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Auteur Josephine BARBARO |
Documents disponibles écrits par cet auteur (24)
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Gender Differences During Toddlerhood in Autism Spectrum Disorder: A Prospective Community-Based Longitudinal Follow-Up Study / L. P. LAWSON in Journal of Autism and Developmental Disorders, 48-8 (August 2018)
[article]
Titre : Gender Differences During Toddlerhood in Autism Spectrum Disorder: A Prospective Community-Based Longitudinal Follow-Up Study Type de document : Texte imprimé et/ou numérique Auteurs : L. P. LAWSON, Auteur ; R. JOSHI, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.2619-2628 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Community based cohort Gender differences Longitudinal Index. décimale : PER Périodiques Résumé : Relatively few studies have examined gender differences in infants and toddlers, and most focus on clinically referred samples or high-risk infant cohorts. The current study aimed to examine gender differences in early autism manifestations and cognitive development in a community-ascertained sample. In total, 46 males and 21 females with ASD were seen at approximately 24 and 48 months of age. No significant gender differences were observed on overall cognitive ability, verbal skills, non-verbal skills, overall autism severity, or restricted repetitive behaviours. However, females were found to exhibit more social communication impairments than males. These findings may indicate that female toddlers with less severe or different, social communication impairments may be more likely to be missed during routine surveillance during toddlerhood. En ligne : http://dx.doi.org/10.1007/s10803-018-3516-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367
in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2619-2628[article] Gender Differences During Toddlerhood in Autism Spectrum Disorder: A Prospective Community-Based Longitudinal Follow-Up Study [Texte imprimé et/ou numérique] / L. P. LAWSON, Auteur ; R. JOSHI, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.2619-2628.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2619-2628
Mots-clés : Autism spectrum disorder Community based cohort Gender differences Longitudinal Index. décimale : PER Périodiques Résumé : Relatively few studies have examined gender differences in infants and toddlers, and most focus on clinically referred samples or high-risk infant cohorts. The current study aimed to examine gender differences in early autism manifestations and cognitive development in a community-ascertained sample. In total, 46 males and 21 females with ASD were seen at approximately 24 and 48 months of age. No significant gender differences were observed on overall cognitive ability, verbal skills, non-verbal skills, overall autism severity, or restricted repetitive behaviours. However, females were found to exhibit more social communication impairments than males. These findings may indicate that female toddlers with less severe or different, social communication impairments may be more likely to be missed during routine surveillance during toddlerhood. En ligne : http://dx.doi.org/10.1007/s10803-018-3516-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 Investigating gender differences in the early markers of Autism Spectrum Conditions (ASC) in infants and toddlers / Josephine BARBARO in Research in Autism Spectrum Disorders, 83 (May 2021)
[article]
Titre : Investigating gender differences in the early markers of Autism Spectrum Conditions (ASC) in infants and toddlers Type de document : Texte imprimé et/ou numérique Auteurs : Josephine BARBARO, Auteur ; Nerelie C. FREEMAN, Auteur Article en page(s) : 101745 Langues : Anglais (eng) Mots-clés : Autism Gender differences Females Early markers Screening Developmental surveillance Index. décimale : PER Périodiques Résumé : Background Many females with Autism Spectrum Conditions (ASC) are diagnosed later, mis-diagnosed, or missed altogether compared with males, leading to lost opportunities for early supports and services. It is therefore critical that researchers attempt to identify the earliest possible opportunity for females with ASC to be identified and diagnosed. The primary objective of this study was to investigate gender differences in the early signs of ASC in infants and toddlers identified during routine, community-based, developmental surveillance. A secondary aim was to examine gender ratio trends across time. Method A cross-sectional sample of 197 infants and toddlers (44 female, 153 male) at “high likelihood” for ASC were grouped by autism diagnosis and gender to enable social-communication behaviours to be compared at 18 and 24 months of age. Furthermore, gender ratio trends were examined between 12 and 24 months of age. Results No gender differences were found across groups at 18–24-months (small samples prohibited analyses at 12-months). However, the ratio of autistic females to males decreased from 1:15 at 12-months to 1:3.2 by 24-months. Conclusions The results of this study suggest close monitoring of females is required when conducting developmental surveillance for ASC, due to the large gender ratio discrepancy between 12- and 24-months. It is recommended that future studies continue to focus on the early autism phenotype in community-based samples, to assist with modification or development of female specific screening and developmental surveillance tools during infancy and toddlerhood. En ligne : https://doi.org/10.1016/j.rasd.2021.101745 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101745[article] Investigating gender differences in the early markers of Autism Spectrum Conditions (ASC) in infants and toddlers [Texte imprimé et/ou numérique] / Josephine BARBARO, Auteur ; Nerelie C. FREEMAN, Auteur . - 101745.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101745
Mots-clés : Autism Gender differences Females Early markers Screening Developmental surveillance Index. décimale : PER Périodiques Résumé : Background Many females with Autism Spectrum Conditions (ASC) are diagnosed later, mis-diagnosed, or missed altogether compared with males, leading to lost opportunities for early supports and services. It is therefore critical that researchers attempt to identify the earliest possible opportunity for females with ASC to be identified and diagnosed. The primary objective of this study was to investigate gender differences in the early signs of ASC in infants and toddlers identified during routine, community-based, developmental surveillance. A secondary aim was to examine gender ratio trends across time. Method A cross-sectional sample of 197 infants and toddlers (44 female, 153 male) at “high likelihood” for ASC were grouped by autism diagnosis and gender to enable social-communication behaviours to be compared at 18 and 24 months of age. Furthermore, gender ratio trends were examined between 12 and 24 months of age. Results No gender differences were found across groups at 18–24-months (small samples prohibited analyses at 12-months). However, the ratio of autistic females to males decreased from 1:15 at 12-months to 1:3.2 by 24-months. Conclusions The results of this study suggest close monitoring of females is required when conducting developmental surveillance for ASC, due to the large gender ratio discrepancy between 12- and 24-months. It is recommended that future studies continue to focus on the early autism phenotype in community-based samples, to assist with modification or development of female specific screening and developmental surveillance tools during infancy and toddlerhood. En ligne : https://doi.org/10.1016/j.rasd.2021.101745 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children / Gemma DAVY in Autism Research, 17-4 (April 2024)
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Titre : Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.799-811 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526
in Autism Research > 17-4 (April 2024) . - p.799-811[article] Leisure, community, workforce participation and quality of life in primary and secondary caregivers of autistic children [Texte imprimé et/ou numérique] / Gemma DAVY, Auteur ; Josephine BARBARO, Auteur ; Katy UNWIN, Auteur ; Megan CLARK, Auteur ; Rachel JELLETT, Auteur ; Perrin DATE, Auteur ; Melanie MUNIANDY, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.799-811.
