Anxiety, depression, and well-being in autistic adults and adults with other developmental disabilities: A longitudinal cross-lagged analysis / Hillary SCHILTZ in Autism Research, 16-7 (July 2023)  

Public ISBD [article]  inAutism Research > 16-7 (July 2023) . - p.1425-1436 Titre : Anxiety, depression, and well-being in autistic adults and adults with other developmental disabilities: A longitudinal cross-lagged analysis Type de document : Texte imprimé et/ou numérique Auteurs : Hillary SCHILTZ, Auteur ; Kyle STERRETT, Auteur ; Hannah SINGER, Auteur ; Catherine LORD, Auteur Article en page(s) : p.1425-1436 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Autistic people and people with other developmental disabilities (DD) are at high likelihood for anxiety and depression, which can negatively affect adult life. Therefore, this study sought to understand temporal links between anxiety and depression over time in autistic adults and adults with DDs, and how these conditions impact specific aspects of positive well-being. A sample of 130 adults with autism or other DDs and their caregivers were drawn from a longitudinal study. Participants complete measures of anxiety (Adult Manifest Anxiety Scale), depression (Beck Depression Inventory, 2nd Edition), and well-being (Scales of Psychological Well-Being). Cross-lagged panel analyses revealed significant autoregressive effects for anxiety and depressive symptoms over time, based on both caregiver and self-report (all p<0.01). Additionally, although findings differed across reporter, cross-lagged links between anxiety and depression emerged over time. Based on caregiver-report, anxiety symptoms predicted later depressive symptoms (p=0.002) but depressive symptoms did not predict later anxiety (p=0.10); the opposite pattern was identified for self-report. Aspects of positive well-being (purpose in life, self-acceptance, personal growth) demonstrated differential links with anxiety and depression (p=0.001-0.53). These findings highlight the utility of a transdiagnostic approach to mental health services for autistic adults and adults with DDs, and the need to monitor for anxious or depressive symptoms in autistic adults and adults with DDs presenting with depression or anxiety, respectively. En ligne : https://doi.org/10.1002/aur.2967 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510 [article] Anxiety, depression, and well-being in autistic adults and adults with other developmental disabilities: A longitudinal cross-lagged analysis [Texte imprimé et/ou numérique] / Hillary SCHILTZ, Auteur ; Kyle STERRETT, Auteur ; Hannah SINGER, Auteur ; Catherine LORD, Auteur . - p.1425-1436. Langues : Anglais (eng) in Autism Research > 16-7 (July 2023) . - p.1425-1436 Index. décimale : PER Périodiques Résumé : Abstract Autistic people and people with other developmental disabilities (DD) are at high likelihood for anxiety and depression, which can negatively affect adult life. Therefore, this study sought to understand temporal links between anxiety and depression over time in autistic adults and adults with DDs, and how these conditions impact specific aspects of positive well-being. A sample of 130 adults with autism or other DDs and their caregivers were drawn from a longitudinal study. Participants complete measures of anxiety (Adult Manifest Anxiety Scale), depression (Beck Depression Inventory, 2nd Edition), and well-being (Scales of Psychological Well-Being). Cross-lagged panel analyses revealed significant autoregressive effects for anxiety and depressive symptoms over time, based on both caregiver and self-report (all p<0.01). Additionally, although findings differed across reporter, cross-lagged links between anxiety and depression emerged over time. Based on caregiver-report, anxiety symptoms predicted later depressive symptoms (p=0.002) but depressive symptoms did not predict later anxiety (p=0.10); the opposite pattern was identified for self-report. Aspects of positive well-being (purpose in life, self-acceptance, personal growth) demonstrated differential links with anxiety and depression (p=0.001-0.53). These findings highlight the utility of a transdiagnostic approach to mental health services for autistic adults and adults with DDs, and the need to monitor for anxious or depressive symptoms in autistic adults and adults with DDs presenting with depression or anxiety, respectively. En ligne : https://doi.org/10.1002/aur.2967 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=510

Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version / Katherine BYRNE in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1009-1023 Titre : Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version Type de document : Texte imprimé et/ou numérique Auteurs : Katherine BYRNE, Auteur ; Kyle STERRETT, Auteur ; Alison HOLBROOK, Auteur ; So Hyun KIM, Auteur ; Rebecca GRZADZINSKI, Auteur ; Catherine LORD, Auteur Article en page(s) : p.1009-1023 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The current study investigated the utility of the Brief Observation of Social Communication Change-Phrase Speech Young Fluent (BOSCC-PSYF) as an outcome measure of treatment response by analyzing the measure?s psychometric properties and initial validity. The BOSCC coding scheme was applied to 345 administrations from 160 participants diagnosed with autism. Participants included individuals of any age with phrase speech, or individuals under the age of 8 years with complex sentences. All were receiving behavioral intervention throughout the study. Test-retest and inter-rater reliability were good for the Early Communication and Social Reciprocity/Language domains, and fair for the Restricted and Repetitive Behavior domain. Significant changes occurred over time in the Early Communication and Social Reciprocity/Language domains, and Core Total scores. The BOSCC-PSYF may provide a low-cost, flexible, and user-friendly outcome measure that reliably measures changes in broad social communicative behaviors in a short period of time. En ligne : https://doi.org/10.1007/s10803-022-05877-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version [Texte imprimé et/ou numérique] / Katherine BYRNE, Auteur ; Kyle STERRETT, Auteur ; Alison HOLBROOK, Auteur ; So Hyun KIM, Auteur ; Rebecca GRZADZINSKI, Auteur ; Catherine LORD, Auteur . - p.1009-1023. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1009-1023 Index. décimale : PER Périodiques Résumé : The current study investigated the utility of the Brief Observation of Social Communication Change-Phrase Speech Young Fluent (BOSCC-PSYF) as an outcome measure of treatment response by analyzing the measure?s psychometric properties and initial validity. The BOSCC coding scheme was applied to 345 administrations from 160 participants diagnosed with autism. Participants included individuals of any age with phrase speech, or individuals under the age of 8 years with complex sentences. All were receiving behavioral intervention throughout the study. Test-retest and inter-rater reliability were good for the Early Communication and Social Reciprocity/Language domains, and fair for the Restricted and Repetitive Behavior domain. Significant changes occurred over time in the Early Communication and Social Reciprocity/Language domains, and Core Total scores. The BOSCC-PSYF may provide a low-cost, flexible, and user-friendly outcome measure that reliably measures changes in broad social communicative behaviors in a short period of time. En ligne : https://doi.org/10.1007/s10803-022-05877-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

Perceived negative impact of caregiving demands in parents of individuals with autism spectrum disorders from 9 to 25 years of age / Kourtney CHRISTOPHER in Research in Autism Spectrum Disorders, 106 (August 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 106 (August 2023) . - 102203 Titre : Perceived negative impact of caregiving demands in parents of individuals with autism spectrum disorders from 9 to 25 years of age Type de document : Texte imprimé et/ou numérique Auteurs : Kourtney CHRISTOPHER, Auteur ; Maira TAFOLLA, Auteur ; Kyle STERRETT, Auteur ; Rebecca ELIAS, Auteur ; Catherine LORD, Auteur Année de publication : 2023 Article en page(s) : 102203 Langues : Anglais (eng) Mots-clés : Perceived negative impact of caregiving  Caregivers  ASD  Adolescence  Adulthood  Longitudinal Index. décimale : PER Périodiques Résumé : Background Caregivers of autistic individuals often report higher levels of perceived negative impact of caregiving. We know very little about the trajectories of caregivers perceived negative impact related to caregiving demands over time in autism. Method The aim of this study was to identify trajectories of perceived negative impact related to parenting of caregivers of autistic individuals and other developmental delays from childhood through emerging adulthood (n = 209). We also explored the factors that predict trajectories of caregiver perceived negative impact including the characteristics of the autistic individuals at age 9 (i.e., social affect, restricted and repetitive behaviors, irritability, hyperactivity, daily living skills and cognitive ability) and caregivers' race, education, social support, and study site. Results Latent class growth modelling yielded three negative impact of caregiving classes: (1) a low impact class that decreased over time (n = 68, 32.54 %), (2) a medium impact class that increased in negative impact during adolescence and decreased in emerging adulthood (n = 98, 46.98 %), and (3) a high impact class that decreased over time (n = 43, 20.57 %). Across all classes, reductions in negative impact of caregiving over time were reported in emerging adulthood, but the high and medium impact groups were still elevated in comparison to the low impact class at the last timepoint. Caregivers of children with less irritability and parent-reported restricted and repetitive behaviors were more likely to belong to the low negative impact group. Caregivers who were African American, had lower educational attainment and those with social support were more likely to belong to the low negative impact group. Conclusions These findings highlight the importance of continued support for caregivers of autistic individuals over time. The influence of race and education on levels of caregiver perceived negative impact of caregiving are discussed further. En ligne : https://doi.org/10.1016/j.rasd.2023.102203 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] Perceived negative impact of caregiving demands in parents of individuals with autism spectrum disorders from 9 to 25 years of age [Texte imprimé et/ou numérique] / Kourtney CHRISTOPHER, Auteur ; Maira TAFOLLA, Auteur ; Kyle STERRETT, Auteur ; Rebecca ELIAS, Auteur ; Catherine LORD, Auteur . - 2023 . - 102203. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 106 (August 2023) . - 102203 Mots-clés : Perceived negative impact of caregiving  Caregivers  ASD  Adolescence  Adulthood  Longitudinal Index. décimale : PER Périodiques Résumé : Background Caregivers of autistic individuals often report higher levels of perceived negative impact of caregiving. We know very little about the trajectories of caregivers perceived negative impact related to caregiving demands over time in autism. Method The aim of this study was to identify trajectories of perceived negative impact related to parenting of caregivers of autistic individuals and other developmental delays from childhood through emerging adulthood (n = 209). We also explored the factors that predict trajectories of caregiver perceived negative impact including the characteristics of the autistic individuals at age 9 (i.e., social affect, restricted and repetitive behaviors, irritability, hyperactivity, daily living skills and cognitive ability) and caregivers' race, education, social support, and study site. Results Latent class growth modelling yielded three negative impact of caregiving classes: (1) a low impact class that decreased over time (n = 68, 32.54 %), (2) a medium impact class that increased in negative impact during adolescence and decreased in emerging adulthood (n = 98, 46.98 %), and (3) a high impact class that decreased over time (n = 43, 20.57 %). Across all classes, reductions in negative impact of caregiving over time were reported in emerging adulthood, but the high and medium impact groups were still elevated in comparison to the low impact class at the last timepoint. Caregivers of children with less irritability and parent-reported restricted and repetitive behaviors were more likely to belong to the low negative impact group. Caregivers who were African American, had lower educational attainment and those with social support were more likely to belong to the low negative impact group. Conclusions These findings highlight the importance of continued support for caregivers of autistic individuals over time. The influence of race and education on levels of caregiver perceived negative impact of caregiving are discussed further. En ligne : https://doi.org/10.1016/j.rasd.2023.102203 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism / Kyle STERRETT in Journal of Autism and Developmental Disorders, 53-8 (August 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.3023-3033 Titre : Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism Type de document : Texte imprimé et/ou numérique Auteurs : Kyle STERRETT, Auteur ; Maira Tafolla MAGAÑA, Auteur ; Amanda GULSRUD, Auteur ; Tanya PAPARELLA, Auteur ; Connie KASARI, Auteur Article en page(s) : p.3023-3033 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Addressing factors that make it more likely for families to attrite from early intervention trials will allow researchers to ensure that families reap the full benefits of participation. This study was an analysis of 78 children (Mage?=?18.38 months, SD?=?5.78) at risk for autism participating in a university-based randomized controlled trial of two 8-week long early intervention programs. Overall, attrition through 8-weeks was low, approximately 13%, however by the one-year follow-up attrition rates were approximately 50%. The most consistent predictor of attrition was the distance that families had to travel to the university. These data highlight the importance of providing services and support (e.g., financial and logistic) during follow-up to families to maximize their participation. Clincaltrials.gov Identifier: NCT01874327, 6/11/2013. En ligne : https://doi.org/10.1007/s10803-022-05616-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508 [article] Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism [Texte imprimé et/ou numérique] / Kyle STERRETT, Auteur ; Maira Tafolla MAGAÑA, Auteur ; Amanda GULSRUD, Auteur ; Tanya PAPARELLA, Auteur ; Connie KASARI, Auteur . - p.3023-3033. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-8 (August 2023) . - p.3023-3033 Index. décimale : PER Périodiques Résumé : Addressing factors that make it more likely for families to attrite from early intervention trials will allow researchers to ensure that families reap the full benefits of participation. This study was an analysis of 78 children (Mage?=?18.38 months, SD?=?5.78) at risk for autism participating in a university-based randomized controlled trial of two 8-week long early intervention programs. Overall, attrition through 8-weeks was low, approximately 13%, however by the one-year follow-up attrition rates were approximately 50%. The most consistent predictor of attrition was the distance that families had to travel to the university. These data highlight the importance of providing services and support (e.g., financial and logistic) during follow-up to families to maximize their participation. Clincaltrials.gov Identifier: NCT01874327, 6/11/2013. En ligne : https://doi.org/10.1007/s10803-022-05616-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=508

