Implementing an early detection program for autism in primary healthcare: Screening, education of healthcare professionals, referrals for diagnostic evaluation, and early intervention / Sigrídur Lóa JONSDOTTIR in Research in Autism Spectrum Disorders, 77 (September 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 77 (September 2020) . - 101616 Titre : Implementing an early detection program for autism in primary healthcare: Screening, education of healthcare professionals, referrals for diagnostic evaluation, and early intervention Type de document : texte imprimé Auteurs : Sigrídur Lóa JONSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Sesselja GUDMUNDSDOTTIR, Auteur ; Gyda S. HARALDSDOTTIR, Auteur ; Aslaug Heida PALSDOTTIR, Auteur ; Vilhjalmur RAFNSSON, Auteur Article en page(s) : 101616 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Early detection  Screening  M-CHAT-R/F  Well-child care  Education Index. décimale : PER Périodiques Résumé : Background Improving early detection of children with autism spectrum disorder (ASD) is critical because it allows for earlier intervention, which has been shown to improve outcomes in core behavioral and skill deficits related to ASD. We studied the implementation of an early detection program for ASD in primary healthcare and evaluated its results. Method Nine primary healthcare centers in the capital area of Reykjavik, Iceland were randomly selected for participation. The program included the following: screening for ASD with the Modified Checklist for Autism in Toddlers, Revised with Follow-up during routine developmental surveillance at 30 months of age; education of well-child care professionals; referrals for diagnostic evaluation; and early intervention. Results Among the 1586 children screened, 26 screened positive and 25 were evaluated, of whom 18 were diagnosed with ASD and six with other neurodevelopmental disorders, giving positive predictive values (PPVs) of 0.72 and 0.96, respectively. The screening detected eight children with ASD who were missed by other referrers. The mean time from screening to intervention was 3.56 months (SD = 4.00), and 18.28 months (SD = 2.72) from screening to diagnostic evaluation. Of the well-child care professionals who attended an educational course, 79 % had not received prior education on ASD. Participation in the course contributed to increased self-perceived knowledge and confidence in identifying behaviors indicating ASD. Conclusion The screening was well received by stakeholders, and PPV for ASD was relatively high, providing evidence of its feasibility. The long wait-time for diagnostic evaluation and the lack of ASD education among well-child care professionals needs to be addressed. En ligne : https://doi.org/10.1016/j.rasd.2020.101616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Implementing an early detection program for autism in primary healthcare: Screening, education of healthcare professionals, referrals for diagnostic evaluation, and early intervention [texte imprimé] / Sigrídur Lóa JONSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Sesselja GUDMUNDSDOTTIR, Auteur ; Gyda S. HARALDSDOTTIR, Auteur ; Aslaug Heida PALSDOTTIR, Auteur ; Vilhjalmur RAFNSSON, Auteur . - 101616. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 77 (September 2020) . - 101616 Mots-clés : Autism spectrum disorder  Early detection  Screening  M-CHAT-R/F  Well-child care  Education Index. décimale : PER Périodiques Résumé : Background Improving early detection of children with autism spectrum disorder (ASD) is critical because it allows for earlier intervention, which has been shown to improve outcomes in core behavioral and skill deficits related to ASD. We studied the implementation of an early detection program for ASD in primary healthcare and evaluated its results. Method Nine primary healthcare centers in the capital area of Reykjavik, Iceland were randomly selected for participation. The program included the following: screening for ASD with the Modified Checklist for Autism in Toddlers, Revised with Follow-up during routine developmental surveillance at 30 months of age; education of well-child care professionals; referrals for diagnostic evaluation; and early intervention. Results Among the 1586 children screened, 26 screened positive and 25 were evaluated, of whom 18 were diagnosed with ASD and six with other neurodevelopmental disorders, giving positive predictive values (PPVs) of 0.72 and 0.96, respectively. The screening detected eight children with ASD who were missed by other referrers. The mean time from screening to intervention was 3.56 months (SD = 4.00), and 18.28 months (SD = 2.72) from screening to diagnostic evaluation. Of the well-child care professionals who attended an educational course, 79 % had not received prior education on ASD. Participation in the course contributed to increased self-perceived knowledge and confidence in identifying behaviors indicating ASD. Conclusion The screening was well received by stakeholders, and PPV for ASD was relatively high, providing evidence of its feasibility. The long wait-time for diagnostic evaluation and the lack of ASD education among well-child care professionals needs to be addressed. En ligne : https://doi.org/10.1016/j.rasd.2020.101616 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project / Malika DELOBEL-AYOUB in Journal of Autism and Developmental Disorders, 50-3 (March 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.949-959 Titre : Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project Type de document : texte imprimé Auteurs : Malika DELOBEL-AYOUB, Auteur ; Evald SAEMUNDSEN, Auteur ; Mika GISSLER, Auteur ; A. EGO, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Vilhjalmur RAFNSSON, Auteur ; D. KLAPOUSZCZAK, Auteur ; E. THORSTEINSSON, Auteur ; K.M. ARNALDSDOTTIR, Auteur ; Bernadette ROGE, Auteur ; C. ARNAUD, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.949-959 Langues : Anglais (eng) Mots-clés : Autism  Epidemiology  Health information systems  Prevalence  Registries