6 recherche sur le mot-clé 'psychoeducation'

Feasibility study of the National Autistic Society EarlyBird parent support programme / M. PALMER in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.147-159 Titre : Feasibility study of the National Autistic Society EarlyBird parent support programme Type de document : Texte imprimé et/ou numérique Auteurs : M. PALMER, Auteur ; Antonia SAN JOSE CACERES, Auteur ; J. TARVER, Auteur ; P. HOWLIN, Auteur ; V. SLONIMS, Auteur ; E. PELLICANO, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.147-159 Langues : Anglais (eng) Mots-clés : EarlyBird  autism  feasibility  intervention  psychoeducation Index. décimale : PER Périodiques Résumé : The EarlyBird programme is a group-based psychoeducation intervention for parents of young children with autism. Although it is widely used in the United Kingdom, the evidence base for the programme is very limited. Using a mixed method, non-randomised research design, we aimed to test (1) the acceptability of the research procedures (recruitment, retention, suitability of measures), (2) the parental acceptability of EarlyBird (attendance, views of the programme, perceived changes) and (3) the facilitator acceptability of EarlyBird (fidelity, views of the programme, perceived changes). Seventeen families with a 2- to 5-year-old autistic child and 10 EarlyBird facilitators took part. Pre- and post-intervention assessment included measures of the child's autism characteristics, cognitive ability, adaptive behaviour, emotional and behavioural problems and parent-reported autism knowledge, parenting competence, stress and wellbeing. Semi-structured interviews were completed at post-intervention with parents and facilitators. For those involved in the study, the research procedures were generally acceptable, retention rates were high and the research protocol was administered as planned. Generally, positive views of the intervention were expressed by parents and facilitators. Although the uncontrolled, within-participant design does not allow us to test for efficacy, change in several outcome measures from pre- to post-intervention was in the expected direction. Difficulties were encountered with recruitment (opt-in to the groups was ~56% and opt-in to the research was 63%), and strategies to enhance recruitment need to be built into any future trial. These findings should be used to inform protocols for pragmatic, controlled trials of EarlyBird and other group-based interventions for parents with young autistic children. En ligne : http://dx.doi.org/10.1177/1362361319851422 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4141 [article] Feasibility study of the National Autistic Society EarlyBird parent support programme [Texte imprimé et/ou numérique] / M. PALMER, Auteur ; Antonia SAN JOSE CACERES, Auteur ; J. TARVER, Auteur ; P. HOWLIN, Auteur ; V. SLONIMS, Auteur ; E. PELLICANO, Auteur ; Tony CHARMAN, Auteur . - p.147-159. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.147-159 Mots-clés : EarlyBird  autism  feasibility  intervention  psychoeducation Index. décimale : PER Périodiques Résumé : The EarlyBird programme is a group-based psychoeducation intervention for parents of young children with autism. Although it is widely used in the United Kingdom, the evidence base for the programme is very limited. Using a mixed method, non-randomised research design, we aimed to test (1) the acceptability of the research procedures (recruitment, retention, suitability of measures), (2) the parental acceptability of EarlyBird (attendance, views of the programme, perceived changes) and (3) the facilitator acceptability of EarlyBird (fidelity, views of the programme, perceived changes). Seventeen families with a 2- to 5-year-old autistic child and 10 EarlyBird facilitators took part. Pre- and post-intervention assessment included measures of the child's autism characteristics, cognitive ability, adaptive behaviour, emotional and behavioural problems and parent-reported autism knowledge, parenting competence, stress and wellbeing. Semi-structured interviews were completed at post-intervention with parents and facilitators. For those involved in the study, the research procedures were generally acceptable, retention rates were high and the research protocol was administered as planned. Generally, positive views of the intervention were expressed by parents and facilitators. Although the uncontrolled, within-participant design does not allow us to test for efficacy, change in several outcome measures from pre- to post-intervention was in the expected direction. Difficulties were encountered with recruitment (opt-in to the groups was ~56% and opt-in to the research was 63%), and strategies to enhance recruitment need to be built into any future trial. These findings should be used to inform protocols for pragmatic, controlled trials of EarlyBird and other group-based interventions for parents with young autistic children. En ligne : http://dx.doi.org/10.1177/1362361319851422 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4141

