Are the diagnostic rates of autistic females increasing? An examination of state-wide trends / Brianne TOMASZEWSKI ; Orla C. PUTNAM ; Claire B. KLEIN ; Elena LAMARCHE ; Laura G. KLINGER in Journal of Child Psychology and Psychiatry, 65-7 (July 2024)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 65-7 (July 2024) . - p.973-983 Titre : Are the diagnostic rates of autistic females increasing? An examination of state-wide trends Type de document : texte imprimé Auteurs : Brianne TOMASZEWSKI, Auteur ; Orla C. PUTNAM, Auteur ; Claire B. KLEIN, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur Article en page(s) : p.973-983 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Autism has been considered a 'male-dominant' condition. However, recent research suggests that autistic females are underdiagnosed, misdiagnosed, and later diagnosed. Females may also have different and more nuanced behavioral profiles. To examine diagnosis rates of females, we used 20 years of state-wide data to characterize historical trends in the diagnosis of autism in females to determine whether the proportion of females diagnosed with autism has changed over time. Methods Data were drawn from 10,247 participants (males = 8,319, females = 1928) who received an autism diagnosis between 2000 and 2021 from state-wide autism centers associated with the University of North Carolina TEACCH Autism Program. Results The rates of females diagnosed with autism increased at a greater rate compared with males. Age of diagnosis remained consistently higher for females. Late diagnosis (defined as 13+) increased over time across both males and females, however, was more commonly associated with females, particularly those with co-occurring intellectual disability. Conclusions Our results indicate that the proportion of females diagnosed with autism has increased steadily over a 20-year period, which likely reflects greater societal knowledge of how autism may manifest differentially in females. En ligne : https://doi.org/10.1111/jcpp.13939 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532 [article] Are the diagnostic rates of autistic females increasing? An examination of state-wide trends [texte imprimé] / Brianne TOMASZEWSKI, Auteur ; Orla C. PUTNAM, Auteur ; Claire B. KLEIN, Auteur ; Elena LAMARCHE, Auteur ; Laura G. KLINGER, Auteur . - p.973-983. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 65-7 (July 2024) . - p.973-983 Index. décimale : PER Périodiques Résumé : Background Autism has been considered a 'male-dominant' condition. However, recent research suggests that autistic females are underdiagnosed, misdiagnosed, and later diagnosed. Females may also have different and more nuanced behavioral profiles. To examine diagnosis rates of females, we used 20 years of state-wide data to characterize historical trends in the diagnosis of autism in females to determine whether the proportion of females diagnosed with autism has changed over time. Methods Data were drawn from 10,247 participants (males = 8,319, females = 1928) who received an autism diagnosis between 2000 and 2021 from state-wide autism centers associated with the University of North Carolina TEACCH Autism Program. Results The rates of females diagnosed with autism increased at a greater rate compared with males. Age of diagnosis remained consistently higher for females. Late diagnosis (defined as 13+) increased over time across both males and females, however, was more commonly associated with females, particularly those with co-occurring intellectual disability. Conclusions Our results indicate that the proportion of females diagnosed with autism has increased steadily over a 20-year period, which likely reflects greater societal knowledge of how autism may manifest differentially in females. En ligne : https://doi.org/10.1111/jcpp.13939 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=532

Brief Report: Examining Test-Retest Reliability of the Autism Diagnostic Observation Schedule (ADOS-2) Calibrated Severity Scores (CSS) / Denisse JANVIER in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1388-1394 Titre : Brief Report: Examining Test-Retest Reliability of the Autism Diagnostic Observation Schedule (ADOS-2) Calibrated Severity Scores (CSS) Type de document : texte imprimé Auteurs : Denisse JANVIER, Auteur ; Yeo Bi CHOI, Auteur ; Claire B. KLEIN, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur Article en page(s) : p.1388-1394 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Language  Reproducibility of Results  Ados css  Autism spectrum disorder  Test-retest reliability  Treatment outcomes Index. décimale : PER Périodiques Résumé : Describing the relative severity and change in autism symptoms is crucial for the appropriate characterization of clinical and research populations. The calibrated severity score (CSS) of the Autism Diagnostic Observation Schedule-2 (ADOS-2; Lord et al., 2012) was created to better describe autism symptom severity consistently across different ages and language levels. The CSS has been widely used to quantify and compare symptom severity on a 10-point scale across Modules; however, its test re-test reliability has not been studied. With 608 ADOS observations, we showed strong test re-test reliability of the CSS across all ADOS Modules. The results support the use of the ADOS CSS as a reliable tool to quantify autism symptom severity across development. En ligne : http://dx.doi.org/10.1007/s10803-021-04952-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Brief Report: Examining Test-Retest Reliability of the Autism Diagnostic Observation Schedule (ADOS-2) Calibrated Severity Scores (CSS) [texte imprimé] / Denisse JANVIER, Auteur ; Yeo Bi CHOI, Auteur ; Claire B. KLEIN, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur . - p.1388-1394. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1388-1394 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Humans  Language  Reproducibility of Results  Ados css  Autism spectrum disorder  Test-retest reliability  Treatment outcomes Index. décimale : PER Périodiques Résumé : Describing the relative severity and change in autism symptoms is crucial for the appropriate characterization of clinical and research populations. The calibrated severity score (CSS) of the Autism Diagnostic Observation Schedule-2 (ADOS-2; Lord et al., 2012) was created to better describe autism symptom severity consistently across different ages and language levels. The CSS has been widely used to quantify and compare symptom severity on a 10-point scale across Modules; however, its test re-test reliability has not been studied. With 608 ADOS observations, we showed strong test re-test reliability of the CSS across all ADOS Modules. The results support the use of the ADOS CSS as a reliable tool to quantify autism symptom severity across development. En ligne : http://dx.doi.org/10.1007/s10803-021-04952-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Easing the Transition to Adulthood / Laura G. KLINGER ; Glenna OSBORNE ; Claire B. KLEIN ; Debbie SPAIN ; Francisco M. MUSICH ; Susan W. WHITE

