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Auteur Helen MCCONACHIE |
Documents disponibles écrits par cet auteur (40)
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The impact on the family of the co?existing conditions of children with autism spectrum disorder / M. PETROU ALEXANDRA in Autism Research, 11-5 (May 2018)
[article]
Titre : The impact on the family of the co?existing conditions of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : M. PETROU ALEXANDRA, Auteur ; Abigail SOUL, Auteur ; Beena KOSHY, Auteur ; Helen MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.776-787 Langues : Anglais (eng) Mots-clés : impact on the family co?existing conditions sleep autism ASD Index. décimale : PER Périodiques Résumé : We aimed to investigate whether the impact on families of children with Autism Spectrum Disorder (ASD) is associated with the number and/or type of emotional and behavioral co?existing conditions that parents/carers of children with ASD reported as occurring frequently. In addition, we examined whether there was a greater impact on families if their child was male, had lower levels of language, had more severe autism symptomatology, and whether impact was associated with the number and/or type of co?existing conditions. Families were recruited from large UK research databases. 420 parents/carers of children aged 3 years 2 months to 18 years 8 months completed the revised Impact on Family (IoF) Scale and reported on the frequency/rate of their child's co?existing conditions. Parents/carers reported higher mean IoF scores if their child: had a greater number of frequent co?existing conditions; had sleep problems; was only able to communicate physically; and had more severe autism symptomatology. The development and implementation of targeted treatment and management approaches are needed to reduce the impact of co?existing conditions on family life. Autism Res 2018, 11: 776?787. ? 2018 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Autism Spectrum Disorder (ASD) is commonly associated with emotional and/or behavior conditions that affect family life. Parents/carers of children with ASD who: (a) reported a greater number of frequent co?existing conditions, (b) had sleep problems, (c) were only able to communicate physically, and (d) had more severe symptoms characteristic of autism, reported a greater burden/strain on the family. Treatment approaches to target co?existing conditions alongside characteristics of ASD are needed to reduce their impact on family life. En ligne : https://doi.org/10.1002/aur.1932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363
in Autism Research > 11-5 (May 2018) . - p.776-787[article] The impact on the family of the co?existing conditions of children with autism spectrum disorder [Texte imprimé et/ou numérique] / M. PETROU ALEXANDRA, Auteur ; Abigail SOUL, Auteur ; Beena KOSHY, Auteur ; Helen MCCONACHIE, Auteur ; Jeremy R. PARR, Auteur . - p.776-787.
Langues : Anglais (eng)
in Autism Research > 11-5 (May 2018) . - p.776-787
Mots-clés : impact on the family co?existing conditions sleep autism ASD Index. décimale : PER Périodiques Résumé : We aimed to investigate whether the impact on families of children with Autism Spectrum Disorder (ASD) is associated with the number and/or type of emotional and behavioral co?existing conditions that parents/carers of children with ASD reported as occurring frequently. In addition, we examined whether there was a greater impact on families if their child was male, had lower levels of language, had more severe autism symptomatology, and whether impact was associated with the number and/or type of co?existing conditions. Families were recruited from large UK research databases. 420 parents/carers of children aged 3 years 2 months to 18 years 8 months completed the revised Impact on Family (IoF) Scale and reported on the frequency/rate of their child's co?existing conditions. Parents/carers reported higher mean IoF scores if their child: had a greater number of frequent co?existing conditions; had sleep problems; was only able to communicate physically; and had more severe autism symptomatology. The development and implementation of targeted treatment and management approaches are needed to reduce the impact of co?existing conditions on family life. Autism Res 2018, 11: 776?787. ? 2018 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Autism Spectrum Disorder (ASD) is commonly associated with emotional and/or behavior conditions that affect family life. Parents/carers of children with ASD who: (a) reported a greater number of frequent co?existing conditions, (b) had sleep problems, (c) were only able to communicate physically, and (d) had more severe symptoms characteristic of autism, reported a greater burden/strain on the family. Treatment approaches to target co?existing conditions alongside characteristics of ASD are needed to reduce their impact on family life. En ligne : https://doi.org/10.1002/aur.1932 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=363 The Interplay Between Sensory Processing Abnormalities, Intolerance of Uncertainty, Anxiety and Restricted and Repetitive Behaviours in Autism Spectrum Disorder / Sarah WIGHAM in Journal of Autism and Developmental Disorders, 45-4 (April 2015)
