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Faire une suggestionFactors associated with age at autism diagnosis in a community sample of Australian adults / Ying HUANG in Autism Research, 14-12 (December 2021)
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Titre : Factors associated with age at autism diagnosis in a community sample of Australian adults Type de document : texte imprimé Auteurs : Ying HUANG, Auteur ; Samuel R.C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Lauren P. LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.2677-2687 Langues : Anglais (eng) Mots-clés : Adult Aged Australia/epidemiology Autism Spectrum Disorder Autistic Disorder/diagnosis/epidemiology Child Cross-Sectional Studies Female Humans Longitudinal Studies adults aging/ASD in adults diagnosis gender/female ASD Index. décimale : PER Périodiques Résumé : Autism diagnosis in adulthood has become increasingly common due to a range of factors including changes in awareness, diagnostic criteria, and professional practices. Past research identified a range of demographic and autism-related factors associated with autism diagnosis age in children. However, it is unclear whether these apply to autistic adults. This study aimed to examine predictors of autism diagnosis age in adults while controlling for current age and autistic traits. We used a cross-sectional sample of 657 adults aged 15-80 from three self and carer-report studies: the Australian Longitudinal Study of Autism in Adulthood (ALSAA), Study of Australian School-Leavers with Autism (SASLA) and Pathways, Predictors and Impact of Receiving an Autism Spectrum Diagnosis in Adulthood (Pathways). Using hierarchical multiplicative heteroscedastic regression, we found that older current age and higher self-reported autistic traits predicted older diagnosis age, and that female gender, lack of intellectual disability, language other than English, family history of autism, lifetime depression, and no obsessive-compulsive disorder predicted older diagnosis age beyond current age and autistic traits. The paradoxical relationship between high autistic traits and older diagnosis age requires further investigation. Based on these findings, we recommended strategies to improve autism recognition in women and people from non-English-speaking backgrounds. Future studies could extend the findings by examining the effects of childhood and adulthood socioeconomic status on adult diagnosis age. LAY SUMMARY: We studied the relationship between age at autism diagnosis and other characteristics in adults. We found that both older current age and higher autistic traits, female gender, language other than English, family history of autism, and history of depression were related to older age at diagnosis, while intellectual disability and history of obsessive-compulsive disorder were related to younger age at diagnosis. Our findings suggest more work is needed to help recognize autism in women and people from non-English-speaking backgrounds. En ligne : http://dx.doi.org/10.1002/aur.2610 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 14-12 (December 2021) . - p.2677-2687[article] Factors associated with age at autism diagnosis in a community sample of Australian adults [texte imprimé] / Ying HUANG, Auteur ; Samuel R.C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Lauren P. LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur . - p.2677-2687.
Langues : Anglais (eng)
in Autism Research > 14-12 (December 2021) . - p.2677-2687
Mots-clés : Adult Aged Australia/epidemiology Autism Spectrum Disorder Autistic Disorder/diagnosis/epidemiology Child Cross-Sectional Studies Female Humans Longitudinal Studies adults aging/ASD in adults diagnosis gender/female ASD Index. décimale : PER Périodiques Résumé : Autism diagnosis in adulthood has become increasingly common due to a range of factors including changes in awareness, diagnostic criteria, and professional practices. Past research identified a range of demographic and autism-related factors associated with autism diagnosis age in children. However, it is unclear whether these apply to autistic adults. This study aimed to examine predictors of autism diagnosis age in adults while controlling for current age and autistic traits. We used a cross-sectional sample of 657 adults aged 15-80 from three self and carer-report studies: the Australian Longitudinal Study of Autism in Adulthood (ALSAA), Study of Australian School-Leavers with Autism (SASLA) and Pathways, Predictors and Impact of Receiving an Autism Spectrum Diagnosis in Adulthood (Pathways). Using hierarchical multiplicative heteroscedastic regression, we found that older current age and higher self-reported autistic traits predicted older diagnosis age, and that female gender, lack of intellectual