A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder / Kate GORDON in Journal of Child Psychology and Psychiatry, 56-4 (April 2015)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 56-4 (April 2015) . - p.468-476 Titre : A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Kate GORDON, Auteur ; Marianna MURIN, Auteur ; Ozlem BAYKANER, Auteur ; Laura ROUGHAN, Auteur ; Vaan LIVERMORE-HARDY, Auteur ; David SKUSE, Auteur ; Will MANDY, Auteur Article en page(s) : p.468-476 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  psychoeducation  postdiagnosis  self-awareness  group intervention  randomised control trial Index. décimale : PER Périodiques Résumé : Background Psychoeducation is an essential component of postdiagnostic care for people with ASD (autism spectrum disorder), but there is currently no evidence base for clinical practice. We designed, manualised and evaluated PEGASUS (psychoeducation group for autism spectrum understanding and support), a group psychoeducational programme aiming to enhance the self-awareness of young people with ASD by teaching them about their diagnosis. Methods This single-blind RCT (randomised control trial) involved 48 young people (9–14 years) with high-functioning ASD. Half were randomly assigned to PEGASUS, administered in six weekly group sessions, with the others receiving no additional intervention. ASD-related self-awareness, the primary outcome, was evaluated using the bespoke Autism Knowledge Quiz (AKQ). Secondary outcome measures included the Rosenberg Self-Esteem Scale. All measures were collected during home visits and scored by researchers blind to group assignment. The trial is registered on ClinicalTrials (NCT01187940, http://www.clinicaltrials.gov) and was funded by the Baily Thomas Charitable Trust. Results Bootstrap multiple regression showed ASD knowledge (? = .29, p < .001, 95% CIs [0.13, 0.44]) and ASD self-awareness (? = .42, p = .001, 95% CIs [0.17, 0.67]), measured by number of ASD-related personal strengths and difficulties listed by participants, increased for those who attended PEGASUS (n = 24) compared with controls (n = 24). There was no effect of PEGASUS on self-esteem by self-report (? = .10, p = .404, 95% CIs [?0.14, 0.35]) or parent report (? = .12, p = .324, 95% CIs [?0.12, 0.36]). Conclusions After PEGASUS, participants had more general knowledge about ASD, and showed a greater awareness of their collection of unique strengths and difficulties associated with ASD. Psychoeducation did not lower self-esteem. This RCT provides initial evidence for PEGASUS's efficacy as a psychoeducation programme for people with ASD. En ligne : http://dx.doi.org/10.1111/jcpp.12304 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2601 [article] A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder [Texte imprimé et/ou numérique] / Kate GORDON, Auteur ; Marianna MURIN, Auteur ; Ozlem BAYKANER, Auteur ; Laura ROUGHAN, Auteur ; Vaan LIVERMORE-HARDY, Auteur ; David SKUSE, Auteur ; Will MANDY, Auteur . - p.468-476. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 56-4 (April 2015) . - p.468-476 Mots-clés : Autism spectrum disorder  psychoeducation  postdiagnosis  self-awareness  group intervention  randomised control trial Index. décimale : PER Périodiques Résumé : Background Psychoeducation is an essential component of postdiagnostic care for people with ASD (autism spectrum disorder), but there is currently no evidence base for clinical practice. We designed, manualised and evaluated PEGASUS (psychoeducation group for autism spectrum understanding and support), a group psychoeducational programme aiming to enhance the self-awareness of young people with ASD by teaching them about their diagnosis. Methods This single-blind RCT (randomised control trial) involved 48 young people (9–14 years) with high-functioning ASD. Half were randomly assigned to PEGASUS, administered in six weekly group sessions, with the others receiving no additional intervention. ASD-related self-awareness, the primary outcome, was evaluated using the bespoke Autism Knowledge Quiz (AKQ). Secondary outcome measures included the Rosenberg Self-Esteem Scale. All measures were collected during home visits and scored by researchers blind to group assignment. The trial is registered on ClinicalTrials (NCT01187940, http://www.clinicaltrials.gov) and was funded by the Baily Thomas Charitable Trust. Results Bootstrap multiple regression showed ASD knowledge (? = .29, p < .001, 95% CIs [0.13, 0.44]) and ASD self-awareness (? = .42, p = .001, 95% CIs [0.17, 0.67]), measured by number of ASD-related personal strengths and difficulties listed by participants, increased for those who attended PEGASUS (n = 24) compared with controls (n = 24). There was no effect of PEGASUS on self-esteem by self-report (? = .10, p = .404, 95% CIs [?0.14, 0.35]) or parent report (? = .12, p = .324, 95% CIs [?0.12, 0.36]). Conclusions After PEGASUS, participants had more general knowledge about ASD, and showed a greater awareness of their collection of unique strengths and difficulties associated with ASD. Psychoeducation did not lower self-esteem. This RCT provides initial evidence for PEGASUS's efficacy as a psychoeducation programme for people with ASD. En ligne : http://dx.doi.org/10.1111/jcpp.12304 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2601

