Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults / Sheena K. AU-YEUNG in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1508-1518 Titre : Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults Type de document : texte imprimé Auteurs : Sheena K. AU-YEUNG, Auteur ; Louise BRADLEY, Auteur ; Ashley E. ROBERTSON, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur Article en page(s) : p.1508-1518 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  diagnosis  mixed methods  prevalence  psychiatric comorbidity  qualitative research Index. décimale : PER Périodiques Résumé : Previous research shows that autistic people have high levels of co-occurring mental health conditions. Yet, a number of case reports have revealed that mental health conditions are often misdiagnosed in autistic individuals. A total of 420 adults who identified as autistic, possibly autistic or non-autistic completed an online survey consisting of questions regarding mental health diagnoses they received, whether they agreed with those diagnoses and if not why. Autistic and possibly autistic participants were more likely to report receiving mental health diagnoses compared to non-autistic participants, but were less likely to agree with those diagnoses. Thematic analysis revealed the participants' main reasons for disagreement were that (1) they felt their autism characteristics were being confused with mental health conditions by healthcare professionals and (2) they perceived their own mental health difficulties to be resultant of ASC. Participants attributed these to the clinical barriers they experienced, including healthcare professionals' lack of autism awareness and lack of communication, which in turn prevented them from receiving appropriate support. This study highlights the need for autism awareness training for healthcare professionals and the need to develop tools and interventions to accurately diagnose and effectively treat mental health conditions in autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361318818167 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Experience of mental health diagnosis and perceived misdiagnosis in autistic, possibly autistic and non-autistic adults [texte imprimé] / Sheena K. AU-YEUNG, Auteur ; Louise BRADLEY, Auteur ; Ashley E. ROBERTSON, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur . - p.1508-1518. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1508-1518 Mots-clés : adults  autism spectrum disorders  diagnosis  mixed methods  prevalence  psychiatric comorbidity  qualitative research Index. décimale : PER Périodiques Résumé : Previous research shows that autistic people have high levels of co-occurring mental health conditions. Yet, a number of case reports have revealed that mental health conditions are often misdiagnosed in autistic individuals. A total of 420 adults who identified as autistic, possibly autistic or non-autistic completed an online survey consisting of questions regarding mental health diagnoses they received, whether they agreed with those diagnoses and if not why. Autistic and possibly autistic participants were more likely to report receiving mental health diagnoses compared to non-autistic participants, but were less likely to agree with those diagnoses. Thematic analysis revealed the participants' main reasons for disagreement were that (1) they felt their autism characteristics were being confused with mental health conditions by healthcare professionals and (2) they perceived their own mental health difficulties to be resultant of ASC. Participants attributed these to the clinical barriers they experienced, including healthcare professionals' lack of autism awareness and lack of communication, which in turn prevented them from receiving appropriate support. This study highlights the need for autism awareness training for healthcare professionals and the need to develop tools and interventions to accurately diagnose and effectively treat mental health conditions in autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361318818167 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults / Sarah A. CASSIDY in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Titre : Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults Type de document : texte imprimé Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.3477-3488 Langues : Anglais (eng) Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n = 15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults [texte imprimé] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur . - p.3477-3488. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n = 15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality / Louise CAMM-CROSBIE in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1431-1441 Titre : 'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality Type de document : texte imprimé Auteurs : Louise CAMM-CROSBIE, Auteur ; Louise BRADLEY, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur Article en page(s) : p.1431-1441 Langues : Anglais (eng) Mots-clés : Autism spectrum condition  mental health  self-injury  suicide  support  treatment Index. décimale : PER Périodiques Résumé : Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services. En ligne : http://dx.doi.org/10.1177/1362361318816053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] 'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality [texte imprimé] / Louise CAMM-CROSBIE, Auteur ; Louise BRADLEY, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur ; Sarah A. CASSIDY, Auteur . - p.1431-1441. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1431-1441 Mots-clés : Autism spectrum condition  mental health  self-injury  suicide  support  treatment Index. décimale : PER Périodiques Résumé : Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services. En ligne : http://dx.doi.org/10.1177/1362361318816053 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Risk markers for suicidality in autistic adults / Sarah A. CASSIDY in Molecular Autism, 9 (2018)  