disability, language other than English, family history of autism, lifetime depression, and no obsessive-compulsive disorder predicted older diagnosis age beyond current age and autistic traits. The paradoxical relationship between high autistic traits and older diagnosis age requires further investigation. Based on these findings, we recommended strategies to improve autism recognition in women and people from non-English-speaking backgrounds. Future studies could extend the findings by examining the effects of childhood and adulthood socioeconomic status on adult diagnosis age. LAY SUMMARY: We studied the relationship between age at autism diagnosis and other characteristics in adults. We found that both older current age and higher autistic traits, female gender, language other than English, family history of autism, and history of depression were related to older age at diagnosis, while intellectual disability and history of obsessive-compulsive disorder were related to younger age at diagnosis. Our findings suggest more work is needed to help recognize autism in women and people from non-English-speaking backgrounds. En ligne : http://dx.doi.org/10.1002/aur.2610 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Autistic adults have poorer quality healthcare and worse health based on self-report data / Elizabeth WEIR in Molecular Autism, 13 (2022)
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Titre : Autistic adults have poorer quality healthcare and worse health based on self-report data Type de document : texte imprimé Auteurs : Elizabeth WEIR, Auteur ; Carrie ALLISON, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : 23 p. Langues : Anglais (eng) Mots-clés : Adult Autistic Disorder/diagnosis/epidemiology Cross-Sectional Studies Delivery of Health Care Female Health Status Disparities Humans Infant, Newborn Self Report Index. décimale : PER Périodiques Résumé : BACKGROUND: Recent research suggests that autistic individuals have shorter lifespans and experience worse health (greater health burden) than non-autistic individuals. Small, qualitative studies suggest that autistic adults also experience poor self-reported healthcare quality. METHODS: An anonymized, cross-sectional, self-report questionnaire was administered to n=4158 individuals. The study assessed prevalence of chronic health conditions, healthcare quality, differences in overall health inequality score, and effects of the coronavirus pandemic on healthcare quality. We used Fisher's exact tests, binomial logistic regression, and predictive machine learning tools, as appropriate. RESULTS: The final sample included n=2649 participants (n=1285 autistic) aged 16-96 years. Autistic adults reported lower quality healthcare than non-autistic adults across 50/51 items, including poorer access to healthcare and poorer communication, alongside increased anxiety, sensory sensitivity, system-level problems, shutdowns, and meltdowns. Differences between groups were stark: aggregated health inequality scores predicted autism diagnosis, even after stratifying by sex. Autistic adults were also more likely to have chronic health conditions than non-autistic adults. There were no significant differences in healthcare quality for autistic adults before and during the pandemic, although they received relatively poorer quality healthcare than non-autistic adults across both periods. LIMITATIONS: The study's sampling methods are not likely to capture the perspectives of all autistic individuals, especially those with intellectual disability. Both the autistic and control samples are biased towards UK residents, white individuals, those assigned female at birth, and those who completed an undergraduate degree or higher education. As such, these results may limit their generalizability to other groups. Finally, these results relate to self-reported differences in healthcare quality between autistic and non-autistic adults. The observed group differences may in part reflect differences in perception and communication rather than differences in actual healthcare quality. CONCLUSIONS: Autistic adults are more likely to have chronic health conditions alongside self-reported lower quality healthcare than others. Health inequalities between these groups are widespread and dramatic; unfortunately, they existed before and have persisted after the onset of the coronavirus pandemic. En ligne : http://dx.doi.org/10.1186/s13229-022-00501-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491
in Molecular Autism > 13 (2022) . - 23 p.[article] Autistic adults have poorer quality healthcare and worse health based on self-report data [texte imprimé] / Elizabeth WEIR, Auteur ; Carrie ALLISON, Auteur ; Simon BARON-COHEN, Auteur . - 23 p.
Langues : Anglais (eng)
in Molecular Autism > 13 (2022) . - 23 p.