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Titre : The Interplay Between Sensory Processing Abnormalities, Intolerance of Uncertainty, Anxiety and Restricted and Repetitive Behaviours in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarah WIGHAM, Auteur ; Jacqui RODGERS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Mark FREESTON, Auteur Article en page(s) : p.943-952 Langues : Anglais (eng) Mots-clés : Sensory processing abnormalities Intolerance of uncertainty Anxiety Repetitive behaviours Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Sensory processing abnormalities, anxiety and restricted and repetitive behaviours (RRBs) frequently co-occur in Autism Spectrum Disorders (ASD). Though the relationship between these phenomena is not well understood, emerging evidence indicates intolerance of uncertainty (IU) may play an important role. This study aimed to determine pathways between sensory abnormalities and RRBs, and the role anxiety and IU may have. We gathered caregiver report data for 53 children with ASD aged 8–16 years. We found sensory under responsiveness and sensory over responsiveness were significantly associated with repetitive motor and insistence on sameness behaviours, and the relationships significantly mediated by IU and anxiety. Our findings indicate different mechanisms may underpin repetitive motor and insistence on sameness RRBs, which can inform treatment interventions. En ligne : http://dx.doi.org/10.1007/s10803-014-2248-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258
in Journal of Autism and Developmental Disorders > 45-4 (April 2015) . - p.943-952[article] The Interplay Between Sensory Processing Abnormalities, Intolerance of Uncertainty, Anxiety and Restricted and Repetitive Behaviours in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Sarah WIGHAM, Auteur ; Jacqui RODGERS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Mark FREESTON, Auteur . - p.943-952.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-4 (April 2015) . - p.943-952
Mots-clés : Sensory processing abnormalities Intolerance of uncertainty Anxiety Repetitive behaviours Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Sensory processing abnormalities, anxiety and restricted and repetitive behaviours (RRBs) frequently co-occur in Autism Spectrum Disorders (ASD). Though the relationship between these phenomena is not well understood, emerging evidence indicates intolerance of uncertainty (IU) may play an important role. This study aimed to determine pathways between sensory abnormalities and RRBs, and the role anxiety and IU may have. We gathered caregiver report data for 53 children with ASD aged 8–16 years. We found sensory under responsiveness and sensory over responsiveness were significantly associated with repetitive motor and insistence on sameness behaviours, and the relationships significantly mediated by IU and anxiety. Our findings indicate different mechanisms may underpin repetitive motor and insistence on sameness RRBs, which can inform treatment interventions. En ligne : http://dx.doi.org/10.1007/s10803-014-2248-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258 The measurement properties of the spence children's anxiety scale-parent version in a large international pooled sample of young people with autism spectrum disorder / Iliana MAGIATI in Autism Research, 10-10 (October 2017)
[article]
Titre : The measurement properties of the spence children's anxiety scale-parent version in a large international pooled sample of young people with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Iliana MAGIATI, Auteur ; Jian Wei LERH, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mirko ULJAREVIC, Auteur ; Jacqui RODGERS, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Mikle SOUTH, Auteur ; Amy VAN HECKE, Auteur ; Antonio HARDAN, Auteur ; Robin LIBOVE, Auteur ; Susan LEEKAM, Auteur ; Emily SIMONOFF, Auteur Article en page(s) : p.1629-1652 Langues : Anglais (eng) Mots-clés : autism spectrum disorder anxiety parent report measurement assessment reliability validity factor structure Index. décimale : PER Périodiques Résumé : Anxiety-related difficulties are common in ASD, but measuring anxiety reliably and validly