Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers / Gazi F. AZAD in Journal of Autism and Developmental Disorders, 49-8 (August 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3060-3072 Titre : Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers Type de document : Texte imprimé et/ou numérique Auteurs : Gazi F. AZAD, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; M. PINKETT-DAVIS, Auteur ; R. LANDA, Auteur Article en page(s) : p.3060-3072 Langues : Anglais (eng) Mots-clés : Appointment attendance  Autism spectrum disorder  Diagnostic alignment  Specialty care Index. décimale : PER Périodiques Résumé : We examined factors contributing to initial appointment attendance, alignment between parents' pre-visit and clinicians' diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services. En ligne : http://dx.doi.org/10.1007/s10803-019-04027-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Child and Family Characteristics that Predict Autism Spectrum Disorder Specialty Clinic Appointment Attendance and Alignment with Providers [Texte imprimé et/ou numérique] / Gazi F. AZAD, Auteur ; V. SINGH, Auteur ; L. KALB, Auteur ; M. PINKETT-DAVIS, Auteur ; R. LANDA, Auteur . - p.3060-3072. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-8 (August 2019) . - p.3060-3072 Mots-clés : Appointment attendance  Autism spectrum disorder  Diagnostic alignment  Specialty care Index. décimale : PER Périodiques Résumé : We examined factors contributing to initial appointment attendance, alignment between parents' pre-visit and clinicians' diagnostic impressions, and family commitment to follow-ups at an autism spectrum disorder (ASD) specialty clinic. Sample sizes were n = 6558 (initial), n = 1430 (alignment), and n = 1353 (follow-up). Parents completed surveys and clinicians provided their ASD diagnostic impressions. When children were not receiving intervention, families were less likely to keep their initial appointment. Families residing long distances and having older children were less likely to keep their initial and follow-up appointments. African American families were less likely to keep their initial appointment and expressed initial doubts with providers about the diagnosis. Findings suggest that some children are not getting diagnostic clarity or accessing timely services. En ligne : http://dx.doi.org/10.1007/s10803-019-04027-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders / L. KALB in Journal of Autism and Developmental Disorders, 49-11 (November 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4707 Titre : Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; M. PINKETT-DAVIS, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur Article en page(s) : p.4707 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript. En ligne : http://dx.doi.org/10.1007/s10803-019-04197-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408 [article] Correction to: Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders [Texte imprimé et/ou numérique] / L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; M. PINKETT-DAVIS, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur . - p.4707. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-11 (November 2019) . - p.4707 Index. décimale : PER Périodiques Résumé : During the publication process, an author "M. Pinkett-Davis", who helped conceptualize and revise this study was accidentally excluded from the authorship list. The revised author group is now: Kalb, L., Jacobson, L., Zisman, C., Mahone, E., Landa, R., Azad, G., Pinkett-Davis, M., Menon, D., Singh, V., Zabel, A., & Pritchard, A. Please use this authorship list when citing this manuscript. En ligne : http://dx.doi.org/10.1007/s10803-019-04197-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=408

Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders / L. KALB in Journal of Autism and Developmental Disorders, 49-9 (September 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3786-3797 Titre : Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders Type de document : Texte imprimé et/ou numérique Auteurs : L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur Article en page(s) : p.3786-3797 Langues : Anglais (eng) Mots-clés : Adhd  Autism  Consent  Neurodevelopmental disorders  Registry Index. décimale : PER Périodiques Résumé : The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline. En ligne : http://dx.doi.org/10.1007/s10803-019-04088-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405 [article] Interest in Research Participation Among Caregivers of Children with Neurodevelopmental Disorders [Texte imprimé et/ou numérique] / L. KALB, Auteur ; L. JACOBSON, Auteur ; C. ZISMAN, Auteur ; E. MAHONE, Auteur ; R. LANDA, Auteur ; Gazi F. AZAD, Auteur ; D. MENON, Auteur ; V. SINGH, Auteur ; A. ZABEL, Auteur ; A. PRITCHARD, Auteur . - p.3786-3797. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-9 (September 2019) . - p.3786-3797 Mots-clés : Adhd  Autism  Consent  Neurodevelopmental disorders  Registry Index. décimale : PER Périodiques Résumé : The goal of this study was to examine caregiver agreement to hear about local research opportunities by joining a clinical research registry. Data from this cross-sectional study were gathered, between 2014 and 2017, across two outpatient clinics: (1) a multidisciplinary Autism Spectrum Disorder (ASD) clinic (N = 5228) and (2) a general psychology clinic serving youth with, or at risk for, a neurodevelopmental disorder (NDD; N = 5040). Overall, more than 8 in 10 caregivers agreed to join the registry. Several child clinical characteristics, as well as racial and sociodemographic factors, were predictive of parental agreement. Findings suggest caregivers of youth with ASD and NDD are amenable to joining the local research enterprise, however further work is needed to understand why some caregivers decline. En ligne : http://dx.doi.org/10.1007/s10803-019-04088-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=405