Mots-clés : Adult Autistic Disorder/diagnosis/epidemiology Cross-Sectional Studies Delivery of Health Care Female Health Status Disparities Humans Infant, Newborn Self Report Index. décimale : PER Périodiques Résumé : BACKGROUND: Recent research suggests that autistic individuals have shorter lifespans and experience worse health (greater health burden) than non-autistic individuals. Small, qualitative studies suggest that autistic adults also experience poor self-reported healthcare quality. METHODS: An anonymized, cross-sectional, self-report questionnaire was administered to n=4158 individuals. The study assessed prevalence of chronic health conditions, healthcare quality, differences in overall health inequality score, and effects of the coronavirus pandemic on healthcare quality. We used Fisher's exact tests, binomial logistic regression, and predictive machine learning tools, as appropriate. RESULTS: The final sample included n=2649 participants (n=1285 autistic) aged 16-96 years. Autistic adults reported lower quality healthcare than non-autistic adults across 50/51 items, including poorer access to healthcare and poorer communication, alongside increased anxiety, sensory sensitivity, system-level problems, shutdowns, and meltdowns. Differences between groups were stark: aggregated health inequality scores predicted autism diagnosis, even after stratifying by sex. Autistic adults were also more likely to have chronic health conditions than non-autistic adults. There were no significant differences in healthcare quality for autistic adults before and during the pandemic, although they received relatively poorer quality healthcare than non-autistic adults across both periods. LIMITATIONS: The study's sampling methods are not likely to capture the perspectives of all autistic individuals, especially those with intellectual disability. Both the autistic and control samples are biased towards UK residents, white individuals, those assigned female at birth, and those who completed an undergraduate degree or higher education. As such, these results may limit their generalizability to other groups. Finally, these results relate to self-reported differences in healthcare quality between autistic and non-autistic adults. The observed group differences may in part reflect differences in perception and communication rather than differences in actual healthcare quality. CONCLUSIONS: Autistic adults are more likely to have chronic health conditions alongside self-reported lower quality healthcare than others. Health inequalities between these groups are widespread and dramatic; unfortunately, they existed before and have persisted after the onset of the coronavirus pandemic. En ligne : http://dx.doi.org/10.1186/s13229-022-00501-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 Less Illusion of a Just World in People with Formally Diagnosed Autism and Higher Autistic Traits / Alex BERTRAMS in Journal of Autism and Developmental Disorders, 51-10 (October 2021)
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Titre : Less Illusion of a Just World in People with Formally Diagnosed Autism and Higher Autistic Traits Type de document : texte imprimé Auteurs : Alex BERTRAMS, Auteur Article en page(s) : p.3733-3743 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis/epidemiology Cognition Humans Illusions Male Autism Autistic traits Belief in a just world Locus of control Self-deception Index. décimale : PER Périodiques Résumé : People differ in how strongly they believe that, in general, one gets what (s)he deserves (i.e., individual differences in the general belief in a just world). In this study (N = 588; n = 60 with a formal autism diagnosis), whether or not autistic people and those with high autistic traits have a relatively low general belief in a just world is examined. The results revealed the expected relationship between autism/higher autistic traits and a lower general belief in a just world. In a subsample (n = 388), personal belief in a just world, external locus of control, and self-deception mediated this relationship. These findings are discussed in terms of autistic strengths (less biased information processing) and problems (lowered well-being). En ligne : http://dx.doi.org/10.1007/s10803-020-04831-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3733-3743[article] Less Illusion of a Just World in People with Formally Diagnosed Autism and Higher Autistic Traits [texte imprimé] / Alex BERTRAMS, Auteur . - p.3733-3743.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3733-3743
Mots-clés : Autism Spectrum Disorder/diagnosis Autistic Disorder/diagnosis/epidemiology Cognition Humans Illusions Male Autism Autistic traits Belief in a just world Locus of control Self-deception Index. décimale : PER Périodiques Résumé : People differ in how strongly they believe that, in general, one gets what (s)he deserves (i.e., individual differences in the general belief in a just world). In this study (N = 588; n = 60 with a formal autism diagnosis), whether or not autistic people and those with high autistic traits have a relatively low general belief in a just world is examined. The results revealed the expected relationship between autism/higher autistic traits and a lower general belief in a just world. In a subsample (n = 388), personal belief in a just world, external locus of control, and self-deception mediated this relationship. These findings are discussed in terms of autistic strengths (less biased information processing) and problems (lowered well-being). En ligne : http://dx.doi.org/10.1007/s10803-020-04831-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 Pathways to autism diagnosis in adulthood / Isabelle DUFOUR in Journal of Neurodevelopmental Disorders, 17 (2025)
