Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 25-5 (July 2021)  

Public ISBD [article]  inAutism > 25-5 (July 2021) . - p.1335-1348 Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348. Langues : Anglais (eng) in Autism > 25-5 (July 2021) . - p.1335-1348 Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1335-1348 Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1335-1348 Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Everyday executive function predicts adaptive and internalizing behavior among children with and without autism spectrum disorder / Emily GARDINER in Autism Research, 11-2 (February 2018)  

Public ISBD [article]  inAutism Research > 11-2 (February 2018) . - p.284-295 Titre : Everyday executive function predicts adaptive and internalizing behavior among children with and without autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Année de publication : 2018 Article en page(s) : p.284-295 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) demonstrate challenges with executive function (EF), adaptive behavior, and mental health, all of which place long?term wellbeing at risk. In the current study we examined the relation between parent?rated EF and adaptive functioning and internalizing symptoms (anxiety, depression), as we expected that identifying the specific EF domains most closely related to these indices of functioning would illuminate opportunities for targeted intervention. Participants included 59 children and adolescents with ASD (M?=?10.1 years) and 67 who were typically developing (TD) (M?=?9.4 years) matched on age, IQ, mental age, and maternal education. Caregivers completed the Behavior Rating Inventory of EF (BRIEF) and Behavior Assessment System for Children, Second Edition (BASC?2). Parents rated children with ASD as demonstrating significantly more challenges across most of the examined BRIEF and BASC?2 indices and scales, with the exception of organization of materials (BRIEF) and anxiety (BASC?2). For both groups, metacognitive EF processes emerged as strongly associated with practical, conceptual, and social skills, though different BRIEF scales emerged as significant across the component subdomains. In terms of the relation with mental health, BRIEF index scores were unrelated to anxiety for both groups. Behavior regulation, however, was significantly associated with depression symptoms for children with and without ASD. The findings highlight the possibility that targeting particular EF domains among individuals with and without ASD may not only have direct benefit for behavior regulation and metacognitive abilities, but may also extend to other areas of life, including adaptive behavior and concomitant internalizing symptomatology. Autism Res 2018, 11: 284–295. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary We examined whether parents’ ratings of their children's flexibility and ability to monitor their behavior predicted adaptive skills (e.g., ability to complete day?to?day personal tasks, communicate, and socialize) and symptoms of anxiety and depression among children with and without autism spectrum disorder. For both groups, children's abilities to manage and monitor their behavior were strongly related to adaptive skills. Children's flexibility and ability to inhibit inappropriate behavior and control their emotions was associated with depression symptoms for both groups. En ligne : https://doi.org/10.1002/aur.1877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334 [article] Everyday executive function predicts adaptive and internalizing behavior among children with and without autism spectrum disorder [Texte imprimé et/ou numérique] / Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - 2018 . - p.284-295. Langues : Anglais (eng) in Autism Research > 11-2 (February 2018) . - p.284-295 Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder (ASD) demonstrate challenges with executive function (EF), adaptive behavior, and mental health, all of which place long?term wellbeing at risk. In the current study we examined the relation between parent?rated EF and adaptive functioning and internalizing symptoms (anxiety, depression), as we expected that identifying the specific EF domains most closely related to these indices of functioning would illuminate opportunities for targeted intervention. Participants included 59 children and adolescents with ASD (M?=?10.1 years) and 67 who were typically developing (TD) (M?=?9.4 years) matched on age, IQ, mental age, and maternal education. Caregivers completed the Behavior Rating Inventory of EF (BRIEF) and Behavior Assessment System for Children, Second Edition (BASC?2). Parents rated children with ASD as demonstrating significantly more challenges across most of the examined BRIEF and BASC?2 indices and scales, with the exception of organization of materials (BRIEF) and anxiety (BASC?2). For both groups, metacognitive EF processes emerged as strongly associated with practical, conceptual, and social skills, though different BRIEF scales emerged as significant across the component subdomains. In terms of the relation with mental health, BRIEF index scores were unrelated to anxiety for both groups. Behavior regulation, however, was significantly associated with depression symptoms for children with and without ASD. The findings highlight the possibility that targeting particular EF domains among individuals with and without ASD may not only have direct benefit for behavior regulation and metacognitive abilities, but may also extend to other areas of life, including adaptive behavior and concomitant internalizing symptomatology. Autism Res 2018, 11: 284–295. © 2017 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary We examined whether parents’ ratings of their children's flexibility and ability to monitor their behavior predicted adaptive skills (e.g., ability to complete day?to?day personal tasks, communicate, and socialize) and symptoms of anxiety and depression among children with and without autism spectrum disorder. For both groups, children's abilities to manage and monitor their behavior were strongly related to adaptive skills. Children's flexibility and ability to inhibit inappropriate behavior and control their emotions was associated with depression symptoms for both groups. En ligne : https://doi.org/10.1002/aur.1877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=334