A systematic review of the effectiveness and efficacy of clinician-led psychological interventions for parents of children with ASD / Kieron MERRIMAN in Research in Autism Spectrum Disorders, 76 (August 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 76 (August 2020) . - p.101584 Titre : A systematic review of the effectiveness and efficacy of clinician-led psychological interventions for parents of children with ASD Type de document : Texte imprimé et/ou numérique Auteurs : Kieron MERRIMAN, Auteur ; Tom BURKE, Auteur ; Gary O’REILLY, Auteur Article en page(s) : p.101584 Langues : Anglais (eng) Mots-clés : Parent  Mother  Father  ASD  Autism  Intervention  Targeted  Focused  Specific  Systemic  Clinician-led  Psychoeducation  Therapy  Therapeutic Index. décimale : PER Périodiques Résumé : In families with a child with an Autistic Spectrum Disorder (ASD) much is known about the usefulness of parent training interventions focusing on children’s behaviour, social or linguistic development. In contrast clinician led parent targeted interventions focusing on positive parental outcomes such as mental health and psychological well-being are often over-looked. This review systematically considered outcomes in relation to parent-targeted clinician led interventions to support parents’ mental health and well-being. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed. Selected articles focused on parent-targeted interventions with a therapeutic and psychoeducational approach delivered directly to one or both parent carers of a child with ASD. Of the 1756 articles screened eight studies were included with 307 participants. Parent focused interventions based on Mindfulness, Cognitive Behaviour Therapy, Acceptance and Commitment Therapy, and Non-Directive Counselling approaches were identified. Participating in clinician-led group interventions introducing stress management strategies, biofeedback, mindfulness, acceptance, and problem-solving skills had a positive effect on parents’ mental health and well-being. Participating in groups with a parent focused therapy and psychoeducation component improves parents’ well-being and quality of life and suggests a fruitful avenue for future clinical practice and research that may ultimately broadly benefit all family members. En ligne : https://doi.org/10.1016/j.rasd.2020.101584 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4292 [article] A systematic review of the effectiveness and efficacy of clinician-led psychological interventions for parents of children with ASD [Texte imprimé et/ou numérique] / Kieron MERRIMAN, Auteur ; Tom BURKE, Auteur ; Gary O’REILLY, Auteur . - p.101584. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 76 (August 2020) . - p.101584 Mots-clés : Parent  Mother  Father  ASD  Autism  Intervention  Targeted  Focused  Specific  Systemic  Clinician-led  Psychoeducation  Therapy  Therapeutic Index. décimale : PER Périodiques Résumé : In families with a child with an Autistic Spectrum Disorder (ASD) much is known about the usefulness of parent training interventions focusing on children’s behaviour, social or linguistic development. In contrast clinician led parent targeted interventions focusing on positive parental outcomes such as mental health and psychological well-being are often over-looked. This review systematically considered outcomes in relation to parent-targeted clinician led interventions to support parents’ mental health and well-being. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines were followed. Selected articles focused on parent-targeted interventions with a therapeutic and psychoeducational approach delivered directly to one or both parent carers of a child with ASD. Of the 1756 articles screened eight studies were included with 307 participants. Parent focused interventions based on Mindfulness, Cognitive Behaviour Therapy, Acceptance and Commitment Therapy, and Non-Directive Counselling approaches were identified. Participating in clinician-led group interventions introducing stress management strategies, biofeedback, mindfulness, acceptance, and problem-solving skills had a positive effect on parents’ mental health and well-being. Participating in groups with a parent focused therapy and psychoeducation component improves parents’ well-being and quality of life and suggests a fruitful avenue for future clinical practice and research that may ultimately broadly benefit all family members. En ligne : https://doi.org/10.1016/j.rasd.2020.101584 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4292

