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Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders / T. W. FRAZIER in Journal of Autism and Developmental Disorders, 48-11 (November 2018)
[article]
Titre : Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders Type de document : Texte imprimé et/ou numérique Auteurs : T. W. FRAZIER, Auteur ; G. DAWSON, Auteur ; D. MURRAY, Auteur ; A. SHIH, Auteur ; J. S. SACHS, Auteur ; A. GEIGER, Auteur Article en page(s) : p.3965-3971 Langues : Anglais (eng) Mots-clés : Adult transition Autism Caregivers Funding Research priorities Stakeholders Index. décimale : PER Périodiques Résumé : Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities. En ligne : http://dx.doi.org/10.1007/s10803-018-3642-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370
in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3965-3971[article] Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders [Texte imprimé et/ou numérique] / T. W. FRAZIER, Auteur ; G. DAWSON, Auteur ; D. MURRAY, Auteur ; A. SHIH, Auteur ; J. S. SACHS, Auteur ; A. GEIGER, Auteur . - p.3965-3971.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-11 (November 2018) . - p.3965-3971
Mots-clés : Adult transition Autism Caregivers Funding Research priorities Stakeholders Index. décimale : PER Périodiques Résumé : Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities. En ligne : http://dx.doi.org/10.1007/s10803-018-3642-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 Priorities for Advancing Research on Youth with Autism Spectrum Disorder and Co-occurring Anxiety / R. A. VASA in Journal of Autism and Developmental Disorders, 48-3 (March 2018)
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Titre : Priorities for Advancing Research on Youth with Autism Spectrum Disorder and Co-occurring Anxiety Type de document : Texte imprimé et/ou numérique Auteurs : R. A. VASA, Auteur ; A. KEEFER, Auteur ; J. REAVEN, Auteur ; M. SOUTH, Auteur ; Susan W. WHITE, Auteur Année de publication : 2018 Article en page(s) : p.925-934 Langues : Anglais (eng) Mots-clés : Anxiety Autism Children and adolescents Research priorities Index. décimale : PER Périodiques Résumé : Research on anxiety disorders in youth with autism spectrum disorder (ASD) has burgeoned in the past two decades. Yet, critical gaps exist with respect to measuring and treating anxiety in this population. This study used the nominal group technique to identify the most important research priorities on co-occurring anxiety in ASD. An international group of researchers and clinicians with experience in ASD and anxiety participated in the process. Topics ranked as most important focused on understanding how ASD symptoms affect treatment response, implementing treatments in real world settings, developing methods to disentangle overlapping symptoms between anxiety and ASD, and developing objective measures to assess anxiety. Collectively, these priorities can lead to collaborative studies to accelerate research in the field. En ligne : https://doi.org/10.1007/s10803-017-3320-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339
in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.925-934[article] Priorities for Advancing Research on Youth with Autism Spectrum Disorder and Co-occurring Anxiety [Texte imprimé et/ou numérique] / R. A. VASA, Auteur ; A. KEEFER, Auteur ; J. REAVEN, Auteur ; M. SOUTH, Auteur ; Susan W. WHITE, Auteur . - 2018 . - p.925-934.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.925-934
Mots-clés : Anxiety Autism Children and adolescents Research priorities Index. décimale : PER Périodiques Résumé : Research on anxiety disorders in youth with autism spectrum disorder (ASD) has burgeoned in the past two decades. Yet, critical gaps exist with respect to measuring and treating anxiety in this population. This study used the nominal group technique to identify the most important research priorities on co-occurring anxiety in ASD. An international group of researchers and clinicians with experience in ASD and anxiety participated in the process. Topics ranked as most important focused on understanding how ASD symptoms affect treatment response, implementing treatments in real world settings, developing methods to disentangle overlapping symptoms between anxiety and ASD, and developing objective measures to assess anxiety. Collectively, these priorities can lead to collaborative studies to accelerate research in the field. En ligne : https://doi.org/10.1007/s10803-017-3320-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339 A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 / Lisa Marie EMERSON in Autism, 27-8 (November 2023)