Public ISBD in Psychological Therapies for Adults with Autism / Debbie SPAIN Titre : Easing the Transition to Adulthood Type de document : texte imprimé Auteurs : Laura G. KLINGER, Auteur ; Glenna OSBORNE, Auteur ; Claire B. KLEIN, Auteur ; Debbie SPAIN, Auteur ; Francisco M. MUSICH, Auteur ; Susan W. WHITE, Auteur Année de publication : 2022 Importance : p.31-49 Langues : Anglais (eng) Index. décimale : AUT-E AUT-E - L'Autisme - Accompagnement et Qualité de Vie Résumé : The majority of autistic adolescents transitioning to adulthood have average (or higher) intellectual skills. However, outcome research suggests that even those who earn general education high school diplomas struggle with a successful transition from school to postsecondary and employment settings. This chapter reviews the autism-specific challenges that may lead to poor postsecondary and employment outcomes including executive functioning, emotion regulation, social skills, adaptive behavior, and self-determination. While there are few randomized control trials providing an evidence base for transition interventions, there are a growing number of pilot programs targeting these skills. This chapter reviews the current literature and provides a case study outlining the challenges faced by autistic transition-aged youth. Additionally, future recommendations are provided for creating comprehensive transition programs, capitalizing on recent United States federal government mandates for transition-aged services. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527 in Psychological Therapies for Adults with Autism / Debbie SPAIN Easing the Transition to Adulthood [texte imprimé] / Laura G. KLINGER, Auteur ; Glenna OSBORNE, Auteur ; Claire B. KLEIN, Auteur ; Debbie SPAIN, Auteur ; Francisco M. MUSICH, Auteur ; Susan W. WHITE, Auteur . - 2022 . - p.31-49. Langues : Anglais (eng) Index. décimale : AUT-E AUT-E - L'Autisme - Accompagnement et Qualité de Vie Résumé : The majority of autistic adolescents transitioning to adulthood have average (or higher) intellectual skills. However, outcome research suggests that even those who earn general education high school diplomas struggle with a successful transition from school to postsecondary and employment settings. This chapter reviews the autism-specific challenges that may lead to poor postsecondary and employment outcomes including executive functioning, emotion regulation, social skills, adaptive behavior, and self-determination. While there are few randomized control trials providing an evidence base for transition interventions, there are a growing number of pilot programs targeting these skills. This chapter reviews the current literature and provides a case study outlining the challenges faced by autistic transition-aged youth. Additionally, future recommendations are provided for creating comprehensive transition programs, capitalizing on recent United States federal government mandates for transition-aged services. Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527

