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Auteur Ailsa RUSSELL |
Documents disponibles écrits par cet auteur (23)
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Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis / Kate COOPER in Journal of Child Psychology and Psychiatry, 64-2 (February 2023)
[article]
Titre : Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis Type de document : Texte imprimé et/ou numérique Auteurs : Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : p.265-276 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Background Autistic people are overrepresented in gender clinic settings, but limited evidence is available to guide clinical decision making for this patient group. We aimed to generate a comprehensive understanding of the phenomenology of gender dysphoria in autistic people. Methods We conducted a multi-perspectival interpretative phenomenological analysis (IPA), from five different perspectives; autistic young people and adults with experience of gender dysphoria, parents of young people, and clinicians working with autistic people with gender dysphoria in both adult and young person settings (n = 68). Results IPA analysis resulted in two themes, ˜discovering gender identity’ and ˜the complexities of moving towards gender comfort’. Participants agreed that there was often an interaction between gender dysphoria and features of autism such as sensory sensitivities. There was relative consensus across groups about the need for autism adaptations to be made in gender clinics. Autistic adults were more likely to see autism as an important identity than young people, but both groups were clear that autism did not impair their understanding of gender. In contrast, some parents and clinicians working with young people expressed concern that autism did impact self-understanding. Discussion While the groups tended to agree on the ways in which particular features of autism can compound gender dysphoria, there were a range of perspectives on the ways in which autism impacted on self-knowledge. Conclusion Recommendations for adaptations when working with autistic people with gender dysphoria are presented. En ligne : https://doi.org/10.1111/jcpp.13691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492
in Journal of Child Psychology and Psychiatry > 64-2 (February 2023) . - p.265-276[article] Phenomenology of gender dysphoria in autism: a multiperspective qualitative analysis [Texte imprimé et/ou numérique] / Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur . - p.265-276.
Langues : Anglais (eng)
in Journal of Child Psychology and Psychiatry > 64-2 (February 2023) . - p.265-276
Index. décimale : PER Périodiques Résumé : Background Autistic people are overrepresented in gender clinic settings, but limited evidence is available to guide clinical decision making for this patient group. We aimed to generate a comprehensive understanding of the phenomenology of gender dysphoria in autistic people. Methods We conducted a multi-perspectival interpretative phenomenological analysis (IPA), from five different perspectives; autistic young people and adults with experience of gender dysphoria, parents of young people, and clinicians working with autistic people with gender dysphoria in both adult and young person settings (n = 68). Results IPA analysis resulted in two themes, ˜discovering gender identity’ and ˜the complexities of moving towards gender comfort’. Participants agreed that there was often an interaction between gender dysphoria and features of autism such as sensory sensitivities. There was relative consensus across groups about the need for autism adaptations to be made in gender clinics. Autistic adults were more likely to see autism as an important identity than young people, but both groups were clear that autism did not impair their understanding of gender. In contrast, some parents and clinicians working with young people expressed concern that autism did impact self-understanding. Discussion While the groups tended to agree on the ways in which particular features of autism can compound gender dysphoria, there were a range of perspectives on the ways in which autism impacted on self-knowledge. Conclusion Recommendations for adaptations when working with autistic people with gender dysphoria are presented. En ligne : https://doi.org/10.1111/jcpp.13691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492 Response Inhibition in Adults with Autism Spectrum Disorder Compared to Attention Deficit/Hyperactivity Disorder / Kate JOHNSON in Journal of Autism and Developmental Disorders, 41-7 (July 2011)
