Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews / Gauri DIVAN in Journal of Child Psychology and Psychiatry, 62-5 (May 2021)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Titre : Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews Type de document : texte imprimé Auteurs : Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur Article en page(s) : p.514-535 Langues : Anglais (eng) Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445 [article] Annual Research Review: Achieving universal health coverage for young children with autism spectrum disorder in low- and middle-income countries: a review of reviews [texte imprimé] / Gauri DIVAN, Auteur ; Supriya BHAVNANI, Auteur ; Kathy LEADBITTER, Auteur ; Ceri ELLIS, Auteur ; Jayashree DASGUPTA, Auteur ; Amina ABUBAKAR, Auteur ; Mayada ELSABBAGH, Auteur ; Syed Usman HAMDANI, Auteur ; Chiara SERVILI, Auteur ; Vikram PATEL, Auteur ; Jonathan GREEN, Auteur . - p.514-535. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 62-5 (May 2021) . - p.514-535 Mots-clés : Autism  detection gap  low- and middle-income countries  low-resource settings  scoping review  treatment gap Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism presents with similar prevalence and core impairments in diverse populations. We conducted a scoping review of reviews to determine key barriers and innovative strategies which can contribute to attaining universal health coverage (UHC), from early detection to effective interventions for autism in low- and middle-income countries (LAMIC). METHODS: A systematic literature search of review articles was conducted. Reviews relevant to the study research question were included if they incorporated papers from LAMIC and focused on children ( En ligne : http://dx.doi.org/10.1111/jcpp.13404 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=445

Association between spectral electroencephalography power and autism risk and diagnosis in early development / Scott HUBERTY in Autism Research, 14-7 (July 2021)  