is challenging. Despite an increasing number of studies, there is no clear agreement on which existing anxiety measure is more psychometrically sound and what is the factor structure of anxiety in ASD. The present study examined the internal consistency, convergent, divergent, and discriminant validity, as well as the factor structure of the Spence Children's Anxiety Scale-Parent Version (SCAS-P), in a large international pooled sample of 870 caregivers of youth with ASD from 12 studies in the United Kingdom, United States, and Singapore who completed the SCAS-P. Most were community recruited, while the majority had at least one measure of ASD symptomatology and either cognitive or adaptive functioning measures completed. Existing SCAS-P total scale and subscales had excellent internal consistency and good convergent, divergent and discriminant validity similar to or better than SCAS-P properties reported in typically developing children, except for the poorer internal consistency of the physical injury subscale. Confirmatory Factor Analysis (CFA) of the existing SCAS-P six-correlated factor structure was a poor fit for this pooled database. Principal component analysis using half of the pooled sample identified a 30-item five correlated factor structure, but a CFA of this PCA-derived structure in the second half of this pooled sample revealed a poor fit, although the PCA-derived SCAS-P scale and subscales had stronger validity and better internal consistency than the original SCAS-P. The study's limitations, the use of the SCAS-P to screen for DSM-derived anxiety problems in ASD and future research directions are discussed. Autism Res 2017, 10: 1629–1652. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=322
in Autism Research > 10-10 (October 2017) . - p.1629-1652[article] The measurement properties of the spence children's anxiety scale-parent version in a large international pooled sample of young people with autism spectrum disorder [Texte imprimé et/ou numérique] / Iliana MAGIATI, Auteur ; Jian Wei LERH, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mirko ULJAREVIC, Auteur ; Jacqui RODGERS, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Mikle SOUTH, Auteur ; Amy VAN HECKE, Auteur ; Antonio HARDAN, Auteur ; Robin LIBOVE, Auteur ; Susan LEEKAM, Auteur ; Emily SIMONOFF, Auteur . - p.1629-1652.
Langues : Anglais (eng)
in Autism Research > 10-10 (October 2017) . - p.1629-1652
Mots-clés : autism spectrum disorder anxiety parent report measurement assessment reliability validity factor structure Index. décimale : PER Périodiques Résumé : Anxiety-related difficulties are common in ASD, but measuring anxiety reliably and validly is challenging. Despite an increasing number of studies, there is no clear agreement on which existing anxiety measure is more psychometrically sound and what is the factor structure of anxiety in ASD. The present study examined the internal consistency, convergent, divergent, and discriminant validity, as well as the factor structure of the Spence Children's Anxiety Scale-Parent Version (SCAS-P), in a large international pooled sample of 870 caregivers of youth with ASD from 12 studies in the United Kingdom, United States, and Singapore who completed the SCAS-P. Most were community recruited, while the majority had at least one measure of ASD symptomatology and either cognitive or adaptive functioning measures completed. Existing SCAS-P total scale and subscales had excellent internal consistency and good convergent, divergent and discriminant validity similar to or better than SCAS-P properties reported in typically developing children, except for the poorer internal consistency of the physical injury subscale. Confirmatory Factor Analysis (CFA) of the existing SCAS-P six-correlated factor structure was a poor fit for this pooled database. Principal component analysis using half of the pooled sample identified a 30-item five correlated factor structure, but a CFA of this PCA-derived structure in the second half of this pooled sample revealed a poor fit, although the PCA-derived SCAS-P scale and subscales had stronger validity and better internal consistency than the original SCAS-P. The study's limitations, the use of the SCAS-P to screen for DSM-derived anxiety problems in ASD and future research directions are discussed. Autism Res 2017, 10: 1629–1652. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1809 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=322 The Relationship Between Anxiety and Repetitive Behaviours in Autism Spectrum Disorder / J. RODGERS in Journal of Autism and Developmental Disorders, 42-11 (November 2012)
