Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing / Grant BRUNO in Autism, 29-11 (November 2025)  

Public ISBD [article]  inAutism > 29-11 (November 2025) . - p.2637-2643 Titre : Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; TC WAISMAN, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.2637-2643 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251382398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 [article] Decolonizing autism research: Integrating Indigenous ways of knowing, being, and doing [texte imprimé] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; TC WAISMAN, Auteur ; Iliana MAGIATI, Auteur . - p.2637-2643. Langues : Anglais (eng) in Autism > 29-11 (November 2025) . - p.2637-2643 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251382398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570

Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward / Grant BRUNO ; Anne LINDBLOM ; Jon-Are MASTERNES ; Jessica TUPOU ; TC WAISMAN ; Samarra TOBY ; Christine VINING ; Iliana MAGIATI in Autism, 29-2 (February 2025)  

Public ISBD [article]  inAutism > 29-2 (February 2025) . - p.275-283 Titre : Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism Type de document : texte imprimé Auteurs : Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are MASTERNES, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra TOBY, Auteur ; Christine VINING, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.275-283 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547 [article] Global Indigenous perspectives on autism and autism research: Colonialism, cultural insights and ways forward : Autism [texte imprimé] / Grant BRUNO, Auteur ; Anne LINDBLOM, Auteur ; Jon-Are MASTERNES, Auteur ; Jessica TUPOU, Auteur ; TC WAISMAN, Auteur ; Samarra TOBY, Auteur ; Christine VINING, Auteur ; Iliana MAGIATI, Auteur . - p.275-283. Langues : Anglais (eng) in Autism > 29-2 (February 2025) . - p.275-283 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251318399 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=547

Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study / Laurie K MCLAY in Autism, 29-5 (May 2025)  

Public ISBD [article]  inAutism > 29-5 (May 2025) . - p.1143-1156 Titre : Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study Type de document : texte imprimé Auteurs : Laurie K MCLAY, Auteur ; Philip J. SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor SCOTT, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas J. BOWDEN, Auteur Article en page(s) : p.1143-1156 Langues : Anglais (eng) Mots-clés : autism  co-occurring conditions  health  health service use  mental health  pharmaceutical dispensing  youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24 years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555 [article] Health service utilization among autistic youth in Aotearoa New Zealand: A nationwide cross-sectional study [texte imprimé] / Laurie K MCLAY, Auteur ; Philip J. SCHLUTER, Auteur ; John WILLIAMS, Auteur ; Francesca ANNS, Auteur ; Ruth MONK, Auteur ; Joanne DACOMBE, Auteur ; Gabrielle HOGG, Auteur ; Jessica TUPOU, Auteur ; Troy RUHE, Auteur ; Taylor SCOTT, Auteur ; Emma WOODFORD, Auteur ; Hiran THABREW, Auteur ; Nicholas J. BOWDEN, Auteur . - p.1143-1156. Langues : Anglais (eng) in Autism > 29-5 (May 2025) . - p.1143-1156 Mots-clés : autism  co-occurring conditions  health  health service use  mental health  pharmaceutical dispensing  youth Index. décimale : PER Périodiques Résumé : Many autistic youth have complex healthcare needs, resulting in high rates of health service utilization. However, many characteristics of this health service utilization remain unknown. Using whole-of-population data, this study aimed to quantify and compare rates of psychiatric and non-psychiatric health service utilization among autistic and non-autistic youth, with and without co-occurring intellectual disability. A national retrospective cohort study was employed using linked individual-level administrative data for Aotearoa New Zealand youth (aged 0-24 years). Health service utilization outcomes included 11 psychiatric and non-psychiatric domains. Propensity score matching on a range of sociodemographic measures compared groups across health service utilization outcomes. Data were obtained for 19,479 autistic youth, 29% of whom had a co-occurring intellectual disability and 1,561,278 non-autistic youth. Results demonstrated higher rates of mental health service utilization among autistic compared with non-autistic youth, including inpatient (prevalence ratio 5.85; 95% confidence interval 4.93-6.94) and outpatient (prevalence ratio 4.96; 95% confidence interval 4.75-5.18) service use and psychotropic medication dispensing (prevalence ratio 6.83; 95% confidence interval 6.65-7.02), particularly among autistic youth without intellectual disability. Rates of non-psychiatric hospital admissions (prevalence ratio 1.93; 95% confidence interval 1.85-2.01), potentially avoidable hospitalizations (prevalence ratio 1.91; 95% confidence interval 1.82-2.00) and outpatient visits (prevalence ratio 1.99; 95% confidence interval 1.95-2.01) were also higher among autistic youth. Research implications for delivery of healthcare services are discussed.Lay abstract Autistic youth generally use healthcare services more often than non-autistic youth. However, we know very little about the factors that can affect health service use and the types of services that are used, and this has not been explored in Aotearoa New Zealand. We analysed data from New Zealand to compare health service use among autistic and non-autistic youth (0 to 24-year-olds). Data were available for 19,479 autistic youth and 1,561,278 non-autistic youth. We compared hospitalizations, specialist visits, emergency department visits and use of different types of medications. In this study, autistic youth were found to have been hospitalized for medical and mental health reasons, more often than non-autistic youth. Autistic youth were also more likely to have attended specialist appointments and to have been given medication. These differences were particularly large for medications commonly used for mental health conditions (e.g. anxiety, depression, attention deficit hyperactivity disorder) or associated symptoms. Autistic youth who also had an intellectual disability were more likely to use healthcare services for physical health conditions, but were less likely to use mental health services, when compared with autistic youth who did not have an intellectual disability. These findings, along with other research, suggest that the healthcare needs of autistic youth are not always being met. Further work is needed to enhance our understanding of co-occurring conditions among autistic youth, including those that result in high rates of health service use, in order to inform the development of healthcare services and training for healthcare professionals to better cater to the needs of autistic youth. En ligne : https://dx.doi.org/10.1177/13623613241298352 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=555

