An initial trial of OPT-In-Early: An online training program for caregivers of autistic children / Yael G. DAI in Autism, 27-6 (August 2023)  

Public ISBD [article]  inAutism > 27-6 (August 2023) . - p.1601-1615 Titre : An initial trial of OPT-In-Early: An online training program for caregivers of autistic children Type de document : texte imprimé Auteurs : Yael G. DAI, Auteur ; Rebecca P THOMAS, Auteur ; Lynn BRENNAN, Auteur ; My-Linh LUU, Auteur ; Jamie HUGHES-LIKA, Auteur ; Molly REILLY, Auteur ; Paula MORENO, Auteur ; Brenda OBE, Auteur ; Kelli B AHMED, Auteur ; Leandra N. BERRY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Molly S HELT, Auteur ; Marianne L. BARTON, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diana L ROBINS, Auteur ; Deborah A. FEIN, Auteur Article en page(s) : p.1601-1615 Langues : Anglais (eng) Mots-clés : autistic;online training;parent training;self-directed;telehealth Index. décimale : PER Périodiques Résumé : Online Parent Training in Early Behavioral Intervention (OPT-In-Early) is a self-directed resource for caregivers of autistic children. Sixty-three parent-child dyads from three states in were randomized to the OPT-In-Early or treatment as usual group. Parents in both groups completed baseline and post-treatment visits, which were targeted for 4 months apart but allowed to go up to 6 months. Compared to parents in the treatment as usual group, parents randomized to OPT-In-Early learned more evidence-based intervention principles from baseline to post-treatment and were rated by observers blind to group and time as increasing their use of these strategies during brief semi-structured interactions with their children. Parent participation in OPT-In-Early did not significantly influence children s social communication as coded from one observation session. Results suggest that parents acquired knowledge and skills in intervention techniques from OPT-In-Early. Longer trials may be needed for gains in child behavior.Lay abstractEarly intervention can help children learn language and improve social communication. However, many barriers, including the expense of services and an insufficient number of providers, prohibit families from accessing services when their children are young. We developed a comprehensive online program for caregivers of autistic children. The program, Online Parent Training in Early Behavioral Intervention (OPT-In-Early), uses text and video demonstrations to teach caregivers effective methods for improving their children s language, social, and adaptive skills (e.g. using utensils, toilet training), and reducing their children s disruptive behavior. Sixty-three parents from three states participated in the study. Half of the parents received access to the OPT-In-Early program. After 4 months, parents who had access to the OPT-In-Early program learned more effective intervention strategies, and started using these strategies during interactions with their children, than parents who did not receive access to the program. Parent participation in OPT-In-Early did not significantly influence children s social communication compared to children whose parents did not have access to OPT-In-Early. A longer duration of parents using learned intervention skills with their children may be needed for children s social communication skills to improve. En ligne : http://dx.doi.org/10.1177/13623613221142408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] An initial trial of OPT-In-Early: An online training program for caregivers of autistic children [texte imprimé] / Yael G. DAI, Auteur ; Rebecca P THOMAS, Auteur ; Lynn BRENNAN, Auteur ; My-Linh LUU, Auteur ; Jamie HUGHES-LIKA, Auteur ; Molly REILLY, Auteur ; Paula MORENO, Auteur ; Brenda OBE, Auteur ; Kelli B AHMED, Auteur ; Leandra N. BERRY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Molly S HELT, Auteur ; Marianne L. BARTON, Auteur ; Thyde DUMONT-MATHIEU, Auteur ; Diana L ROBINS, Auteur ; Deborah A. FEIN, Auteur . - p.1601-1615. Langues : Anglais (eng) in Autism > 27-6 (August 2023) . - p.1601-1615 Mots-clés : autistic;online training;parent training;self-directed;telehealth Index. décimale : PER Périodiques Résumé : Online Parent Training in Early Behavioral Intervention (OPT-In-Early) is a self-directed resource for caregivers of autistic children. Sixty-three parent-child dyads from three states in were randomized to the OPT-In-Early or treatment as usual group. Parents in both groups completed baseline and post-treatment visits, which were targeted for 4 months apart but allowed to go up to 6 months. Compared to parents in the treatment as usual group, parents randomized to OPT-In-Early learned more evidence-based intervention principles from baseline to post-treatment and were rated by observers blind to group and time as increasing their use of these strategies during brief semi-structured interactions with their children. Parent participation in OPT-In-Early did not significantly influence children s social communication as coded from one observation session. Results suggest that parents acquired knowledge and skills in intervention techniques from OPT-In-Early. Longer trials may be needed for gains in child