Correction to: Predictors of Satisfaction with Autism Treatment Services During COVID19 / Emily F. FERGUSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3698 Titre : Correction to: Predictors of Satisfaction with Autism Treatment Services During COVID19 Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.3698 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05283-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Correction to: Predictors of Satisfaction with Autism Treatment Services During COVID19 [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur . - p.3698. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3698 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1007/s10803-021-05283-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Exploring the Heterogeneity of Self-Injurious Behaviors in Autistic Youth: Patterns, Predictors, and Implications for Intervention / Emily F. FERGUSON ; Emily SPACKMAN ; Ru Ying CAI ; Antonio Y. HARDAN ; Mirko ULJAREVI? in Autism Research, 18-1 (January 2025)  

Public ISBD [article]  inAutism Research > 18-1 (January 2025) . - p.133-151 Titre : Exploring the Heterogeneity of Self-Injurious Behaviors in Autistic Youth: Patterns, Predictors, and Implications for Intervention : Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Emily SPACKMAN, Auteur ; Ru Ying CAI, Auteur ; Antonio Y. HARDAN, Auteur ; Mirko ULJAREVI?, Auteur Article en page(s) : p.133-151 Langues : Anglais (eng) Mots-clés : adolescent  arousal  autism spectrum disorder  challenging behaviors  dysregulation  emotions  intellectual disability  restricted and repetitive behaviors  self harm  self injurious behaviors  self injury  stereotypic movement disorder Index. décimale : PER Périodiques Résumé : Abstract Self-injurious behaviors (SIB) encompass a heterogeneous set of self-inflicted aggressive behaviors that are highly prevalent in autistic youth. Existing research on SIB in autism spectrum disorder (ASD) has been limited by significant methodological and conceptual inconsistencies. Thus, the current study leveraged item-level data capturing the severity of unique SIB topographies to further understanding of factors associated with distinct SIB in a sample of 582 autistic youth (Mage?=?12.12, SDage?=?3.68; range: 3?19?years; 13% females). Results suggest variation in severity endorsements for specific SIB topographies amongst autistic youth, such that 30%?50% of caregivers endorsed slight to very serious concern regarding the SIB topographies of bites nails/skin/fingers, scratches self, hits head/face/neck, bangs head against things, and picks skin. Generalized additive models demonstrated distinct patterns of associations between each SIB topography and dysregulation, sensory hypersensitivity, age, sex, IQ, and language level. Findings underscore the importance of exploring SIB as a multifaceted construct to capture unique correlates of distinct SIB that vary in severity and functional impact, which is critical for the development of effective interventions. This study represents an important step towards more individualized characterization of SIB and support for diverse presentations of these behaviors in autistic youth. En ligne : https://doi.org/10.1002/aur.3269 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546 [article] Exploring the Heterogeneity of Self-Injurious Behaviors in Autistic Youth: Patterns, Predictors, and Implications for Intervention : Autism Research [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Emily SPACKMAN, Auteur ; Ru Ying CAI, Auteur ; Antonio Y. HARDAN, Auteur ; Mirko ULJAREVI?, Auteur . - p.133-151. Langues : Anglais (eng) in Autism Research > 18-1 (January 2025) . - p.133-151 Mots-clés : adolescent  arousal  autism spectrum disorder  challenging behaviors  dysregulation  emotions  intellectual disability  restricted and repetitive behaviors  self harm  self injurious behaviors  self injury  stereotypic movement disorder Index. décimale : PER Périodiques Résumé : Abstract Self-injurious behaviors (SIB) encompass a heterogeneous set of self-inflicted aggressive behaviors that are highly prevalent in autistic youth. Existing research on SIB in autism spectrum disorder (ASD) has been limited by significant methodological and conceptual inconsistencies. Thus, the current study leveraged item-level data capturing the severity of unique SIB topographies to further understanding of factors associated with distinct SIB in a sample of 582 autistic youth (Mage?=?12.12, SDage?=?3.68; range: 3?19?years; 13% females). Results suggest variation in severity endorsements for specific SIB topographies amongst autistic youth, such that 30%?50% of caregivers endorsed slight to very serious concern regarding the SIB topographies of bites nails/skin/fingers, scratches self, hits head/face/neck, bangs head against things, and picks skin. Generalized additive models demonstrated distinct patterns of associations between each SIB topography and dysregulation, sensory hypersensitivity, age, sex, IQ, and language level. Findings underscore the importance of exploring SIB as a multifaceted construct to capture unique correlates of distinct SIB that vary in severity and functional impact, which is critical for the development of effective interventions. This study represents an important step towards more individualized characterization of SIB and support for diverse presentations of these behaviors in autistic youth. En ligne : https://doi.org/10.1002/aur.3269 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=546