Facilitators' perspectives on a psychoeducational program for parents of an autistic child / Candice DECROOCQ in Autism, 24-5 (July 2020)  

Public ISBD [article]  inAutism > 24-5 (July 2020) . - p.1273-1285 Titre : Facilitators' perspectives on a psychoeducational program for parents of an autistic child Type de document : Texte imprimé et/ou numérique Auteurs : Candice DECROOCQ, Auteur ; Thierry SOULAS, Auteur ; Jérôme LICHTLE, Auteur ; Carol SANKEY, Auteur ; Aaron ENGELBERG, Auteur ; Emilie CAPPE, Auteur Article en page(s) : p.1273-1285 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  facilitators’ feedback  implementation  parent support program  psychoeducation Index. décimale : PER Périodiques Résumé : The recent increase of diagnosed cases of autism spectrum disorders has led to a considerable rise in the demands for autism-related services and interventions. Caring for an autistic child can be perceived as an enrichment, which coexists with stress in parents. Parents express the need to access relevant information about their child's difference, and parent support interventions appear to respond effectively to this demand, as they are knowledge-focused and offer indirect support to the child. The aim of this study was to capture the subjective experience of facilitators who implemented a psychoeducational program called Beyond PDD: Parental Skills within My Reach. This program is based on the acknowledged fact that parents of autistic children play a central role in their child's development. Its main goal is to help parents of autistic children under the age of 8 to identify, develop, and update their parenting competences. This program broaches different topics: (1) specific features of an autistic child, (2) post-diagnostic parental adjustment, (3) communication and social relationships, (4) importance of providing the child with a structured environment, and (5) parental emotions and perceptions that impact everyday life. Structured interviews of the facilitators provided insight on institutional support, issues related to the program itself, required and/or recommended professional background, personal experience and competences, and difficulties linked to recruitment and research criteria. Recommendations aiming to enhance program implementation and delivery were then created using facilitators' feedback on these aspects. En ligne : http://dx.doi.org/10.1177/1362361319899766 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4270 [article] Facilitators' perspectives on a psychoeducational program for parents of an autistic child [Texte imprimé et/ou numérique] / Candice DECROOCQ, Auteur ; Thierry SOULAS, Auteur ; Jérôme LICHTLE, Auteur ; Carol SANKEY, Auteur ; Aaron ENGELBERG, Auteur ; Emilie CAPPE, Auteur . - p.1273-1285. Langues : Anglais (eng) in Autism > 24-5 (July 2020) . - p.1273-1285 Mots-clés : autism spectrum disorder  facilitators’ feedback  implementation  parent support program  psychoeducation Index. décimale : PER Périodiques Résumé : The recent increase of diagnosed cases of autism spectrum disorders has led to a considerable rise in the demands for autism-related services and interventions. Caring for an autistic child can be perceived as an enrichment, which coexists with stress in parents. Parents express the need to access relevant information about their child's difference, and parent support interventions appear to respond effectively to this demand, as they are knowledge-focused and offer indirect support to the child. The aim of this study was to capture the subjective experience of facilitators who implemented a psychoeducational program called Beyond PDD: Parental Skills within My Reach. This program is based on the acknowledged fact that parents of autistic children play a central role in their child's development. Its main goal is to help parents of autistic children under the age of 8 to identify, develop, and update their parenting competences. This program broaches different topics: (1) specific features of an autistic child, (2) post-diagnostic parental adjustment, (3) communication and social relationships, (4) importance of providing the child with a structured environment, and (5) parental emotions and perceptions that impact everyday life. Structured interviews of the facilitators provided insight on institutional support, issues related to the program itself, required and/or recommended professional background, personal experience and competences, and difficulties linked to recruitment and research criteria. Recommendations aiming to enhance program implementation and delivery were then created using facilitators' feedback on these aspects. En ligne : http://dx.doi.org/10.1177/1362361319899766 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=4270

