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Faire une suggestionCharacteristics of toddlers with early versus later diagnosis of autism spectrum disorder / Lauren E. MILLER in Autism, 25-2 (February 2021)
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Titre : Characteristics of toddlers with early versus later diagnosis of autism spectrum disorder Type de document : texte imprimé Auteurs : Lauren E. MILLER, Auteur ; Yael G. DAI, Auteur ; Deborah A. FEIN, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.416-428 Langues : Anglais (eng) Mots-clés : autism spectrum disorder early diagnosis early identification later diagnosis symptom onset M-CHAT, LLC, which receives royalties from companies that incorporate the M-CHAT-R/F into commercial products or distribute products containing the M-CHAT-R/F. Data reported in this manuscript did not incur any royalties. Lauren Miller and Yael Dai declare that they have no conflicts of interest. Index. décimale : PER Périodiques Résumé : The emergence of autism symptoms in childhood is variable, with some children showing signs of autism spectrum disorder very early, and others not being identified until much later. Although most children in the United States are not diagnosed with autism spectrum disorder until preschool, at ages 3-4 years, symptoms can be reliably detected at 14 months. It is less certain how those toddlers diagnosed with autism spectrum disorder earlier versus later differ from each other clinically. This study revealed that young children diagnosed later in development, between ages 25 and 41 months, are more impaired on measures of cognitive, adaptive, and social functioning than their counterparts who are diagnosed with autism spectrum disorder earlier. All young children with autism spectrum disorder are impaired in communication to a similar degree, however. Universal autism screening at 18 months may identify toddlers with autism spectrum disorder when their symptoms are milder and more readily amenable to intervention. Repeated screening at 24 months is supported to detect those children missed by an earlier screening, who may be more severely affected. Caregivers should be encouraged to pursue diagnostic evaluation at an initial positive screening result to ensure timely diagnosis and treatment. En ligne : http://dx.doi.org/10.1177/1362361320959507 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442
in Autism > 25-2 (February 2021) . - p.416-428[article] Characteristics of toddlers with early versus later diagnosis of autism spectrum disorder [texte imprimé] / Lauren E. MILLER, Auteur ; Yael G. DAI, Auteur ; Deborah A. FEIN, Auteur ; Diana L. ROBINS, Auteur . - p.416-428.
Langues : Anglais (eng)
in Autism > 25-2 (February 2021) . - p.416-428
Mots-clés : autism spectrum disorder early diagnosis early identification later diagnosis symptom onset M-CHAT, LLC, which receives royalties from companies that incorporate the M-CHAT-R/F into commercial products or distribute products containing the M-CHAT-R/F. Data reported in this manuscript did not incur any royalties. Lauren Miller and Yael Dai declare that they have no conflicts of interest. Index. décimale : PER Périodiques Résumé : The emergence of autism symptoms in childhood is variable, with some children showing signs of autism spectrum disorder very early, and others not being identified until much later. Although most children in the United States are not diagnosed with autism spectrum disorder until preschool, at ages 3-4 years, symptoms can be reliably detected at 14 months. It is less certain how those toddlers diagnosed with autism spectrum disorder earlier versus later differ from each other clinically. This study revealed that young children diagnosed later in development, between ages 25 and 41 months, are more impaired on measures of cognitive, adaptive, and social functioning than their counterparts who are diagnosed with autism spectrum disorder earlier. All young children with autism spectrum disorder are impaired in communication