3 recherche sur le mot-clé 'Participatory action research'

Exploring and building autism service capacity in rural and remote regions: Participatory action research in rural Alberta and British Columbia, Canada / A. YOUNG in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1143-1151 Titre : Exploring and building autism service capacity in rural and remote regions: Participatory action research in rural Alberta and British Columbia, Canada Type de document : Texte imprimé et/ou numérique Auteurs : A. YOUNG, Auteur ; David B NICHOLAS, Auteur ; S. P. CHAMBERLAIN, Auteur ; N. SUAPA, Auteur ; N. GALE, Auteur ; A. J. BAILEY, Auteur Article en page(s) : p.1143-1151 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  participatory action research  rural and remote services Index. décimale : PER Périodiques Résumé : Based in participatory action research, this project had the aim of building capacity in treatment and support for individuals and families impacted by autism spectrum disorder in remote and rural communities of Canada. Communities were selected based on their rurality and willingness to engage in change efforts for enhanced service delivery within their region. Fifteen discussion groups with key stakeholders were convened in seven communities with ~200 community stakeholders. Based on analyses of these data from the stakeholders, themes were distilled through interpretive description, which in turn were presented to community stakeholders for reflection and collective action. Findings indicate broad thematic domains consisting of: insufficient services, protective factors in community, change efforts via collectivity within community, limitations and benefits of residing in rural communities relative to care associated with autism spectrum disorder, a sense of "community" in rural contexts, and engaging in focused dialogue as a pathway to advancement. Opportunities for building capacity for support in autism spectrum disorder emerged within intersecting layers of leadership, contextual factors, and community collaboration. Consistent with participatory action research principles, emerging local knowledge was supported with strategies for improved autism spectrum disorder service development. En ligne : http://dx.doi.org/10.1177/1362361318801340 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4014 [article] Exploring and building autism service capacity in rural and remote regions: Participatory action research in rural Alberta and British Columbia, Canada [Texte imprimé et/ou numérique] / A. YOUNG, Auteur ; David B NICHOLAS, Auteur ; S. P. CHAMBERLAIN, Auteur ; N. SUAPA, Auteur ; N. GALE, Auteur ; A. J. BAILEY, Auteur . - p.1143-1151. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1143-1151 Mots-clés : autism spectrum disorder  participatory action research  rural and remote services Index. décimale : PER Périodiques Résumé : Based in participatory action research, this project had the aim of building capacity in treatment and support for individuals and families impacted by autism spectrum disorder in remote and rural communities of Canada. Communities were selected based on their rurality and willingness to engage in change efforts for enhanced service delivery within their region. Fifteen discussion groups with key stakeholders were convened in seven communities with ~200 community stakeholders. Based on analyses of these data from the stakeholders, themes were distilled through interpretive description, which in turn were presented to community stakeholders for reflection and collective action. Findings indicate broad thematic domains consisting of: insufficient services, protective factors in community, change efforts via collectivity within community, limitations and benefits of residing in rural communities relative to care associated with autism spectrum disorder, a sense of "community" in rural contexts, and engaging in focused dialogue as a pathway to advancement. Opportunities for building capacity for support in autism spectrum disorder emerged within intersecting layers of leadership, contextual factors, and community collaboration. Consistent with participatory action research principles, emerging local knowledge was supported with strategies for improved autism spectrum disorder service development. En ligne : http://dx.doi.org/10.1177/1362361318801340 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4014

Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project / Teal W. BENEVIDES in Autism, 24-4 (May 2020)  

Public ISBD [article]  inAutism > 24-4 (May 2020) . - p.822-833 Titre : Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project Type de document : Texte imprimé et/ou numérique Auteurs : Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur Article en page(s) : p.822-833 Langues : Anglais (eng) Mots-clés : autism  autistic  mental health  mental health outcomes  participatory action research  priorities  stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4258 [article] Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project [Texte imprimé et/ou numérique] / Teal W. BENEVIDES, Auteur ; Stephen M. SHORE, Auteur ; Kate PALMER, Auteur ; Patricia DUNCAN, Auteur ; Alex PLANK, Auteur ; May-Lynn ANDRESEN, Auteur ; Reid CAPLAN, Auteur ; Barb COOK, Auteur ; Dena GASSNER, Auteur ; Becca Lory HECTOR, Auteur ; Lisa MORGAN, Auteur ; Lindsey NEBEKER, Auteur ; Yenn PURKIS, Auteur ; Brigid RANKOWSKI, Auteur ; Karl WITTIG, Auteur ; Steven S. COUGHLIN, Auteur . - p.822-833. Langues : Anglais (eng) in Autism > 24-4 (May 2020) . - p.822-833 Mots-clés : autism  autistic  mental health  mental health outcomes  participatory action research  priorities  stakeholder Index. décimale : PER Périodiques Résumé : Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320908410 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4258

Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder / R. ZHU in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.38-51 Titre : Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : R. ZHU, Auteur ; D. HARDY, Auteur ; T. MYERS, Auteur Article en page(s) : p.38-51 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder  Friends  Humans  Parents  Social Networking  Autism  Co-design  Participatory action research  Participatory design Index. décimale : PER Périodiques Résumé : Adolescents with ASD face challenges in forming positive friendships due to their ASD condition. This study developed a social networking platform based on the needs of a small group of ASD adolescents and their parents/carers and examined what potential benefits such a system could provide. We conducted seven co-design workshops with six adolescents with ASD over eight months. The team exchanged ideas and communicated through group discussions and drawings. The findings suggest that: (1) participants demonstrated self-advocacy skills through an iterative co-design process; (2) a safe and familiar environment encourages active participation from adolescents with ASD as co-designers; and (3) parents, community group and fellow participants play a pivotal role in engaging adolescents with ASD on a social-network. En ligne : http://dx.doi.org/10.1007/s10803-021-04918-9 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4547 [article] Community Led Co-Design of a Social Networking Platform with Adolescents with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / R. ZHU, Auteur ; D. HARDY, Auteur ; T. MYERS, Auteur . - p.38-51. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.38-51 Mots-clés : Adolescent  Autism Spectrum Disorder  Friends  Humans  Parents  Social Networking  Autism  Co-design  Participatory action research  Participatory design Index. décimale : PER Périodiques Résumé : Adolescents with ASD face challenges in forming positive friendships due to their ASD condition. This study developed a social networking platform based on the needs of a small group of ASD adolescents and their parents/carers and examined what potential benefits such a system could provide. We conducted seven co-design workshops with six adolescents with ASD over eight months. The team exchanged ideas and communicated through group discussions and drawings. The findings suggest that: (1) participants demonstrated self-advocacy skills through an iterative co-design process; (2) a safe and familiar environment encourages active participation from adolescents with ASD as co-designers; and (3) parents, community group and fellow participants play a pivotal role in engaging adolescents with ASD on a social-network. En ligne : http://dx.doi.org/10.1007/s10803-021-04918-9 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4547