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Titre : Pathways to autism diagnosis in adulthood Type de document : texte imprimé Auteurs : Isabelle DUFOUR, Auteur ; Yohann CHIU, Auteur ; Sébastien BRODEUR, Auteur ; Mireille COURTEAU, Auteur ; Josiane COURTEAU, Auteur ; Émilie DUBÉ, Auteur ; Alain LESAGE, Auteur ; Eric FOMBONNE, Auteur ; Mélanie COUTURE, Auteur Langues : Anglais (eng) Mots-clés : Humans Adult Male Female Retrospective Studies Quebec/epidemiology Middle Aged Autistic Disorder/diagnosis/epidemiology Young Adult Adolescent Neurodevelopmental Disorders/epidemiology/diagnosis Attention Deficit Disorder with Hyperactivity/epidemiology Aged Autism spectrum disorder Healthcare use Mental healthcare Neurodevelopmental disorder Psychiatric disorder State sequence analysis by the Research Ethics Board Committee of the Université de Sherbrooke and by the Commission d'accès à l'information of Quebec. Competing interests: The authors declare no competing interests. Index. décimale : PER Périodiques Résumé : BACKGROUND: This study explored Trajectories of Diagnoses (TDs) preceding a first diagnosis of autism in adulthood. METHODS: This retrospective cohort study used health administrative data from Quebec, Canada, and included all adults with a first recorded diagnosis of autism between 2012 and 2017. A TDs was defined as a succession of medical records of psychiatric and/or neurodevelopmental conditions over time. These TDs were retrospectively analyzed from 2002 to 2017, using a state sequence analysis of diagnoses, in order: Autism, Intellectual or developmental disabilities (IDDs), Schizophrenia spectrum disorder (SSD), Bipolar Disorder (BD), Depressive Disorder (DD), Anxiety Disorder (AD), Attention-deficit/hyperactivity disorder (ADHD), and Other psychiatric and/or neurodevelopmental conditions. RESULTS: The cohort included 2799 adults with a first recorded diagnosis of autism between 2012 and 2017. Several psychiatric and/or neurodevelopmental conditions were recorded since 2002, including AD (77.5%), DD (58.0%), SSD (49.4%), BD (48.3%), and IDDs (33.2%). Results revealed 5 distinct types of TDs. Types 1 (63.8%), 2 (17.6%) and 3 (6%) represented individuals in younger age groups with similar characteristics but with very different sequences of diagnoses, characterized by mixed diagnoses in type 1, SSD and AD in Type 2, and IDDs, DD, AD, and ADHD in type 3. Types 4 and 5 (9.0% and 3.6%), representing middle-aged/older groups, displayed distinctive TDs associated with high healthcare use, almost entirely associated with SSD (Type 4) and BD (Type 5). CONCLUSION: This study proposes a complementary examination of the multiple pathways to diagnosis experienced by adults, highlighting the need to address differential diagnosis and co-occurring psychiatric and neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1186/s11689-025-09627-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=576
in Journal of Neurodevelopmental Disorders > 17 (2025)[article] Pathways to autism diagnosis in adulthood [texte imprimé] / Isabelle DUFOUR, Auteur ; Yohann CHIU, Auteur ; Sébastien BRODEUR, Auteur ; Mireille COURTEAU, Auteur ; Josiane COURTEAU, Auteur ; Émilie DUBÉ, Auteur ; Alain LESAGE, Auteur ; Eric FOMBONNE, Auteur ; Mélanie COUTURE, Auteur.
Langues : Anglais (eng)
in Journal of Neurodevelopmental Disorders > 17 (2025)
Mots-clés : Humans Adult Male Female Retrospective Studies Quebec/epidemiology Middle Aged Autistic Disorder/diagnosis/epidemiology Young Adult Adolescent Neurodevelopmental Disorders/epidemiology/diagnosis Attention Deficit Disorder with Hyperactivity/epidemiology Aged Autism spectrum disorder Healthcare use Mental healthcare Neurodevelopmental disorder Psychiatric disorder State sequence analysis by the Research Ethics Board Committee of the Université de Sherbrooke and by the Commission d'accès à l'information of Quebec. Competing interests: The authors declare no competing interests. Index. décimale : PER Périodiques Résumé : BACKGROUND: This study explored Trajectories of Diagnoses (TDs) preceding a first diagnosis of autism in adulthood. METHODS: This retrospective cohort study used health administrative data from Quebec, Canada, and included all adults with a first recorded diagnosis of autism between 2012 and 2017. A TDs was defined as a succession of medical records of psychiatric and/or neurodevelopmental conditions over time. These TDs were retrospectively analyzed from 2002 to 2017, using a state sequence analysis of diagnoses, in order: Autism, Intellectual or developmental disabilities (IDDs), Schizophrenia spectrum disorder (SSD), Bipolar Disorder (BD), Depressive Disorder (DD), Anxiety Disorder (AD), Attention-deficit/hyperactivity