Brief Report: Participation of Black and African-American Families in Autism Research / Wendy E SHAIA in Journal of Autism and Developmental Disorders, 50-5 (May 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846 Titre : Brief Report: Participation of Black and African-American Families in Autism Research Type de document : Texte imprimé et/ou numérique Auteurs : Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur Article en page(s) : p.1841-1846 Langues : Anglais (eng) Mots-clés : African-American  Autism spectrum disorder  Black  Caregivers  Research methods  Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422 [article] Brief Report: Participation of Black and African-American Families in Autism Research [Texte imprimé et/ou numérique] / Wendy E SHAIA, Auteur ; Helen M. NICHOLS, Auteur ; Sarah DABABNAH, Auteur ; Karen CAMPION, Auteur ; Nicole GARBARINO, Auteur . - p.1841-1846. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-5 (May 2020) . - p.1841-1846 Mots-clés : African-American  Autism spectrum disorder  Black  Caregivers  Research methods  Sample recruitment Index. décimale : PER Périodiques Résumé : Black and African-American families are underrepresented in research on autism spectrum disorder (ASD) and few studies have explored how to increase their involvement. To address this gap in the literature, this study explored the perspectives of 22 Black families raising children with ASD in order to identify facilitators and barriers to research participation; as well as suggestions to increase their involvement in ASD studies. Facilitators to research involvement included a desire to contribute to ASD research inclusive of Black families; to seek information and support for child and/or caregiver; and, to engage with culturally responsive research team members. Barriers to research involvement included stigma; denial, shame, and/or embarrassment; distrust of the research process; lack of time/interest; and research material inaccessibility or literacy issues. En ligne : http://dx.doi.org/10.1007/s10803-019-03926-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=422

Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder / Serene HABAYEB in Journal of Autism and Developmental Disorders, 50-1 (January 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.51-62 Titre : Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Serene HABAYEB, Auteur ; Sarah DABABNAH, Auteur ; Aesha JOHN, Auteur ; Brendan RICH, Auteur Article en page(s) : p.51-62 Langues : Anglais (eng) Mots-clés : Acculturation  Arab American  Autism  Autism Spectrum Disorder  Middle Eastern  Stigma Index. décimale : PER Périodiques Résumé : Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families. En ligne : http://dx.doi.org/10.1007/s10803-019-04218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Cultural Experiences of Arab American Caregivers Raising Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Serene HABAYEB, Auteur ; Sarah DABABNAH, Auteur ; Aesha JOHN, Auteur ; Brendan RICH, Auteur . - p.51-62. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-1 (January 2020) . - p.51-62 Mots-clés : Acculturation  Arab American  Autism  Autism Spectrum Disorder  Middle Eastern  Stigma Index. décimale : PER Périodiques Résumé : Research on families' experiences raising children with Autism Spectrum Disorder (ASD) is limited in minority ethnic and cultural groups, such as the Arab American community. Twenty Arab American caregivers raising children with ASD completed online questionnaires regarding their experiences with stigma and acculturation. Nine participants completed follow-up phone interviews. Perceived stigma fell in the low to moderate range. Acculturation related to social interactions indicated slightly greater assimilation compared to separation, and slightly greater integration over marginalization. During interviews, participants discussed the impact of disability stigma, distancing from their communities, and parent gender roles. By better understanding Arab American families raising children with ASD professionals can work towards improving clinical services for these families. En ligne : http://dx.doi.org/10.1007/s10803-019-04218-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder / Sarah DABABNAH in Autism, 20-1 (January 2016)  

