Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward / Grant BRUNO ; Anne LINDBLOM ; Jon-Are Masternes ; Jessica TUPOU ; TC WAISMAN ; Samarra Toby ; Christine Vining ; Iliana MAGIATI in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.275-283 Titre : Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism Type de document : Texte imprimé et/ou numérique Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are Masternes, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra Toby, Auteur ; Christine Vining, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.275-283 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism [Texte imprimé et/ou numérique] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are Masternes, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra Toby, Auteur ; Christine Vining, Auteur ; Iliana MAGIATI, Auteur . - p.275-283. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.275-283 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children / Phoebe JORDAN in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.740-753 Titre : 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.740-753 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children [Texte imprimé et/ou numérique] / Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur . - p.740-753. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.740-753 Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

MÄ�ori and autism: A scoping review / Jessica TUPOU in Autism, 26-7 (October 2022)  

Public ISBD [article]  inAutism > 26-7 (October 2022) . - p.1844-1858 Titre : MÄ�ori and autism: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Jessica TUPOU, Auteur ; Sally CURTIS, Auteur ; Dorothy TAARE-SMITH, Auteur ; Ali GLASGOW, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.1844-1858 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Native Hawaiian or Other Pacific Islander  New Zealand/epidemiology  Prevalence  autism spectrum disorders  culture and ASD  indigenous research  scoping review Index. décimale : PER Périodiques Résumé : Most current approaches to identifying, researching and managing autism are based on Western views and understandings. However, different cultural groups may understand and approach autism differently. We searched a wide range of websites, academic journals and other sources for published information related to autism and MÄ�ori, the indigenous people of Aotearoa/New Zealand. Our search identified 13 publications that addressed questions related to MÄ�ori understandings of autism, MÄ�ori prevalence rates and diagnostic and support services for MÄ�ori. Overall, we found broad differences in MÄ�ori and Western understandings of autism and slightly higher autism prevalence rates for MÄ�ori than for non-MÄ�ori New Zealanders. Findings also highlighted a need for diagnostic and support services that are both effective and culturally appropriate for MÄ�ori. We discuss what these findings might mean for future research and the provision of services for MÄ�ori with autism. En ligne : http://dx.doi.org/10.1177/13623613211018649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] MÄ�ori and autism: A scoping review [Texte imprimé et/ou numérique] / Jessica TUPOU, Auteur ; Sally CURTIS, Auteur ; Dorothy TAARE-SMITH, Auteur ; Ali GLASGOW, Auteur ; Hannah WADDINGTON, Auteur . - p.1844-1858. Langues : Anglais (eng) in Autism > 26-7 (October 2022) . - p.1844-1858 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/epidemiology  Humans  Native Hawaiian or Other Pacific Islander  New Zealand/epidemiology  Prevalence  autism spectrum disorders  culture and ASD  indigenous research  scoping review Index. décimale : PER Périodiques Résumé : Most current approaches to identifying, researching and managing autism are based on Western views and understandings. However, different cultural groups may understand and approach autism differently. We searched a wide range of websites, academic journals and other sources for published information related to autism and MÄ�ori, the indigenous people of Aotearoa/New Zealand. Our search identified 13 publications that addressed questions related to MÄ�ori understandings of autism, MÄ�ori prevalence rates and diagnostic and support services for MÄ�ori. Overall, we found broad differences in MÄ�ori and Western understandings of autism and slightly higher autism prevalence rates for MÄ�ori than for non-MÄ�ori New Zealanders. Findings also highlighted a need for diagnostic and support services that are both effective and culturally appropriate for MÄ�ori. We discuss what these findings might mean for future research and the provision of services for MÄ�ori with autism. En ligne : http://dx.doi.org/10.1177/13623613211018649 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2244-2253 Titre : Mortality risk among Autistic children and young people: A nationwide birth cohort study Type de document : Texte imprimé et/ou numérique Auteurs : Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur Article en page(s) : p.2244-2253 Langues : (en) Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Mortality risk among Autistic children and young people: A nationwide birth cohort study [Texte imprimé et/ou numérique] / Nicholas BOWDEN, Auteur ; Sheree GIBB, Auteur ; Richard AUDAS, Auteur ; Joanne DACOMBE, Auteur ; Laurie MCLAY, Auteur ; Andrew SPORLE, Auteur ; Hilary STACE, Auteur ; Barry TAYLOR, Auteur ; Hiran THABREW, Auteur ; Reremoana THEODORE, Auteur ; Jessica TUPOU, Auteur ; Philip J. SCHLUTER, Auteur . - p.2244-2253. Langues : (en) in Autism > 28-9 (September 2024) . - p.2244-2253 Mots-clés : adolescents  autism spectrum disorders  health services  medical comorbidity  pre-school children  school-age children  social services Index. décimale : PER Périodiques Résumé : Autism has been associated with increased mortality risk among adult populations, but little is known about the mortality risk among children and young people (0-24?years). We used a 15-year nationwide birth cohort study using linked health and non-health administrative data to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. Time-to-event analysis was used to determine the association between autism and mortality, controlling for sex, age, ethnicity, deprivation and rurality of residence. The participant population included 895,707 children of whom 11,919 (1.4%) were identified as Autistic. Autism was associated with a significantly higher mortality risk (hazard ratio = 2.35; 95% confidence interval = 1.80-3.06) compared to the general population. In addition, using stratified analyses, we found that this risk was significantly higher among females (hazard ratio = 5.40; 95% confidence interval = 3.42-8.52) compared to males (hazard ratio = 1.82; 95% confidence interval = 1.32-2.52). We also determined that among Autistic young people, mortality risk was significantly higher for those with a co-occurring intellectual disability (hazard ratio = 2.02; 95% confidence interval = 1.17-3.46). In this study, autism was associated with higher mortality in children and young people compared to the non-Autistic population. Increased efforts are required to better meet the health needs of this population. Lay abstract Existing literature indicates that Autistic people have shorter life expectancy, but little is known about the mortality risk among Autistic children and young people (0-24?years). We used a 15-year nationwide birth cohort study to estimate the mortality risk among Autistic children and young people in Aotearoa/New Zealand. The study included 895,707 children and 11,919 (1.4%) were Autistic. We found that autism was associated with a significantly higher mortality risk compared to the non-Autistic population. In addition, we found that this risk was significantly higher among females compared to males and for those with a co-occurring intellectual disability. Increased efforts are required to better meet the health needs of this population. En ligne : https://dx.doi.org/10.1177/13623613231224015 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