behavior.Lay abstractEarly intervention can help children learn language and improve social communication. However, many barriers, including the expense of services and an insufficient number of providers, prohibit families from accessing services when their children are young. We developed a comprehensive online program for caregivers of autistic children. The program, Online Parent Training in Early Behavioral Intervention (OPT-In-Early), uses text and video demonstrations to teach caregivers effective methods for improving their children s language, social, and adaptive skills (e.g. using utensils, toilet training), and reducing their children s disruptive behavior. Sixty-three parents from three states participated in the study. Half of the parents received access to the OPT-In-Early program. After 4 months, parents who had access to the OPT-In-Early program learned more effective intervention strategies, and started using these strategies during interactions with their children, than parents who did not receive access to the program. Parent participation in OPT-In-Early did not significantly influence children s social communication compared to children whose parents did not have access to OPT-In-Early. A longer duration of parents using learned intervention skills with their children may be needed for children s social communication skills to improve. En ligne : http://dx.doi.org/10.1177/13623613221142408 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication / LeeAnne GREEN SNYDER in Journal of Autism and Developmental Disorders, 46-8 (August 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2734-2748 Titre : Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication Type de document : texte imprimé Auteurs : LeeAnne GREEN SNYDER, Auteur ; Debra D’ANGELO, Auteur ; Qixuan CHEN, Auteur ; Raphael A. BERNIER, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Arianne S. WALLACE, Auteur ; Jennifer GERDTS, Auteur ; Stephen M. KANNE, Auteur ; Leandra N. BERRY, Auteur ; Lisa BLASKEY, Auteur ; Emily KUSCHNER, Auteur ; Timothy ROBERTS, Auteur ; Elliot SHERR, Auteur ; Christa L. MARTIN, Auteur ; David H. LEDBETTER, Auteur ; John E. SPIRO, Auteur ; Wendy K. CHUNG, Auteur ; Ellen HANSON, Auteur Article en page(s) : p.2734-2748 Langues : Anglais (eng) Mots-clés : 16p11.2 duplication  Genetics  Neuropsychological  Autism  Intellectual disability  Cognitive Index. décimale : PER Périodiques Résumé : The 16p11.2 duplication (BP4–BP5) is associated with Autism Spectrum Disorder (ASD), although significant heterogeneity exists. Quantitative ASD, behavioral and neuropsychological measures and DSM-IV diagnoses in child and adult carriers were compared with familial non-carrier controls, and to published results from deletion carriers. The 16p11.2 duplication phenotype ranges widely from asymptomatic presentation to significant disability. The most common diagnoses were intellectual disability, motor delays and Attention Deficit Hyperactivity Disorder in children, and anxiety in adults. ASD occurred in nearly 20 % of child cases, but a majority of carriers did not show the unique social features of ASD. The 16p11.2 duplication phenotype is characterized by wider variability than the reciprocal deletion, likely reflecting contributions from additional risk factors. En ligne : http://dx.doi.org/10.1007/s10803-016-2807-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291 [article] Autism Spectrum Disorder, Developmental and Psychiatric Features in 16p11.2 Duplication [texte imprimé] / LeeAnne GREEN SNYDER, Auteur ; Debra D’ANGELO, Auteur ; Qixuan CHEN, Auteur ; Raphael A. BERNIER, Auteur ; Robin P. GOIN-KOCHEL, Auteur ; Arianne S. WALLACE, Auteur ; Jennifer GERDTS, Auteur ; Stephen M. KANNE, Auteur ; Leandra N. BERRY, Auteur ; Lisa BLASKEY, Auteur ; Emily KUSCHNER, Auteur ; Timothy ROBERTS, Auteur ; Elliot SHERR, Auteur ; Christa L. MARTIN, Auteur ; David H. LEDBETTER, Auteur ; John E. SPIRO, Auteur ; Wendy K. CHUNG, Auteur ; Ellen HANSON, Auteur . - p.2734-2748. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2734-2748 Mots-clés : 16p11.2 duplication  Genetics  Neuropsychological  Autism  Intellectual disability  Cognitive Index. décimale : PER Périodiques Résumé : The 16p11.2 duplication (BP4–BP5) is associated with Autism Spectrum Disorder (ASD), although significant heterogeneity exists. Quantitative ASD, behavioral and neuropsychological measures and DSM-IV diagnoses in child and adult carriers were compared with familial non-carrier controls, and to published results from deletion carriers. The 16p11.2 duplication phenotype ranges widely from asymptomatic presentation to significant disability. The most common diagnoses were intellectual disability, motor delays and Attention Deficit Hyperactivity Disorder in children, and anxiety in adults. ASD occurred in nearly 20 % of child cases, but a majority of carriers did not show the unique social features of ASD. The 16p11.2 duplication phenotype is characterized by wider variability than the reciprocal deletion, likely reflecting contributions from additional risk factors. En ligne : http://dx.doi.org/10.1007/s10803-016-2807-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=291