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Titre : The Relationship Between Anxiety and Repetitive Behaviours in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : J. RODGERS, Auteur ; M. GLOD, Auteur ; Brenda CONNOLLY, Auteur ; Helen MCCONACHIE, Auteur Article en page(s) : p.2404-2409 Langues : Anglais (eng) Mots-clés : Repetitive behaviours Anxiety Insistence on sameness Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Children with Autism Spectrum Disorder are vulnerable to anxiety. Repetitive behaviours are a core feature of Autism Spectrum Disorder (ASD) and have been associated anxiety. This study examined repetitive behaviours and anxiety in two groups of children with autism spectrum disorder, those with high anxiety and those with lower levels of anxiety. Children with high anxiety had more repetitive behaviours than those without anxiety. Within the anxiety sample, higher levels of insistence on sameness were associated with more anxiety. No association was found between sensory motor repetitive behaviours and anxiety in this group. In the non-anxious sample, anxiety was associated with sensory motor repetitive behaviours. These findings indicate a differential relationship for repetitive behaviours in relation to anxious and non-anxious children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1531-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=183
in Journal of Autism and Developmental Disorders > 42-11 (November 2012) . - p.2404-2409[article] The Relationship Between Anxiety and Repetitive Behaviours in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / J. RODGERS, Auteur ; M. GLOD, Auteur ; Brenda CONNOLLY, Auteur ; Helen MCCONACHIE, Auteur . - p.2404-2409.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 42-11 (November 2012) . - p.2404-2409
Mots-clés : Repetitive behaviours Anxiety Insistence on sameness Autism spectrum disorder Index. décimale : PER Périodiques Résumé : Children with Autism Spectrum Disorder are vulnerable to anxiety. Repetitive behaviours are a core feature of Autism Spectrum Disorder (ASD) and have been associated anxiety. This study examined repetitive behaviours and anxiety in two groups of children with autism spectrum disorder, those with high anxiety and those with lower levels of anxiety. Children with high anxiety had more repetitive behaviours than those without anxiety. Within the anxiety sample, higher levels of insistence on sameness were associated with more anxiety. No association was found between sensory motor repetitive behaviours and anxiety in this group. In the non-anxious sample, anxiety was associated with sensory motor repetitive behaviours. These findings indicate a differential relationship for repetitive behaviours in relation to anxious and non-anxious children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1531-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=183 Treatment mechanism in the MRC preschool autism communication trial: implications for study design and parent-focussed therapy for children / Andrew PICKLES in Journal of Child Psychology and Psychiatry, 56-2 (February 2015)
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Titre : Treatment mechanism in the MRC preschool autism communication trial: implications for study design and parent-focussed therapy for children Type de document : Texte imprimé et/ou numérique Auteurs : Andrew PICKLES, Auteur ; Victoria HARRIS, Auteur ; Jonathan GREEN, Auteur ; Catherine ALDRED, Auteur ; Helen MCCONACHIE, Auteur ; Vicky SLONIMS, Auteur ; Ann LE COUTEUR, Auteur ; Kristelle HUDRY, Auteur ; Tony CHARMAN, Auteur ; THE PACT CONSORTIUM,, Auteur Article en page(s) : p.162-170 Langues : Anglais (eng) Mots-clés : Autism measurement error mediation parent–child interaction parent-focussed therapy Index. décimale : PER Périodiques Résumé : Background The PACT randomised-controlled trial evaluated a parent-mediated communication-focused treatment for children with autism, intended to reduce symptom severity as measured by a modified Autism Diagnostic Observation Schedule-Generic (ADOS-G) algorithm score. The therapy targeted parental behaviour, with no direct interaction between therapist and child. While nonsignificant group differences were found on ADOS-G score, significant group differences were found for both parent and child intermediate outcomes. This study aimed to better understand the mechanism by which the PACT treatment influenced changes in child behaviour though the targeted parent behaviour. Methods Mediation analysis was used to assess the direct and indirect effects of treatment via parent behaviour on child behaviour and via child behaviour on ADOS-G score. Alternative mediation was explored to study whether the treatment effect acted as hypothesised or via another plausible pathway. Mediation models typically assume no unobserved confounding between