Supporting tamariki takiw?tanga M?ori (autistic M?ori children): Exploring the experience of early childhood educators / Jessica TUPOU in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.705-717 Titre : Supporting tamariki takiw?tanga M?ori (autistic M?ori children): Exploring the experience of early childhood educators Type de document : Texte imprimé et/ou numérique Auteurs : Jessica TUPOU, Auteur ; Chevelle ATAERA, Auteur ; Carla WALLACE-WATKIN, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.705-717 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  cultural perspective  education services  preschool children  qualitative research Index. décimale : PER Périodiques Résumé : The experience of the many autistic children who attend inclusive early childhood education settings is largely shaped by the knowledge and attitudes of the educators who support them. Autistic children from under-represented ethnic groups, such as autistic M?ori, are likely to face additional challenges and educators need to consider strategies to support their cultural development. We conducted in-depth, semi-structured interviews with 12 educators with recent experience supporting tamariki takiw?tanga M?ori (autistic M?ori children) in inclusive early childhood settings. Data were analysed using reflexive thematic analysis resulting in three themes and seven subthemes. Overall, participants' understandings of autism aligned with the neurodiversity perspective, and there were similarities between neurodiversity and M?ori perspectives. Participants wanted more training and resources drawn from a M?ori worldview and available in te reo M?ori (the M?ori language). These findings have important implications for practice and future research. Lay Abstract The knowledge and attitudes of educators can have a strong influence on the experiences of autistic children who attend inclusive early childhood settings. Autistic children from under-represented ethnic groups, for example, tamariki takiw?tanga M?ori (autistic M?ori children), are likely to face extra challenges and educators need to consider ways to support their cultural development. For this study, we interviewed 12 educators with recent experience supporting tamariki takiw?tanga M?ori in inclusive early childhood settings. We constructed three themes and seven subthemes from the interview data. We found that educators' understandings of autism were mostly in line with the neurodiversity perspective, which views autism as a difference, not a disorder. We also found similarities between the neurodiversity perspective and M?ori perspectives of autism and a need for more training and resources based upon a M?ori world view and available in te reo M?ori (the M?ori language). En ligne : https://dx.doi.org/10.1177/13623613231181622 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Supporting tamariki takiw?tanga M?ori (autistic M?ori children): Exploring the experience of early childhood educators [Texte imprimé et/ou numérique] / Jessica TUPOU, Auteur ; Chevelle ATAERA, Auteur ; Carla WALLACE-WATKIN, Auteur ; Hannah WADDINGTON, Auteur . - p.705-717. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.705-717 Mots-clés : autism spectrum disorders  cultural perspective  education services  preschool children  qualitative research Index. décimale : PER Périodiques Résumé : The experience of the many autistic children who attend inclusive early childhood education settings is largely shaped by the knowledge and attitudes of the educators who support them. Autistic children from under-represented ethnic groups, such as autistic M?ori, are likely to face additional challenges and educators need to consider strategies to support their cultural development. We conducted in-depth, semi-structured interviews with 12 educators with recent experience supporting tamariki takiw?tanga M?ori (autistic M?ori children) in inclusive early childhood settings. Data were analysed using reflexive thematic analysis resulting in three themes and seven subthemes. Overall, participants' understandings of autism aligned with the neurodiversity perspective, and there were similarities between neurodiversity and M?ori perspectives. Participants wanted more training and resources drawn from a M?ori worldview and available in te reo M?ori (the M?ori language). These findings have important implications for practice and future research. Lay Abstract The knowledge and attitudes of educators can have a strong influence on the experiences of autistic children who attend inclusive early childhood settings. Autistic children from under-represented ethnic groups, for example, tamariki takiw?tanga M?ori (autistic M?ori children), are likely to face extra challenges and educators need to consider ways to support their cultural development. For this study, we interviewed 12 educators with recent experience supporting tamariki takiw?tanga M?ori in inclusive early childhood settings. We constructed three themes and seven subthemes from the interview data. We found that educators' understandings of autism were mostly in line with the neurodiversity perspective, which views autism as a difference, not a disorder. We also found similarities between the neurodiversity perspective and M?ori perspectives of autism and a need for more training and resources based upon a M?ori world view and available in te reo M?ori (the M?ori language). En ligne : https://dx.doi.org/10.1177/13623613231181622 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

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