Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities / E. HALSTEAD in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1108-1121 Titre : Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities Type de document : Texte imprimé et/ou numérique Auteurs : E. HALSTEAD, Auteur ; N. EKAS, Auteur ; R. P. HASTINGS, Auteur ; G. M. GRIFFITH, Auteur Article en page(s) : p.1108-1121 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Developmental disability  Mothers  Psychological well-being  Resilience Index. décimale : PER Périodiques Résumé : There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience functioned as a compensatory factor-having a significant independent main effect relationship with well-being outcomes in mothers of children with DD and autism spectrum disorder. However, there was no longitudinal association between resilience and maternal well-being outcomes. There was little evidence of the role of resilience as a protective factor between child behavior problems and maternal well-being in both studies. En ligne : http://dx.doi.org/10.1007/s10803-017-3447-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Associations Between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities [Texte imprimé et/ou numérique] / E. HALSTEAD, Auteur ; N. EKAS, Auteur ; R. P. HASTINGS, Auteur ; G. M. GRIFFITH, Auteur . - p.1108-1121. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1108-1121 Mots-clés : Autism spectrum disorder  Developmental disability  Mothers  Psychological well-being  Resilience Index. décimale : PER Périodiques Résumé : There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience functioned as a compensatory factor-having a significant independent main effect relationship with well-being outcomes in mothers of children with DD and autism spectrum disorder. However, there was no longitudinal association between resilience and maternal well-being outcomes. There was little evidence of the role of resilience as a protective factor between child behavior problems and maternal well-being in both studies. En ligne : http://dx.doi.org/10.1007/s10803-017-3447-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

Developmental trajectories of behaviour problems and prosocial behaviours of children with intellectual disabilities in a population-based cohort / T. BAILEY in Journal of Child Psychology and Psychiatry, 60-11 (November 2019)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 60-11 (November 2019) . - p.1210-1218 Titre : Developmental trajectories of behaviour problems and prosocial behaviours of children with intellectual disabilities in a population-based cohort Type de document : Texte imprimé et/ou numérique Auteurs : T. BAILEY, Auteur ; V. TOTSIKA, Auteur ; R. P. HASTINGS, Auteur ; C. HATTON, Auteur ; E. EMERSON, Auteur Article en page(s) : p.1210-1218 Langues : Anglais (eng) Mots-clés : Intellectual disability  autism  externalising  internalising  life satisfaction  prosocial behaviours  psychological distress Index. décimale : PER Périodiques Résumé : BACKGROUND: The study examined developmental trajectories of prosocial behaviours, internalising and externalising behaviour problems in children with intellectual disabilities (ID) between pre-school and middle childhood. METHOD: Growth models examined the best-fitting trajectories for internalising and externalising behaviour problems, as well as prosocial behaviours, in 555 children with ID between the ages of three and 11 years from the UK Millennium Cohort Study. Models were also fitted to examine the association of child outcomes with time-varying maternal psychological distress and life satisfaction. Finally, models were extended to compare trajectories with typically developing children. RESULTS: Externalising behaviour problems and prosocial behaviours generally improved, whereas internalising problems did not change systematically over time. A cubic trend indicated a slowing down of improvement between ages 5 and 7 for prosocial behaviours and externalising problems. Maternal psychological distress positively co-varied with internalising and externalising behaviour problems over time. Life satisfaction was not related to changes in child behaviours over time. Compared to behavioural trajectories in typical development, intercepts were worse and trajectories also differed in the ID group. CONCLUSIONS: Over an 8-year period, externalising behaviour problems and prosocial behaviours of children with ID tended to improve. These behavioural improvements slowed between five and seven years, possibly coinciding with school-related environmental changes. Children with ID significantly differ from children