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Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics / J. HOFER in Journal of Autism and Developmental Disorders, 52-2 (February 2022)
[article]
Titre : Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics Type de document : Texte imprimé et/ou numérique Auteurs : J. HOFER, Auteur ; F. HOFFMANN, Auteur ; M. DÖRKS, Auteur ; I. KAMP-BECKER, Auteur ; C. KÜPPER, Auteur ; L. POUSTKA, Auteur ; S. ROEPKE, Auteur ; V. ROESSNER, Auteur ; S. STROTH, Auteur ; N. WOLFF, Auteur ; C. J. BACHMANN, Auteur Article en page(s) : p.540-552 Langues : Anglais (eng) Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ?85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552[article] Health Services Use and Costs in Individuals with Autism Spectrum Disorder in Germany: Results from a Survey in ASD Outpatient Clinics [Texte imprimé et/ou numérique] / J. HOFER, Auteur ; F. HOFFMANN, Auteur ; M. DÖRKS, Auteur ; I. KAMP-BECKER, Auteur ; C. KÜPPER, Auteur ; L. POUSTKA, Auteur ; S. ROEPKE, Auteur ; V. ROESSNER, Auteur ; S. STROTH, Auteur ; N. WOLFF, Auteur ; C. J. BACHMANN, Auteur . - p.540-552.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.540-552
Mots-clés : Ambulatory Care Facilities Autism Spectrum Disorder/epidemiology/therapy Female Germany/epidemiology Health Care Costs Humans Male Mental Health Services Adolescents Adults Children Costs Germany Health services Index. décimale : PER Périodiques Résumé : Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ?85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care (19.8%), pharmacotherapy (11.1%), and occupational therapy (11.1%) being the largest cost components. Females incurred higher costs than males (4864 EUR vs. 2936 EUR). In a regression model, female sex (Cost Ratio: 1.65), lower IQ (1.90), and Asperger syndrome (1.54) were associated with higher costs. In conclusion, ASD-related health costs are comparable to those of schizophrenia, thus underlining its public health relevance. Higher costs in females demand further research. En ligne : http://dx.doi.org/10.1007/s10803-021-04955-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 The impact of COVID-19 on receipt of health services among children with and without autism / Sophie BRUNT in Autism, 28-3 (March 2024)
[article]
Titre : The impact of COVID-19 on receipt of health services among children with and without autism Type de document : Texte imprimé et/ou numérique Auteurs : Sophie BRUNT, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Micah O. MAZUREK, Auteur Article en page(s) : p.580-586 Langues : Anglais (eng) Mots-clés : autism COVID-19 health disparities health services NSCH Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic disrupted a range of health services for children across the United States. Autistic children have well-documented deficits in health-related services compared to nonautistic children. Parents of autistic children reported an increase in mental health and behavior problems with the onset of the pandemic, increasing the need for supportive services. The current study used data from the National Survey of Children?s Health from 2019 and 2020 to conduct logistic regressions predicting the likelihood of having unmet service needs before and after the onset of the pandemic. Results suggested that autistic children were more likely to have unmet medical, dental, and mental health service needs across years compared to nonautistic children, but there were no interactions by year. All children experienced an increased likelihood of having unmet needs from pre- to post-pandemic. Results suggest that although the pandemic disrupted services across the board, autistic children lacked health services regardless of the pandemic, pointing to persisting disparities in service receipt. A discussion of ongoing barriers to services and issues related to virtual services is included. Future research should further investigate the feasibility of virtual services as well as ways of reducing barriers to all services for autistic children. Lay abstract The COVID-19 pandemic disrupted doctor?s and dental visits, mental health treatments, and other special therapies for children across the United States. Prior research has found that autistic children were more likely to lack these services even before the pandemic, but they experienced more mental health and behavior problems with the onset of the pandemic, increasing the need for these services. This study analyzed data from before (2019) and after (2020) the onset of the pandemic to determine whether autistic children had even more severe disruptions in services after the pandemic started compared to nonautistic children. We found that autistic children were more likely to have unmet medical, dental, and mental health needs in both 2019 and 2020. Overall, children experienced increased disruptions from 2019 to 2020, but this did not differ by diagnosis. Our results suggest that there are persisting gaps in autistic children?s healthcare regardless of the pandemic. We discuss issues surrounding barriers to services for autistic children and issues surrounding virtual services, such as teletherapy. Future research should further explore how to reduce barriers to services for autistic children, including virtual and in-person services. En ligne : https://dx.doi.org/10.1177/13623613231176930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.580-586[article] The impact of COVID-19 on receipt of health services among children with and without autism [Texte imprimé et/ou numérique] / Sophie BRUNT, Auteur ; Eleonora SADIKOVA, Auteur ; Jessica PAPPAGIANOPOULOS, Auteur ; Micah O. MAZUREK, Auteur . - p.580-586.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.580-586