Langues : Anglais (eng)
in Autism Research > 17-4 (April 2024) . - p.799-811
Index. décimale : PER Périodiques Résumé : Abstract Parents of Autistic children often modify their participation in leisure, social, and employment activities to meet the caregiving needs of their child. However, few studies have examined the impact this has on caregiver quality of life (QoL). The aim in the current study was to examine the role of participation in a range of activities on QoL amongst primary and secondary caregivers of school-aged Autistic children. Eighty-eight primary (93% mothers) and 63 secondary (91% fathers) caregivers of Autistic children (aged 7- to 12-years) participated in this cross-sectional study, with time pressure, participation, social support, parenting stress, and QoL measured via an online questionnaire. Compared to secondary caregivers, primary caregivers reported fewer employment hours, increased time pressure, less participation in desired activities, and higher perceived responsibility of domestic and child-rearing tasks. Similar levels of leisure frequency, parenting stress, and QoL were identified by both caregivers. Hierarchical regression revealed caregiver participation as important for QoL in both primary and secondary caregivers. However, when measures of caregiver well-being were added to the model, the unique contribution of participation to QoL was reduced, particularly for secondary caregivers. Overall, the findings demonstrate that despite differences in caregiver roles and responsibilities, participation in meaningful activities was important for QoL in all caregivers. En ligne : https://doi.org/10.1002/aur.3113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=526 Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review / Gemma DAVY in Autism, 26-8 (November 2022)
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Titre : Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur Article en page(s) : p.1916-1930 Langues : Anglais (eng) Mots-clés : Child Humans Caregivers Quality of Life Autistic Disorder Autism Spectrum Disorder Leisure Activities Employment Community Participation Autism spectrum disorder occupational balance participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.1916-1930[article] Leisure, employment, community participation and quality of life in caregivers of autistic children: A scoping review [Texte imprimé et/ou numérique] / Gemma DAVY, Auteur ; Katy L. UNWIN, Auteur ; Josephine BARBARO, Auteur ; Cheryl DISSANAYAKE, Auteur . - p.1916-1930.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.1916-1930
Mots-clés : Child Humans Caregivers Quality of Life Autistic Disorder Autism Spectrum Disorder Leisure Activities Employment Community Participation Autism spectrum disorder occupational balance participation Index. décimale : PER Périodiques Résumé : We searched a wide range of academic journals for published information on the participation levels of caregivers of autistic children in activities relating to leisure, social, community and employment contexts, and the impact that participation may have on caregiver quality of life. Overall, we found that the impact of parenting an autistic child is broad with caregivers often prioritising their child's needs over their own, particularly in occupational participation, which impacts their quality of life. Findings also highlighted a need for further research to investigate the experience of caregivers, and the relationship between participation and quality of life in caregivers of autistic children, as the results can inform the development of better supports for them. En ligne : http://dx.doi.org/10.1177/13623613221105836 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Parents’ experiences of an early autism diagnosis: Insights into their needs / Aspasia Stacey RABBA in Research in Autism Spectrum Disorders, 66 (October 2019)
[article]
Titre : Parents’ experiences of an early autism diagnosis: Insights into their needs Type de document : Texte imprimé et/ou numérique Auteurs : Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.101415 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Parents Parental experience Early diagnosis Coping Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404
in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101415[article] Parents’ experiences of an early autism diagnosis: Insights into their needs [Texte imprimé et/ou numérique] / Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur . - p.101415.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101415
Mots-clés : Autism spectrum disorder Parents Parental experience Early diagnosis Coping Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 Performance of the Autism Observation Scale for Infants with community-ascertained infants showing early signs of autism / Kristelle HUDRY in Autism, 25-2 (February 2021)
PermalinkSchool Age Outcomes of Children Diagnosed Early and Later with Autism Spectrum Disorder / Megan L. E. CLARK in Journal of Autism and Developmental Disorders, 48-1 (January 2018)
PermalinkSkeletal Growth Dysregulation in Australian Male Infants and Toddlers With Autism Spectrum Disorder / C. C. GREEN in Autism Research, 11-6 (June 2018)
PermalinkA systematic review of screening tools for the detection of autism spectrum disorder in mainland China and surrounding regions / Ji WANG in Autism, 24-2 (February 2020)
PermalinkThe Sensory Observation Autism Rating Scale (SOAR): Developed using the PROMIS® framework / Katy L. UNWIN in Autism Research, 16-3 (March 2023)
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