Public ISBD [article]  inMolecular Autism > 9 (2018) . - 42p. Titre : Risk markers for suicidality in autistic adults Type de document : texte imprimé Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 42p. Langues : Anglais (eng) Mots-clés : Anxiety  Autism spectrum condition  Autistic traits  Depression  Mental health  nssi  nssi-at  Non-suicidal self-injury  Risk markers  sbq-r  Suicidality Index. décimale : PER Périodiques Résumé : Background: Research has shown high rates of suicidality in autism spectrum conditions (ASC), but there is lack of research into why this is the case. Many common experiences of autistic adults, such as depression or unemployment, overlap with known risk markers for suicide in the general population. However, it is unknown whether there are risk markers unique to ASC that require new tailored suicide prevention strategies. Methods: Through consultation with a steering group of autistic adults, a survey was developed aiming to identify unique risk markers for suicidality in this group. The survey measured suicidality (SBQ-R), non-suicidal self-injury (NSSI-AT), mental health problems, unmet support needs, employment, satisfaction with living arrangements, self-reported autistic traits (AQ), delay in ASC diagnosis, and 'camouflaging' ASC. One hundred sixty-four autistic adults (65 male, 99 female) and 169 general population adults (54 males, 115 females) completed the survey online. Results: A majority of autistic adults (72%) scored above the recommended psychiatric cut-off for suicide risk on the SBQ-R; significantly higher than general population (GP) adults (33%). After statistically controlling for a range of demographics and diagnoses, ASC diagnosis and self-reported autistic traits in the general population significantly predicted suicidality. In autistic adults, non-suicidal self-injury, camouflaging, and number of unmet support needs significantly predicted suicidality. Conclusions: Results confirm previously reported high rates of suicidality in ASC, and demonstrate that ASC diagnosis, and self-reported autistic traits in the general population are independent risk markers for suicidality. This suggests there are unique factors associated with autism and autistic traits that increase risk of suicidality. Camouflaging and unmet support needs appear to be risk markers for suicidality unique to ASC. Non-suicidal self-injury, employment, and mental health problems appear to be risk markers shared with the general population that are significantly more prevalent in the autistic community. Implications for understanding and prevention of suicide in ASC are discussed. En ligne : https://dx.doi.org/10.1186/s13229-018-0226-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Risk markers for suicidality in autistic adults [texte imprimé] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Rebecca SHAW, Auteur ; Simon BARON-COHEN, Auteur . - 42p. Langues : Anglais (eng) in Molecular Autism > 9 (2018) . - 42p. Mots-clés : Anxiety  Autism spectrum condition  Autistic traits  Depression  Mental health  nssi  nssi-at  Non-suicidal self-injury  Risk markers  sbq-r  Suicidality Index. décimale : PER Périodiques Résumé : Background: Research has shown high rates of suicidality in autism spectrum conditions (ASC), but there is lack of research into why this is the case. Many common experiences of autistic adults, such as depression or unemployment, overlap with known risk markers for suicide in the general population. However, it is unknown whether there are risk markers unique to ASC that require new tailored suicide prevention strategies. Methods: Through consultation with a steering group of autistic adults, a survey was developed aiming to identify unique risk markers for suicidality in this group. The survey measured suicidality (SBQ-R), non-suicidal self-injury (NSSI-AT), mental health problems, unmet support needs, employment, satisfaction with living arrangements, self-reported autistic traits (AQ), delay in ASC diagnosis, and 'camouflaging' ASC. One hundred sixty-four autistic adults (65 male, 99 female) and 169 general population adults (54 males, 115 females) completed the survey online. Results: A majority of autistic adults (72%) scored above the recommended psychiatric cut-off for suicide risk on the SBQ-R; significantly higher than general population (GP) adults (33%). After statistically controlling for a range of demographics and diagnoses, ASC diagnosis and self-reported autistic traits in the general population significantly predicted suicidality. In autistic adults, non-suicidal self-injury, camouflaging, and number of unmet support needs significantly predicted suicidality. Conclusions: Results confirm previously reported high rates of suicidality in ASC, and demonstrate that ASC diagnosis, and self-reported autistic traits in the general population are independent risk markers for suicidality. This suggests there are unique factors associated with autism and autistic traits that increase risk of suicidality. Camouflaging and unmet support needs appear to be risk markers for suicidality unique to ASC. Non-suicidal self-injury, employment, and mental health problems appear to be risk markers shared with the general population that are significantly more prevalent in the autistic community. Implications for understanding and prevention of suicide in ASC are discussed. En ligne : https://dx.doi.org/10.1186/s13229-018-0226-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

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