorder (ASD) core symptom domains and anxiety in children with ASD / Jorieke DUVEKOT in Journal of Child Psychology and Psychiatry, 59-3 (March 2018)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 59-3 (March 2018) . - p.277-284 Titre : Examining bidirectional effects between the autism spectrum disorder (ASD) core symptom domains and anxiety in children with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Jorieke DUVEKOT, Auteur ; Jan ENDE, Auteur ; Frank C. VERHULST, Auteur ; Kirstin GREAVES?LORD, Auteur Article en page(s) : p.277-284 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Although a bidirectional relationship between autism spectrum disorder (ASD) and anxiety symptoms is assumed, few studies have investigated this. Moreover, little is known about potential differential relationships of the two core symptom domains of ASD – social communication impairment and restricted, repetitive behavior – with anxiety over time. Method Participants were 130 children with an ASD (M age 6.7 years, 81.5% boys) of whom 79 participated in a follow?up assessment 2 years later. We used cross?lagged models to test whether social communication impairment and restricted, repetitive behavior at T0 predicted anxiety at T2 and vice versa. Results Crossed?lagged models showed that anxiety symptoms predicted social communication impairment over time (? = .22, p = .008), but not vice versa (? = ?.07, p = .49). There were no significant paths from anxiety symptoms to later restricted, repetitive behavior (? = .11, p = .34) or vice versa (? = ?.11, p = .27). Conclusions Our results do not support a bidirectional relationship between the ASD core symptom domains and anxiety, but suggest that higher levels of anxiety symptoms increase the risk of more social communication impairment over time in children with ASD. This underlines the importance of treating anxiety symptoms to improve both social and emotional functioning. En ligne : https://doi.org/10.1111/jcpp.12829 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339 [article] Examining bidirectional effects between the autism spectrum disorder (ASD) core symptom domains and anxiety in children with ASD [Texte imprimé et/ou numérique] / Jorieke DUVEKOT, Auteur ; Jan ENDE, Auteur ; Frank C. VERHULST, Auteur ; Kirstin GREAVES?LORD, Auteur . - p.277-284. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 59-3 (March 2018) . - p.277-284 Index. décimale : PER Périodiques Résumé : Background Although a bidirectional relationship between autism spectrum disorder (ASD) and anxiety symptoms is assumed, few studies have investigated this. Moreover, little is known about potential differential relationships of the two core symptom domains of ASD – social communication impairment and restricted, repetitive behavior – with anxiety over time. Method Participants were 130 children with an ASD (M age 6.7 years, 81.5% boys) of whom 79 participated in a follow?up assessment 2 years later. We used cross?lagged models to test whether social communication impairment and restricted, repetitive behavior at T0 predicted anxiety at T2 and vice versa. Results Crossed?lagged models showed that anxiety symptoms predicted social communication impairment over time (? = .22, p = .008), but not vice versa (? = ?.07, p = .49). There were no significant paths from anxiety symptoms to later restricted, repetitive behavior (? = .11, p = .34) or vice versa (? = ?.11, p = .27). Conclusions Our results do not support a bidirectional relationship between the ASD core symptom domains and anxiety, but suggest that higher levels of anxiety symptoms increase the risk of more social communication impairment over time in children with ASD. This underlines the importance of treating anxiety symptoms to improve both social and emotional functioning. En ligne : https://doi.org/10.1111/jcpp.12829 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339

Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys / Jorieke DUVEKOT in Autism, 21-6 (August 2017)  