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Quantifying Caregiver Change Across Early Autism Interventions Using the Measure of NDBI Strategy Implementation: Caregiver Change (MONSI-CC) / Bethany A. VIBERT in Journal of Autism and Developmental Disorders, 50-4 (April 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1364-1379 Titre : Quantifying Caregiver Change Across Early Autism Interventions Using the Measure of NDBI Strategy Implementation: Caregiver Change (MONSI-CC) Type de document : texte imprimé Auteurs : Bethany A. VIBERT, Auteur ; Sarah DUFEK, Auteur ; Claire B. KLEIN, Auteur ; Yeo Bi CHOI, Auteur ; Jamie WINTER, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur Article en page(s) : p.1364-1379 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Early intervention  Ndbi  Outcome measure  Parent-mediated intervention Index. décimale : PER Périodiques Résumé : This study aimed to provide initial validity and reliability of the Measure of NDBI Strategy Implementation-Caregiver Change (MONSI-CC), a novel measure that captures changes in caregivers' implementation of NDBI strategies during early intervention. The MONSI-CC was applied to 119 observations of 43 caregiver-child dyads of preschoolers with autism spectrum disorders (ASD). The MONSI-CC showed high inter-rater and test-retest reliability and captured significant improvements in caregivers' implementation of NDBI strategies. Significant associations between improvements in caregiver NDBI implementation and improvements in the child's ASD symptoms also emerged. Our work shows promising evidence for the utility of the MONSI-CC to evaluate implementation of NDBI strategies by caregivers as a mediating and moderating factor for treatment effects on children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04342-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Quantifying Caregiver Change Across Early Autism Interventions Using the Measure of NDBI Strategy Implementation: Caregiver Change (MONSI-CC) [texte imprimé] / Bethany A. VIBERT, Auteur ; Sarah DUFEK, Auteur ; Claire B. KLEIN, Auteur ; Yeo Bi CHOI, Auteur ; Jamie WINTER, Auteur ; Catherine LORD, Auteur ; So Hyun KIM, Auteur . - p.1364-1379. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1364-1379 Mots-clés : Autism spectrum disorder  Early intervention  Ndbi  Outcome measure  Parent-mediated intervention Index. décimale : PER Périodiques Résumé : This study aimed to provide initial validity and reliability of the Measure of NDBI Strategy Implementation-Caregiver Change (MONSI-CC), a novel measure that captures changes in caregivers' implementation of NDBI strategies during early intervention. The MONSI-CC was applied to 119 observations of 43 caregiver-child dyads of preschoolers with autism spectrum disorders (ASD). The MONSI-CC showed high inter-rater and test-retest reliability and captured significant improvements in caregivers' implementation of NDBI strategies. Significant associations between improvements in caregiver NDBI implementation and improvements in the child's ASD symptoms also emerged. Our work shows promising evidence for the utility of the MONSI-CC to evaluate implementation of NDBI strategies by caregivers as a mediating and moderating factor for treatment effects on children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-019-04342-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

Self-reported cognitive decline among middle and older age autistic adults / Claire B. KLEIN in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.605-616 Titre : Self-reported cognitive decline among middle and older age autistic adults Type de document : texte imprimé Auteurs : Claire B. KLEIN, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Laura G. KLINGER, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.605-616 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Very little is known about autistic adults as they age. Early evidence suggests a potentially high risk for dementia and atypical cognitive decline in autistic middle and older age adults. Research in the general population indicates that self-reported cognitive decline may predict future dementia earlier than performance-based measures. Nevertheless, self-report dementia screeners have not been used to date in autism research. In a sample of middle and older age autistic adults (N = 210), participants completed a self-rated dementia screener, the AD8, to describe the rate of cognitive decline, examine associations of cognitive decline with age, educational level, sex designated at birth, and autistic traits, and document the psychometrics of a dementia screener in autistic adults. We found high rates of cognitive decline with 30% of the sample screening positive. The most common symptoms were declining interest in leisure activities, and increases in everyday problems with thinking, memory, and judgment. There was evidence that autistic individuals designated female at birth may be more vulnerable to cognitive decline than autistic individuals designated male at birth. Notably, reports of cognitive decline did not vary by age or educational level. Modestly elevated autistic traits were found in those screening positive versus negative for cognitive decline. Finally, the dementia screener showed good psychometrics, including convergent validity with an independent measure of current memory problems. These results could signal an emerging public health crisis in autistic adults as they age, and support the potential utility of self-report measures for early screening for cognitive decline in this population. En ligne : https://doi.org/10.1002/aur.2877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] Self-reported cognitive decline among middle and older age autistic adults [texte imprimé] / Claire B. KLEIN, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Laura G. KLINGER, Auteur ; Gregory L. WALLACE, Auteur . - p.605-616. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.605-616 Index. décimale : PER Périodiques Résumé : Abstract Very little is known about autistic adults as they age. Early evidence suggests a potentially high risk for dementia and atypical cognitive decline in autistic middle and older age adults. Research in the general population indicates that self-reported cognitive decline may predict future dementia earlier than performance-based measures. Nevertheless, self-report dementia screeners have not been used to date in autism research. In a sample of middle and older age autistic adults (N = 210), participants completed a self-rated dementia screener, the AD8, to describe the rate of cognitive decline, examine associations of cognitive decline with age, educational level, sex designated at birth, and autistic traits, and document the psychometrics of a dementia screener in autistic adults. We found high rates of cognitive decline with 30% of the sample screening positive. The most common symptoms were declining interest in leisure activities, and increases in everyday problems with thinking, memory, and judgment. There was evidence that autistic individuals designated female at birth may be more vulnerable to cognitive decline than autistic individuals designated male at birth. Notably, reports of cognitive decline did not vary by age or educational level. Modestly elevated autistic traits were found in those screening positive versus negative for cognitive decline. Finally, the dementia screener showed good psychometrics, including convergent validity with an independent measure of current memory problems. These results could signal an emerging public health crisis in autistic adults as they age, and support the potential utility of self-report measures for early screening for cognitive decline in this population. En ligne : https://doi.org/10.1002/aur.2877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

Suicide risk in transition-aged autistic youth: The link among executive function, depression, and autistic traits / Brianne TOMASZEWSKI ; Elena LAMARCHE ; Karrah BOWMAN ; Claire B. KLEIN ; Sara STAHL ; Laura G. KLINGER in Autism, 28-9 (September 2024)  

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