to a similar degree, however. Universal autism screening at 18 months may identify toddlers with autism spectrum disorder when their symptoms are milder and more readily amenable to intervention. Repeated screening at 24 months is supported to detect those children missed by an earlier screening, who may be more severely affected. Caregivers should be encouraged to pursue diagnostic evaluation at an initial positive screening result to ensure timely diagnosis and treatment. En ligne : http://dx.doi.org/10.1177/1362361320959507 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 Development and psychometric evaluation of a Thai Diagnostic Autism Scale for the early diagnosis of Autism Spectrum Disorder / Duangkamol TANGVIRIYAPAIBOON in Autism Research, 15-2 (February 2022)
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Titre : Development and psychometric evaluation of a Thai Diagnostic Autism Scale for the early diagnosis of Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Duangkamol TANGVIRIYAPAIBOON, Auteur ; Samai SIRITHONGTHAWORN, Auteur ; Hataichanok APIKOMONKON, Auteur ; Chidawan SUYAKONG, Auteur ; Pimwarat SRIKUMMOON, Auteur ; Suttipong KAWILAPAT, Auteur ; Patrinee TRAISATHIT, Auteur Article en page(s) : p.317-327 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder Thai Diagnostic Autism Scale diagnostic tool early diagnosis Index. décimale : PER Périodiques Résumé : The Thai Diagnostic Autism Scale (TDAS) was developed for use as a diagnostic tool for the early diagnosis of Autism Spectrum Disorder (ASD) in Thai children aged 12-48 months old. TDAS consists of 23 items (13 and 17 items in the observational and interview sections, respectively) classified into seven domains (A1-A3 and B1-B4) according to the criteria in the Diagnostic and Statistical Manual of Mental Disorder, fifth edition (DSM-5). Children with a single score in the A1-A3 domains and at least two of the B1-B4 domains were classified with ASD. The item-objective congruence (IOC) index, confirmatory factor analysis, and Kappa coefficient were used to evaluate the content, constructs, and inter-rater validity levels between the evaluators and concurrent validity between TDAS and physicians' diagnoses, respectively. TDAS showed good overall content validity (IOC range 0.71-1.00), suitable construct validity (root-mean-squared errors of approximation of 0.076 and 0.067, comparative fit indexes of 0.902 and 0.858, and Tucker-Lewis indexes of 0.882 and 0.837 for the observation and interview sections, respectively), and excellent diagnostic agreement between TDAS and the evaluators (Kappa = 1.000) as well as between TDAS and the physicians' diagnoses (Kappa = 0.871). The sensitivity and specificity of TDAS were 100% and 82.4%, respectively. In conclusion, TDAS yielded a high level of content validity, concurrent validity, and inter-rater reliability for the early diagnosis of ASD in Thai children. A large-scale study using TDAS is needed to determine an appropriate cut-off point as well as its efficacy. LAY SUMMARY: The Thai Diagnostic Autism Scale was developed for use as a diagnostic tool for the early diagnosis of Autism Spectrum Disorder (ASD) among Thai children. It contains 23 items in seven domains for the screening via observations and interviews. The psychometric properties of this diagnostic tool provide its reliability and suitability for the early diagnosis of ASD. A large-scale study using it is needed to determine an appropriate cut-off point as well as its efficacy. En ligne : http://dx.doi.org/10.1002/aur.2631 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 15-2 (February 2022) . - p.317-327[article] Development and psychometric evaluation of a Thai Diagnostic Autism Scale for the early diagnosis of Autism Spectrum Disorder [texte imprimé] / Duangkamol TANGVIRIYAPAIBOON, Auteur ; Samai SIRITHONGTHAWORN, Auteur ; Hataichanok APIKOMONKON, Auteur ; Chidawan SUYAKONG, Auteur ; Pimwarat SRIKUMMOON, Auteur ; Suttipong KAWILAPAT, Auteur ; Patrinee TRAISATHIT, Auteur . - p.317-327.
