"They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents / J. F. STRANG in Journal of Autism and Developmental Disorders, 48-12 (December 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4039-4055 Titre : "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents Type de document : Texte imprimé et/ou numérique Auteurs : J. F. STRANG, Auteur ; M. D. POWERS, Auteur ; M. KNAUSS, Auteur ; E. SIBARIUM, Auteur ; S. F. LEIBOWITZ, Auteur ; L. KENWORTHY, Auteur ; E. SADIKOVA, Auteur ; S. WYSS, Auteur ; L. WILLING, Auteur ; R. CAPLAN, Auteur ; N. PERVEZ, Auteur ; J. NOWAK, Auteur ; D. GOHARI, Auteur ; V. GOMEZ-LOBO, Auteur ; D. CALL, Auteur ; Laura G. ANTHONY, Auteur Article en page(s) : p.4039-4055 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Autistic  Gender dysphoria  Gender minority  Gender nonbinary  Gender-diverse  Neurodiversity  Transgender Index. décimale : PER Périodiques Résumé : Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals' perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities. En ligne : http://dx.doi.org/10.1007/s10803-018-3723-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] "They Thought It Was an Obsession": Trajectories and Perspectives of Autistic Transgender and Gender-Diverse Adolescents [Texte imprimé et/ou numérique] / J. F. STRANG, Auteur ; M. D. POWERS, Auteur ; M. KNAUSS, Auteur ; E. SIBARIUM, Auteur ; S. F. LEIBOWITZ, Auteur ; L. KENWORTHY, Auteur ; E. SADIKOVA, Auteur ; S. WYSS, Auteur ; L. WILLING, Auteur ; R. CAPLAN, Auteur ; N. PERVEZ, Auteur ; J. NOWAK, Auteur ; D. GOHARI, Auteur ; V. GOMEZ-LOBO, Auteur ; D. CALL, Auteur ; Laura G. ANTHONY, Auteur . - p.4039-4055. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-12 (December 2018) . - p.4039-4055 Mots-clés : Autism spectrum disorder  Autistic  Gender dysphoria  Gender minority  Gender nonbinary  Gender-diverse  Neurodiversity  Transgender Index. décimale : PER Périodiques Résumé : Despite research exploring autism in gender-diverse adolescents, no studies have elicited these individuals' perspectives. In-depth interviews with 22 well-characterized autistic gender-diverse adolescents revealed critical themes, including: recollections of pre-pubertal gender nonconformity; vivid experiences of gender dysphoria; a fear of social gender expression due to perceived animosity toward transgender people; and specific challenges that result from the interplay of gender diversity and neurodiversity. During the ~ 22 month study social gender affirmation increased in six participants and gender dysphoria attenuated in four participants. Given the ethical imperative to understand and prioritize the voiced perspectives and needs of autistic gender minority adolescents as well as the discovery of shared themes and experiences in this population, results should inform clinical research approaches and priorities. En ligne : http://dx.doi.org/10.1007/s10803-018-3723-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Unmet health care needs and health care quality in youth with autism spectrum disorder with and without intellectual disability / M. MENEZES in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2199-2208 Titre : Unmet health care needs and health care quality in youth with autism spectrum disorder with and without intellectual disability Type de document : Texte imprimé et/ou numérique Auteurs : M. MENEZES, Auteur ; M. F. ROBINSON, Auteur ; C. HARKINS, Auteur ; E. SADIKOVA, Auteur ; M. O. MAZUREK, Auteur Article en page(s) : p.2199-2208 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/complications/epidemiology/therapy  Autistic Disorder  Child  Comorbidity  Delivery of Health Care  Humans  Intellectual Disability/epidemiology/therapy  adolescents  autism spectrum disorders  health services  school-age children Index. décimale : PER Périodiques Résumé : The increase in the prevalence of autism spectrum disorder has placed greater demands on the health care system. Children and adolescents with autism spectrum disorder often experience challenges accessing high-quality physical and mental health care due to characteristic social-communication deficits and behavioral difficulties, as well as high rates of complex medical and psychiatric comorbidities. Intellectual disability commonly co-occurs with autism spectrum disorder and individuals affected by this co-occurrence may have additional impairments that compound challenges accessing health care. This study investigated the relations among co-occurring intellectual disability, unmet physical and mental health care needs, and health care quality in a large, nationally distributed sample of youth with autism spectrum disorder using structural equation modeling techniques. Co-occurring intellectual disability was significantly associated with unmet mental health care needs in children with autism. In addition, unmet mental health care needs mediated the relationship between co-occurring intellectual disability and health care quality; youth with autism spectrum disorder and co-occurring intellectual disability who had a past-year unmet mental health need had significantly poorer caregiver-reported health care quality. These findings suggest that youth with autism spectrum disorder and co-occurring intellectual disability may be more likely to experience unmet mental health care needs and receive poorer quality of care than the broader autism spectrum disorder population. En ligne : http://dx.doi.org/10.1177/13623613211014721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Unmet health care needs and health care quality in youth with autism spectrum disorder with and without intellectual disability [Texte imprimé et/ou numérique] / M. MENEZES, Auteur ; M. F. ROBINSON, Auteur ; C. HARKINS, Auteur ; E. SADIKOVA, Auteur ; M. O. MAZUREK, Auteur . - p.2199-2208. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2199-2208 Mots-clés : Adolescent  Autism Spectrum Disorder/complications/epidemiology/therapy  Autistic Disorder  Child  Comorbidity  Delivery of Health Care  Humans  Intellectual Disability/epidemiology/therapy  adolescents  autism spectrum disorders  health services  school-age children Index. décimale : PER Périodiques Résumé : The increase in the prevalence of autism spectrum disorder has placed greater demands on the health care system. Children and adolescents with autism spectrum disorder often experience challenges accessing high-quality physical and mental health care due to characteristic social-communication deficits and behavioral difficulties, as well as high rates of complex medical and psychiatric comorbidities. Intellectual disability commonly co-occurs with autism spectrum disorder and individuals affected by this co-occurrence may have additional impairments that compound challenges accessing health care. This study investigated the relations among co-occurring intellectual disability, unmet physical and mental health care needs, and health care quality in a large, nationally distributed sample of youth with autism spectrum disorder using structural equation modeling techniques. Co-occurring intellectual disability was significantly associated with unmet mental health care needs in children with autism. In addition, unmet mental health care needs mediated the relationship between co-occurring intellectual disability and health care quality; youth with autism spectrum disorder and co-occurring intellectual disability who had a past-year unmet mental health need had significantly poorer caregiver-reported health care quality. These findings suggest that youth with autism spectrum disorder and co-occurring intellectual disability may be more likely to experience unmet mental health care needs and receive poorer quality of care than the broader autism spectrum disorder population. En ligne : http://dx.doi.org/10.1177/13623613211014721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

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