Public ISBD [article]  inAutism > 21-6 (August 2017) . - p.646-658 Titre : Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys Type de document : Texte imprimé et/ou numérique Auteurs : Jorieke DUVEKOT, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Geerte SLAPPENDEL, Auteur ; Emma VAN DAALEN, Auteur ; Athanasios MARAS, Auteur ; Kirstin GREAVES-LORD, Auteur Article en page(s) : p.646-658 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : In order to shed more light on why referred girls are less likely to be diagnosed with autism spectrum disorder than boys, this study examined whether behavioral characteristics influence the probability of an autism spectrum disorder diagnosis differently in girls versus boys derived from a multicenter sample of consecutively referred children aged 2.5?10?years. Based on information from the short version of the Developmental, Dimensional and Diagnostic Interview and the Autism Diagnostic Observation Schedule, 130 children (106 boys and 24 girls) received a diagnosis of autism spectrum disorder according to Diagnostic and Statistical Manual of Mental Disorders (4th ed., text rev.) criteria and 101 children (61 boys and 40 girls) did not. Higher overall levels of parent-reported repetitive and restricted behavior symptoms were less predictive of an autism spectrum disorder diagnosis in girls than in boys (odds ratio interaction=0.41, 95% confidence interval=0.18?0.92, p=0.03). In contrast, higher overall levels of parent-reported emotional and behavioral problems increased the probability of an autism spectrum disorder diagnosis more in girls than in boys (odds ratio interaction=2.44, 95% confidence interval=1.13?5.29, p=0.02). No differences were found between girls and boys in the prediction of an autism spectrum disorder diagnosis by overall autistic impairment, sensory symptoms, and cognitive functioning. These findings provide insight into possible explanations for the assumed underidentification of autism spectrum disorder in girls in the clinic. En ligne : http://dx.doi.org/10.1177/1362361316672178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311 [article] Factors influencing the probability of a diagnosis of autism spectrum disorder in girls versus boys [Texte imprimé et/ou numérique] / Jorieke DUVEKOT, Auteur ; Jan VAN DER ENDE, Auteur ; Frank C. VERHULST, Auteur ; Geerte SLAPPENDEL, Auteur ; Emma VAN DAALEN, Auteur ; Athanasios MARAS, Auteur ; Kirstin GREAVES-LORD, Auteur . - p.646-658. Langues : Anglais (eng) in Autism > 21-6 (August 2017) . - p.646-658 Index. décimale : PER Périodiques Résumé : In order to shed more light on why referred girls are less likely to be diagnosed with autism spectrum disorder than boys, this study examined whether behavioral characteristics influence the probability of an autism spectrum disorder diagnosis differently in girls versus boys derived from a multicenter sample of consecutively referred children aged 2.5?10?years. Based on information from the short version of the Developmental, Dimensional and Diagnostic Interview and the Autism Diagnostic Observation Schedule, 130 children (106 boys and 24 girls) received a diagnosis of autism spectrum disorder according to Diagnostic and Statistical Manual of Mental Disorders (4th ed., text rev.) criteria and 101 children (61 boys and 40 girls) did not. Higher overall levels of parent-reported repetitive and restricted behavior symptoms were less predictive of an autism spectrum disorder diagnosis in girls than in boys (odds ratio interaction=0.41, 95% confidence interval=0.18?0.92, p=0.03). In contrast, higher overall levels of parent-reported emotional and behavioral problems increased the probability of an autism spectrum disorder diagnosis more in girls than in boys (odds ratio interaction=2.44, 95% confidence interval=1.13?5.29, p=0.02). No differences were found between girls and boys in the prediction of an autism spectrum disorder diagnosis by overall autistic impairment, sensory symptoms, and cognitive functioning. These findings provide insight into possible explanations for the assumed underidentification of autism spectrum disorder in girls in the clinic. En ligne : http://dx.doi.org/10.1177/1362361316672178 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311

Symptoms of autism spectrum disorder and anxiety: shared familial transmission and cross-assortative mating / Jorieke DUVEKOT in Journal of Child Psychology and Psychiatry, 57-6 (June 2016)  

Permalink

The Screening Accuracy of the Parent and Teacher-Reported Social Responsiveness Scale (SRS): Comparison with the 3Di and ADOS / Jorieke DUVEKOT in Journal of Autism and Developmental Disorders, 45-6 (June 2015)  

Permalink

Utility of the 3Di Short Version for the Diagnostic Assessment of Autism Spectrum Disorder and Compatibility with DSM-5 / Geerte SLAPPENDEL in Journal of Autism and Developmental Disorders, 46-5 (May 2016)  

Permalink

---

1 (1 - 8 / 8)