Brief measures of anxiety in non-treatment-seeking youth with autism spectrum disorder / Connor M. KERNS in Autism, 19-8 (November 2015)  

Public ISBD [article]  inAutism > 19-8 (November 2015) . - p.969-979 Titre : Brief measures of anxiety in non-treatment-seeking youth with autism spectrum disorder Type de document : texte imprimé Auteurs : Connor M. KERNS, Auteur ; Brenna B. MADDOX, Auteur ; Philip C. KENDALL, Auteur ; Keiran RUMP, Auteur ; Leandra N. BERRY, Auteur ; Robert T. SCHULTZ, Auteur ; Margaret C. SOUDERS, Auteur ; Amanda E. BENNETT, Auteur ; John HERRINGTON, Auteur ; Judith MILLER, Auteur Article en page(s) : p.969-979 Langues : Anglais (eng) Mots-clés : adolescent  anxiety  child  measures  sensitivity  specificity Index. décimale : PER Périodiques Résumé : This study investigated the accuracy of brief anxiety scales for non-treatment-seeking youth with autism spectrum disorder. In all, 54 youth (7–17 years; IQ: 67–158) with autism spectrum disorder and their parents completed (a) an expanded version of the Anxiety Disorders Interview Schedule—Child/Parent designed to capture typical and atypical fears and (b) brief scales of anxiety symptoms (Behavior Assessment Schedule for Children, Second Edition; Screen for Child Anxiety and Related Emotional Disorders; Negative Affective Self-Statement Questionnaire; Pediatric Anxiety Rating Scale). The results indicate that measures lacked adequate sensitivity and specificity, and the detection of atypical fears was particularly poor. Revised cut scores are offered, but refined and/or revised instruments are likely needed for research on youth with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314558465 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269 [article] Brief measures of anxiety in non-treatment-seeking youth with autism spectrum disorder [texte imprimé] / Connor M. KERNS, Auteur ; Brenna B. MADDOX, Auteur ; Philip C. KENDALL, Auteur ; Keiran RUMP, Auteur ; Leandra N. BERRY, Auteur ; Robert T. SCHULTZ, Auteur ; Margaret C. SOUDERS, Auteur ; Amanda E. BENNETT, Auteur ; John HERRINGTON, Auteur ; Judith MILLER, Auteur . - p.969-979. Langues : Anglais (eng) in Autism > 19-8 (November 2015) . - p.969-979 Mots-clés : adolescent  anxiety  child  measures  sensitivity  specificity Index. décimale : PER Périodiques Résumé : This study investigated the accuracy of brief anxiety scales for non-treatment-seeking youth with autism spectrum disorder. In all, 54 youth (7–17 years; IQ: 67–158) with autism spectrum disorder and their parents completed (a) an expanded version of the Anxiety Disorders Interview Schedule—Child/Parent designed to capture typical and atypical fears and (b) brief scales of anxiety symptoms (Behavior Assessment Schedule for Children, Second Edition; Screen for Child Anxiety and Related Emotional Disorders; Negative Affective Self-Statement Questionnaire; Pediatric Anxiety Rating Scale). The results indicate that measures lacked adequate sensitivity and specificity, and the detection of atypical fears was particularly poor. Revised cut scores are offered, but refined and/or revised instruments are likely needed for research on youth with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314558465 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269

Erratum to: The Cognitive and Behavioral Phenotypes of Individuals with CHRNA7 Duplications / M. A. GILLENTINE in Journal of Autism and Developmental Disorders, 47-3 (March 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.563-563 Titre : Erratum to: The Cognitive and Behavioral Phenotypes of Individuals with CHRNA7 Duplications Type de document : texte imprimé Auteurs : M. A. GILLENTINE, Auteur ; Leandra N. BERRY, Auteur ; R. P. GOIN-KOCHEL, Auteur ; M. A. ALI, Auteur ; J. GE, Auteur ; D. GUFFEY, Auteur ; J. A. ROSENFELD, Auteur ; V. HANNIG, Auteur ; P. BADER, Auteur ; M. PROUD, Auteur ; M. SHINAWI, Auteur ; B. H. GRAHAM, Auteur ; A. LIN, Auteur ; S. R. LALANI, Auteur ; J. REYNOLDS, Auteur ; M. CHEN, Auteur ; T. GREBE, Auteur ; C. G. MINARD, Auteur ; P. STANKIEWICZ, Auteur ; Arthur L. BEAUDET, Auteur ; Christian P. SCHAAF, Auteur Article en page(s) : p.563-563 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-017-3047-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Erratum to: The Cognitive and Behavioral Phenotypes of Individuals with CHRNA7 Duplications [texte imprimé] / M. A. GILLENTINE, Auteur ; Leandra N. BERRY, Auteur ; R. P. GOIN-KOCHEL, Auteur ; M. A. ALI, Auteur ; J. GE, Auteur ; D. GUFFEY, Auteur ; J. A. ROSENFELD, Auteur ; V. HANNIG, Auteur ; P. BADER, Auteur ; M. PROUD, Auteur ; M. SHINAWI, Auteur ; B. H. GRAHAM, Auteur ; A. LIN, Auteur ; S. R. LALANI, Auteur ; J. REYNOLDS, Auteur ; M. CHEN, Auteur ; T. GREBE, Auteur ; C. G. MINARD, Auteur ; P. STANKIEWICZ, Auteur ; Arthur L. BEAUDET, Auteur ; Christian P. SCHAAF, Auteur . - p.563-563. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-3 (March 2017) . - p.563-563 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-017-3047-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