'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children / Phoebe JORDAN in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.740-753 Titre : 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children Type de document : texte imprimé Auteurs : Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur Article en page(s) : p.740-753 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] 'I wouldn?t want one or the other': Understanding parents' preferences for direct support or parent coaching for young autistic children [texte imprimé] / Phoebe JORDAN, Auteur ; Carla WALLACE-WATKIN, Auteur ; Jessica TUPOU, Auteur ; Sarah PILLAR, Auteur ; Hannah WADDINGTON, Auteur . - p.740-753. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.740-753 Index. décimale : PER Périodiques Résumé : There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or ... En ligne : https://dx.doi.org/10.1177/13623613241287300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Identification of autistic Māori in Aotearoa New Zealand: A national cross-sectional study / Jessica TUPOU in Autism, 30-2 (February 2026)  

Public ISBD [article]  inAutism > 30-2 (February 2026) . - p.362-374 Titre : Identification of autistic Māori in Aotearoa New Zealand: A national cross-sectional study Type de document : texte imprimé Auteurs : Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; Ia MORRISON-YOUNG, Auteur ; Ahi WI-HONGI, Auteur ; Andrew SPORLE, Auteur ; Tori DIAMOND, Auteur ; Reremoana THEODORE, Auteur ; Nicholas BOWDEN, Auteur Article en page(s) : p.362-374 Langues : Anglais (eng) Mots-clés : adolescents < populations  autism spectrum disorders  diagnosis  prevalence  school-age children Index. décimale : PER Périodiques Résumé : This study examines disparities in autism identification rates and support needs between Māori and non-Māori populations in Aotearoa New Zealand. The research was conducted through a collaborative approach with autistic Māori. Population-level administrative data were analysed for all individuals aged 0–24 years (N = 1,565,505) as of 30 June 2018. Autism identification was determined through health service records from July 2010 to June 2018. Comparative analyses examined autism rates, intellectual disability (ID) co-occurrence, and Ongoing Resourcing Scheme (ORS; high-need education funding support) allocation between Māori and non-Māori populations. Autism identification rates were lower among Māori (70.9/10,000) compared to non-Māori (78.3/10,000). Autistic Māori had higher rates of ID diagnosis (OR = 1.12; 95% CI = 1.02, 1.24) and ORS funding allocation (OR = 1.35; 95% CI = 1.22, 1.48). The observed disparities in autism identification rates and diagnostic patterns suggest potential systemic barriers to autism identification among Māori, particularly for those with lower formal support needs. Future Kaupapa Māori, autistic-led research is warranted to better understand these disparities and inform culturally responsive diagnostic and support services.Lay Abstract In this study, autistic Māori collaborated with researchers to analyse autism identification in Aotearoa New Zealand using population-level administrative data. The research examined all children and young people (0–24 years) in the Aotearoa New Zealand population as of 30 June 2018, identifying autism through health service records between July 2010 and June 2018. The findings showed lower autism identification rates among Māori (70.9 per 10,000) compared to non-Māori (78.3 per 10,000). This difference in rates is likely to reflect ongoing inequities and systemic racism, not true prevalence differences. Autistic Māori were also more frequently diagnosed with intellectual disability (ID) and more likely to receive high-need education funding support than autistic non-Māori. While these patterns might suggest higher formal support needs among autistic Māori, it’s crucial to recognise that support requirements are highly individual and context-dependent, making them difficult to measure using broad indicators. The lower overall autism identification rate among Māori, combined with these findings, suggests that autistic Māori with lower formal support needs may be missing opportunities for diagnosis and not accessing the supports and services they are entitled to. Future Kaupapa Māori, autistic-led research is needed to gain a more nuanced understanding of autism identification