Coparentalité et stratégies de coping dyadique chez les parents d'un enfant sur le spectre de l'autisme après l'annonce du diagnostic / Naomi DOWNES in Bulletin Scientifique de l'arapi (Le), 48 (2021/2)

Public ISBD [article]  inBulletin Scientifique de l'arapi (Le) > 48 (2021/2) . - p.34-40 Titre : Coparentalité et stratégies de coping dyadique chez les parents d'un enfant sur le spectre de l'autisme après l'annonce du diagnostic Type de document : Texte imprimé et/ou numérique Auteurs : Naomi DOWNES, Auteur Année de publication : 2022 Article en page(s) : p.34-40 Langues : Français (fre) Index. décimale : PER Périodiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=487 [article] Coparentalité et stratégies de coping dyadique chez les parents d'un enfant sur le spectre de l'autisme après l'annonce du diagnostic [Texte imprimé et/ou numérique] / Naomi DOWNES, Auteur . - 2022 . - p.34-40. Langues : Français (fre) in Bulletin Scientifique de l'arapi (Le) > 48 (2021/2) . - p.34-40 Index. décimale : PER Périodiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=487

Development and preliminary validation of a depressive symptomatology detection scale among children and adolescents on the autism spectrum / Lucie BELLALOU in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.361-373 Titre : Development and preliminary validation of a depressive symptomatology detection scale among children and adolescents on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Lucie BELLALOU, Auteur ; Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.361-373 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  depression  scale  validation Index. décimale : PER Périodiques Résumé : Many individuals on the autism spectrum experience depressive symptoms. These symptoms contribute to poor quality of life and may have a more negative impact than core autistic features. However, identifying depressive symptoms among individuals on the spectrum is a real challenge. In this study, we investigate the psychometric qualities of a French scale for evaluating depressive symptoms among youth on the autism spectrum. Participants were 153 autistic children and adolescents aged between 3 and 17?years. The majority of the sample was male (73.86%). One of their parents completed the scale for evaluating depressive symptoms among youth on the autism spectrum during an interview with a psychologist. Overall, the findings indicate the scale may be reliably used with children and adolescents on the autism spectrum. Experts deemed the items as being representative of depressive symptoms. The scale is composed of two factors: behavioral changes on one hand and cognitive and emotional changes on the other. The results are encouraging and show the scale is a promising instrument for assessing Major Depressive Disorder symptomatology among youth on the spectrum. Future studies should focus on testing this scale among adults and developing an auto-evaluative section. En ligne : http://dx.doi.org/10.1177/1362361320958209 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441 [article] Development and preliminary validation of a depressive symptomatology detection scale among children and adolescents on the autism spectrum [Texte imprimé et/ou numérique] / Lucie BELLALOU, Auteur ; Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur . - p.361-373. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.361-373 Mots-clés : autism spectrum disorder  depression  scale  validation Index. décimale : PER Périodiques Résumé : Many individuals on the autism spectrum experience depressive symptoms. These symptoms contribute to poor quality of life and may have a more negative impact than core autistic features. However, identifying depressive symptoms among individuals on the spectrum is a real challenge. In this study, we investigate the psychometric qualities of a French scale for evaluating depressive symptoms among youth on the autism spectrum. Participants were 153 autistic children and adolescents aged between 3 and 17?years. The majority of the sample was male (73.86%). One of their parents completed the scale for evaluating depressive symptoms among youth on the autism spectrum during an interview with a psychologist. Overall, the findings indicate the scale may be reliably used with children and adolescents on the autism spectrum. Experts deemed the items as being representative of depressive symptoms. The scale is composed of two factors: behavioral changes on one hand and cognitive and emotional changes on the other. The results are encouraging and show the scale is a promising instrument for assessing Major Depressive Disorder symptomatology among youth on the spectrum. Future studies should focus on testing this scale among adults and developing an auto-evaluative section. En ligne : http://dx.doi.org/10.1177/1362361320958209 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=441

Expériences des couples, des grands-parents et de la fratrie : revue de la littérature nationale et internationale / Naomi DOWNES

Public ISBD in Familles et trouble du spectre de l'autisme / Cyrielle DERGUY Titre : Expériences des couples, des grands-parents et de la fratrie : revue de la littérature nationale et internationale Type de document : Texte imprimé et/ou numérique Auteurs : Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur Année de publication : 2019 Importance : p.213-226 Langues : Français (fre) Index. décimale : VIE-G VIE-G - Vie Quotidienne - Parents - Aidants Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=413 in Familles et trouble du spectre de l'autisme / Cyrielle DERGUY Expériences des couples, des grands-parents et de la fratrie : revue de la littérature nationale et internationale [Texte imprimé et/ou numérique] / Naomi DOWNES, Auteur ; Emilie CAPPE, Auteur . - 2019 . - p.213-226. Langues : Français (fre) Index. décimale : VIE-G VIE-G - Vie Quotidienne - Parents - Aidants Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=413

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Preliminary Results of the Effects of a Psychoeducational Program on Stress and Quality of Life Among French Parents of an Child With Autism / Emilie CAPPE in Focus on Autism and Other Developmental Disabilities, 36-3 (September 2021)  