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Titre : Response Inhibition in Adults with Autism Spectrum Disorder Compared to Attention Deficit/Hyperactivity Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Kate JOHNSON, Auteur ; Anya K. MADDEN, Auteur ; Jessica BRAMHAM, Auteur ; Ailsa RUSSELL, Auteur Année de publication : 2011 Article en page(s) : p.903-912 Langues : Anglais (eng) Mots-clés : Response inhibition Autism ADHD Adults Executive function Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) and attention deficit/hyperactivity disorder (ADHD) are hypothesised to involve core deficits in executive function. Previous studies have found evidence of a double dissociation between the disorders on specific executive functions (planning and response inhibition). To date most research has been conducted with children. No studies have directly compared the stable cognitive profile of adults. It was hypothesised that adults with ASD would show generally intact response inhibition whereas those with ADHD would show more global impairment. Participants were 24 adults aged 18–55 with high functioning ASD, 24 with ADHD, and 14 age and IQ matched controls. Participants completed three standardised measures of response inhibition. Participants with ASD had generally intact response inhibition but slow response latencies, possibly due to deficits in response initiation. Adults with ADHD did not show the more global impairments hypothesised. There were some significant differences between the clinical groups across measures of inhibition. In terms of performance style, adults with ASD were slow and accurate whilst those with ADHD showed an impulsive style. En ligne : http://dx.doi.org/10.1007/s10803-010-1113-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=130
in Journal of Autism and Developmental Disorders > 41-7 (July 2011) . - p.903-912[article] Response Inhibition in Adults with Autism Spectrum Disorder Compared to Attention Deficit/Hyperactivity Disorder [Texte imprimé et/ou numérique] / Kate JOHNSON, Auteur ; Anya K. MADDEN, Auteur ; Jessica BRAMHAM, Auteur ; Ailsa RUSSELL, Auteur . - 2011 . - p.903-912.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 41-7 (July 2011) . - p.903-912
Mots-clés : Response inhibition Autism ADHD Adults Executive function Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) and attention deficit/hyperactivity disorder (ADHD) are hypothesised to involve core deficits in executive function. Previous studies have found evidence of a double dissociation between the disorders on specific executive functions (planning and response inhibition). To date most research has been conducted with children. No studies have directly compared the stable cognitive profile of adults. It was hypothesised that adults with ASD would show generally intact response inhibition whereas those with ADHD would show more global impairment. Participants were 24 adults aged 18–55 with high functioning ASD, 24 with ADHD, and 14 age and IQ matched controls. Participants completed three standardised measures of response inhibition. Participants with ASD had generally intact response inhibition but slow response latencies, possibly due to deficits in response initiation. Adults with ADHD did not show the more global impairments hypothesised. There were some significant differences between the clinical groups across measures of inhibition. In terms of performance style, adults with ASD were slow and accurate whilst those with ADHD showed an impulsive style. En ligne : http://dx.doi.org/10.1007/s10803-010-1113-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=130 The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation / Jeremy HORWOOD in Research in Autism Spectrum Disorders, 86 (August 2021)
[article]
Titre : The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation Type de document : Texte imprimé et/ou numérique Auteurs : Jeremy HORWOOD, Auteur ; Kate COOPER, Auteur ; Hannah HARVEY, Auteur ; Lauren DAVIES, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : 101802 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders Adults Qualitative research Depression Cognitive behaviour therapy Index. décimale : PER Périodiques Résumé : Background High rates of depression are frequently reported in autistic adults. There have been no randomised trials investigating low-intensity psychological interventions for mild-moderate depression adapted for autistic adults. Method This qualitative evaluation investigated the acceptability of the ADEPT pilot randomised controlled trial (RCT) design and guided self-help intervention. Participants (autistic adults with a diagnosis of depression (PHQ-9 score ? 10)) were randomised to Guided Self-Help (GSH): low intensity psychological intervention based on Behavioural Activation adapted for autistic adults, or Treatment as Usual (TAU). 21 trial participants (14 GSH and 7 TAU), and 5 low intensity psychological therapists or ‘coaches’ were interviewed, and transcripts analysed thematically. Results All participants and coaches welcomed an intervention for depression adapted for autistic adults due to current lack of provision in mainstream services. Interviews highlighted participants' preference for GSH over TAU. Dissatisfaction with prior experience of TAU was identified as a potential driver for differential attrition from the TAU arm. Participants who received GSH appreciated the coaches having a good understanding of autistic adults and were positive towards the aim and structure of the GSH intervention. Suggested improvements include more regularly checking progress with therapy goals. Conclusions A full scale RCT to evaluate the effectiveness of this intervention is now warranted. Future trial study design needs to address potential for differential rate of participant recruitment and attrition between the treatment and comparison groups due to negative prior experience of TAU. En ligne : https://doi.org/10.1016/j.rasd.2021.101802 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458
