Defining the core components of Family Navigation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 24-2 (February 2020)  

Public ISBD [article]  inAutism > 24-2 (February 2020) . - p.526-530 Titre : Defining the core components of Family Navigation for autism spectrum disorder Type de document : texte imprimé Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily J. HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.526-530 Langues : Anglais (eng) Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415 [article] Defining the core components of Family Navigation for autism spectrum disorder [texte imprimé] / Sarabeth BRODER-FINGERT, Auteur ; Nicole A. STADNICK, Auteur ; Emily J. HICKEY, Auteur ; Julia GOUPIL, Auteur ; Yaminette DIAZ LINDHART, Auteur ; Emily FEINBERG, Auteur . - p.526-530. Langues : Anglais (eng) in Autism > 24-2 (February 2020) . - p.526-530 Mots-clés : Family Navigation  autism  care coordination Index. décimale : PER Périodiques Résumé : This study aimed to define the core components of Family Navigation for autism spectrum disorder, a promising intervention to reduce disparities in care for this population. Teams from four trials of Family Navigation for autism spectrum disorder completed the Template for Intervention Description and Replication checklist to outline intervention components. Through intervention component analysis and qualitative synthesis, we identified 11 core components across three domains: Training and Supervision, Navigator Tools, and Navigator Activities. We discuss the importance of identifying these core components and implications for future research and practice. En ligne : http://dx.doi.org/10.1177/1362361319864079 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=415

Family Impact During the Time Between Autism Screening and Definitive Diagnosis / Emily J. HICKEY in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920 Titre : Family Impact During the Time Between Autism Screening and Definitive Diagnosis Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.4908-4920 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Autistic Disorder  Child  Child Behavior  Family  Humans  Parents  Autism Spectrum Disorder  Autism risk  Child functioning  Developmental disability  Difficult child behavior  Family impact Index. décimale : PER Périodiques Résumé : Over the past 10 years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=- 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Family Impact During the Time Between Autism Screening and Definitive Diagnosis [texte imprimé] / Emily J. HICKEY, Auteur ; Emily FEINBERG, Auteur ; Jocelyn KUHN, Auteur ; Howard J. CABRAL, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.4908-4920. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4908-4920 Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Autistic Disorder  Child  Child Behavior  Family  Humans  Parents  Autism Spectrum Disorder  Autism risk  Child functioning  Developmental disability  Difficult child behavior  Family impact Index. décimale : PER Périodiques Résumé : Over the past 10 years, identification of Autism Spectrum Disorder (ASD) risk has dramatically increased due to the wide-spread implementation of screening programs; yet, there is limited understanding about parent perceptions and experiences during the time period when risk is identified, but prior to receiving a formal diagnosis-a period that can last months to years given the long wait-lists for formal ASD evaluations. The current study aimed to examine parent perceptions of family impact (i.e., the impact their child's behaviors have on the family) between the time of risk-identification and formal diagnosis among 277 children identified as at-risk for ASD through screening positive in primary care. We aimed to compare family impact among those whose child met diagnostic criteria for ASD and those who did not. Parents of children who received a non-ASD diagnosis reported a higher baseline level of family impact (F[1, 274]=5.82, p=.017); however, perceived difficult child behavior was a stronger predictor of family impact (t[6]=13.11, p < .001) than later diagnostic group (t[6]=- 2.10, p=.037), and child functioning did not predict family impact (t[6]=-0.31, p=.76). These results suggest that in this population, perceived difficult child behavior is a stronger predictor of family impact than later diagnostic category and should be considered an important factor in family support. En ligne : http://dx.doi.org/10.1007/s10803-021-05354-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study / Sarabeth BRODER-FINGERT in Autism, 23-3 (April 2019)  

Public ISBD [article]  inAutism > 23-3 (April 2019) . - p.653-664 Titre : Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study Type de document : texte imprimé Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Alice S. CARTER, Auteur ; Karen PIERCE, Auteur ; Wendy L. STONE, Auteur ; Amy M. WETHERBY, Auteur ; Chris SCHELDRICK, Auteur ; Charlie SMITH, Auteur ; Elizabeth BACON, Auteur ; Stephen N. JAMES, Auteur ; Lisa V. IBANEZ, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.653-664 Langues : Anglais (eng) Mots-clés : autism  early intervention  implementation Index. décimale : PER Périodiques Résumé : In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment. En ligne : http://dx.doi.org/10.1177/1362361318766238 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392 [article] Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study [texte imprimé] / Sarabeth BRODER-FINGERT, Auteur ; Alice S. CARTER, Auteur ; Karen PIERCE, Auteur ; Wendy L. STONE, Auteur ; Amy M. WETHERBY, Auteur ; Chris SCHELDRICK, Auteur ; Charlie SMITH, Auteur ; Elizabeth BACON, Auteur ; Stephen N. JAMES, Auteur ; Lisa V. IBANEZ, Auteur ; Emily FEINBERG, Auteur . - p.653-664. Langues : Anglais (eng) in Autism > 23-3 (April 2019) . - p.653-664 Mots-clés : autism  early intervention  implementation Index. décimale : PER Périodiques Résumé : In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment. En ligne : http://dx.doi.org/10.1177/1362361318766238 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392

A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1288-1299 Titre : A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder Type de document : texte imprimé Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Sarah QIN, Auteur ; Julia GOUPIL, Auteur ; Jessica E. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; Nate BLUM, Auteur ; Amanda E. BENNETT, Auteur ; Carol WEITZMAN, Auteur ; James P. GUEVARA, Auteur ; Ada M. FENICK, Auteur ; Michael SILVERSTEIN, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1288-1299 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401 [article] A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder [texte imprimé] / Sarabeth BRODER-FINGERT, Auteur ; Sarah QIN, Auteur ; Julia GOUPIL, Auteur ; Jessica E. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; Nate BLUM, Auteur ; Amanda E. BENNETT, Auteur ; Carol WEITZMAN, Auteur ; James P. GUEVARA, Auteur ; Ada M. FENICK, Auteur ; Michael SILVERSTEIN, Auteur ; Emily FEINBERG, Auteur . - p.1288-1299. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1288-1299 Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : texte imprimé Auteurs : Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [texte imprimé] / Emily J. HICKEY, Auteur ; Michelle STRANSKY, Auteur ; Jocelyn KUHN, Auteur ; Jessica E. ROSENBERG, Auteur ; Howard J. CABRAL, Auteur ; Carol WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Emily FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / Emily J. HICKEY in Autism, 26-6 (August 2022)  

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Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation / Yair VOLIOVITCH in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

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Participant characteristics in autism intervention studies / Sarabeth BRODER-FINGERT in Autism, 23-1 (January 2019)  

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Prevention and Management of Obesity in Children with Autism Spectrum Disorder Among Primary Care Pediatricians / Morgan WALLS in Journal of Autism and Developmental Disorders, 48-7 (July 2018)  

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The impact of state policy on early autism diagnosis: A qualitative investigation / Olivia J. LINDLY in Autism, 29-8 (August 2025)  

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The influence of loss to follow-up in autism screening research: Taking stock and moving forward / R. Christopher SHELDRICK in Journal of Child Psychology and Psychiatry, 65-5 (May 2024)  

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