Mots-clés : autism COVID-19 health disparities health services NSCH Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic disrupted a range of health services for children across the United States. Autistic children have well-documented deficits in health-related services compared to nonautistic children. Parents of autistic children reported an increase in mental health and behavior problems with the onset of the pandemic, increasing the need for supportive services. The current study used data from the National Survey of Children?s Health from 2019 and 2020 to conduct logistic regressions predicting the likelihood of having unmet service needs before and after the onset of the pandemic. Results suggested that autistic children were more likely to have unmet medical, dental, and mental health service needs across years compared to nonautistic children, but there were no interactions by year. All children experienced an increased likelihood of having unmet needs from pre- to post-pandemic. Results suggest that although the pandemic disrupted services across the board, autistic children lacked health services regardless of the pandemic, pointing to persisting disparities in service receipt. A discussion of ongoing barriers to services and issues related to virtual services is included. Future research should further investigate the feasibility of virtual services as well as ways of reducing barriers to all services for autistic children. Lay abstract The COVID-19 pandemic disrupted doctor?s and dental visits, mental health treatments, and other special therapies for children across the United States. Prior research has found that autistic children were more likely to lack these services even before the pandemic, but they experienced more mental health and behavior problems with the onset of the pandemic, increasing the need for these services. This study analyzed data from before (2019) and after (2020) the onset of the pandemic to determine whether autistic children had even more severe disruptions in services after the pandemic started compared to nonautistic children. We found that autistic children were more likely to have unmet medical, dental, and mental health needs in both 2019 and 2020. Overall, children experienced increased disruptions from 2019 to 2020, but this did not differ by diagnosis. Our results suggest that there are persisting gaps in autistic children?s healthcare regardless of the pandemic. We discuss issues surrounding barriers to services for autistic children and issues surrounding virtual services, such as teletherapy. Future research should further explore how to reduce barriers to services for autistic children, including virtual and in-person services. En ligne : https://dx.doi.org/10.1177/13623613231176930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 Use of allied-health services and medication among adults with ASD in Latin America / A. TORRES in Autism Research, 14-10 (October 2021)
[article]
Titre : Use of allied-health services and medication among adults with ASD in Latin America Type de document : Texte imprimé et/ou numérique Auteurs : A. TORRES, Auteur ; D. LECUSAY, Auteur ; D. VALDEZ, Auteur ; A. ROSOLI, Auteur ; G. GARRIDO, Auteur ; S. CUKIER, Auteur ; C. S. PAULA, Auteur ; R. GARCIA, Auteur ; A. RATTAZZI, Auteur ; C. MONTIEL-NAVA, Auteur Article en page(s) : p.2200-2211 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/drug therapy Autistic Disorder Caregivers Health Services Humans Latin America Hispanics allied health autism autism medication health disparities Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use of services for Latin American adults on the spectrum. We surveyed 295 caregivers of adults with ASD from six Latin American countries. Comparing the results for all the possible services observed in this study, the adults in our sample were primarily underserved: 84.4%-95.9% were receiving zero hours per week, 3.7%-12.9% 1%-10 h, 0%-1.7% 11-20, and only 0%-1% above 20?h of services. Almost half of the sample used medication, and neurologists were the most consulted health providers. Next to inexistent health care usage in Latin American adults with ASD highlights socioeconomic and health disparities in service provision for ASD in the region. The lack of services places adults with ASD in Latin America at a higher risk of worse symptom severity than autistic adults from regions with broader access to services. LAY SUMMARY: This study aimed to identify the quantity of services received by adults with autism in Latin America. Most of our sample was not receiving health services yet almost half had access to medication. This could mean that adults with autism in Latin America are at higher risk for poorer health. En ligne : http://dx.doi.org/10.1002/aur.2583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 14-10 (October 2021) . - p.2200-2211[article] Use of allied-health services and medication among adults with ASD in Latin America [Texte imprimé et/ou numérique] / A. TORRES, Auteur ; D. LECUSAY, Auteur ; D. VALDEZ, Auteur ; A. ROSOLI, Auteur ; G. GARRIDO, Auteur ; S. CUKIER, Auteur ; C. S. PAULA, Auteur ; R. GARCIA, Auteur ; A. RATTAZZI, Auteur ; C. MONTIEL-NAVA, Auteur . - p.2200-2211.