Intolerance of Uncertainty Predicts Anxiety Outcomes Following CBT in Youth with ASD / A. KEEFER in Journal of Autism and Developmental Disorders, 47-12 (December 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3949-3958 Titre : Intolerance of Uncertainty Predicts Anxiety Outcomes Following CBT in Youth with ASD Type de document : Texte imprimé et/ou numérique Auteurs : A. KEEFER, Auteur ; N. L. KREISER, Auteur ; V. SINGH, Auteur ; Audrey BLAKELEY-SMITH, Auteur ; A. DUNCAN, Auteur ; C. JOHNSON, Auteur ; L. KLINGER, Auteur ; A. MEYER, Auteur ; J. REAVEN, Auteur ; R. A. VASA, Auteur Année de publication : 2017 Article en page(s) : p.3949-3958 Langues : Anglais (eng) Mots-clés : Anxiety  Autism spectrum disorders  Cognitive-behavioral therapy  Intolerance of uncertainty Index. décimale : PER Périodiques Résumé : Modified cognitive-behavioral therapy (MCBT) has been demonstrated to reduce anxiety in youth with autism spectrum disorder (ASD). However, non-response rates are fairly high. Few studies have investigated factors associated with response. Intolerance of uncertainty (IU) is a treatment target for anxiety and worry in neurotypical populations and has been linked to anxiety and ASD. We sought to examine whether IU affects outcomes following MCBT in 43 children, ages 8-14 years, with ASD without intellectual disability. Consistent with prior data, there was a significant reduction in parent reported anxiety following MCBT. Higher levels of pre-intervention IU predicted higher anxiety and worry pre- and post-intervention. These findings suggest that targeting IU may improve outcomes following MCBT in youth with ASD and anxiety. En ligne : http://dx.doi.org/10.1007/s10803-016-2852-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326 [article] Intolerance of Uncertainty Predicts Anxiety Outcomes Following CBT in Youth with ASD [Texte imprimé et/ou numérique] / A. KEEFER, Auteur ; N. L. KREISER, Auteur ; V. SINGH, Auteur ; Audrey BLAKELEY-SMITH, Auteur ; A. DUNCAN, Auteur ; C. JOHNSON, Auteur ; L. KLINGER, Auteur ; A. MEYER, Auteur ; J. REAVEN, Auteur ; R. A. VASA, Auteur . - 2017 . - p.3949-3958. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-12 (December 2017) . - p.3949-3958 Mots-clés : Anxiety  Autism spectrum disorders  Cognitive-behavioral therapy  Intolerance of uncertainty Index. décimale : PER Périodiques Résumé : Modified cognitive-behavioral therapy (MCBT) has been demonstrated to reduce anxiety in youth with autism spectrum disorder (ASD). However, non-response rates are fairly high. Few studies have investigated factors associated with response. Intolerance of uncertainty (IU) is a treatment target for anxiety and worry in neurotypical populations and has been linked to anxiety and ASD. We sought to examine whether IU affects outcomes following MCBT in 43 children, ages 8-14 years, with ASD without intellectual disability. Consistent with prior data, there was a significant reduction in parent reported anxiety following MCBT. Higher levels of pre-intervention IU predicted higher anxiety and worry pre- and post-intervention. These findings suggest that targeting IU may improve outcomes following MCBT in youth with ASD and anxiety. En ligne : http://dx.doi.org/10.1007/s10803-016-2852-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=326