in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101802[article] The experience of autistic adults accessing adapted cognitive behaviour therapy: ADEPT (Autism Depression Trial) qualitative evaluation [Texte imprimé et/ou numérique] / Jeremy HORWOOD, Auteur ; Kate COOPER, Auteur ; Hannah HARVEY, Auteur ; Lauren DAVIES, Auteur ; Ailsa RUSSELL, Auteur . - 101802.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101802
Mots-clés : Autism spectrum disorders Adults Qualitative research Depression Cognitive behaviour therapy Index. décimale : PER Périodiques Résumé : Background High rates of depression are frequently reported in autistic adults. There have been no randomised trials investigating low-intensity psychological interventions for mild-moderate depression adapted for autistic adults. Method This qualitative evaluation investigated the acceptability of the ADEPT pilot randomised controlled trial (RCT) design and guided self-help intervention. Participants (autistic adults with a diagnosis of depression (PHQ-9 score ? 10)) were randomised to Guided Self-Help (GSH): low intensity psychological intervention based on Behavioural Activation adapted for autistic adults, or Treatment as Usual (TAU). 21 trial participants (14 GSH and 7 TAU), and 5 low intensity psychological therapists or ‘coaches’ were interviewed, and transcripts analysed thematically. Results All participants and coaches welcomed an intervention for depression adapted for autistic adults due to current lack of provision in mainstream services. Interviews highlighted participants' preference for GSH over TAU. Dissatisfaction with prior experience of TAU was identified as a potential driver for differential attrition from the TAU arm. Participants who received GSH appreciated the coaches having a good understanding of autistic adults and were positive towards the aim and structure of the GSH intervention. Suggested improvements include more regularly checking progress with therapy goals. Conclusions A full scale RCT to evaluate the effectiveness of this intervention is now warranted. Future trial study design needs to address potential for differential rate of participant recruitment and attrition between the treatment and comparison groups due to negative prior experience of TAU. En ligne : https://doi.org/10.1016/j.rasd.2021.101802 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 The feasibility of low-intensity psychological therapy for depression co-occurring with autism in adults: The Autism Depression Trial (ADEPT) - a pilot randomised controlled trial / Ailsa RUSSELL in Autism, 24-6 (August 2020)
[article]
Titre : The feasibility of low-intensity psychological therapy for depression co-occurring with autism in adults: The Autism Depression Trial (ADEPT) - a pilot randomised controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Ailsa RUSSELL, Auteur ; Daisy M GAUNT, Auteur ; Kate COOPER, Auteur ; Stephen BARTON, Auteur ; Jeremy HORWOOD, Auteur ; David KESSLER, Auteur ; Chris METCALFE, Auteur ; Ian ENSUM, Auteur ; Barry INGHAM, Auteur ; Jeremy R. PARR, Auteur ; Dheeraj RAI, Auteur ; Nicola WILES, Auteur Article en page(s) : p.1360-1372 Langues : Anglais (eng) Mots-clés : adults autism cognitive behaviour therapy depression Index. décimale : PER Périodiques Résumé : Low-intensity cognitive behaviour therapy including behavioural activation is an evidence-based treatment for depression, a condition frequently co-occurring with autism. The feasibility of adapting low-intensity cognitive behaviour therapy for depression to meet the needs of autistic adults via a randomised controlled trial was investigated. The adapted intervention (guided self-help) comprised materials for nine individual sessions with a low-intensity psychological therapist. Autistic adults (n?=?70) with depression (Patient Health Questionnaire-9 score ?10) recruited from National Health Service adult autism services and research cohorts were randomly allocated to guided self-help or treatment as usual. Outcomes at 10-, 16- and 24-weeks post-randomisation were blind to treatment group. Rates of retention in the study differed by treatment group with more participants attending follow-up in the guided self-help group than treatment as usual. The adapted intervention was well-received, 86% (n?=?30/35) of participants attended the pre-defined 'dose' of five sessions of treatment and 71% (25/35) attended all treatment sessions. The findings of this pilot randomised controlled trial indicate that low-intensity cognitive behaviour therapy informed by behavioural activation can be successfully adapted to meet the needs of autistic people. Evaluation of the effectiveness of this intervention in a full scale randomised controlled trial is now warranted. En ligne : http://dx.doi.org/10.1177/1362361319889272 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Autism > 24-6 (August 2020) . - p.1360-1372[article] The feasibility of low-intensity psychological therapy for depression co-occurring with autism in adults: The Autism Depression Trial (ADEPT) - a pilot randomised controlled trial [Texte imprimé et/ou numérique] / Ailsa RUSSELL, Auteur ; Daisy M GAUNT, Auteur ; Kate COOPER, Auteur ; Stephen BARTON, Auteur ; Jeremy HORWOOD, Auteur ; David KESSLER, Auteur ; Chris METCALFE, Auteur ; Ian ENSUM, Auteur ; Barry INGHAM, Auteur ; Jeremy R. PARR, Auteur ; Dheeraj RAI, Auteur ; Nicola WILES, Auteur . - p.1360-1372.