and support needs among Māori. En ligne : https://dx.doi.org/10.1177/13623613251380927 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579 [article] Identification of autistic Māori in Aotearoa New Zealand: A national cross-sectional study [texte imprimé] / Jessica TUPOU, Auteur ; Fran KEWENE, Auteur ; Ia MORRISON-YOUNG, Auteur ; Ahi WI-HONGI, Auteur ; Andrew SPORLE, Auteur ; Tori DIAMOND, Auteur ; Reremoana THEODORE, Auteur ; Nicholas BOWDEN, Auteur . - p.362-374. Langues : Anglais (eng) in Autism > 30-2 (February 2026) . - p.362-374 Mots-clés : adolescents < populations  autism spectrum disorders  diagnosis  prevalence  school-age children Index. décimale : PER Périodiques Résumé : This study examines disparities in autism identification rates and support needs between Māori and non-Māori populations in Aotearoa New Zealand. The research was conducted through a collaborative approach with autistic Māori. Population-level administrative data were analysed for all individuals aged 0–24 years (N = 1,565,505) as of 30 June 2018. Autism identification was determined through health service records from July 2010 to June 2018. Comparative analyses examined autism rates, intellectual disability (ID) co-occurrence, and Ongoing Resourcing Scheme (ORS; high-need education funding support) allocation between Māori and non-Māori populations. Autism identification rates were lower among Māori (70.9/10,000) compared to non-Māori (78.3/10,000). Autistic Māori had higher rates of ID diagnosis (OR = 1.12; 95% CI = 1.02, 1.24) and ORS funding allocation (OR = 1.35; 95% CI = 1.22, 1.48). The observed disparities in autism identification rates and diagnostic patterns suggest potential systemic barriers to autism identification among Māori, particularly for those with lower formal support needs. Future Kaupapa Māori, autistic-led research is warranted to better understand these disparities and inform culturally responsive diagnostic and support services.Lay Abstract In this study, autistic Māori collaborated with researchers to analyse autism identification in Aotearoa New Zealand using population-level administrative data. The research examined all children and young people (0–24 years) in the Aotearoa New Zealand population as of 30 June 2018, identifying autism through health service records between July 2010 and June 2018. The findings showed lower autism identification rates among Māori (70.9 per 10,000) compared to non-Māori (78.3 per 10,000). This difference in rates is likely to reflect ongoing inequities and systemic racism, not true prevalence differences. Autistic Māori were also more frequently diagnosed with intellectual disability (ID) and more likely to receive high-need education funding support than autistic non-Māori. While these patterns might suggest higher formal support needs among autistic Māori, it’s crucial to recognise that support requirements are highly individual and context-dependent, making them difficult to measure using broad indicators. The lower overall autism identification rate among Māori, combined with these findings, suggests that autistic Māori with lower formal support needs may be missing opportunities for diagnosis and not accessing the supports and services they are entitled to. Future Kaupapa Māori, autistic-led research is needed to gain a more nuanced understanding of autism identification and support needs among Māori. En ligne : https://dx.doi.org/10.1177/13623613251380927 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=579

Māori and autism: A scoping review / Jessica TUPOU in Autism, 26-7 (October 2022)  

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Māori and autism: A scoping review / Jessica TUPOU in Autism, 25-7 (October 2021)  

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Mortality risk among Autistic children and young people: A nationwide birth cohort study / Nicholas J. BOWDEN ; Sheree GIBB ; Richard AUDAS ; Joanne DACOMBE ; Laurie K MCLAY ; Andrew SPORLE ; Hilary STACE ; Barry TAYLOR ; Hiran THABREW ; Reremoana THEODORE ; Jessica TUPOU ; Philip J. SCHLUTER in Autism, 28-9 (September 2024)  

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Supporting tamariki takiw?tanga M?ori (autistic M?ori children): Exploring the experience of early childhood educators / Jessica TUPOU in Autism, 28-3 (March 2024)  

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