Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder / Serene HABAYEB in Journal of Autism and Developmental Disorders, 50-1 (January 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.51-62 Titre : Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; Sarah DABABNAH, Auteur ; Aesha JOHN, Auteur ; Brendan RICH, Auteur Article en page(s) : p.51-62 Langues : Anglais (eng) Mots-clés : Acculturation  Arab American  Autism  Autism Spectrum Disorder  Middle Eastern  Stigma Index. décimale : PER Périodiques Résumé : Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families. En ligne : http://dx.doi.org/10.1007/s10803-019-04218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; Sarah DABABNAH, Auteur ; Aesha JOHN, Auteur ; Brendan RICH, Auteur . - p.51-62. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.51-62 Mots-clés : Acculturation  Arab American  Autism  Autism Spectrum Disorder  Middle Eastern  Stigma Index. décimale : PER Périodiques Résumé : Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families. En ligne : http://dx.doi.org/10.1007/s10803-019-04218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism / Sarah DABABNAH in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1300-1310 Titre : Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur ; B. J. BEAR, Auteur ; D. HUSSEIN, Auteur Article en page(s) : p.1300-1310 Langues : Anglais (eng) Mots-clés : Syria  Turkey  autism spectrum disorder  caregivers  interventions  refugee  teachers  trauma Index. décimale : PER Périodiques Résumé : Although the number of Syrians affected by the civil war rises, little work has been done to address the needs of Syrian refugee children with autism spectrum disorder. This research aimed to test the feasibility and acceptability of a culturally sensitive intervention developed specifically for children with autism spectrum disorder affected by trauma. Local partners advised the program team on cultural norms. Nine parents and 11 teachers were recruited to participate in 12-week parent-teacher cooperatives in a large Turkish city. We used qualitative methods to analyze interviews with each participant after intervention completion. A total of 14 participants completed the program (70%). All interviewees were women and Syrian refugees. Local political events, transportation costs and safety, and illnesses impacted attrition and attendance. All participants were satisfied with program content, including gains in autism knowledge, behavior management skills, and social support. Program-related challenges included applying skills to nonverbal children. The majority of participants made recommendations for program improvement, including a need for services outside urban areas. Flexible program delivery methods, including online options, might better accommodate participants unable to travel due to distance, political unrest, or safety. More research is needed to rigorously test program outcomes and to evaluate efforts to train local program leaders. En ligne : http://dx.doi.org/10.1177/1362361318805368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401 [article] Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism [Texte imprimé et/ou numérique] / Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur ; B. J. BEAR, Auteur ; D. HUSSEIN, Auteur . - p.1300-1310. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1300-1310 Mots-clés : Syria  Turkey  autism spectrum disorder  caregivers  interventions  refugee  teachers  trauma Index. décimale : PER Périodiques Résumé : Although the number of Syrians affected by the civil war rises, little work has been done to address the needs of Syrian refugee children with autism spectrum disorder. This research aimed to test the feasibility and acceptability of a culturally sensitive intervention developed specifically for children with autism spectrum disorder affected by trauma. Local partners advised the program team on cultural norms. Nine parents and 11 teachers were recruited to participate in 12-week parent-teacher cooperatives in a large Turkish city. We used qualitative methods to analyze interviews with each participant after intervention completion. A total of 14 participants completed the program (70%). All interviewees were women and Syrian refugees. Local political events, transportation costs and safety, and illnesses impacted attrition and attendance. All participants were satisfied with program content, including gains in autism knowledge, behavior management skills, and social support. Program-related challenges included applying skills to nonverbal children. The majority of participants made recommendations for program improvement, including a need for services outside urban areas. Flexible program delivery methods, including online options, might better accommodate participants unable to travel due to distance, political unrest, or safety. More research is needed to rigorously test program outcomes and to evaluate efforts to train local program leaders. En ligne : http://dx.doi.org/10.1177/1362361318805368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401

Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children / Azeb ATARO ADERE in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3899-3907 Titre : Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children Type de document : Texte imprimé et/ou numérique Auteurs : Azeb ATARO ADERE, Auteur ; Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur Article en page(s) : p.3899-3907 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Collectively, Ethiopians and Eritreans represent one of the largest African immigrant groups in the US, yet no research to date exists on families from these communities raising autistic children. The purpose of our study was to examine the experiences of Ethiopian and Eritrean families of autistic children including experiences (1) receiving the autism diagnosis and interacting with healthcare providers, (2) obtaining services and supports for children (including satisfaction with services and barriers to care), and (3) accessing services and supports for caregivers and families (including needs and barriers to care). Ethiopian and Eritrean parents (N = 51) raising autistic children in the US completed an online survey. Parents reported limited prior knowledge of autism within their communities and had varied experiences with healthcare providers through the diagnostic process. They endorsed barriers to accessing care for their child and family supports (such as provider shortages and cost of services), service needs, and dissatisfaction with school-based and behavioral supports. Many parents reported a negative impact on workforce participation in order to meet their child?s needs. Parents identified needs that would benefit their autistic children and families, such as accessible support groups to obtain relevant information. To our knowledge, this is the first systematic study exploring the experiences of Ethiopian and Eritrean families raising autistic children in the US. We discuss implications of our findings and recommendations for culturally responsive care. En ligne : https://doi.org/10.1007/s10803-023-06102-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536 [article] Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children [Texte imprimé et/ou numérique] / Azeb ATARO ADERE, Auteur ; Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur . - p.3899-3907. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-10 (October 2024) . - p.3899-3907 Index. décimale : PER Périodiques Résumé : Collectively, Ethiopians and Eritreans represent one of the largest African immigrant groups in the US, yet no research to date exists on families from these communities raising autistic children. The purpose of our study was to examine the experiences of Ethiopian and Eritrean families of autistic children including experiences (1) receiving the autism diagnosis and interacting with healthcare providers, (2) obtaining services and supports for children (including satisfaction with services and barriers to care), and (3) accessing services and supports for caregivers and families (including needs and barriers to care). Ethiopian and Eritrean parents (N = 51) raising autistic children in the US completed an online survey. Parents reported limited prior knowledge of autism within their communities and had varied experiences with healthcare providers through the diagnostic process. They endorsed barriers to accessing care for their child and family supports (such as provider shortages and cost of services), service needs, and dissatisfaction with school-based and behavioral supports. Many parents reported a negative impact on workforce participation in order to meet their child?s needs. Parents identified needs that would benefit their autistic children and families, such as accessible support groups to obtain relevant information. To our knowledge, this is the first systematic study exploring the experiences of Ethiopian and Eritrean families raising autistic children in the US. We discuss implications of our findings and recommendations for culturally responsive care. En ligne : https://doi.org/10.1007/s10803-023-06102-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=536

Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming / Serene HABAYEB in Autism, 26-1 (January 2022)  

Public ISBD [article]  inAutism > 26-1 (January 2022) . - p.88-100 Titre : Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur Article en page(s) : p.88-100 Langues : Anglais (eng) Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Meeting the needs of autistic adults in Qatar: Stakeholder perspectives on gaps in services and priorities for future programming [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; S. AL-HARAHSHEH, Auteur ; Allison B. RATTO, Auteur ; A. VERBALIS, Auteur ; C. PUGLIESE, Auteur ; N. NADWODNY, Auteur ; F. AL-MEER, Auteur ; M. EL-AKOUM, Auteur . - p.88-100. Langues : Anglais (eng) in Autism > 26-1 (January 2022) . - p.88-100 Mots-clés : Qatar  adolescents  adults  autism spectrum disorders  family functioning and support  quality of life  vocational/labor force participation Index. décimale : PER Périodiques Résumé : Qatar is expanding the services that it offers for autistic people, but these services focus mainly on diagnosing and treating young children. Because there are not enough autism providers in Qatar and few opportunities for autistic youth to participate in the community, more and more autistic teens and young adults have unmet needs during their transition to adulthood. The goal of this study was to conduct a needs assessment of transition-age autistic youth in Qatar and their families in order to inform the development of an adult respite care and support center. Respite care is a service that provides families with stress relief and time to participate in activities that are more difficult to do when their loved one with a disability is with them. The objective of this study was to use family and stakeholder input to identify the needs and preferences for respite care for autistic youth in Qatar. The project was conducted with a local research team in Qatar and a team of clinical researchers in the United States specializing in autism. Stakeholders, including parents of autistic people and providers working with individuals with autism, completed surveys and participated in focus groups. Families and providers in Qatar were very interested increasing services for young adults with autism to improve quality of life, although wanted to make sure the service providers would be reliable and trustworthy. Implications from this study may substantially improve the lives of autistic adults in Qatar. En ligne : http://dx.doi.org/10.1177/13623613211020623 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Short report: Integrated evaluations for autism spectrum disorder in pediatric primary care clinics / Serene HABAYEB in Autism, 29-1 (January 2025)  