Public ISBD [article]  inFocus on Autism and Other Developmental Disabilities > 36-3 (September 2021) . - p.176-186 Titre : Preliminary Results of the Effects of a Psychoeducational Program on Stress and Quality of Life Among French Parents of an Child With Autism Type de document : Texte imprimé et/ou numérique Auteurs : Emilie CAPPE, Auteur ; Naomi DOWNES, Auteur ; Sophie ALBERT-BENAROYA, Auteur ; Julie Allard ECH-CHOUIKH, Auteur ; Aude DE GAULMYN, Auteur ; Lydia LUPERTO, Auteur ; Valérie CARON, Auteur ; Elisabeth ROUSSEL, Auteur ; Romain TATON, Auteur ; Carol SANKEY, Auteur Article en page(s) : p.176-186 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  parenting stress  quality of life  psychoeducation  program evaluation Index. décimale : PER Périodiques Résumé : The objective was to evaluate the impact of a psychoeducational program on the stress and quality of life of parents with a child with autism. In total, 20 parents attended a shortened version (SV group) of the program and 15 others a complete version (CV group). An assessment of perceived stress, parenting stress, and quality of life was performed before (T0), after (T1), and 6 months after the program (T2). Parental satisfaction was measured at T1. Parents in the CV group appeared to be significantly less stressed, and there was a significant improvement in certain areas of their quality of life (relationship with the child, psychological well-being, and personal fulfillment). No significant effects were observed in the SV group. Both groups highly appreciated the program. These results confirm the need to offer support to parents after receiving a diagnosis of autism for their child. En ligne : http://dx.doi.org/10.1177/1088357620986946 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460 [article] Preliminary Results of the Effects of a Psychoeducational Program on Stress and Quality of Life Among French Parents of an Child With Autism [Texte imprimé et/ou numérique] / Emilie CAPPE, Auteur ; Naomi DOWNES, Auteur ; Sophie ALBERT-BENAROYA, Auteur ; Julie Allard ECH-CHOUIKH, Auteur ; Aude DE GAULMYN, Auteur ; Lydia LUPERTO, Auteur ; Valérie CARON, Auteur ; Elisabeth ROUSSEL, Auteur ; Romain TATON, Auteur ; Carol SANKEY, Auteur . - p.176-186. Langues : Anglais (eng) in Focus on Autism and Other Developmental Disabilities > 36-3 (September 2021) . - p.176-186 Mots-clés : autism spectrum disorder  parenting stress  quality of life  psychoeducation  program evaluation Index. décimale : PER Périodiques Résumé : The objective was to evaluate the impact of a psychoeducational program on the stress and quality of life of parents with a child with autism. In total, 20 parents attended a shortened version (SV group) of the program and 15 others a complete version (CV group). An assessment of perceived stress, parenting stress, and quality of life was performed before (T0), after (T1), and 6 months after the program (T2). Parental satisfaction was measured at T1. Parents in the CV group appeared to be significantly less stressed, and there was a significant improvement in certain areas of their quality of life (relationship with the child, psychological well-being, and personal fulfillment). No significant effects were observed in the SV group. Both groups highly appreciated the program. These results confirm the need to offer support to parents after receiving a diagnosis of autism for their child. En ligne : http://dx.doi.org/10.1177/1088357620986946 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=460

Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum / Jérôme LICHTLE in Journal of Autism and Developmental Disorders, 52-5 (May 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2098-2111 Titre : Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Amandine PEDOUX, Auteur ; Naomi DOWNES, Auteur ; Laurent MOTTRON, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.2098-2111 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Child Development Disorders, Pervasive  Child, Preschool  Early Intervention, Educational  Humans  Quality of Life  Autism spectrum disorder  Children  Preschool  Thematic analysis Index. décimale : PER Périodiques Résumé : Quality of life (QoL) is an essential measure when assessing health interventions. Most early interventions for preschool children on the spectrum evaluate the effects on autism symptoms. However, researchers increasingly believe that good interventions should also improve the QoL of these children. Domains of QoL among preschool children on the autism spectrum have not previously been researched. We interviewed adults on the spectrum to explore early childhood experiences that made their lives satisfying. Our data revealed four major themes: interests, environmental regularity, sensory differences and social interactions. This study provides the first insights on aspects of life important to pre-schoolers on the spectrum. Findings will contribute to developing items for a measure of QoL among this population. En ligne : http://dx.doi.org/10.1007/s10803-021-05097-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Searching for What Really Matters: A Thematic Analysis of Quality of Life among Preschool Children on the Autism Spectrum [Texte imprimé et/ou numérique] / Jérôme LICHTLE, Auteur ; Kristopher LAMORE, Auteur ; Amandine PEDOUX, Auteur ; Naomi DOWNES, Auteur ; Laurent MOTTRON, Auteur ; Emilie CAPPE, Auteur . - p.2098-2111. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2098-2111 Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder  Child  Child Development Disorders, Pervasive  Child, Preschool  Early Intervention, Educational  Humans  Quality of Life  Autism spectrum disorder  Children  Preschool  Thematic analysis Index. décimale : PER Périodiques Résumé : Quality of life (QoL) is an essential measure when assessing health interventions. Most early interventions for preschool children on the spectrum evaluate the effects on autism symptoms. However, researchers increasingly believe that good interventions should also improve the QoL of these children. Domains of QoL among preschool children on the autism spectrum have not previously been researched. We interviewed adults on the spectrum to explore early childhood experiences that made their lives satisfying. Our data revealed four major themes: interests, environmental regularity, sensory differences and social interactions. This study provides the first insights on aspects of life important to pre-schoolers on the spectrum. Findings will contribute to developing items for a measure of QoL among this population. En ligne : http://dx.doi.org/10.1007/s10803-021-05097-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

A Systematic Review of Family Functioning in Families of Children on the Autism Spectrum / Gwendoline DESQUENNE GODFREY in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

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