Langues : Anglais (eng)
in Autism Research > 14-10 (October 2021) . - p.2200-2211
Mots-clés : Adult Autism Spectrum Disorder/drug therapy Autistic Disorder Caregivers Health Services Humans Latin America Hispanics allied health autism autism medication health disparities Index. décimale : PER Périodiques Résumé : ASD is a neurodevelopmental disorder that affects people across the entire lifespan, yet most of the research identifying the health and medical needs for autistic individuals have been among minors. As individuals with ASD transition to emerging adulthood, the services, already limited, become less available. This study aimed to identify the use of services for Latin American adults on the spectrum. We surveyed 295 caregivers of adults with ASD from six Latin American countries. Comparing the results for all the possible services observed in this study, the adults in our sample were primarily underserved: 84.4%-95.9% were receiving zero hours per week, 3.7%-12.9% 1%-10 h, 0%-1.7% 11-20, and only 0%-1% above 20?h of services. Almost half of the sample used medication, and neurologists were the most consulted health providers. Next to inexistent health care usage in Latin American adults with ASD highlights socioeconomic and health disparities in service provision for ASD in the region. The lack of services places adults with ASD in Latin America at a higher risk of worse symptom severity than autistic adults from regions with broader access to services. LAY SUMMARY: This study aimed to identify the quantity of services received by adults with autism in Latin America. Most of our sample was not receiving health services yet almost half had access to medication. This could mean that adults with autism in Latin America are at higher risk for poorer health. En ligne : http://dx.doi.org/10.1002/aur.2583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Physical health needs and self-reported health status among adults with autism / Paul TURCOTTE in Autism, 25-3 (April 2021)
[article]
Titre : Physical health needs and self-reported health status among adults with autism Type de document : Texte imprimé et/ou numérique Auteurs : Paul TURCOTTE, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.695-704 Langues : Anglais (eng) Mots-clés : adults autism spectrum disorders health services quality of life Index. décimale : PER Périodiques Résumé : Self-reported health can be a powerful measure of how adults with autism spectrum disorder view their overall health. The goal of this study was to determine how health statuses of adults with autism spectrum disorder change, when they are currently receiving or need more physical health services. The Pennsylvania autism needs assessment included a survey of individuals with autism aged 18?years or older responding for themselves. They indicated whether their health status changed over the previous year as improved, decreased, or remained stable. We found that most adults with autism spectrum disorder had their health remain the same (68%). We also found that adults who said their health got worse needed more physical health services, compared to those whose health remained stable, or got better. Supporting the health of adults with autism can be complex and finding out more about how physical health services play a role in that care is important. En ligne : http://dx.doi.org/10.1177/1362361320971099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Autism > 25-3 (April 2021) . - p.695-704[article] Physical health needs and self-reported health status among adults with autism [Texte imprimé et/ou numérique] / Paul TURCOTTE, Auteur ; Lindsay SHEA, Auteur . - p.695-704.