Public ISBD [article]  inAutism > 20-1 (January 2016) . - p.85-95 Titre : Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarah DABABNAH, Auteur ; Susan L. PARISH, Auteur Article en page(s) : p.85-95 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  early intervention  family functioning and support  interventions—psychosocial/behavioral  parent stress  parent training  preschool children  The Incredible Years Index. décimale : PER Périodiques Résumé : This article reports on the feasibility of implementing an existing empirically based program, The Incredible Years, tailored to parents of young children with autism spectrum disorder. Parents raising preschool-aged children (aged 3–6?years) with autism spectrum disorder (N?=?17) participated in a 15-week pilot trial of the intervention. Quantitative assessments of the program revealed fidelity was generally maintained, with the exception of program-specific videos. Qualitative data from individual post-intervention interviews reported parents benefited most from child emotion regulation strategies, play-based child behavior skills, parent stress management, social support, and visual resources. More work is needed to further refine the program to address parent self-care, partner relationships, and the diverse behavioral and communication challenges of children across the autism spectrum. Furthermore, parent access and retention could potentially be increased by providing in-home childcare vouchers and a range of times and locations in which to offer the program. The findings suggest The Incredible Years is a feasible intervention for parents seeking additional support for child- and family-related challenges and offers guidance to those communities currently using The Incredible Years or other related parenting programs with families of children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314568900 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277 [article] Feasibility of an empirically based program for parents of preschoolers with autism spectrum disorder [Texte imprimé et/ou numérique] / Sarah DABABNAH, Auteur ; Susan L. PARISH, Auteur . - p.85-95. Langues : Anglais (eng) in Autism > 20-1 (January 2016) . - p.85-95 Mots-clés : autism spectrum disorder  early intervention  family functioning and support  interventions—psychosocial/behavioral  parent stress  parent training  preschool children  The Incredible Years Index. décimale : PER Périodiques Résumé : This article reports on the feasibility of implementing an existing empirically based program, The Incredible Years, tailored to parents of young children with autism spectrum disorder. Parents raising preschool-aged children (aged 3–6?years) with autism spectrum disorder (N?=?17) participated in a 15-week pilot trial of the intervention. Quantitative assessments of the program revealed fidelity was generally maintained, with the exception of program-specific videos. Qualitative data from individual post-intervention interviews reported parents benefited most from child emotion regulation strategies, play-based child behavior skills, parent stress management, social support, and visual resources. More work is needed to further refine the program to address parent self-care, partner relationships, and the diverse behavioral and communication challenges of children across the autism spectrum. Furthermore, parent access and retention could potentially be increased by providing in-home childcare vouchers and a range of times and locations in which to offer the program. The findings suggest The Incredible Years is a feasible intervention for parents seeking additional support for child- and family-related challenges and offers guidance to those communities currently using The Incredible Years or other related parenting programs with families of children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361314568900 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277

Feasibility of The Incredible Years Parent Program for Preschool Children on The Autism Spectrum in two U.S. sites / Sarah DABABNAH in Research in Autism Spectrum Disorders, 57 (January 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 57 (January 2019) . - p.120-131 Titre : Feasibility of The Incredible Years Parent Program for Preschool Children on The Autism Spectrum in two U.S. sites Type de document : Texte imprimé et/ou numérique Auteurs : Sarah DABABNAH, Auteur ; Erin M. OLSON, Auteur ; Helen M. NICHOLS, Auteur Article en page(s) : p.120-131 Langues : Anglais (eng) Mots-clés : Autism  Caregivers  Parent stress  Incredible Years  Parenting interventions  Child behavior  Coping Index. décimale : PER Périodiques Résumé : Background Parent strain and burden are high in families raising children with Autism Spectrum Disorder (ASD). Caregivers of young children with ASD are particularly vulnerable to stress. Yet, few interventions address the direct needs of this growing population of parents. This pilot trial describes the feasibility, acceptability, and short-term outcomes of The Incredible Years Parent Program for Preschool Children on the Autism Spectrum or with Language Delays (IY-ASD) in two U.S. locations. Method We recruited caregivers of children ages to 2–6 years old with ASD to participate in a non-randomized pilot trial of IY-ASD. We aimed to describe our program delivery process and assess 1) participant retention rates and reasons for program/research discontinuation; 2) caregiver acceptability of IY-ASD; and 3) pre- and post-intervention measures of parenting stress, caregiver coping, and child behavior. Results Of the 50 parents who enrolled, 42 completed IY-ASD (84%). We analyzed data for 36 participants after accounting for partners and a participant lost to follow-up. Program acceptability was high. Total and child-related parenting stress significantly decreased at posttest. We found no statistically significant changes in caregiver coping, parent-related stress, or challenging child behaviors. Conclusions En ligne : https://doi.org/10.1016/j.rasd.2018.10.010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371 [article] Feasibility of The Incredible Years Parent Program for Preschool Children on The Autism Spectrum in two U.S. sites [Texte imprimé et/ou numérique] / Sarah DABABNAH, Auteur ; Erin M. OLSON, Auteur ; Helen M. NICHOLS, Auteur . - p.120-131. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 57 (January 2019) . - p.120-131 Mots-clés : Autism  Caregivers  Parent stress  Incredible Years  Parenting interventions  Child behavior  Coping Index. décimale : PER Périodiques Résumé : Background Parent strain and burden are high in families raising children with Autism Spectrum Disorder (ASD). Caregivers of young children with ASD are particularly vulnerable to stress. Yet, few interventions address the direct needs of this growing population of parents. This pilot trial describes the feasibility, acceptability, and short-term outcomes of The Incredible Years Parent Program for Preschool Children on the Autism Spectrum or with Language Delays (IY-ASD) in two U.S. locations. Method We recruited caregivers of children ages to 2–6 years old with ASD to participate in a non-randomized pilot trial of IY-ASD. We aimed to describe our program delivery process and assess 1) participant retention rates and reasons for program/research discontinuation; 2) caregiver acceptability of IY-ASD; and 3) pre- and post-intervention measures of parenting stress, caregiver coping, and child behavior. Results Of the 50 parents who enrolled, 42 completed IY-ASD (84%). We analyzed data for 36 participants after accounting for partners and a participant lost to follow-up. Program acceptability was high. Total and child-related parenting stress significantly decreased at posttest. We found no statistically significant changes in caregiver coping, parent-related stress, or challenging child behaviors. Conclusions En ligne : https://doi.org/10.1016/j.rasd.2018.10.010 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=371

Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism / Sarah DABABNAH in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1300-1310 Titre : Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur ; B. J. BEAR, Auteur ; D. HUSSEIN, Auteur Article en page(s) : p.1300-1310 Langues : Anglais (eng) Mots-clés : Syria  Turkey  autism spectrum disorder  caregivers  interventions  refugee  teachers  trauma Index. décimale : PER Périodiques Résumé : Although the number of Syrians affected by the civil war rises, little work has been done to address the needs of Syrian refugee children with autism spectrum disorder. This research aimed to test the feasibility and acceptability of a culturally sensitive intervention developed specifically for children with autism spectrum disorder affected by trauma. Local partners advised the program team on cultural norms. Nine parents and 11 teachers were recruited to participate in 12-week parent-teacher cooperatives in a large Turkish city. We used qualitative methods to analyze interviews with each participant after intervention completion. A total of 14 participants completed the program (70%). All interviewees were women and Syrian refugees. Local political events, transportation costs and safety, and illnesses impacted attrition and attendance. All participants were satisfied with program content, including gains in autism knowledge, behavior management skills, and social support. Program-related challenges included applying skills to nonverbal children. The majority of participants made recommendations for program improvement, including a need for services outside urban areas. Flexible program delivery methods, including online options, might better accommodate participants unable to travel due to distance, political unrest, or safety. More research is needed to rigorously test program outcomes and to evaluate efforts to train local program leaders. En ligne : http://dx.doi.org/10.1177/1362361318805368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401 [article] Feasibility of a trauma-informed parent-teacher cooperative training program for Syrian refugee children with autism [Texte imprimé et/ou numérique] / Sarah DABABNAH, Auteur ; Serene HABAYEB, Auteur ; B. J. BEAR, Auteur ; D. HUSSEIN, Auteur . - p.1300-1310. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1300-1310 Mots-clés : Syria  Turkey  autism spectrum disorder  caregivers  interventions  refugee  teachers  trauma Index. décimale : PER Périodiques Résumé : Although the number of Syrians affected by the civil war rises, little work has been done to address the needs of Syrian refugee children with autism spectrum disorder. This research aimed to test the feasibility and acceptability of a culturally sensitive intervention developed specifically for children with autism spectrum disorder affected by trauma. Local partners advised the program team on cultural norms. Nine parents and 11 teachers were recruited to participate in 12-week parent-teacher cooperatives in a large Turkish city. We used qualitative methods to analyze interviews with each participant after intervention completion. A total of 14 participants completed the program (70%). All interviewees were women and Syrian refugees. Local political events, transportation costs and safety, and illnesses impacted attrition and attendance. All participants were satisfied with program content, including gains in autism knowledge, behavior management skills, and social support. Program-related challenges included applying skills to nonverbal children. The majority of participants made recommendations for program improvement, including a need for services outside urban areas. Flexible program delivery methods, including online options, might better accommodate participants unable to travel due to distance, political unrest, or safety. More research is needed to rigorously test program outcomes and to evaluate efforts to train local program leaders. En ligne : http://dx.doi.org/10.1177/1362361318805368 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401

Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children / Azeb ATARO ADERE in Journal of Autism and Developmental Disorders, 54-10 (October 2024)  

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“On the Sidelines”: Access to Autism-Related Services in the West Bank / Sarah DABABNAH in Journal of Autism and Developmental Disorders, 45-12 (December 2015)  

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Racial Disparities in a Sample of Inpatient Youth with ASD / Helen M. NICHOLS in Autism Research, 13-4 (April 2020)  

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The creator did not give me more than I can handle: Exploring coping in parents of Black autistic children / Ericka M. LEWIS in Autism, 26-8 (November 2022)  

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The Influence of Race and Ethnicity on the Relationship between Family Resilience and Parenting Stress in Caregivers of Children with Autism / Irang KIM in Journal of Autism and Developmental Disorders, 50-2 (February 2020)  

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