mediator and outcome and no measurement error in the mediator. We show how to better exploit the information often available within a trial to begin to address these issues, examining scope for instrumental variable and measurement error models. Results Estimates of mediation changed substantially when account was taken of the confounder effects of the baseline value of the mediator and of measurement error. Our best estimates that accounted for both suggested that the treatment effect on the ADOS-G score was very substantially mediated by parent synchrony and child initiations. Conclusions The results highlighted the value of repeated measurement of mediators during trials. The theoretical model underlying the PACT treatment was supported. However, the substantial fall-off in treatment effect highlighted both the need for additional data and for additional target behaviours for therapy. En ligne : http://dx.doi.org/10.1111/jcpp.12291 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259
in Journal of Child Psychology and Psychiatry > 56-2 (February 2015) . - p.162-170[article] Treatment mechanism in the MRC preschool autism communication trial: implications for study design and parent-focussed therapy for children [Texte imprimé et/ou numérique] / Andrew PICKLES, Auteur ; Victoria HARRIS, Auteur ; Jonathan GREEN, Auteur ; Catherine ALDRED, Auteur ; Helen MCCONACHIE, Auteur ; Vicky SLONIMS, Auteur ; Ann LE COUTEUR, Auteur ; Kristelle HUDRY, Auteur ; Tony CHARMAN, Auteur ; THE PACT CONSORTIUM,, Auteur . - p.162-170.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 56-2 (February 2015) . - p.162-170
Mots-clés : Autism measurement error mediation parent–child interaction parent-focussed therapy Index. décimale : PER Périodiques Résumé : Background The PACT randomised-controlled trial evaluated a parent-mediated communication-focused treatment for children with autism, intended to reduce symptom severity as measured by a modified Autism Diagnostic Observation Schedule-Generic (ADOS-G) algorithm score. The therapy targeted parental behaviour, with no direct interaction between therapist and child. While nonsignificant group differences were found on ADOS-G score, significant group differences were found for both parent and child intermediate outcomes. This study aimed to better understand the mechanism by which the PACT treatment influenced changes in child behaviour though the targeted parent behaviour. Methods Mediation analysis was used to assess the direct and indirect effects of treatment via parent behaviour on child behaviour and via child behaviour on ADOS-G score. Alternative mediation was explored to study whether the treatment effect acted as hypothesised or via another plausible pathway. Mediation models typically assume no unobserved confounding between mediator and outcome and no measurement error in the mediator. We show how to better exploit the information often available within a trial to begin to address these issues, examining scope for instrumental variable and measurement error models. Results Estimates of mediation changed substantially when account was taken of the confounder effects of the baseline value of the mediator and of measurement error. Our best estimates that accounted for both suggested that the treatment effect on the ADOS-G score was very substantially mediated by parent synchrony and child initiations. Conclusions The results highlighted the value of repeated measurement of mediators during trials. The theoretical model underlying the PACT treatment was supported. However, the substantial fall-off in treatment effect highlighted both the need for additional data and for additional target behaviours for therapy. En ligne : http://dx.doi.org/10.1111/jcpp.12291 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=259 Treatment mechanism of the WHO caregiver skills training intervention for autism delivered in community settings / Katharine SUMA ; Lauren B. ADAMSON ; Helen MCCONACHIE ; Chiara SERVILI ; Erica SALOMONE in Autism Research, 17-1 (January 2024)
PermalinkA trial of an iPad™ intervention targeting social communication skills in children with autism / Sue FLETCHER-WATSON in Autism, 20-7 (October 2016)
PermalinkUnderstanding the heterogeneity of anxiety in autistic youth: A person-centered approach / Emily SPACKMAN in Autism Research, 15-9 (September 2022)
PermalinkUse of early intervention for young children with autism spectrum disorder across Europe / Erica SALOMONE in Autism, 20-2 (February 2016)
PermalinkValidation of the repetitive behaviour questionnaire for use with children with autism spectrum disorder / Emma HONEY in Research in Autism Spectrum Disorders, 6-1 (January-March 2012)
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