Satisfaction with informal supports predicts resilience in families of children with autism spectrum disorder / Vanessa FONG in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.452-463 Titre : Satisfaction with informal supports predicts resilience in families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.452-463 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  family resilience  informal supports  social support Index. décimale : PER Périodiques Résumé : The study of resilience among individuals with disabilities and their families represents a paradigmatic shift from a deficits orientation towards a more holistic and contextualized approach focused on strength and adaptation. The current study investigated whether informal supports could help improve families' capacity for resilience. We recruited 153 caregivers of children aged between 2 and 18?years who all had a diagnosis of autism. Participants were asked to complete surveys assessing resilience in their families as well as their satisfaction with informal supports (e.g. friends and family). Families more likely to report higher satisfaction with their informal support networks demonstrate greater resilience. The results suggest that informal social supports are a valuable resource for families in strengthening their capacity for resilience. The findings may help inform the development of interventions and services that work collaboratively and innovatively with families and their social networks to provide assistance and support in meaningful and effective ways. En ligne : http://dx.doi.org/10.1177/1362361320962677 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] Satisfaction with informal supports predicts resilience in families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.452-463. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.452-463 Mots-clés : autism spectrum disorder  family resilience  informal supports  social support Index. décimale : PER Périodiques Résumé : The study of resilience among individuals with disabilities and their families represents a paradigmatic shift from a deficits orientation towards a more holistic and contextualized approach focused on strength and adaptation. The current study investigated whether informal supports could help improve families' capacity for resilience. We recruited 153 caregivers of children aged between 2 and 18?years who all had a diagnosis of autism. Participants were asked to complete surveys assessing resilience in their families as well as their satisfaction with informal supports (e.g. friends and family). Families more likely to report higher satisfaction with their informal support networks demonstrate greater resilience. The results suggest that informal social supports are a valuable resource for families in strengthening their capacity for resilience. The findings may help inform the development of interventions and services that work collaboratively and innovatively with families and their social networks to provide assistance and support in meaningful and effective ways. En ligne : http://dx.doi.org/10.1177/1362361320962677 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Students with Autism Spectrum Disorder in the University Context: Peer Acceptance Predicts Intention to Volunteer / Emily GARDINER in Journal of Autism and Developmental Disorders, 44-5 (May 2014)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1008-1017 Titre : Students with Autism Spectrum Disorder in the University Context: Peer Acceptance Predicts Intention to Volunteer Type de document : Texte imprimé et/ou numérique Auteurs : Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Année de publication : 2014 Article en page(s) : p.1008-1017 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Acceptance  Post-secondary education  Behavioral intent  Peers Index. décimale : PER Périodiques Résumé : With growing numbers of individuals with autism spectrum disorder (ASD) entering post-secondary institutions, strategies are needed to facilitate the social integration of these students. The goal of this study was to examine the role of various factors in university students’ acceptance of, and intention to volunteer with, a peer with ASD. Both contact quantity and quality emerged as significant predictors of acceptance; however, for those who had experienced direct contact with individuals with ASD, only perceived quality emerged as significant. Moreover, acceptance played a significant role in participants’ likelihood of signing up to volunteer. These findings point to the central role that positive experiences play in attitude formation for this population. En ligne : http://dx.doi.org/10.1007/s10803-013-1950-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232 [article] Students with Autism Spectrum Disorder in the University Context: Peer Acceptance Predicts Intention to Volunteer [Texte imprimé et/ou numérique] / Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - 2014 . - p.1008-1017. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 44-5 (May 2014) . - p.1008-1017 Mots-clés : Autism spectrum disorder  Acceptance  Post-secondary education  Behavioral intent  Peers Index. décimale : PER Périodiques Résumé : With growing numbers of individuals with autism spectrum disorder (ASD) entering post-secondary institutions, strategies are needed to facilitate the social integration of these students. The goal of this study was to examine the role of various factors in university students’ acceptance of, and intention to volunteer with, a peer with ASD. Both contact quantity and quality emerged as significant predictors of acceptance; however, for those who had experienced direct contact with individuals with ASD, only perceived quality emerged as significant. Moreover, acceptance played a significant role in participants’ likelihood of signing up to volunteer. These findings point to the central role that positive experiences play in attitude formation for this population. En ligne : http://dx.doi.org/10.1007/s10803-013-1950-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=232

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