Public ISBD [article]  inAutism Research > 14-7 (July 2021) . - p.1390-1403 Titre : Association between spectral electroencephalography power and autism risk and diagnosis in early development Type de document : texte imprimé Auteurs : Scott HUBERTY, Auteur ; Virginia CARTER LENO, Auteur ; Stefon J.R. VAN NOORDT, Auteur ; Rachael BEDFORD, Auteur ; Andrew PICKLES, Auteur ; James A. DESJARDINS, Auteur ; Sara J. WEBB, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.1390-1403 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Brain  Child, Preschool  Electroencephalography  Humans  Infant  Siblings  Eeg  autism spectrum disorders  infants  siblings Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) has its origins in the atypical development of brain networks. Infants who are at high familial risk for, and later diagnosed with ASD, show atypical activity in multiple electroencephalography (EEG) oscillatory measures. However, infant-sibling studies are often constrained by small sample sizes. We used the International Infant EEG Data Integration Platform, a multi-site dataset with 432 participants, including 222 at high-risk for ASD, from whom repeated measurements of EEG were collected between the ages of 3-36 months. We applied a latent growth curve model to test whether familial risk status predicts developmental trajectories of spectral power across the first 3 years of life, and whether these trajectories predict ASD outcome. Change in spectral EEG power in all frequency bands occurred during the first 3 years of life. Familial risk, but not a later diagnosis of ASD, was associated with reduced power at 3 months, and a steeper developmental change between 3 and 36 months in nearly all absolute power bands. ASD outcome was not associated with absolute power intercept or slope. No associations were found between risk or outcome and relative power. This study applied an analytic approach not used in previous prospective biomarker studies of ASD, which was modeled to reflect the temporal relationship between genetic susceptibility, brain development, and ASD diagnosis. Trajectories of spectral power appear to be predicted by familial risk; however, spectral power does not predict diagnostic outcome above and beyond familial risk status. Discrepancies between current results and previous studies are discussed. LAY SUMMARY: Infants with an older sibling who is diagnosed with ASD are at increased risk of developing ASD themselves. This article tested whether EEG spectral power in the first year of life can predict whether these infants did or did not develop ASD. En ligne : http://dx.doi.org/10.1002/aur.2518 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Association between spectral electroencephalography power and autism risk and diagnosis in early development [texte imprimé] / Scott HUBERTY, Auteur ; Virginia CARTER LENO, Auteur ; Stefon J.R. VAN NOORDT, Auteur ; Rachael BEDFORD, Auteur ; Andrew PICKLES, Auteur ; James A. DESJARDINS, Auteur ; Sara J. WEBB, Auteur ; Mayada ELSABBAGH, Auteur . - p.1390-1403. Langues : Anglais (eng) in Autism Research > 14-7 (July 2021) . - p.1390-1403 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Brain  Child, Preschool  Electroencephalography  Humans  Infant  Siblings  Eeg  autism spectrum disorders  infants  siblings Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) has its origins in the atypical development of brain networks. Infants who are at high familial risk for, and later diagnosed with ASD, show atypical activity in multiple electroencephalography (EEG) oscillatory measures. However, infant-sibling studies are often constrained by small sample sizes. We used the International Infant EEG Data Integration Platform, a multi-site dataset with 432 participants, including 222 at high-risk for ASD, from whom repeated measurements of EEG were collected between the ages of 3-36 months. We applied a latent growth curve model to test whether familial risk status predicts developmental trajectories of spectral power across the first 3 years of life, and whether these trajectories predict ASD outcome. Change in spectral EEG power in all frequency bands occurred during the first 3 years of life. Familial risk, but not a later diagnosis of ASD, was associated with reduced power at 3 months, and a steeper developmental change between 3 and 36 months in nearly all absolute power bands. ASD outcome was not associated with absolute power intercept or slope. No associations were found between risk or outcome and relative power. This study applied an analytic approach not used in previous prospective biomarker studies of ASD, which was modeled to reflect the temporal relationship between genetic susceptibility, brain development, and ASD diagnosis. Trajectories of spectral power appear to be predicted by familial risk; however, spectral power does not predict diagnostic outcome above and beyond familial risk status. Discrepancies between current results and previous studies are discussed. LAY SUMMARY: Infants with an older sibling who is diagnosed with ASD are at increased risk of developing ASD themselves. This article tested whether EEG spectral power in the first year of life can predict whether these infants did or did not develop ASD. En ligne : http://dx.doi.org/10.1002/aur.2518 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities / Rackeb TESFAYE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1882-1896 Titre : Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities Type de document : texte imprimé Auteurs : Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Afiqah YUSUF, Auteur ; Tal SAVION-LEMIEUX, Auteur ; Ilina SINGH, Auteur ; Keiko SHIKAKO-THOMAS, Auteur ; Pat MIRENDA, Auteur ; Charlotte WADDELL, Auteur ; Isabel M. SMITH, Auteur ; David B. NICHOLAS, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.1882-1896 Langues : Anglais (eng) Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities [texte imprimé] / Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Afiqah YUSUF, Auteur ; Tal SAVION-LEMIEUX, Auteur ; Ilina SINGH, Auteur ; Keiko SHIKAKO-THOMAS, Auteur ; Pat MIRENDA, Auteur ; Charlotte WADDELL, Auteur ; Isabel M. SMITH, Auteur ; David B. NICHOLAS, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur . - p.1882-1896. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1882-1896 Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Autism and the Grand Challenges in Global Mental Health / Naila Z. KHAN ; Lilia ALBORES-GALLO ; Aurora ARGHIR ; Bogdan BUDISTEANU ; Magdalena BUDISTEANU ; Iuliana DOBRESCU ; Kirsty DONALD ; Samia EL-TABARI ; Michelle HOOGENHOUT ; Fidelie KALAMBAYI ; Rafal KAWA ; Isaac LEMUS ESPINOZA ; Rosane LOWENTHAL ; Susan MALCOLM-SMITH ; Cecilia MONTIEL-NAVA ; Jumana ODEH ; Cristiane S. DE PAULA ; Florina RAD ; Adelaide Katerine TARPAN ; Kevin G.F. THOMAS ; Chongying WANG ; Vikram PATEL ; Simon BARON-COHEN ; Mayada ELSABBAGH in Autism Research, 5-3 (June 2012)  