disorder (ADHD), and Other psychiatric and/or neurodevelopmental conditions. RESULTS: The cohort included 2799 adults with a first recorded diagnosis of autism between 2012 and 2017. Several psychiatric and/or neurodevelopmental conditions were recorded since 2002, including AD (77.5%), DD (58.0%), SSD (49.4%), BD (48.3%), and IDDs (33.2%). Results revealed 5 distinct types of TDs. Types 1 (63.8%), 2 (17.6%) and 3 (6%) represented individuals in younger age groups with similar characteristics but with very different sequences of diagnoses, characterized by mixed diagnoses in type 1, SSD and AD in Type 2, and IDDs, DD, AD, and ADHD in type 3. Types 4 and 5 (9.0% and 3.6%), representing middle-aged/older groups, displayed distinctive TDs associated with high healthcare use, almost entirely associated with SSD (Type 4) and BD (Type 5). CONCLUSION: This study proposes a complementary examination of the multiple pathways to diagnosis experienced by adults, highlighting the need to address differential diagnosis and co-occurring psychiatric and neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1186/s11689-025-09627-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=576 Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study / Nirvana PISTOLJEVIC in Journal of Autism and Developmental Disorders, 51-12 (December 2021)
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Titre : Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study Type de document : texte imprimé Auteurs : Nirvana PISTOLJEVIC, Auteur ; Eldin DZANKO, Auteur ; M. GHAZIUDDIN, Auteur Article en page(s) : p.4447-4455 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder/diagnosis/epidemiology Bosnia and Herzegovina/epidemiology Child Child, Preschool Early Diagnosis Humans Infant Parents Autism spectrum disorder Bosnia Early autism diagnosis Eastern Europe Herzegovina Low-and middle-income countries Index. décimale : PER Périodiques Résumé : The aim of this preliminary study was to identify the practice patterns and potential barriers to diagnosing autism in Bosnia & Herzegovina. 126 children aged 23 to 94 months with developmental concerns referred to treatment centers participated in the study. Although parents had reported developmental problems in their children usually around the age of 17 months, it took them 812 visits to professionals (> 6 visits per child) over several months (mean 16.8, range 2-52 months) to get diagnosed with any developmental disorder. Only 8 children (6.3%) received a diagnosis of autism. However, when we re-examined 110 of the 126 children, 90 of them (71%) were identified with autism. Implications of these findings are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-04875-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4447-4455[article] Practice Patterns and Potential Barriers to Early Diagnosis of Autism in Bosnia and Herzegovina: A Preliminary Study [texte imprimé] / Nirvana PISTOLJEVIC, Auteur ; Eldin DZANKO, Auteur ; M. GHAZIUDDIN, Auteur . - p.4447-4455.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4447-4455
Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology Autistic Disorder/diagnosis/epidemiology Bosnia and Herzegovina/epidemiology Child Child, Preschool Early Diagnosis Humans Infant Parents Autism spectrum disorder Bosnia Early autism diagnosis Eastern Europe Herzegovina Low-and middle-income countries Index. décimale : PER Périodiques Résumé : The aim of this preliminary study was to identify the practice patterns and potential barriers to diagnosing autism in Bosnia & Herzegovina. 126 children aged 23 to 94 months with developmental concerns referred to treatment centers participated in the study. Although parents had reported developmental problems in their children usually around the age of 17 months, it took them 812 visits to professionals (> 6 visits per child) over several months (mean 16.8, range 2-52 months) to get diagnosed with any developmental disorder. Only 8 children (6.3%) received a diagnosis of autism. However, when we re-examined 110 of the 126 children, 90 of them (71%) were identified with autism. Implications of these findings are discussed. En ligne : http://dx.doi.org/10.1007/s10803-021-04875-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 Identifying autism symptom severity trajectories across childhood / Einat WAIZBARD-BARTOV in Autism Research, 15-4 (April 2022)
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PermalinkA radical change in our autism research strategy is needed: Back to prototypes / Laurent MOTTRON in Autism Research, 14-10 (October 2021)
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PermalinkSelf-reported sex differences in high-functioning adults with autism: a meta-analysis / Rachel L. MOSELEY in Molecular Autism, 9 (2018)
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PermalinkDysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic / Roma A. VASA in Journal of Autism and Developmental Disorders, 52-4 (April 2022)
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PermalinkThe prevalence and profile of autism in Sturge-Weber syndrome / Jenny SLONEEM in Journal of Autism and Developmental Disorders, 52-5 (May 2022)
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