Public ISBD [article]  inAutism > 29-1 (January 2025) . - p.259-264 Titre : Short report: Integrated evaluations for autism spectrum disorder in pediatric primary care clinics Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; Anne INGE, Auteur ; Erica EISENMAN, Auteur ; Sheina GODOVICH, Auteur ; Maria LAUER, Auteur ; Amanda HASTINGS, Auteur ; Vanessa FUENTES, Auteur ; Melissa LONG, Auteur ; Xavier MARSHALL, Auteur ; Alexis KHUU, Auteur ; Leandra GODOY, Auteur Article en page(s) : p.259-264 Langues : Anglais (eng) Mots-clés : autism  integrated primary care Index. décimale : PER Périodiques Résumé : Primary care providers are often the first to identify concerns for autism through routine screening in the first 2 years of life. However, most children do not receive a diagnosis until years later resulting in delays accessing appropriate intervention. Delays in diagnosis disproportionately impact those who are otherwise disadvantaged by society based on race or socioeconomic status. Embedding mental health clinicians into primary care clinics offers a promising opportunity to address barriers to accessing diagnostic and intervention services once primary care providers identify concerns. The goal of this study was to assess the Autism in Primary Care program through which embedded mental health professionals in an urban primary care setting, primarily serving Black and Latinx families with Medicaid, were trained to provide autism diagnostic evaluations. Two hundred and fifty children completed evaluations through Autism in Primary Care program. Wait times to access evaluations in primary care were found to be significantly shorter than through standard avenues of care (e.g. tertiary care clinics). Referring primary care providers and caregivers endorsed high levels of satisfaction with the program. Embedding autism evaluations into primary care settings offers a promising opportunity to improve earlier diagnosis and treatment access for families, reduce inequities in care, and increase caregiver and child well-being.Lay abstractPrimary care providers often screen for autism during well child visits in the first few years of life and refer children for diagnostic evaluations when needed. However, most children do not receive a diagnosis until years later which delays access to services. Racism, socioeconomic status, and other systemic inequalities that limit access to health care further delay diagnostic evaluations. Mental health clinicians who work in primary care clinics can help address barriers to accessing diagnostic evaluation services once they are recommended by their primary care provider. However, mental health clinicians who work in primary care typically do not have training in diagnosing autism. The goal of this study was to evaluate a program training mental health professionals working in an urban primary care setting, primarily serving Black and Latinx families insured by Medicaid, to provide autism diagnostic evaluations. Two hundred and fifty children completed evaluations through the Autism in Primary Care (APC) program. The wait time to access an evaluation through APC was significantly shorter than through standard avenues of care (e.g. referring to a separate autism clinic). Referring primary care providers and caregivers endorsed high levels of satisfaction with the program. Conducting autism evaluations in primary care settings offers a promising opportunity to improve earlier diagnosis and treatment access for families, reduce inequities in care, and increase caregiver and child well-being. En ligne : https://dx.doi.org/10.1177/13623613241260800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544 [article] Short report: Integrated evaluations for autism spectrum disorder in pediatric primary care clinics [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; Anne INGE, Auteur ; Erica EISENMAN, Auteur ; Sheina GODOVICH, Auteur ; Maria LAUER, Auteur ; Amanda HASTINGS, Auteur ; Vanessa FUENTES, Auteur ; Melissa LONG, Auteur ; Xavier MARSHALL, Auteur ; Alexis KHUU, Auteur ; Leandra GODOY, Auteur . - p.259-264. Langues : Anglais (eng) in Autism > 29-1 (January 2025) . - p.259-264 Mots-clés : autism  integrated primary care Index. décimale : PER Périodiques Résumé : Primary care providers are often the first to identify concerns for autism through routine screening in the first 2 years of life. However, most children do not receive a diagnosis until years later resulting in delays accessing appropriate intervention. Delays in diagnosis disproportionately impact those who are otherwise disadvantaged by society based on race or socioeconomic status. Embedding mental health clinicians into primary care clinics offers a promising opportunity to address barriers to accessing diagnostic and intervention services once primary care providers identify concerns. The goal of this study was to assess the Autism in Primary Care program through which embedded mental health professionals in an urban primary care setting, primarily serving Black and Latinx families with Medicaid, were trained to provide autism diagnostic evaluations. Two hundred and fifty children completed evaluations through Autism in Primary Care program. Wait times to access evaluations in primary care were found to be significantly shorter than through standard avenues of care (e.g. tertiary care clinics). Referring primary care providers and caregivers endorsed high levels of satisfaction with the program. Embedding autism evaluations into primary care settings offers a promising opportunity to improve earlier diagnosis and treatment access for families, reduce inequities in care, and increase caregiver and child well-being.Lay abstractPrimary care providers often screen for autism during well child visits in the first few years of life and refer children for diagnostic evaluations when needed. However, most children do not receive a diagnosis until years later which delays access to services. Racism, socioeconomic status, and other systemic inequalities that limit access to health care further delay diagnostic evaluations. Mental health clinicians who work in primary care clinics can help address barriers to accessing diagnostic evaluation services once they are recommended by their primary care provider. However, mental health clinicians who work in primary care typically do not have training in diagnosing autism. The goal of this study was to evaluate a program training mental health professionals working in an urban primary care setting, primarily serving Black and Latinx families insured by Medicaid, to provide autism diagnostic evaluations. Two hundred and fifty children completed evaluations through the Autism in Primary Care (APC) program. The wait time to access an evaluation through APC was significantly shorter than through standard avenues of care (e.g. referring to a separate autism clinic). Referring primary care providers and caregivers endorsed high levels of satisfaction with the program. Conducting autism evaluations in primary care settings offers a promising opportunity to improve earlier diagnosis and treatment access for families, reduce inequities in care, and increase caregiver and child well-being. En ligne : https://dx.doi.org/10.1177/13623613241260800 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=544

Still Left Behind: Fewer Black School-Aged Youth Receive ASD Diagnoses Compared to White Youth / Serene HABAYEB in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

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Visual Traces of Language Acquisition in Toddlers with Autism Spectrum Disorder During the Second Year of Life / Serene HABAYEB in Journal of Autism and Developmental Disorders, 51-7 (July 2021)  

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