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Mental health and social difficulties of late-diagnosed autistic children, across childhood and adolescence / Will MANDY in Journal of Child Psychology and Psychiatry, 63-11 (November 2022)
[article]
Titre : Mental health and social difficulties of late-diagnosed autistic children, across childhood and adolescence Type de document : Texte imprimé et/ou numérique Auteurs : Will MANDY, Auteur ; Emily MIDOUHAS, Auteur ; Mariko HOSOZAWA, Auteur ; Noriko CABLE, Auteur ; Amanda SACKER, Auteur ; Eirini FLOURI, Auteur Article en page(s) : p.1405-1414 Langues : Anglais (eng) Mots-clés : Female Child Adolescent Humans Autistic Disorder/diagnosis/psychology Cohort Studies Mental Health Attention Deficit Disorder with Hyperactivity Educational Status Autism Spectrum Disorder Millennium Cohort Study co-occurring mental health conditions diagnosis trajectories Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism can be diagnosed from 2 years of age, although most autistic people receive their diagnosis later than this after they have started education. Research is required to understand why some autistic children are diagnosed late, and the level and nature of unmet need prior to diagnosis for late-diagnosed children. METHODS: We examined trajectories of emotional, behavioural and social difficulties (EBSDs) across childhood and adolescence, comparing 'earlier-diagnosed' (diagnosed 7 years or younger) with 'late-diagnosed' (diagnosed between 8 and 14 years) autistic children. Data were from the Millennium Cohort Study, a population-based UK birth cohort. EBSDs were measured using the parent-report Strengths and Difficulties Questionnaire, at 3, 5, 7, 11 and 14 years. We used Growth Curve Modelling to investigate levels and rates of change in these difficulties, and to compare earlier- (n=146) and late-diagnosed (n=284) autistic children. RESULTS: Aged 5, earlier-diagnosed autistic children had more emotional (i.e., internalising), conduct, hyperactivity and social difficulties; although clinical difficulties in these areas were nevertheless common in late-diagnosed children. There was a faster annual increase in scores for all domains for late-diagnosed children, and by age 14 years, they had higher levels of EBSDs. These results persisted when we ran adjusted models, to account for the late-diagnosed group having higher rates of late-diagnosed attention deficit/hyperactivity disorder, higher IQ, a higher proportion of females and older and more educated mothers. CONCLUSIONS: Emotional, behavioural and social difficulties are associated with, and may influence, the timing of autism diagnosis. Late-diagnosed autistic children often have high levels of mental health and social difficulties prior to their autism diagnosis, and tend to develop even more severe problems as they enter adolescence. En ligne : http://dx.doi.org/10.1111/jcpp.13587 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490
in Journal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1405-1414[article] Mental health and social difficulties of late-diagnosed autistic children, across childhood and adolescence [Texte imprimé et/ou numérique] / Will MANDY, Auteur ; Emily MIDOUHAS, Auteur ; Mariko HOSOZAWA, Auteur ; Noriko CABLE, Auteur ; Amanda SACKER, Auteur ; Eirini FLOURI, Auteur . - p.1405-1414.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1405-1414
Mots-clés : Female Child Adolescent Humans Autistic Disorder/diagnosis/psychology Cohort Studies Mental Health Attention Deficit Disorder with Hyperactivity Educational Status Autism Spectrum Disorder Millennium Cohort Study co-occurring mental health conditions diagnosis trajectories Index. décimale : PER Périodiques Résumé : BACKGROUND: Autism can be diagnosed from 2 years of age, although most autistic people receive their diagnosis later than this after they have started education. Research is required to understand why some autistic children are diagnosed late, and the level and nature of unmet need prior to diagnosis for late-diagnosed children. METHODS: We examined trajectories of emotional, behavioural and social difficulties (EBSDs) across childhood and adolescence, comparing 'earlier-diagnosed' (diagnosed 7 years or younger) with 'late-diagnosed' (diagnosed between 8 and 14 years) autistic children. Data were from the Millennium Cohort Study, a population-based UK birth cohort. EBSDs were measured using the parent-report Strengths and Difficulties Questionnaire, at 3, 5, 7, 11 and 14 years. We used Growth Curve Modelling to investigate levels and rates of change in these difficulties, and to compare earlier- (n=146) and late-diagnosed (n=284) autistic children. RESULTS: Aged 5, earlier-diagnosed autistic children had more emotional (i.e., internalising), conduct, hyperactivity and social difficulties; although clinical difficulties in these areas were nevertheless common in late-diagnosed children. There was a faster annual increase in scores for all domains for late-diagnosed children, and by age 14 years, they had higher levels of EBSDs. These results persisted when we ran adjusted models, to account for the late-diagnosed group having higher rates of late-diagnosed attention deficit/hyperactivity disorder, higher IQ, a higher proportion of females and older and more educated mothers. CONCLUSIONS: Emotional, behavioural and social difficulties are associated with, and may influence, the timing of autism diagnosis. Late-diagnosed autistic children often have high levels of mental health and social difficulties prior to their autism diagnosis, and tend to develop even more severe problems as they enter adolescence. En ligne : http://dx.doi.org/10.1111/jcpp.13587 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 Are Autistic and Alexithymic Traits Distinct? A Factor-Analytic and Network Approach / Hélio Clemente CUVE in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