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Titre : A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 Type de document : Texte imprimé et/ou numérique Auteurs : Lisa Marie EMERSON, Auteur ; Elizabeth PELLICANO, Auteur ; Ruth MONK, Auteur ; Melissa LIM, Auteur ; Jessica HEATON, Auteur ; Laurie MCLAY, Auteur Article en page(s) : p.2256-2268 Mots-clés : autism research autistic community funding research priorities Index. décimale : PER Périodiques Résumé : Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research.Lay AbstractWe aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We compared the funding distribution in Aotearoa New Zealand to other countries. We asked people from the autistic community and broader autism community whether they were satisfied with this funding pattern, and whether it aligned with what is important to them and to autistic people. We found that the majority of funding for autism research was awarded to biology research (67%). Members of the autistic and autism communities were dissatisfied with the funding distribution, and expressed a lack of alignment with what is important to them. People from the community indicated that the funding distribution did not address the priorities of autistic people, and that it indicated a lack of engagement with autistic people. Autism research funding needs to reflect the priorities of the autistic and autism communities. Autistic people need to be included in autism research and related funding decisions. En ligne : http://dx.doi.org/10.1177/13623613231155954 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513
in Autism > 27-8 (November 2023) . - p.2256-2268[article] A portfolio analysis of autism research funding in Aotearoa New Zealand 2007-2021 [Texte imprimé et/ou numérique] / Lisa Marie EMERSON, Auteur ; Elizabeth PELLICANO, Auteur ; Ruth MONK, Auteur ; Melissa LIM, Auteur ; Jessica HEATON, Auteur ; Laurie MCLAY, Auteur . - p.2256-2268.
in Autism > 27-8 (November 2023) . - p.2256-2268
Mots-clés : autism research autistic community funding research priorities Index. décimale : PER Périodiques Résumé : Previously documented global trends in autism research funding have been skewed towards biology research, which is at odds with the priorities expressed by autistic and autism community members. We aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand, and to explore the views of the autistic and autism communities on this funding distribution. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We categorised the funding for autism research to enable comparison to that previously documented in other countries. We elicited the views of the autistic and autism communities in relation to the funded autism research, through an online survey and a series of focus groups. The largest proportion of money and number of grants was awarded to biological research. Community members expressed dissatisfaction with this pattern of funding, and noted that it does not address the needs and priorities of the autistic community. Community members suggested that the funding pattern indicated a lack of autistic consultation and engagement in research design and funding allocation. The priorities of the autistic and autism communities need to be considered by researchers and funders alike. We discuss how autistic inclusion in research can be supported through decision-making regarding funding and ethics relating to autism research.Lay AbstractWe aimed to document the areas of autism research that have previously been funded in Aotearoa New Zealand. We searched for research grants awarded to autism research in Aotearoa New Zealand between 2007 and 2021. We compared the funding distribution in Aotearoa New Zealand to other countries. We asked people from the autistic community and broader autism community whether they were satisfied with this funding pattern, and whether it aligned with what is important to them and to autistic people. We found that the majority of funding for autism research was awarded to biology research (67%). Members of the autistic and autism communities were dissatisfied with the funding distribution, and expressed a lack of alignment with what is important to them. People from the community indicated that the funding distribution did not address the priorities of autistic people, and that it indicated a lack of engagement with autistic people. Autism research funding needs to reflect the priorities of the autistic and autism communities. Autistic people need to be included in autism research and related funding decisions. En ligne : http://dx.doi.org/10.1177/13623613231155954 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 A Portfolio Analysis of Autism Research Funding in Australia, 2008-2017 / Jacquiline DEN HOUTING in Journal of Autism and Developmental Disorders, 49-11 (November 2019)
[article]
Titre : A Portfolio Analysis of Autism Research Funding in Australia, 2008-2017 Type de document : Texte imprimé et/ou numérique Auteurs : Jacquiline DEN HOUTING, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.4400-4408 Langues : Anglais (eng) Mots-clés : Australia Autism Funding Participatory Portfolio analysis Research priorities Index. décimale : PER Périodiques Résumé : Autism research funding across the world has disproportionately been invested in biological and genetic research, despite evidence that these topics are not prioritized by community members. We sought to determine whether a similar pattern was evident in Australia's autism research funding landscape between 2008 and 2017, by analysing the nation's portfolio of autism research investments. We also examined whether there was any change in this pattern of funding since the establishment in 2013 of the Cooperative Research Centre for Living with Autism (Autism CRC). Overall, Australian autism research funding during 2008-2017 followed a similar pattern to other countries, but shifted in the past 5 years. Further progress is required to bring research funding into line with community priorities. En ligne : http://dx.doi.org/10.1007/s10803-019-04155-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408