with typical development in both the initial level of difficulties (exhibiting higher externalising and internalising behaviours, and lower prosocial behaviours) and subsequent development as they age, showing comparatively lower decreases in both externalising and internalising behaviours, and lower increases in prosocial behaviours. Findings also highlight the significant role of maternal mental health problems in the trajectory of child behaviour problems. En ligne : http://dx.doi.org/10.1111/jcpp.13080 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 [article] Developmental trajectories of behaviour problems and prosocial behaviours of children with intellectual disabilities in a population-based cohort [Texte imprimé et/ou numérique] / T. BAILEY, Auteur ; V. TOTSIKA, Auteur ; R. P. HASTINGS, Auteur ; C. HATTON, Auteur ; E. EMERSON, Auteur . - p.1210-1218. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 60-11 (November 2019) . - p.1210-1218 Mots-clés : Intellectual disability  autism  externalising  internalising  life satisfaction  prosocial behaviours  psychological distress Index. décimale : PER Périodiques Résumé : BACKGROUND: The study examined developmental trajectories of prosocial behaviours, internalising and externalising behaviour problems in children with intellectual disabilities (ID) between pre-school and middle childhood. METHOD: Growth models examined the best-fitting trajectories for internalising and externalising behaviour problems, as well as prosocial behaviours, in 555 children with ID between the ages of three and 11 years from the UK Millennium Cohort Study. Models were also fitted to examine the association of child outcomes with time-varying maternal psychological distress and life satisfaction. Finally, models were extended to compare trajectories with typically developing children. RESULTS: Externalising behaviour problems and prosocial behaviours generally improved, whereas internalising problems did not change systematically over time. A cubic trend indicated a slowing down of improvement between ages 5 and 7 for prosocial behaviours and externalising problems. Maternal psychological distress positively co-varied with internalising and externalising behaviour problems over time. Life satisfaction was not related to changes in child behaviours over time. Compared to behavioural trajectories in typical development, intercepts were worse and trajectories also differed in the ID group. CONCLUSIONS: Over an 8-year period, externalising behaviour problems and prosocial behaviours of children with ID tended to improve. These behavioural improvements slowed between five and seven years, possibly coinciding with school-related environmental changes. Children with ID significantly differ from children with typical development in both the initial level of difficulties (exhibiting higher externalising and internalising behaviours, and lower prosocial behaviours) and subsequent development as they age, showing comparatively lower decreases in both externalising and internalising behaviours, and lower increases in prosocial behaviours. Findings also highlight the significant role of maternal mental health problems in the trajectory of child behaviour problems. En ligne : http://dx.doi.org/10.1111/jcpp.13080 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408

Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults / Y. LUNSKY in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3959-3969 Titre : Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults Type de document : Texte imprimé et/ou numérique Auteurs : Y. LUNSKY, Auteur ; Carly ALBAUM, Auteur ; A. BASKIN, Auteur ; R. P. HASTINGS, Auteur ; S. HUTTON, Auteur ; L. STEEL, Auteur ; W. WANG, Auteur ; J. WEISS, Auteur Article en page(s) : p.3959-3969 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/therapy  Humans  Mindfulness  Parents  Autism  Virtual intervention Index. décimale : PER Périodiques Résumé : Mindfulness-based approaches have been shown to be effective in improving the mental health of parents of youth and adults with autism and other developmental disabilities, but prior work suggests that geography and caregiving demands can make in-person attendance challenging. The purpose of this study was to evaluate the feasibility, acceptability and preliminary outcomes of a mindfulness-based group intervention delivered to parents virtually. It was feasible to deliver this manualized intervention. Twenty-one of 39 parents completed the intervention and completers reported high satisfaction ratings. Parents reported reduced levels of distress, maintained at 3-month follow-up, and increased mindfulness. Changes reported following intervention were similar to changes reported in a prior study of parents competing an in person mindfulness group. En ligne : http://dx.doi.org/10.1007/s10803-020-04835-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Group Virtual Mindfulness-Based Intervention for Parents of Autistic Adolescents and Adults [Texte imprimé et/ou numérique] / Y. LUNSKY, Auteur ; Carly ALBAUM, Auteur ; A. BASKIN, Auteur ; R. P. HASTINGS, Auteur ; S. HUTTON, Auteur ; L. STEEL, Auteur ; W. WANG, Auteur ; J. WEISS, Auteur . - p.3959-3969. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.3959-3969 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder/therapy  Humans  Mindfulness  Parents  Autism  Virtual intervention Index. décimale : PER Périodiques Résumé : Mindfulness-based approaches have been shown to be effective in improving the mental health of parents of youth and adults with autism and other developmental disabilities, but prior work suggests that geography and caregiving demands can make in-person attendance challenging. The purpose of this study was to evaluate the feasibility, acceptability and preliminary outcomes of a mindfulness-based group intervention delivered to parents virtually. It was feasible to deliver this manualized intervention. Twenty-one of 39 parents completed the intervention and completers reported high satisfaction ratings. Parents reported reduced levels of distress, maintained at 3-month follow-up, and increased mindfulness. Changes reported following intervention were similar to changes reported in a prior study of parents competing an in person mindfulness group. En ligne : http://dx.doi.org/10.1007/s10803-020-04835-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

A national survey of Rett syndrome: behavioural characteristics / R. CIANFAGLIONE in Journal of Neurodevelopmental Disorders, 7-1 (December 2015)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.11 Titre : A national survey of Rett syndrome: behavioural characteristics Type de document : Texte imprimé et/ou numérique Auteurs : R. CIANFAGLIONE, Auteur ; A. CLARKE, Auteur ; M. KERR, Auteur ; R. P. HASTINGS, Auteur ; C. OLIVER, Auteur ; J. MOSS, Auteur ; M. HEALD, Auteur ; D. FELCE, Auteur Article en page(s) : p.11 Langues : Anglais (eng) Mots-clés : Behavioural characteristics  Great Britain  Intellectual disabilities  Rett syndrome Index. décimale : PER Périodiques Résumé : BACKGROUND: The aim was to gain a UK national sample of people with Rett syndrome (RTT) across the age range and compare their characteristics using a variety of relevant behavioural measures with a well-chosen contrast group. METHODS: The achieved sample was 91 girls and women, aged from 4 to 47 years, of whom 71 were known to be MECP2 positive. The contrast group (n = 66), matched for age, gender, language and self-help skills, comprised individuals with six other syndromes associated with intellectual disability. Parental questionnaire measures of RTT specific characteristics, impulsivity, overactivity, mood, interest and pleasure, repetitive behaviour and self-injury were administered. RESULTS: Hand stereotypies, breathing irregularities, night-time unrest and anxiety or inappropriate fear were commonly reported among the RTT sample. Problems of low mood were also reported as common. However, mood and interest and pleasure were no lower than found in the contrast group. In addition, self-injury was lower than in the contrast group and was associated with factors found to predict self-injury in other groups of people with severe intellectual disabilities. CONCLUSIONS: There is variability in the manifestation of problem behaviours potentially associated with the syndrome across individuals, with some more severely affected in most areas than others. Some of this variability appears to be underpinned by genetic mutation. En ligne : http://dx.doi.org/10.1186/s11689-015-9104-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347 [article] A national survey of Rett syndrome: behavioural characteristics [Texte imprimé et/ou numérique] / R. CIANFAGLIONE, Auteur ; A. CLARKE, Auteur ; M. KERR, Auteur ; R. P. HASTINGS, Auteur ; C. OLIVER, Auteur ; J. MOSS, Auteur ; M. HEALD, Auteur ; D. FELCE, Auteur . - p.11. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.11 Mots-clés : Behavioural characteristics  Great Britain  Intellectual disabilities  Rett syndrome Index. décimale : PER Périodiques Résumé : BACKGROUND: The aim was to gain a UK national sample of people with Rett syndrome (RTT) across the age range and compare their characteristics using a variety of relevant behavioural measures with a well-chosen contrast group. METHODS: The achieved sample was 91 girls and women, aged from 4 to 47 years, of whom 71 were known to be MECP2 positive. The contrast group (n = 66), matched for age, gender, language and self-help skills, comprised individuals with six other syndromes associated with intellectual disability. Parental questionnaire measures of RTT specific characteristics, impulsivity, overactivity, mood, interest and pleasure, repetitive behaviour and self-injury were administered. RESULTS: Hand stereotypies, breathing irregularities, night-time unrest and anxiety or inappropriate fear were commonly reported among the RTT sample. Problems of low mood were also reported as common. However, mood and interest and pleasure were no lower than found in the contrast group. In addition, self-injury was lower than in the contrast group and was associated with factors found to predict self-injury in other groups of people with severe intellectual disabilities. CONCLUSIONS: There is variability in the manifestation of problem behaviours potentially associated with the syndrome across individuals, with some more severely affected in most areas than others. Some of this variability appears to be underpinned by genetic mutation. En ligne : http://dx.doi.org/10.1186/s11689-015-9104-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347

Sibling Adjustment and Sibling Relationships Associated with Clusters of Needs in Children with Autism: A Novel Methodological Approach / L. RIXON in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4067-4076 Titre : Sibling Adjustment and Sibling Relationships Associated with Clusters of Needs in Children with Autism: A Novel Methodological Approach Type de document : Texte imprimé et/ou numérique Auteurs : L. RIXON, Auteur ; R. P. HASTINGS, Auteur ; H. KOVSHOFF, Auteur ; T. BAILEY, Auteur Article en page(s) : p.4067-4076 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Autistic Disorder  Child  Humans  Sibling Relations  Siblings  Autism  Cluster analysis  Sibling adjustment  Sibling relationships Index. décimale : PER Périodiques Résumé : We tested a novel methodological approach to examine associations between characteristics of autistic children and outcomes for siblings. Cluster analysis was used to define five groups of children with autism (n?=?168) based on autism symptoms, adaptive behavior, pro-social behavior, and behavior problems. Primary and secondary parent carers, and siblings themselves, reported on sibling relationship quality and psychological adjustment. Siblings of autistic children with a mild symptom profile, high levels of adaptive skills, but high internalizing and externalizing problems had the highest level of these problems themselves and more conflict in their relationship. Siblings of autistic children with the most complex support needs (adaptive skills deficits, severe autism symptoms) reported lower warmth relationships but not elevated internalizing and externalizing problems. En ligne : http://dx.doi.org/10.1007/s10803-020-04854-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Sibling Adjustment and Sibling Relationships Associated with Clusters of Needs in Children with Autism: A Novel Methodological Approach [Texte imprimé et/ou numérique] / L. RIXON, Auteur ; R. P. HASTINGS, Auteur ; H. KOVSHOFF, Auteur ; T. BAILEY, Auteur . - p.4067-4076. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4067-4076 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Autistic Disorder  Child  Humans  Sibling Relations  Siblings  Autism  Cluster analysis  Sibling adjustment  Sibling relationships Index. décimale : PER Périodiques Résumé : We tested a novel methodological approach to examine associations between characteristics of autistic children and outcomes for siblings. Cluster analysis was used to define five groups of children with autism (n?=?168) based on autism symptoms, adaptive behavior, pro-social behavior, and behavior problems. Primary and secondary parent carers, and siblings themselves, reported on sibling relationship quality and psychological adjustment. Siblings of autistic children with a mild symptom profile, high levels of adaptive skills, but high internalizing and externalizing problems had the highest level of these problems themselves and more conflict in their relationship. Siblings of autistic children with the most complex support needs (adaptive skills deficits, severe autism symptoms) reported lower warmth relationships but not elevated internalizing and externalizing problems. En ligne : http://dx.doi.org/10.1007/s10803-020-04854-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

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