Langues : Anglais (eng)
in Autism > 25-3 (April 2021) . - p.695-704
Mots-clés : adults autism spectrum disorders health services quality of life Index. décimale : PER Périodiques Résumé : Self-reported health can be a powerful measure of how adults with autism spectrum disorder view their overall health. The goal of this study was to determine how health statuses of adults with autism spectrum disorder change, when they are currently receiving or need more physical health services. The Pennsylvania autism needs assessment included a survey of individuals with autism aged 18?years or older responding for themselves. They indicated whether their health status changed over the previous year as improved, decreased, or remained stable. We found that most adults with autism spectrum disorder had their health remain the same (68%). We also found that adults who said their health got worse needed more physical health services, compared to those whose health remained stable, or got better. Supporting the health of adults with autism can be complex and finding out more about how physical health services play a role in that care is important. En ligne : http://dx.doi.org/10.1177/1362361320971099 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 Predictors of health service use among adolescents and adults with autism and aggression / Melissa PAQUETTE-SMITH in Research in Autism Spectrum Disorders, 68 (December 2019)
[article]
Titre : Predictors of health service use among adolescents and adults with autism and aggression Type de document : Texte imprimé et/ou numérique Auteurs : Melissa PAQUETTE-SMITH, Auteur ; Jonathan A. WEISS, Auteur ; Julie DERGAL, Auteur ; Johanna LAKE, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.101418 Langues : Anglais (eng) Mots-clés : Health services Autism Adolescents Adults Psychotropic medication Psychosocial intervention Behavioral intervention Aggression Index. décimale : PER Périodiques Résumé : Background Clinical guidelines recommend that psychosocial interventions be used before medication to manage aggressive behavior in individuals with autism. However, the extent to which a multidisciplinary approach is implemented and the factors that influence service use in this complex population are not well understood. Methods In this study, parents of 182 adolescents and adults with autism and a history of aggression were asked to report on their child’s health service use every two months for a year. Individuals that used services in this time period (N?=?158) were classified into three groups: users of psychotropic medication alone (n?=?28, 17.7%); psychosocial services alone (n?=?33, 20.9%); or users of both (n?=?97, 61.4%). Results Although the majority of the sample (82.3%) received guideline recommended treatment (i.e., psychosocial services or a combination of psychosocial services and psychotropic medication), 17.7% were using psychotropic medication alone. Several enabling variables, including visiting a family physician in the two-months prior to baseline, having higher parental education, and having parents who reported being able to effectively access services predicted using psychosocial services alone or in combination with medication. Predisposing and need variables (i.e., being younger and having no psychiatric disorders) also predicted using psychosocial services compared to medication alone. Conclusions Understanding predictors of service use can help to identify and address barriers that may prevent adults with autism and aggression from accessing guideline recommended care. En ligne : https://doi.org/10.1016/j.rasd.2019.101418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407
in Research in Autism Spectrum Disorders > 68 (December 2019) . - p.101418[article] Predictors of health service use among adolescents and adults with autism and aggression [Texte imprimé et/ou numérique] / Melissa PAQUETTE-SMITH, Auteur ; Jonathan A. WEISS, Auteur ; Julie DERGAL, Auteur ; Johanna LAKE, Auteur ; Yona LUNSKY, Auteur . - p.101418.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 68 (December 2019) . - p.101418
Mots-clés : Health services Autism Adolescents Adults Psychotropic medication Psychosocial intervention Behavioral intervention Aggression Index. décimale : PER Périodiques Résumé : Background Clinical guidelines recommend that psychosocial interventions be used before medication to manage aggressive behavior in individuals with autism. However, the extent to which a multidisciplinary approach is implemented and the factors that influence service use in this complex population are not well understood. Methods In this study, parents of 182 adolescents and adults with autism and a history of aggression were asked to report on their child’s health service use every two months for a year. Individuals that used services in this time period (N?=?158) were classified into three groups: users of psychotropic medication alone (n?=?28, 17.7%); psychosocial services alone (n?=?33, 20.9%); or users of both (n?=?97, 61.4%). Results Although the majority of the sample (82.3%) received guideline recommended treatment (i.e., psychosocial services or a combination of psychosocial services and psychotropic medication), 17.7% were using psychotropic medication alone. Several enabling variables, including visiting a family physician in the two-months prior to baseline, having higher parental education, and having parents who reported being able to effectively access services predicted using psychosocial services alone or in combination with medication. Predisposing and need variables (i.e., being younger and having no psychiatric disorders) also predicted using psychosocial services compared to medication alone. Conclusions Understanding predictors of service use can help to identify and address barriers that may prevent adults with autism and aggression from accessing guideline recommended care. En ligne : https://doi.org/10.1016/j.rasd.2019.101418 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 Where are US outpatient mental health facilities that serve children with autism spectrum disorder? A national snapshot of geographic disparities / J. CANTOR in Autism, 26-1 (January 2022)
PermalinkHealth status of Medicare-enrolled autistic older adults with and without co-occurring intellectual disability: An analysis of inpatient and institutional outpatient medical claims / Daniel GILMORE in Autism, 25-1 (January 2021)
Permalink"I?m dealing with a health care system that doesn?t get it": Barriers and facilitators to inclusive healthcare for autistic adults / Kiley J. MCLEAN in Autism, 28-6 (June 2024)
Permalink'I?m not just being difficult .?.?. I?m finding it difficult': A qualitative approach to understanding experiences of autistic parents when interacting with statutory services regarding their autistic child / Sarah RADEV in Autism, 28-6 (June 2024)
PermalinkIncreased prevalence of non-communicable physical health conditions among autistic adults / Elizabeth WEIR in Autism, 25-3 (April 2021)
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