in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4400-4408[article] A Portfolio Analysis of Autism Research Funding in Australia, 2008-2017 [Texte imprimé et/ou numérique] / Jacquiline DEN HOUTING, Auteur ; E. PELLICANO, Auteur . - p.4400-4408.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4400-4408
Mots-clés : Australia Autism Funding Participatory Portfolio analysis Research priorities Index. décimale : PER Périodiques Résumé : Autism research funding across the world has disproportionately been invested in biological and genetic research, despite evidence that these topics are not prioritized by community members. We sought to determine whether a similar pattern was evident in Australia's autism research funding landscape between 2008 and 2017, by analysing the nation's portfolio of autism research investments. We also examined whether there was any change in this pattern of funding since the establishment in 2013 of the Cooperative Research Centre for Living with Autism (Autism CRC). Overall, Australian autism research funding during 2008-2017 followed a similar pattern to other countries, but shifted in the past 5 years. Further progress is required to bring research funding into line with community priorities. En ligne : http://dx.doi.org/10.1007/s10803-019-04155-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 Short report: Patterns of US federal autism research funding during 2017-2019 / L. HARRIS in Autism, 25-7 (October 2021)
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Titre : Short report: Patterns of US federal autism research funding during 2017-2019 Type de document : Texte imprimé et/ou numérique Auteurs : L. HARRIS, Auteur ; D. GILMORE, Auteur ; A. LONGO, Auteur ; B. N. HAND, Auteur Article en page(s) : p.2135-2139 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Financial Management Humans United States autism funding research priorities Index. décimale : PER Périodiques Résumé : In 2017, an advisory board consisting of autism researchers and community members recommended that funders of autism research prioritize research projects on: (1) treatments/interventions, (2) evidence-based services, and (3) lifespan issues. To describe funding in these areas since this recommendation was made, we searched the databases of the three largest federal funders of autism research in the United States. We found that the largest portion of federal funding during 2017-2019 was awarded to research on the biology of autism (32.59%) and treatments and interventions for autism (22.87%). Less funds were awarded to research areas that are high funding priorities by the Interagency Autism Coordinating Committee budget recommendation including services (5.02%) and lifespan issues (2.51%). Our findings emphasize that autism research funding is not consistent with the Interagency Autism Coordinating Committee budget recommendation to increase funding particularly to services and lifespan issues. We recommend that funding patterns should shift to better align with these priorities so that autism research may better serve the needs of the autism community. En ligne : http://dx.doi.org/10.1177/13623613211003430 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 25-7 (October 2021) . - p.2135-2139[article] Short report: Patterns of US federal autism research funding during 2017-2019 [Texte imprimé et/ou numérique] / L. HARRIS, Auteur ; D. GILMORE, Auteur ; A. LONGO, Auteur ; B. N. HAND, Auteur . - p.2135-2139.
Langues : Anglais (eng)
in Autism > 25-7 (October 2021) . - p.2135-2139
Mots-clés : Autism Spectrum Disorder/therapy Autistic Disorder/therapy Financial Management Humans United States autism funding research priorities Index. décimale : PER Périodiques Résumé : In 2017, an advisory board consisting of autism researchers and community members recommended that funders of autism research prioritize research projects on: (1) treatments/interventions, (2) evidence-based services, and (3) lifespan issues. To describe funding in these areas since this recommendation was made, we searched the databases of the three largest federal funders of autism research in the United States. We found that the largest portion of federal funding during 2017-2019 was awarded to research on the biology of autism (32.59%) and treatments and interventions for autism (22.87%). Less funds were awarded to research areas that are high funding priorities by the Interagency Autism Coordinating Committee budget recommendation including services (5.02%) and lifespan issues (2.51%). Our findings emphasize that autism research funding is not consistent with the Interagency Autism Coordinating Committee budget recommendation to increase funding particularly to services and lifespan issues. We recommend that funding patterns should shift to better align with these priorities so that autism research may better serve the needs of the autism community. En ligne : http://dx.doi.org/10.1177/13623613211003430 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Short report: Patterns of US federal autism research funding during 2017-2019 / Lauren HARRIS in Autism, 26-7 (October 2022)
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