[article]
Titre : Are Autistic and Alexithymic Traits Distinct? A Factor-Analytic and Network Approach Type de document : Texte imprimé et/ou numérique Auteurs : Hélio Clemente CUVE, Auteur ; Jennifer MURPHY, Auteur ; Hannah HOBSON, Auteur ; Eri ICHIJO, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur Article en page(s) : p.2019-2034 Langues : Anglais (eng) Mots-clés : Affective Symptoms/diagnosis/psychology Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Phenotype Alexithymia Autism Factor Network Separation Index. décimale : PER Périodiques Résumé : Despite the heterogeneity in autism, socioemotional difficulties are often framed as universal. Increasing evidence, however, suggests that socioemotional difficulties may be explained by alexithymia, a distinct yet frequently co-occurring condition. If, as some propose, autistic traits are responsible for socioemotional impairments, then alexithymia may itself be a symptom of autism. We aimed to determine whether alexithymia should be considered a product of autism or regarded as a separate condition. Using factor-analytic and network approaches, we provide evidence that alexithymic and autistic traits are distinct. We argue that: (1) models of socioemotional processing in autism should conceptualise difficulties as intrinsic to alexithymia; and (2) assessment of alexithymia is crucial for diagnosis and personalised interventions. En ligne : http://dx.doi.org/10.1007/s10803-021-05094-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2019-2034[article] Are Autistic and Alexithymic Traits Distinct? A Factor-Analytic and Network Approach [Texte imprimé et/ou numérique] / Hélio Clemente CUVE, Auteur ; Jennifer MURPHY, Auteur ; Hannah HOBSON, Auteur ; Eri ICHIJO, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur . - p.2019-2034.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-5 (May 2022) . - p.2019-2034
Mots-clés : Affective Symptoms/diagnosis/psychology Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Phenotype Alexithymia Autism Factor Network Separation Index. décimale : PER Périodiques Résumé : Despite the heterogeneity in autism, socioemotional difficulties are often framed as universal. Increasing evidence, however, suggests that socioemotional difficulties may be explained by alexithymia, a distinct yet frequently co-occurring condition. If, as some propose, autistic traits are responsible for socioemotional impairments, then alexithymia may itself be a symptom of autism. We aimed to determine whether alexithymia should be considered a product of autism or regarded as a separate condition. Using factor-analytic and network approaches, we provide evidence that alexithymic and autistic traits are distinct. We argue that: (1) models of socioemotional processing in autism should conceptualise difficulties as intrinsic to alexithymia; and (2) assessment of alexithymia is crucial for diagnosis and personalised interventions. En ligne : http://dx.doi.org/10.1007/s10803-021-05094-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life / Gray ATHERTON in Journal of Autism and Developmental Disorders, 52-8 (August 2022)
[article]
Titre : Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life Type de document : Texte imprimé et/ou numérique Auteurs : Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur Article en page(s) : p.3639-3654 Langues : Anglais (eng) Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654[article] Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life [Texte imprimé et/ou numérique] / Gray ATHERTON, Auteur ; Emma EDISBURY, Auteur ; Andrea PIOVESAN, Auteur ; Liam CROSS, Auteur . - p.3639-3654.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3639-3654
Mots-clés : Adult Age Factors Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Humans Mental Health Quality of Life/psychology Adulthood Autism Autism quotient Mixed methods Quality of life Index. décimale : PER Périodiques Résumé : A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05235-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
[article]
Titre : Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.2984-2996 Langues : Anglais (eng) Mots-clés : Adult Australia Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Communication Humans Surveys and Questionnaires Adults Autism Diagnosis Mixed-methods Index. décimale : PER Périodiques Résumé : Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics. En ligne : http://dx.doi.org/10.1007/s10803-021-05169-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2984-2996[article] Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.2984-2996.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2984-2996
Mots-clés : Adult Australia Autism Spectrum Disorder/diagnosis/psychology Autistic Disorder/diagnosis/psychology Communication Humans Surveys and Questionnaires Adults Autism Diagnosis Mixed-methods Index. décimale : PER Périodiques Résumé : Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics. En ligne : http://dx.doi.org/10.1007/s10803-021-05169-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults / Sarah WIGHAM in Autism, 26-8 (November 2022)
