Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs / Jennifer L. HILLMAN in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968 Titre : Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs Type de document : texte imprimé Auteurs : Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur Article en page(s) : p.2957-2968 Langues : Anglais (eng) Mots-clés : Grandparents  Autism spectrum disorder  Grandchildren  Resilience  Depression  Coping  Communication  Tantrums  Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319 [article] Grandparents’ Experience of Autism Spectrum Disorder: Identifying Primary Themes and Needs [texte imprimé] / Jennifer L. HILLMAN, Auteur ; Michele C. WENTZEL, Auteur ; Connie M. ANDERSON, Auteur . - p.2957-2968. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-10 (October 2017) . - p.2957-2968 Mots-clés : Grandparents  Autism spectrum disorder  Grandchildren  Resilience  Depression  Coping  Communication  Tantrums  Inappropriate behavior Index. décimale : PER Périodiques Résumé : Limited information is available regarding the first person perspective of grandparents of children with Autism Spectrum Disorders (ASD). In the present study, 1870 grandparents of a child with ASD participated in a nationwide, online, anonymous, 30-minute survey and responded to open-ended questions including their “greatest challenges and greatest joys” as the grandparent of a child on the autism spectrum. A grounded theory approach to qualitative analysis revealed four overarching categories: a Desire for Connection, Barriers to Care, Celebration of Progress, and Personal Reactions. Despite the presence of significant challenges grandparents often experienced positivity in their role, and engaged in radical acceptance of their grandchild as well as transformative insight and advocacy. Specific recommendations are offered to help address grandparents’ needs and capitalize upon their resilience. En ligne : https://doi.org/10.1007/s10803-017-3211-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=319

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