The Brief Observation of Symptoms of Autism (BOSA): Development of a New Adapted Assessment Measure for Remote Telehealth Administration Through COVID-19 and Beyond / Deanna DOW in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5383-5394 Titre : The Brief Observation of Symptoms of Autism (BOSA): Development of a New Adapted Assessment Measure for Remote Telehealth Administration Through COVID-19 and Beyond Type de document : Texte imprimé et/ou numérique Auteurs : Deanna DOW, Auteur ; Alison HOLBROOK, Auteur ; Christina TOOLAN, Auteur ; Nicole MCDONALD, Auteur ; Kyle STERRETT, Auteur ; Nicole ROSEN, Auteur ; So Hyun KIM, Auteur ; Catherine LORD, Auteur Année de publication : 2022 Article en page(s) : p.5383-5394 Langues : Anglais (eng) Mots-clés : Humans  Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis/psychology  Reproducibility of Results  covid-19  Telemedicine  Assessment  Autism spectrum disorder  Diagnosis  Screening  the ADOS-2, SCQ and ADI-R. The BOSA is copyrighted by WPS because of its overlap  with the ADOS and BOSCC. Deanna Dow, Alison Holbrook, So Hyun Kim, and Catherine  Lord are authors of the BOSA, but it is not currently for sale and does not  yield any royalties at this time. Index. décimale : PER Périodiques Résumé : Interest in telehealth assessment for autism has increased due to COVID-19 and subsequent expansion of remote psychological services, though options that are easy for clinicians to adopt and available through the lifespan are limited. The Brief Observation of Symptoms of Autism (BOSA) provides a social context with standardized materials and activities that can be coded by clinicians trained in the Autism Diagnostic Observation Schedule. The current project examined psychometric properties to determine optimal use for each BOSA version. Three hundred and seven participants with 453 BOSAs were included to determine best performing items for algorithms, validity, sensitivity, specificity, recommended cut-offs, and proposed ranges of concern. While preliminary, the BOSA provides a promising new option for telehealth-administered assessment for autism. En ligne : http://dx.doi.org/10.1007/s10803-021-05395-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] The Brief Observation of Symptoms of Autism (BOSA): Development of a New Adapted Assessment Measure for Remote Telehealth Administration Through COVID-19 and Beyond [Texte imprimé et/ou numérique] / Deanna DOW, Auteur ; Alison HOLBROOK, Auteur ; Christina TOOLAN, Auteur ; Nicole MCDONALD, Auteur ; Kyle STERRETT, Auteur ; Nicole ROSEN, Auteur ; So Hyun KIM, Auteur ; Catherine LORD, Auteur . - 2022 . - p.5383-5394. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5383-5394 Mots-clés : Humans  Autistic Disorder/diagnosis/psychology  Autism Spectrum Disorder/diagnosis/psychology  Reproducibility of Results  covid-19  Telemedicine  Assessment  Autism spectrum disorder  Diagnosis  Screening  the ADOS-2, SCQ and ADI-R. The BOSA is copyrighted by WPS because of its overlap  with the ADOS and BOSCC. Deanna Dow, Alison Holbrook, So Hyun Kim, and Catherine  Lord are authors of the BOSA, but it is not currently for sale and does not  yield any royalties at this time. Index. décimale : PER Périodiques Résumé : Interest in telehealth assessment for autism has increased due to COVID-19 and subsequent expansion of remote psychological services, though options that are easy for clinicians to adopt and available through the lifespan are limited. The Brief Observation of Symptoms of Autism (BOSA) provides a social context with standardized materials and activities that can be coded by clinicians trained in the Autism Diagnostic Observation Schedule. The current project examined psychometric properties to determine optimal use for each BOSA version. Three hundred and seven participants with 453 BOSAs were included to determine best performing items for algorithms, validity, sensitivity, specificity, recommended cut-offs, and proposed ranges of concern. While preliminary, the BOSA provides a promising new option for telehealth-administered assessment for autism. En ligne : http://dx.doi.org/10.1007/s10803-021-05395-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Toward a functional classification for autism in adulthood / Kyle STERRETT in Autism Research, 17-10 (October 2024)  

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