[article]
Titre : A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults Type de document : Texte imprimé et/ou numérique Auteurs : Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1959-1972 Langues : Anglais (eng) Mots-clés : Adult Humans Autistic Disorder/diagnosis/psychology Autism Spectrum Disorder/diagnosis/psychology Surveys and Questionnaires United Kingdom NICE guidance adults assessment pathway autism spectrum disorders diagnosis stakeholders research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Living with undiagnosed autism can be distressing and may affect mental health. A diagnosis of autism can help self-awareness and self-understanding. However, it can be difficult for adults to access an autism assessment. Clinicians also sometimes find it hard to identify autism in adults. This may mean an autism diagnosis is delayed or missed. In this study, we asked autistic adults, relatives and clinicians how to improve this. The study was in two stages. In the first stage (stage 1), 343 autistic adults and 45 relatives completed a survey. In the survey, we asked questions about people's experiences of UK autism assessment services for adults. Thirty-five clinicians completed a similar survey. Clinicians reported that some autism assessment teams lacked key professionals, for example, psychologists and occupational therapists. We used the information from the three separate surveys to create 13 statements describing best autism assessment services for adults. In stage 2, we asked clinicians for their views on the 13 statements. Clinicians agreed with 11 of the statements. Some autistic adults, relatives and clinicians were positive about autism assessment services, and many also described areas that could be improved. The study findings can be used to improve UK adult autism assessment services and may be helpful for service developments worldwide. En ligne : http://dx.doi.org/10.1177/13623613211073020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.1959-1972[article] A survey of autistic adults, relatives and clinical teams in the United Kingdom: And Delphi process consensus statements on optimal autism diagnostic assessment for adults [Texte imprimé et/ou numérique] / Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur . - p.1959-1972.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.1959-1972
Mots-clés : Adult Humans Autistic Disorder/diagnosis/psychology Autism Spectrum Disorder/diagnosis/psychology Surveys and Questionnaires United Kingdom NICE guidance adults assessment pathway autism spectrum disorders diagnosis stakeholders research, authorship, and/or publication of this article. Index. décimale : PER Périodiques Résumé : Living with undiagnosed autism can be distressing and may affect mental health. A diagnosis of autism can help self-awareness and self-understanding. However, it can be difficult for adults to access an autism assessment. Clinicians also sometimes find it hard to identify autism in adults. This may mean an autism diagnosis is delayed or missed. In this study, we asked autistic adults, relatives and clinicians how to improve this. The study was in two stages. In the first stage (stage 1), 343 autistic adults and 45 relatives completed a survey. In the survey, we asked questions about people's experiences of UK autism assessment services for adults. Thirty-five clinicians completed a similar survey. Clinicians reported that some autism assessment teams lacked key professionals, for example, psychologists and occupational therapists. We used the information from the three separate surveys to create 13 statements describing best autism assessment services for adults. In stage 2, we asked clinicians for their views on the 13 statements. Clinicians agreed with 11 of the statements. Some autistic adults, relatives and clinicians were positive about autism assessment services, and many also described areas that could be improved. The study findings can be used to improve UK adult autism assessment services and may be helpful for service developments worldwide. En ligne : http://dx.doi.org/10.1177/13623613211073020 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Levels of Self-representation and Their Sociocognitive Correlates in Late-Diagnosed Autistic Adults / R. L. MOSELEY in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
PermalinkSuicidal Thoughts and Behaviours Among Autistic Adults Presenting to the Psychiatric Emergency Department: An Exploratory Chart Review / Patrick JACHYRA in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
PermalinkAn investigation of the 'female camouflage effect' in autism using a computerized ADOS-2 and a test of sex/gender differences / A. RYNKIEWICZ in Molecular Autism, 7 (2016)
PermalinkThe Autism-Spectrum Quotient (AQ) Adolescent's Version in Turkey: Factor Structure, Reliability and Validity / Elif CETINOGLU in Journal of Autism and Developmental Disorders, 52-7 (July 2022)
PermalinkAutism Traits Predict Self-reported Executive Functioning Deficits in Everyday Life and an Aversion to Exercise / L. A. MASON in Journal of Autism and Developmental Disorders, 51-8 (August 2021)
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