Neurocognitive and Neurobehavioral Phenotype of Youth with Schaaf-Yang Syndrome / Molly Mishler THOMASON in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2491-2500 Titre : Neurocognitive and Neurobehavioral Phenotype of Youth with Schaaf-Yang Syndrome Type de document : texte imprimé Auteurs : Molly Mishler THOMASON, Auteur ; John MCCARTHY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Lauren R. DOWELL, Auteur ; Christian P. SCHAAF, Auteur ; Leandra N. BERRY, Auteur Article en page(s) : p.2491-2500 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Behavior  Magel2  Neurodevelopment  Prader-Willi syndrome  Schaaf-Yang syndrome Index. décimale : PER Périodiques Résumé : Truncating variants of the MAGEL2 gene, one of the protein-coding genes within the Prader-Willi syndrome (PWS) critical region on chromosome 15q11, cause Schaaf-Yang syndrome (SYS)-a neurodevelopmental disorder that shares several clinical features with PWS. The current study sought to characterize the neurobehavioral phenotype of SYS in a sample of 9 patients with molecularly-confirmed SYS. Participants received an assessment of developmental/intellectual functioning, adaptive functioning, autism symptomatology, and behavioral/emotional functioning. Compared to individuals with PWS, patients with SYS manifested more severe cognitive deficits, no obsessions or compulsions, and increased rates of autism spectrum disorder. En ligne : http://dx.doi.org/10.1007/s10803-018-3775-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Neurocognitive and Neurobehavioral Phenotype of Youth with Schaaf-Yang Syndrome [texte imprimé] / Molly Mishler THOMASON, Auteur ; John MCCARTHY, Auteur ; Robin P GOIN-KOCHEL, Auteur ; Lauren R. DOWELL, Auteur ; Christian P. SCHAAF, Auteur ; Leandra N. BERRY, Auteur . - p.2491-2500. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2491-2500 Mots-clés : Autism spectrum disorder  Behavior  Magel2  Neurodevelopment  Prader-Willi syndrome  Schaaf-Yang syndrome Index. décimale : PER Périodiques Résumé : Truncating variants of the MAGEL2 gene, one of the protein-coding genes within the Prader-Willi syndrome (PWS) critical region on chromosome 15q11, cause Schaaf-Yang syndrome (SYS)-a neurodevelopmental disorder that shares several clinical features with PWS. The current study sought to characterize the neurobehavioral phenotype of SYS in a sample of 9 patients with molecularly-confirmed SYS. Participants received an assessment of developmental/intellectual functioning, adaptive functioning, autism symptomatology, and behavioral/emotional functioning. Compared to individuals with PWS, patients with SYS manifested more severe cognitive deficits, no obsessions or compulsions, and increased rates of autism spectrum disorder. En ligne : http://dx.doi.org/10.1007/s10803-018-3775-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder / D. T. JASHAR in Journal of Autism and Developmental Disorders, 49-5 (May 2019)  

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Stepped-Care Cognitive Behavioral Therapy in Children on the Autism Spectrum with Co-occurring Anxiety / Sophie C. SCHNEIDER ; Sean M. OLSEN ; Ana C. RAMIREZ ; Leandra N. BERRY ; Robin P. GOIN-KOCHEL ; Morgan MCNEEL ; Abigail E. CANDELARI ; Andrew G. GUZICK ; Sandra L. CEPEDA ; Saira WEINZIMMER ; Robert G. VOIGT ; Troy QUAST ; Wayne K. GOODMAN ; Alison SALLOUM in Journal of Autism and Developmental Disorders, 54-1 (January 2024)  

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The Cognitive and Behavioral Phenotypes of Individuals with CHRNA7 Duplications / M. A. GILLENTINE in Journal of Autism and Developmental Disorders, 47-3 (March 2017)  

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Traditional and Atypical Presentations of Anxiety in Youth with Autism Spectrum Disorder / Connor M. KERNS in Journal of Autism and Developmental Disorders, 44-11 (November 2014)  

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