State-Level Trends in the Prevalence of Autism Spectrum Disorder (ASD) from 2000 to 2012: A Reanalysis of Findings from the Autism and Developmental Disabilities Network / R. C. SHELDRICK in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3086-3092 Titre : State-Level Trends in the Prevalence of Autism Spectrum Disorder (ASD) from 2000 to 2012: A Reanalysis of Findings from the Autism and Developmental Disabilities Network Type de document : Texte imprimé et/ou numérique Auteurs : R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur Article en page(s) : p.3086-3092 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Cumulative incidence  Prevalence  Survival analysis Index. décimale : PER Périodiques Résumé : Since 2000, the Autism and Developmental Disabilities Network (ADDM) has published detailed prevalence estimates for autism spectrum disorder (ASD) among 8 year-olds, which are widely interpreted as the U.S. national prevalence of ASD. Although differences in state-level ASD prevalence has been reported, state-level heterogeneity has not been explored systematically. We analyzed state-level estimates and trends in ASD prevalence from 2000 to 2012 using secondary data from bi-annual ADDM reports. Heterogeneity among state-level ASD prevalence estimates were apparent in 2000 and grew between 2000 and 2012. Findings highlight the need for greater understanding of how children with ASD are identified by the medical and educational systems, which has significant implications for the state-level resources required to effectively manage ASD. En ligne : http://dx.doi.org/10.1007/s10803-018-3568-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] State-Level Trends in the Prevalence of Autism Spectrum Disorder (ASD) from 2000 to 2012: A Reanalysis of Findings from the Autism and Developmental Disabilities Network [Texte imprimé et/ou numérique] / R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur . - p.3086-3092. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3086-3092 Mots-clés : Autism spectrum disorder  Cumulative incidence  Prevalence  Survival analysis Index. décimale : PER Périodiques Résumé : Since 2000, the Autism and Developmental Disabilities Network (ADDM) has published detailed prevalence estimates for autism spectrum disorder (ASD) among 8 year-olds, which are widely interpreted as the U.S. national prevalence of ASD. Although differences in state-level ASD prevalence has been reported, state-level heterogeneity has not been explored systematically. We analyzed state-level estimates and trends in ASD prevalence from 2000 to 2012 using secondary data from bi-annual ADDM reports. Heterogeneity among state-level ASD prevalence estimates were apparent in 2000 and grew between 2000 and 2012. Findings highlight the need for greater understanding of how children with ASD are identified by the medical and educational systems, which has significant implications for the state-level resources required to effectively manage ASD. En ligne : http://dx.doi.org/10.1007/s10803-018-3568-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / M. PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Titre : A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur Article en page(s) : p.647-673 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives [Texte imprimé et/ou numérique] / M. PETRUCCELLI, Auteur ; L. RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. C. SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; A. EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; T. I. MACKIE, Auteur . - p.647-673. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention / R. C. SHELDRICK in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2304-2319 Titre : What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention Type de document : Texte imprimé et/ou numérique Auteurs : R. C. SHELDRICK, Auteur ; E. FRENETTE, Auteur ; J. D. VERA, Auteur ; T. I. MACKIE, Auteur ; F. MARTÍNEZ-PEDRAZA, Auteur ; N. HOCH, Auteur ; A. EISENHOWER, Auteur ; A. FETTIG, Auteur ; Alice S. CARTER, Auteur Article en page(s) : p.2304-2319 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Costs  Decision-making  Process assessment  Screening Index. décimale : PER Périodiques Résumé : U.S. guidelines for detecting autism emphasize screening and also incorporate clinical judgment. However, most research focuses on the former. Among 1,654 children participating in a multi-stage screening protocol for autism, we used mixed methods to evaluate: (1) the effectiveness of a clinical decision rule that encouraged further assessment based not only on positive screening results, but also on parent or provider concern, and (2) the influence of shared decision-making on screening administration. Referrals based on concern alone were cost-effective in the current study, and reported concerns were stronger predictors than positive screens of time-to-complete referrals. Qualitative analyses suggest a dynamic relationship between parents' concerns, providers' concerns, and screening results that is central to facilitating shared decision-making and influencing diagnostic assessment. En ligne : https://dx.doi.org/10.1007/s10803-019-03913-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention [Texte imprimé et/ou numérique] / R. C. SHELDRICK, Auteur ; E. FRENETTE, Auteur ; J. D. VERA, Auteur ; T. I. MACKIE, Auteur ; F. MARTÍNEZ-PEDRAZA, Auteur ; N. HOCH, Auteur ; A. EISENHOWER, Auteur ; A. FETTIG, Auteur ; Alice S. CARTER, Auteur . - p.2304-2319. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2304-2319 Mots-clés : Autism spectrum disorder  Costs  Decision-making  Process assessment  Screening Index. décimale : PER Périodiques Résumé : U.S. guidelines for detecting autism emphasize screening and also incorporate clinical judgment. However, most research focuses on the former. Among 1,654 children participating in a multi-stage screening protocol for autism, we used mixed methods to evaluate: (1) the effectiveness of a clinical decision rule that encouraged further assessment based not only on positive screening results, but also on parent or provider concern, and (2) the influence of shared decision-making on screening administration. Referrals based on concern alone were cost-effective in the current study, and reported concerns were stronger predictors than positive screens of time-to-complete referrals. Qualitative analyses suggest a dynamic relationship between parents' concerns, providers' concerns, and screening results that is central to facilitating shared decision-making and influencing diagnostic assessment. En ligne : https://dx.doi.org/10.1007/s10803-019-03913-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

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