Langues : Anglais (eng)
in Autism Research > 15-2 (February 2022) . - p.317-327
Mots-clés : Autism Spectrum Disorder Thai Diagnostic Autism Scale diagnostic tool early diagnosis Index. décimale : PER Périodiques Résumé : The Thai Diagnostic Autism Scale (TDAS) was developed for use as a diagnostic tool for the early diagnosis of Autism Spectrum Disorder (ASD) in Thai children aged 12-48 months old. TDAS consists of 23 items (13 and 17 items in the observational and interview sections, respectively) classified into seven domains (A1-A3 and B1-B4) according to the criteria in the Diagnostic and Statistical Manual of Mental Disorder, fifth edition (DSM-5). Children with a single score in the A1-A3 domains and at least two of the B1-B4 domains were classified with ASD. The item-objective congruence (IOC) index, confirmatory factor analysis, and Kappa coefficient were used to evaluate the content, constructs, and inter-rater validity levels between the evaluators and concurrent validity between TDAS and physicians' diagnoses, respectively. TDAS showed good overall content validity (IOC range 0.71-1.00), suitable construct validity (root-mean-squared errors of approximation of 0.076 and 0.067, comparative fit indexes of 0.902 and 0.858, and Tucker-Lewis indexes of 0.882 and 0.837 for the observation and interview sections, respectively), and excellent diagnostic agreement between TDAS and the evaluators (Kappa = 1.000) as well as between TDAS and the physicians' diagnoses (Kappa = 0.871). The sensitivity and specificity of TDAS were 100% and 82.4%, respectively. In conclusion, TDAS yielded a high level of content validity, concurrent validity, and inter-rater reliability for the early diagnosis of ASD in Thai children. A large-scale study using TDAS is needed to determine an appropriate cut-off point as well as its efficacy. LAY SUMMARY: The Thai Diagnostic Autism Scale was developed for use as a diagnostic tool for the early diagnosis of Autism Spectrum Disorder (ASD) among Thai children. It contains 23 items in seven domains for the screening via observations and interviews. The psychometric properties of this diagnostic tool provide its reliability and suitability for the early diagnosis of ASD. A large-scale study using it is needed to determine an appropriate cut-off point as well as its efficacy. En ligne : http://dx.doi.org/10.1002/aur.2631 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Parents’ experiences of an early autism diagnosis: Insights into their needs / Aspasia Stacey RABBA in Research in Autism Spectrum Disorders, 66 (October 2019)
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Titre : Parents’ experiences of an early autism diagnosis: Insights into their needs Type de document : texte imprimé Auteurs : Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.101415 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Parents Parental experience Early diagnosis Coping Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404
in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101415[article] Parents’ experiences of an early autism diagnosis: Insights into their needs [texte imprimé] / Aspasia Stacey RABBA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur . - p.101415.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 66 (October 2019) . - p.101415
Mots-clés : Autism spectrum disorder Parents Parental experience Early diagnosis Coping Support Index. décimale : PER Périodiques Résumé : Background Little research has directly examined parental needs following their child’s early diagnosis of autism. Method The experiences and support needs of 13 mothers and fathers who had a young child diagnosed (<36 months) were explored via a series of semi-structured interviews and a focus group. Results Thematic analysis identified four key themes: emotional response to diagnosis, ability to manage the uncertainty post-diagnosis, resourcefulness, and experiences of sharing the diagnosis. Conclusions Parents highlighted that receipt of an early diagnosis triggered an array of emotions, which influenced their coping. Charting parents’ lived experiences following an early diagnosis provides valuable insights that have important implications for the development of resources and supports for families at this time. En ligne : https://doi.org/10.1016/j.rasd.2019.101415 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=404 Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study / Nirvana PISTOLJEVIC in Journal of Autism and Developmental Disorders, 51-12 (December 2021)
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Titre : Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study Type de document : texte imprimé Auteurs : Nirvana PISTOLJEVIC, Auteur ; Eldin DZANKO, Auteur ; M. GHAZIUDDIN, Auteur Article en page(s) : p.4447-4455 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder/diagnosis/epidemiology Bosnia and Herzegovina/epidemiology Child Child, Preschool Early Diagnosis Humans Infant Parents Autism spectrum disorder Bosnia Early autism diagnosis Eastern Europe Herzegovina Low-and middle-income countries Index. décimale : PER Périodiques Résumé : The aim of this preliminary study was to identify the practice patterns and potential barriers to diagnosing autism in Bosnia & Herzegovina. 126 children aged 23 to 94 months with developmental concerns referred to treatment centers participated in the study. Although parents had reported developmental problems in their children usually around the age of 17 months, it took them 812 visits to professionals (> 6 visits per child) over several months (mean 16.8, range 2-52 months) to get diagnosed with any developmental disorder. Only 8 children (6.3%) received a diagnosis of autism. However, when we re-examined 110 of the 126 children, 90 of them (71%) were identified with autism. Implications of these findings are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-04875-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4447-4455[article] Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study [texte imprimé] / Nirvana PISTOLJEVIC, Auteur ; Eldin DZANKO, Auteur ; M. GHAZIUDDIN, Auteur . - p.4447-4455.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4447-4455
Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder/diagnosis/epidemiology Bosnia and Herzegovina/epidemiology Child Child, Preschool Early Diagnosis Humans Infant Parents Autism spectrum disorder Bosnia Early autism diagnosis Eastern Europe Herzegovina Low-and middle-income countries Index. décimale : PER Périodiques Résumé : The aim of this preliminary study was to identify the practice patterns and potential barriers to diagnosing autism in Bosnia & Herzegovina. 126 children aged 23 to 94 months with developmental concerns referred to treatment centers participated in the study. Although parents had reported developmental problems in their children usually around the age of 17 months, it took them 812 visits to professionals (> 6 visits per child) over several months (mean 16.8, range 2-52 months) to get diagnosed with any developmental disorder. Only 8 children (6.3%) received a diagnosis of autism. However, when we re-examined 110 of the 126 children, 90 of them (71%) were identified with autism. Implications of these findings are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-04875-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 The impact of state policy on early autism diagnosis: A qualitative investigation / Olivia J. LINDLY in Autism, 29-8 (August 2025)
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Titre : The impact of state policy on early autism diagnosis: A qualitative investigation Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Danielle ABATE, Auteur ; Plyce FUCHU, Auteur ; Jocelyn KUHN, Auteur ; Purnima S MUDNAL BHARATH, Auteur ; Sarah M ASANTEWAA, Auteur ; Emily FEINBERG, Auteur ; Sarabeth BRODER-FINGERT, Auteur Article en page(s) : p.2163-2180 Langues : Anglais (eng) Mots-clés : autism disparities early diagnosis insurance policy services United States Index. décimale : PER Périodiques Résumé : Autism diagnosis before age three to expedite access to critical services is a public health priority in the United States. Still, the average age of autism diagnosis is 49 months with substantial variability across states. By examining policy-defined as laws, regulations, procedures, administrative actions, incentives, or voluntary practices of governments or other institutions-modifiable structural drivers of early (or late) autism diagnosis may be identified. We, therefore, sought to identify policies impacting early autism diagnosis in five states that are part of a larger initiative to improve autism diagnosis (Arizona, California, Connecticut, Massachusetts, and Pennsylvania) and those that exist nationally. We conducted semi-structured interviews from 2021 to 2023 with a purposive sample of 57 autism policy or research experts. The following four themes were identified through conventional content analysis: (1) developmental monitoring is critical; however, developmental screening policies vary within and across states; (2) myriad policy and contextual factors shape early diagnosis pathways within states; (3) early intervention by the state and community-based early childhood programs influence early autism diagnosis; and (4) persistent disparities in early autism diagnosis pathways are affected by policies. Study findings highlight the importance of advancing certain state and federal policies to increase early autism diagnosis.Lay abstract In the United States, when children on the spectrum are diagnosed before age three, it can help them get the services they need to thrive. There are many differences between states as far as how many children are diagnosed with autism and the average age when they are diagnosed. Some work suggests these differences may be due to state polices, which include the laws and processes governments and organizations follow. Little research has tried to understand the similarities and differences between state policies related to autism diagnosis. Because of this, our study looked at how state policies impact the timing of autism diagnosis in the United States. We interviewed 57 experts in five states and nationally from 2021 to 2023. Four key themes were identified including (1) developmental monitoring often leads to screening, but there is much variation in and across states; (2) family, community, and healthcare factors shape pathways to autism diagnosis in states; (3) early intervention and education programs play a role in autism diagnosis; and (4) systematic differences in access to diagnosis services persist for certain groups of children and families such as those with limited English-speaking abilities. This study?s findings point to certain state and federal policy changes or enhancements to reduce the age of autism diagnosis and ameliorate persistent disparities in autism diagnosis. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251336813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564
in Autism > 29-8 (August 2025) . - p.2163-2180[article] The impact of state policy on early autism diagnosis: A qualitative investigation [texte imprimé] / Olivia J. LINDLY, Auteur ; Danielle ABATE, Auteur ; Plyce FUCHU, Auteur ; Jocelyn KUHN, Auteur ; Purnima S MUDNAL BHARATH, Auteur ; Sarah M ASANTEWAA, Auteur ; Emily FEINBERG, Auteur ; Sarabeth BRODER-FINGERT, Auteur . - p.2163-2180.