Family experiences with supplemental social security income and legal guardianship for autistic adults: A mixed-methods study / Emily F. FERGUSON in Research in Autism Spectrum Disorders, 119 (January 2025)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 119 (January 2025) . - p.102522 Titre : Family experiences with supplemental social security income and legal guardianship for autistic adults: A mixed-methods study Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Elaine B. CLARKE, Auteur ; Noa SCHISTERMAN, Auteur ; Catherine LORD, Auteur Article en page(s) : p.102522 Langues : Anglais (eng) Mots-clés : Social services  Transition to adulthood  Legal issues  Community participation  Supplemental Social Security Income  Guardianship  Autism Spectrum Disorder Index. décimale : PER Périodiques Résumé : Background Family interactions with the Supplemental Social Security Income (SSI) program and the decision to pursue legal guardianship are poorly understood in services research for autistic adults. Methods We conducted a mixed-methods study and incorporated quantitative survey data from 122 autistic adults in an existing longitudinal cohort with qualitative interviews with 12 autistic adults and/or legal guardians. We explored sociodemographic, developmental, and behavioral features associated with the likelihood of having SSI and a legal guardian at 25 years old. Spoken interviews were transcribed verbatim, and interviews were analyzed using a rapid qualitative analytic approach. Results There were quantitative differences in whether families were able to obtain SSI and guardianship based on intelligence quotient (IQ) scores, adaptive behavior, and autistic characteristics, but not by race, ethnicity, or maternal education. Qualitative data analysis revealed six themes that highlighted the challenges associated with obtaining and maintaining SSI, along with the complex, nuanced decisions associated with legal guardianship. Families noted many challenges in navigating these procedures and some potential benefits for each unique circumstance. Conclusions These findings offer new perspectives on experiences associated with pursuing SSI benefits and legal guardianship for autistic adults, including similarities and key differences in these procedures. Findings also provide suggestions for future research to improve coordination and supports for families throughout adulthood. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545 [article] Family experiences with supplemental social security income and legal guardianship for autistic adults: A mixed-methods study [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Elaine B. CLARKE, Auteur ; Noa SCHISTERMAN, Auteur ; Catherine LORD, Auteur . - p.102522. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 119 (January 2025) . - p.102522 Mots-clés : Social services  Transition to adulthood  Legal issues  Community participation  Supplemental Social Security Income  Guardianship  Autism Spectrum Disorder Index. décimale : PER Périodiques Résumé : Background Family interactions with the Supplemental Social Security Income (SSI) program and the decision to pursue legal guardianship are poorly understood in services research for autistic adults. Methods We conducted a mixed-methods study and incorporated quantitative survey data from 122 autistic adults in an existing longitudinal cohort with qualitative interviews with 12 autistic adults and/or legal guardians. We explored sociodemographic, developmental, and behavioral features associated with the likelihood of having SSI and a legal guardian at 25 years old. Spoken interviews were transcribed verbatim, and interviews were analyzed using a rapid qualitative analytic approach. Results There were quantitative differences in whether families were able to obtain SSI and guardianship based on intelligence quotient (IQ) scores, adaptive behavior, and autistic characteristics, but not by race, ethnicity, or maternal education. Qualitative data analysis revealed six themes that highlighted the challenges associated with obtaining and maintaining SSI, along with the complex, nuanced decisions associated with legal guardianship. Families noted many challenges in navigating these procedures and some potential benefits for each unique circumstance. Conclusions These findings offer new perspectives on experiences associated with pursuing SSI benefits and legal guardianship for autistic adults, including similarities and key differences in these procedures. Findings also provide suggestions for future research to improve coordination and supports for families throughout adulthood. En ligne : https://dx.doi.org/10.1016/j.rasd.2024.102522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=545

Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework / Rachel K. SCHUCK in Journal of Autism and Developmental Disorders, 52-10 (October 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4625-4645 Titre : Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework Type de document : Texte imprimé et/ou numérique Auteurs : Rachel K. SCHUCK, Auteur ; Daina M. TAGAVI, Auteur ; Kaitlynn M. P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Anthony OSUNA, Auteur ; Emily F. FERGUSON, Auteur ; Maria JIMENEZ MUÑOZ, Auteur ; Samantha K. POYSER, Auteur ; Joy F. JOHNSON, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.4625-4645 Langues : Anglais (eng) Mots-clés : Autism  Naturalistic developmental behavioral intervention  Neurodiversity  Autism Center at the University of California, Santa Barbara, a center focused on  providing Pivotal Response Treatment, an NDBI. TWV is the center director. TWV,  KMPB, MJM, and JFJ are Board Certified Behavior Analysts. PD and ZJW both serve  on the autistic researcher review board of the Autism Intervention Research  Network on Physical Health (AIR-P), and ZJW is a member of the family advisory  committee of the Autism Speaks Autism Learning Health Network Vanderbilt site.  ZJW also serves as a consultant for Roche on a project related to behavioral  intervention for autism. Index. décimale : PER Périodiques Résumé : Proponents of autism intervention and those of the neurodiversity movement often appear at odds, the former advocating for intensive treatments and the latter arguing that autism must be accepted as a form of diversity. The history of behavioral intervention has understandably outraged many in the Autistic community, though many still value supports focused on quality of life. This commentary argues that Naturalistic Developmental Behavioral Interventions (NDBIs) hold promise for bridging the gap between early intervention and the neurodiversity movement. However, we recognize NDBIs have much room to grow and suggest multiple strategies for improvement. We believe these updates are not only feasible for clinicians and researchers to implement but will ultimately lead to improved quality of life for Autistic individuals. En ligne : http://dx.doi.org/10.1007/s10803-021-05316-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Neurodiversity and Autism Intervention: Reconciling Perspectives Through a Naturalistic Developmental Behavioral Intervention Framework [Texte imprimé et/ou numérique] / Rachel K. SCHUCK, Auteur ; Daina M. TAGAVI, Auteur ; Kaitlynn M. P. BAIDEN, Auteur ; Patrick DWYER, Auteur ; Zachary J. WILLIAMS, Auteur ; Anthony OSUNA, Auteur ; Emily F. FERGUSON, Auteur ; Maria JIMENEZ MUÑOZ, Auteur ; Samantha K. POYSER, Auteur ; Joy F. JOHNSON, Auteur ; Ty W. VERNON, Auteur . - p.4625-4645. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-10 (October 2022) . - p.4625-4645 Mots-clés : Autism  Naturalistic developmental behavioral intervention  Neurodiversity  Autism Center at the University of California, Santa Barbara, a center focused on  providing Pivotal Response Treatment, an NDBI. TWV is the center director. TWV,  KMPB, MJM, and JFJ are Board Certified Behavior Analysts. PD and ZJW both serve  on the autistic researcher review board of the Autism Intervention Research  Network on Physical Health (AIR-P), and ZJW is a member of the family advisory  committee of the Autism Speaks Autism Learning Health Network Vanderbilt site.  ZJW also serves as a consultant for Roche on a project related to behavioral  intervention for autism. Index. décimale : PER Périodiques Résumé : Proponents of autism intervention and those of the neurodiversity movement often appear at odds, the former advocating for intensive treatments and the latter arguing that autism must be accepted as a form of diversity. The history of behavioral intervention has understandably outraged many in the Autistic community, though many still value supports focused on quality of life. This commentary argues that Naturalistic Developmental Behavioral Interventions (NDBIs) hold promise for bridging the gap between early intervention and the neurodiversity movement. However, we recognize NDBIs have much room to grow and suggest multiple strategies for improvement. We believe these updates are not only feasible for clinicians and researchers to implement but will ultimately lead to improved quality of life for Autistic individuals. En ligne : http://dx.doi.org/10.1007/s10803-021-05316-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

Predictors of Satisfaction with Autism Treatment Services During COVID-19 / Emily F. FERGUSON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697 Titre : Predictors of Satisfaction with Autism Treatment Services During COVID-19 Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur Article en page(s) : p.3686-3697 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  covid-19  Caregivers/psychology  Child  Humans  Pandemics  Personal Satisfaction  Autism spectrum disorder  Covid-19  Caregivers  Emotion regulation  Service satisfaction  Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Predictors of Satisfaction with Autism Treatment Services During COVID-19 [Texte imprimé et/ou numérique] / Emily F. FERGUSON, Auteur ; Maria JIMENEZ-MUÑOZ, Auteur ; Harrison FEERST, Auteur ; Ty W. VERNON, Auteur . - p.3686-3697. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3686-3697 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  covid-19  Caregivers/psychology  Child  Humans  Pandemics  Personal Satisfaction  Autism spectrum disorder  Covid-19  Caregivers  Emotion regulation  Service satisfaction  Telehealth Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic has created unprecedented challenges and disruptions for autistic individuals receiving specialized treatment services. This caregiver-report survey study (n=339) explored predictors of satisfaction with autism services during COVID-19 to improve perceived support for these families. Specifically, we investigated whether service delivery medium (telehealth vs. in person), child's emotional functioning, and caregiver stress would predict satisfaction with the most highly utilized services. Satisfaction ratings for ABA/behavioral, speech/language, and occupational therapy were lower when delivered via telehealth as compared to in person. Caregivers who reported higher emotional dysregulation in their children were less satisfied with behavioral therapy services. These results provide a critical caregiver-informed perspective on factors influencing satisfaction with specialized autism services during COVID-19. En ligne : http://dx.doi.org/10.1007/s10803-021-05232-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Social Interaction Skill Intervention for Autistic Adults with Intellectual Disability and Limited Language: A Pilot of the SKILL Program / Emily F. FERGUSON in Journal of Autism and Developmental Disorders, 51-5 (May 2021)  

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Social language opportunities for preschoolers with autism: Insights from audio recordings in urban classrooms / Emily F. FERGUSON in Autism, 24-5 (July 2020)  

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Toward improved understanding and treatment of self-injurious behaviors in autistic individuals with profound intellectual disability / Emily F. FERGUSON ; Kaylin M. RUSSELL ; Sarely J. Licona ; Ru Ying CAI ; Thomas W. FRAZIER ; Giacomo VIVANTI ; Grace W. GENGOUX ; Antonio Y. HARDAN ; Mirko ULJAREVI? in Autism Research, 18-2 (February 2025)  

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