Langues : Anglais (eng)
in Autism > 24-6 (August 2020) . - p.1360-1372
Mots-clés : adults autism cognitive behaviour therapy depression Index. décimale : PER Périodiques Résumé : Low-intensity cognitive behaviour therapy including behavioural activation is an evidence-based treatment for depression, a condition frequently co-occurring with autism. The feasibility of adapting low-intensity cognitive behaviour therapy for depression to meet the needs of autistic adults via a randomised controlled trial was investigated. The adapted intervention (guided self-help) comprised materials for nine individual sessions with a low-intensity psychological therapist. Autistic adults (n?=?70) with depression (Patient Health Questionnaire-9 score ?10) recruited from National Health Service adult autism services and research cohorts were randomly allocated to guided self-help or treatment as usual. Outcomes at 10-, 16- and 24-weeks post-randomisation were blind to treatment group. Rates of retention in the study differed by treatment group with more participants attending follow-up in the guided self-help group than treatment as usual. The adapted intervention was well-received, 86% (n?=?30/35) of participants attended the pre-defined 'dose' of five sessions of treatment and 71% (25/35) attended all treatment sessions. The findings of this pilot randomised controlled trial indicate that low-intensity cognitive behaviour therapy informed by behavioural activation can be successfully adapted to meet the needs of autistic people. Evaluation of the effectiveness of this intervention in a full scale randomised controlled trial is now warranted. En ligne : http://dx.doi.org/10.1177/1362361319889272 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis / Kate COOPER in Autism, 26-4 (May 2022)
[article]
Titre : The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis Type de document : Texte imprimé et/ou numérique Auteurs : Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : p.963-974 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Female Gender Dysphoria/psychology Gender Identity Humans Infant, Newborn Male Transgender Persons/psychology autism spectrum disorders gender diversity gender dysphoria transgender healthcare transgender identities conflicts of interest with respect to the research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people are more likely to be transgender, which means having a gender identity different to one's sex assigned at birth. Some transgender people experience distress about their gender and sex assigned at birth not matching which is called gender dysphoria. Research has focused on finding out why autistic people are more likely to have gender dysphoria, and less on what the experience of gender dysphoria is like for autistic people. We interviewed 21 autistic adults about their experience of incongruence between their gender identity and sex assigned at birth, and any associated distress. We carefully read the transcripts of the interviews, focusing on how participants understood their experiences. We found a range of themes from the interviews. Participants were distressed because their bodies did not match their gender identities. Participants told us they had to work hard to understand themselves and who they were, and to manage having multiple different needs such as mental health needs. It was upsetting for participants to experience discrimination because of being autistic and/or transgender. Some participants said it was more difficult to get transgender healthcare as an autistic person. Some participants thought being autistic had helped them understand their gender identity more than non-autistic people. Other participants found it was challenging to be both autistic and transgender. For example, most participants wanted to change their bodies to match their gender identity, but some participants were nervous about making changes to themselves and their routine due to being autistic. We conclude that autism can in some ways be helpful and other ways contribute to challenges for transgender autistic people. En ligne : https://dx.doi.org/10.1177/13623613211039113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473
in Autism > 26-4 (May 2022) . - p.963-974[article] The lived experience of gender dysphoria in autistic adults: An interpretative phenomenological analysis [Texte imprimé et/ou numérique] / Kate COOPER, Auteur ; William MANDY, Auteur ; Catherine BUTLER, Auteur ; Ailsa RUSSELL, Auteur . - p.963-974.
Langues : Anglais (eng)
in Autism > 26-4 (May 2022) . - p.963-974
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Female Gender Dysphoria/psychology Gender Identity Humans Infant, Newborn Male Transgender Persons/psychology autism spectrum disorders gender diversity gender dysphoria transgender healthcare transgender identities conflicts of interest with respect to the research, authorship and/or publication of this article. Index. décimale : PER Périodiques Résumé : Autistic people are more likely to be transgender, which means having a gender identity different to one's sex assigned at birth. Some transgender people experience distress about their gender and sex assigned at birth not matching which is called gender dysphoria. Research has focused on finding out why autistic people are more likely to have gender dysphoria, and less on what the experience of gender dysphoria is like for autistic people. We interviewed 21 autistic adults about their experience of incongruence between their gender identity and sex assigned at birth, and any associated distress. We carefully read the transcripts of the interviews, focusing on how participants understood their experiences. We found a range of themes from the interviews. Participants were distressed because their bodies did not match their gender identities. Participants told us they had to work hard to understand themselves and who they were, and to manage having multiple different needs such as mental health needs. It was upsetting for participants to experience discrimination because of being autistic and/or transgender. Some participants said it was more difficult to get transgender healthcare as an autistic person. Some participants thought being autistic had helped them understand their gender identity more than non-autistic people. Other participants found it was challenging to be both autistic and transgender. For example, most participants wanted to change their bodies to match their gender identity, but some participants were nervous about making changes to themselves and their routine due to being autistic. We conclude that autism can in some ways be helpful and other ways contribute to challenges for transgender autistic people. En ligne : https://dx.doi.org/10.1177/13623613211039113 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 Understanding the relationship between social camouflaging in autism and safety behaviours in social anxiety in autistic and non-autistic adolescents / Eleanor LEIGH ; Tony CHARMAN ; Ailsa RUSSELL ; Matthew J. HOLLOCKS in Journal of Child Psychology and Psychiatry, 65-3 (March 2023)
PermalinkUnderstanding the role of self-determination in shaping university experiences for autistic and typically developing students in the United Kingdom / Jiedi LEI in Autism, 25-5 (July 2021)
PermalinkUnderstanding the role of self-determination in shaping university experiences for autistic and typically developing students in the United Kingdom / Jiedi LEI in Autism, 26-5 (July 2022)
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