Langues : Anglais (eng)
in Autism > 29-8 (August 2025) . - p.2163-2180
Mots-clés : autism disparities early diagnosis insurance policy services United States Index. décimale : PER Périodiques Résumé : Autism diagnosis before age three to expedite access to critical services is a public health priority in the United States. Still, the average age of autism diagnosis is 49 months with substantial variability across states. By examining policy-defined as laws, regulations, procedures, administrative actions, incentives, or voluntary practices of governments or other institutions-modifiable structural drivers of early (or late) autism diagnosis may be identified. We, therefore, sought to identify policies impacting early autism diagnosis in five states that are part of a larger initiative to improve autism diagnosis (Arizona, California, Connecticut, Massachusetts, and Pennsylvania) and those that exist nationally. We conducted semi-structured interviews from 2021 to 2023 with a purposive sample of 57 autism policy or research experts. The following four themes were identified through conventional content analysis: (1) developmental monitoring is critical; however, developmental screening policies vary within and across states; (2) myriad policy and contextual factors shape early diagnosis pathways within states; (3) early intervention by the state and community-based early childhood programs influence early autism diagnosis; and (4) persistent disparities in early autism diagnosis pathways are affected by policies. Study findings highlight the importance of advancing certain state and federal policies to increase early autism diagnosis.Lay abstract In the United States, when children on the spectrum are diagnosed before age three, it can help them get the services they need to thrive. There are many differences between states as far as how many children are diagnosed with autism and the average age when they are diagnosed. Some work suggests these differences may be due to state polices, which include the laws and processes governments and organizations follow. Little research has tried to understand the similarities and differences between state policies related to autism diagnosis. Because of this, our study looked at how state policies impact the timing of autism diagnosis in the United States. We interviewed 57 experts in five states and nationally from 2021 to 2023. Four key themes were identified including (1) developmental monitoring often leads to screening, but there is much variation in and across states; (2) family, community, and healthcare factors shape pathways to autism diagnosis in states; (3) early intervention and education programs play a role in autism diagnosis; and (4) systematic differences in access to diagnosis services persist for certain groups of children and families such as those with limited English-speaking abilities. This study?s findings point to certain state and federal policy changes or enhancements to reduce the age of autism diagnosis and ameliorate persistent disparities in autism diagnosis. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251336813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564 The Role of Demographics in the Age of Autism Diagnosis in Jerusalem / Judah KOLLER in Journal of Autism and Developmental Disorders, 51-3 (March 2021)
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PermalinkAffording autism an early brain development re-definition / Ami KLIN in Development and Psychopathology, 32-4 (October 2020)
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PermalinkExplaining differences in age at autism spectrum disorder diagnosis: A critical review / Amy M. DANIELS in Autism, 18-5 (July 2014)
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PermalinkFactors associated with age of diagnosis in children with autism spectrum disorders: Report from a French cohort / Cécile RATTAZ in Autism, 26-8 (November 2022)
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PermalinkFactors Associated with a Delayed Autism Spectrum Disorder Diagnosis in Children Previously Assessed on Suspicion of Autism / Sara Højslev AVLUND in Journal of Autism and Developmental Disorders, 51-11 (November 2021)
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