Index. décimale : PER Périodiques Résumé : We estimated autism spectrum disorder (ASD) prevalence in 7-9 year-old children in 2015 using data from three nationwide health registry systems (Denmark, Finland, Iceland) and two French population-based regional registries. Prevalence ranged from 0.48% in South-East France to 3.13% in Iceland (South-West France: 0.73%, Finland: 0.77%, Denmark: 1.26%). Male/female ratios ranged from 3.3 in Finland to 5.4 in South-West France. Between 12% (Denmark) and 39% (South-West France) of cases were diagnosed with intellectual disability. The variations in population-based ASD prevalence across four European countries with universal health care practices likely reflect variation in detection, referral and diagnosis practices and autism awareness across these areas. Using established population-based data systems is an efficient approach to monitor ASD prevalence trends over time. En ligne : http://dx.doi.org/10.1007/s10803-019-04328-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419 [article] Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project [texte imprimé] / Malika DELOBEL-AYOUB, Auteur ; Evald SAEMUNDSEN, Auteur ; Mika GISSLER, Auteur ; A. EGO, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Vilhjalmur RAFNSSON, Auteur ; D. KLAPOUSZCZAK, Auteur ; E. THORSTEINSSON, Auteur ; K.M. ARNALDSDOTTIR, Auteur ; Bernadette ROGE, Auteur ; C. ARNAUD, Auteur ; Diana SCHENDEL, Auteur . - p.949-959. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-3 (March 2020) . - p.949-959 Mots-clés : Autism  Epidemiology  Health information systems  Prevalence  Registries Index. décimale : PER Périodiques Résumé : We estimated autism spectrum disorder (ASD) prevalence in 7-9 year-old children in 2015 using data from three nationwide health registry systems (Denmark, Finland, Iceland) and two French population-based regional registries. Prevalence ranged from 0.48% in South-East France to 3.13% in Iceland (South-West France: 0.73%, Finland: 0.77%, Denmark: 1.26%). Male/female ratios ranged from 3.3 in Finland to 5.4 in South-West France. Between 12% (Denmark) and 39% (South-West France) of cases were diagnosed with intellectual disability. The variations in population-based ASD prevalence across four European countries with universal health care practices likely reflect variation in detection, referral and diagnosis practices and autism awareness across these areas. Using established population-based data systems is an efficient approach to monitor ASD prevalence trends over time. En ligne : http://dx.doi.org/10.1007/s10803-019-04328-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=419

Validation of the Modified Checklist for Autism in Toddlers, Revised with Follow-up in a Population Sample of 30-Month-Old Children in Iceland: A Prospective Approach / Sigrídur Lóa JONSDOTTIR in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1507-1522 Titre : Validation of the Modified Checklist for Autism in Toddlers, Revised with Follow-up in a Population Sample of 30-Month-Old Children in Iceland: A Prospective Approach Type de document : texte imprimé Auteurs : Sigrídur Lóa JONSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Brynjolfur Gauti JONSSON, Auteur ; Vilhjalmur RAFNSSON, Auteur Article en page(s) : p.1507-1522 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Checklist  Child, Preschool  Follow-Up Studies  Humans  Iceland  Infant  Mass Screening  Autism spectrum disorder  Early detection  M-chat-r/f  Screening Index. décimale : PER Périodiques Résumé : The Modified Checklist for Autism in Toddlers, Revised with Follow-up was validated on a population sample in Reykjavik, Iceland. The participants (N=1585) were screened in well-child care at age 30 months and followed up for at least 2 years to identify autism cases. The sensitivity, specificity, positive and negative predictive values were 0.62, 0.99, 0.72, and 0.99, respectively. True-positive children were diagnosed 10 months earlier than false-negative children. Autism symptom severity and the proportions of children with verbal and performance IQs/DQs?< 70 were similar between groups. Although the sensitivity was suboptimal, the screening contributed to lowering the age at diagnosis for many children. Adding autism-specific screening to the well-child care program should be considered. En ligne : http://dx.doi.org/10.1007/s10803-021-05053-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Validation of the Modified Checklist for Autism in Toddlers, Revised with Follow-up in a Population Sample of 30-Month-Old Children in Iceland: A Prospective Approach [texte imprimé] / Sigrídur Lóa JONSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Brynjolfur Gauti JONSSON, Auteur ; Vilhjalmur RAFNSSON, Auteur . - p.1507-1522. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1507-1522 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Checklist  Child, Preschool  Follow-Up Studies  Humans  Iceland  Infant  Mass Screening  Autism spectrum disorder  Early detection  M-chat-r/f  Screening Index. décimale : PER Périodiques Résumé : The Modified Checklist for Autism in Toddlers, Revised with Follow-up was validated on a population sample in Reykjavik, Iceland. The participants (N=1585) were screened in well-child care at age 30 months and followed up for at least 2 years to identify autism cases. The sensitivity, specificity, positive and negative predictive values were 0.62, 0.99, 0.72, and 0.99, respectively. True-positive children were diagnosed 10 months earlier than false-negative children. Autism symptom severity and the proportions of children with verbal and performance IQs/DQs?< 70 were similar between groups. Although the sensitivity was suboptimal, the screening contributed to lowering the age at diagnosis for many children. Adding autism-specific screening to the well-child care program should be considered. En ligne : http://dx.doi.org/10.1007/s10803-021-05053-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

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