Parents’ views of the National Autistic Society’s EarlyBird Plus Programme / Anna L. CUTRESS in Autism, 18-6 (August 2014)  

Public ISBD [article]  inAutism > 18-6 (August 2014) . - p.651-657 Titre : Parents’ views of the National Autistic Society’s EarlyBird Plus Programme Type de document : Texte imprimé et/ou numérique Auteurs : Anna L. CUTRESS, Auteur ; Steven J. MUNCER, Auteur Article en page(s) : p.651-657 Langues : Anglais (eng) Mots-clés : autism  EarlyBird Plus  parent training programme  post-diagnostic support  psychoeducation Index. décimale : PER Périodiques Résumé : Parent training interventions are recommended for parents soon after their child’s autism spectrum condition diagnosis with the aim of improving parents’ psychological well-being and coping, as well as the child’s behaviour. This report explores parents’ views of the EarlyBird Plus Programme through data collected routinely in the post-programme questionnaire. Participants’ reported increased understanding of autism and improvements in their communication with their child and their ability to manage their child’s behaviour. Parents appeared to value the opportunity to meet with other parents, and the programme seemed acceptable to the majority of parents who attended. En ligne : http://dx.doi.org/10.1177/1362361313495718 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2370 [article] Parents’ views of the National Autistic Society’s EarlyBird Plus Programme [Texte imprimé et/ou numérique] / Anna L. CUTRESS, Auteur ; Steven J. MUNCER, Auteur . - p.651-657. Langues : Anglais (eng) in Autism > 18-6 (August 2014) . - p.651-657 Mots-clés : autism  EarlyBird Plus  parent training programme  post-diagnostic support  psychoeducation Index. décimale : PER Périodiques Résumé : Parent training interventions are recommended for parents soon after their child’s autism spectrum condition diagnosis with the aim of improving parents’ psychological well-being and coping, as well as the child’s behaviour. This report explores parents’ views of the EarlyBird Plus Programme through data collected routinely in the post-programme questionnaire. Participants’ reported increased understanding of autism and improvements in their communication with their child and their ability to manage their child’s behaviour. Parents appeared to value the opportunity to meet with other parents, and the programme seemed acceptable to the majority of parents who attended. En ligne : http://dx.doi.org/10.1177/1362361313495718 Permalink : http://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=2370

Preliminary Results of the Effects of a Psychoeducational Program on Stress and Quality of Life Among French Parents of an Child With Autism / Emilie CAPPE in Focus on Autism and Other Developmental Disabilities, 36-3 (September 2021)  

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