Psychiatric problems during the COVID-19 pandemic in children with autism spectrum disorder / R. A. VASA in Autism Research, 14-10 (October 2021)  

Public ISBD [article]  inAutism Research > 14-10 (October 2021) . - p.2113-2119 Titre : Psychiatric problems during the COVID-19 pandemic in children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : R. A. VASA, Auteur ; V. SINGH, Auteur ; C. HOLINGUE, Auteur ; L. G. KALB, Auteur ; Y. JANG, Auteur ; A. KEEFER, Auteur Article en page(s) : p.2113-2119 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/complications/epidemiology  Covid-19  Child  Humans  Pandemics  Parents  SARS-CoV-2  autism spectrum disorder  children  psychiatric problems  published by Humana Press. Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at elevated risk for psychiatric problems in response to the COVID-19 pandemic. This risk is due to their high rates of pre-pandemic psychiatric comorbidities and the pandemic's disruption to routines and access to necessary supports. Prior research has indicated that children with ASD may experience a worsening of specific psychiatric symptoms in response to COVID-19, though this body of work is limited in scope. The present study expands this literature by examining specific types of psychiatric problems that emerged about 2?months after the onset of the pandemic, and risk factors predicting changes in these psychiatric symptoms. Parents of children with a confirmed ASD diagnosis (N = 257), who enrolled in a clinic registry at an outpatient specialty autism center, were included in this study. All data were gathered online via customized and standardized questionnaires. Results showed that 59% of children experienced either a worsening of their pre-pandemic psychiatric diagnoses and/or the development of new psychiatric symptoms during the pandemic. Multivariable regression models indicated that risk factors for increased psychiatric problems included child understanding of COVID-19, COVID-19 illness in the family, low family income, and elevated parental depression and anxiety symptoms (all p? En ligne : http://dx.doi.org/10.1002/aur.2574 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Psychiatric problems during the COVID-19 pandemic in children with autism spectrum disorder [Texte imprimé et/ou numérique] / R. A. VASA, Auteur ; V. SINGH, Auteur ; C. HOLINGUE, Auteur ; L. G. KALB, Auteur ; Y. JANG, Auteur ; A. KEEFER, Auteur . - p.2113-2119. Langues : Anglais (eng) in Autism Research > 14-10 (October 2021) . - p.2113-2119 Mots-clés : Autism Spectrum Disorder/complications/epidemiology  Covid-19  Child  Humans  Pandemics  Parents  SARS-CoV-2  autism spectrum disorder  children  psychiatric problems  published by Humana Press. Index. décimale : PER Périodiques Résumé : Children with autism spectrum disorder (ASD) are at elevated risk for psychiatric problems in response to the COVID-19 pandemic. This risk is due to their high rates of pre-pandemic psychiatric comorbidities and the pandemic's disruption to routines and access to necessary supports. Prior research has indicated that children with ASD may experience a worsening of specific psychiatric symptoms in response to COVID-19, though this body of work is limited in scope. The present study expands this literature by examining specific types of psychiatric problems that emerged about 2?months after the onset of the pandemic, and risk factors predicting changes in these psychiatric symptoms. Parents of children with a confirmed ASD diagnosis (N = 257), who enrolled in a clinic registry at an outpatient specialty autism center, were included in this study. All data were gathered online via customized and standardized questionnaires. Results showed that 59% of children experienced either a worsening of their pre-pandemic psychiatric diagnoses and/or the development of new psychiatric symptoms during the pandemic. Multivariable regression models indicated that risk factors for increased psychiatric problems included child understanding of COVID-19, COVID-19 illness in the family, low family income, and elevated parental depression and anxiety symptoms (all p? En ligne : http://dx.doi.org/10.1002/aur.2574 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

Relationships between autism spectrum disorder and intolerance of uncertainty / R. A. VASA in Autism Research, 11-4 (April 2018)  

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Replication study of ADOS-2 Toddler Module cut-off scores for autism spectrum disorder classification / J. S. HONG in Autism Research, 14-6 (June 2021)  

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