Public ISBD [article]  inAutism Research > 5-3 (June 2012) . - p.156-159 Titre : Autism and the Grand Challenges in Global Mental Health Type de document : texte imprimé Auteurs : Naila Z. KHAN, Auteur ; Lilia ALBORES-GALLO, Auteur ; Aurora ARGHIR, Auteur ; Bogdan BUDISTEANU, Auteur ; Magdalena BUDISTEANU, Auteur ; Iuliana DOBRESCU, Auteur ; Kirsty DONALD, Auteur ; Samia EL-TABARI, Auteur ; Michelle HOOGENHOUT, Auteur ; Fidelie KALAMBAYI, Auteur ; Rafal KAWA, Auteur ; Isaac LEMUS ESPINOZA, Auteur ; Rosane LOWENTHAL, Auteur ; Susan MALCOLM-SMITH, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Jumana ODEH, Auteur ; Cristiane S. DE PAULA, Auteur ; Florina RAD, Auteur ; Adelaide Katerine TARPAN, Auteur ; Kevin G.F. THOMAS, Auteur ; Chongying WANG, Auteur ; Vikram PATEL, Auteur ; Simon BARON-COHEN, Auteur ; Mayada ELSABBAGH, Auteur Année de publication : 2012 Article en page(s) : p.156-159 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163 [article] Autism and the Grand Challenges in Global Mental Health [texte imprimé] / Naila Z. KHAN, Auteur ; Lilia ALBORES-GALLO, Auteur ; Aurora ARGHIR, Auteur ; Bogdan BUDISTEANU, Auteur ; Magdalena BUDISTEANU, Auteur ; Iuliana DOBRESCU, Auteur ; Kirsty DONALD, Auteur ; Samia EL-TABARI, Auteur ; Michelle HOOGENHOUT, Auteur ; Fidelie KALAMBAYI, Auteur ; Rafal KAWA, Auteur ; Isaac LEMUS ESPINOZA, Auteur ; Rosane LOWENTHAL, Auteur ; Susan MALCOLM-SMITH, Auteur ; Cecilia MONTIEL-NAVA, Auteur ; Jumana ODEH, Auteur ; Cristiane S. DE PAULA, Auteur ; Florina RAD, Auteur ; Adelaide Katerine TARPAN, Auteur ; Kevin G.F. THOMAS, Auteur ; Chongying WANG, Auteur ; Vikram PATEL, Auteur ; Simon BARON-COHEN, Auteur ; Mayada ELSABBAGH, Auteur . - 2012 . - p.156-159. Langues : Anglais (eng) in Autism Research > 5-3 (June 2012) . - p.156-159 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1002/aur.1239 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=163

Autism research beyond the bench / Ilina SINGH in Autism, 18-7 (October 2014)  

Public ISBD [article]  inAutism > 18-7 (October 2014) . - p.754-755 Titre : Autism research beyond the bench Type de document : texte imprimé Auteurs : Ilina SINGH, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.754-755 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361314548816 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241 [article] Autism research beyond the bench [texte imprimé] / Ilina SINGH, Auteur ; Mayada ELSABBAGH, Auteur . - p.754-755. Langues : Anglais (eng) in Autism > 18-7 (October 2014) . - p.754-755 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361314548816 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=241

Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide / Maureen S. DURKIN in Autism Research, 8-5 (October 2015)  

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Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth / Rackeb TESFAYE in Autism, 27-4 (May 2023)  

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"Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / Katherine T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

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Brief Report: Characteristics of preschool children with ASD vary by ascertainment / Lori-Ann R. SACREY in Journal of Autism and Developmental Disorders, 47-5 (May 2017)  

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Community engagement and knowledge translation: Progress and challenge in autism research / Mayada ELSABBAGH in Autism, 18-7 (October 2014)  

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Correction to: "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / Katherine T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

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Correction to: Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes / Anat ZAIDMAN-ZAIT in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

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Disentangling global and domain-level adaptive behavior trajectories among children with autism spectrum disorder / Cristan FARMER in Journal of Child Psychology and Psychiatry, 64-6 (June 2023)  

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Do reciprocal associations exist between social and language pathways in preschoolers with autism spectrum disorders? / Teresa BENNETT in Journal of Child Psychology and Psychiatry, 56-8 (August 2015)  

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Early Language Profiles in Infants at High-Risk for Autism Spectrum Disorders / Kristelle HUDRY in Journal of Autism and Developmental Disorders, 44-1 (January 2014)  

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