An intervention for fears and phobias in young people with autism spectrum disorders using flat screen computer-delivered virtual reality and cognitive behaviour therapy / Morag MASKEY in Research in Autism Spectrum Disorders, 59 (March 2019)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 59 (March 2019) . - p.58-67 Titre : An intervention for fears and phobias in young people with autism spectrum disorders using flat screen computer-delivered virtual reality and cognitive behaviour therapy Type de document : texte imprimé Auteurs : Morag MASKEY, Auteur ; Helen MCCONACHIE, Auteur ; Jacqui RODGERS, Auteur ; Victoria GRAHAME, Auteur ; Jessica MAXWELL, Auteur ; Laura TAVERNOR, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.58-67 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Virtual reality  Cognitive behavioural therapy  Anxiety  Phobia  Fear Index. décimale : PER Périodiques Résumé : Background Specific fears and phobias are common in young people with autism spectrum disorder (ASD) and can impact greatly on daily functioning. Traditional treatment methods, such as real-life or imaginal exposure, may not be suitable for this population without adaptation and alternative interventions are needed. In previous studies, we established that delivering graded exposure through computer generated scenes in a fully immersive virtual reality environment (the Blue Room) is an effective intervention for some young people with ASD and specific fears/phobias. In this study, we explored the same intervention delivered using flat screen, computer-delivered virtual reality graded exposure with cognitive behavioural therapy. Methods Eight young people with ASD received one psychoeducation session followed by four 20 minute sessions of flat screen, computer–delivered virtual reality graded exposure with cognitive behaviour therapy (CBT) sessions with a psychologist. Follow up measures, including Target Behaviour change ratings, were taken at 6 weeks, 6 months and 12 months after intervention. Results Four of the participants were classed as responders to the intervention and were able to function without the fear/phobia impacting their life. These improvements were maintained 12 months post-intervention. One participant was lost to follow-up and three participants were classed as non-responders to the intervention. Conclusions Findings show that flat screen computer-delivered virtual reality with cognitive behaviour therapy can be an effective intervention for specific fears and phobias for some young people with ASD. En ligne : https://doi.org/10.1016/j.rasd.2018.11.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 [article] An intervention for fears and phobias in young people with autism spectrum disorders using flat screen computer-delivered virtual reality and cognitive behaviour therapy [texte imprimé] / Morag MASKEY, Auteur ; Helen MCCONACHIE, Auteur ; Jacqui RODGERS, Auteur ; Victoria GRAHAME, Auteur ; Jessica MAXWELL, Auteur ; Laura TAVERNOR, Auteur ; Jeremy R. PARR, Auteur . - p.58-67. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 59 (March 2019) . - p.58-67 Mots-clés : Autism spectrum disorder  Virtual reality  Cognitive behavioural therapy  Anxiety  Phobia  Fear Index. décimale : PER Périodiques Résumé : Background Specific fears and phobias are common in young people with autism spectrum disorder (ASD) and can impact greatly on daily functioning. Traditional treatment methods, such as real-life or imaginal exposure, may not be suitable for this population without adaptation and alternative interventions are needed. In previous studies, we established that delivering graded exposure through computer generated scenes in a fully immersive virtual reality environment (the Blue Room) is an effective intervention for some young people with ASD and specific fears/phobias. In this study, we explored the same intervention delivered using flat screen, computer-delivered virtual reality graded exposure with cognitive behavioural therapy. Methods Eight young people with ASD received one psychoeducation session followed by four 20 minute sessions of flat screen, computer–delivered virtual reality graded exposure with cognitive behaviour therapy (CBT) sessions with a psychologist. Follow up measures, including Target Behaviour change ratings, were taken at 6 weeks, 6 months and 12 months after intervention. Results Four of the participants were classed as responders to the intervention and were able to function without the fear/phobia impacting their life. These improvements were maintained 12 months post-intervention. One participant was lost to follow-up and three participants were classed as non-responders to the intervention. Conclusions Findings show that flat screen computer-delivered virtual reality with cognitive behaviour therapy can be an effective intervention for specific fears and phobias for some young people with ASD. En ligne : https://doi.org/10.1016/j.rasd.2018.11.005 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379

Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families / Jane GOODWIN in Autism, 26-4 (May 2022)  

Public ISBD [article]  inAutism > 26-4 (May 2022) . - p.827-838 Titre : Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families Type de document : texte imprimé Auteurs : Jane GOODWIN, Auteur ; Priyanka ROB, Auteur ; Mark FREESTON, Auteur ; Deborah GARLAND, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Marie LABUS, Auteur ; Malcolm OSBORNE, Auteur ; Jeremy R. PARR, Auteur ; Catharine WRIGHT, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.827-838 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Caregiver perspectives on the impact of uncertainty on the everyday lives of autistic children and their families [texte imprimé] / Jane GOODWIN, Auteur ; Priyanka ROB, Auteur ; Mark FREESTON, Auteur ; Deborah GARLAND, Auteur ; Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Marie LABUS, Auteur ; Malcolm OSBORNE, Auteur ; Jeremy R. PARR, Auteur ; Catharine WRIGHT, Auteur ; Jacqui RODGERS, Auteur . - p.827-838. Langues : Anglais (eng) in Autism > 26-4 (May 2022) . - p.827-838 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Parents  Quality of Life  Uncertainty  anxiety  intolerance of uncertainty  potential conflicts of interest with respect to the research, authorship and/or  publication of this article: Professor J.R., Dr C.W. and Professor M.F. developed  the Coping with Uncertainty in Everyday Situations (CUES(©)) Programme. Data  presented in this article were collected as part of a CUES(©) feasibility and  acceptability study. Professor M.F. declares receiving royalties for books and  honoraria for training in related areas addressing anxiety in neurotypical  populations. Index. décimale : PER Périodiques Résumé : Anxiety is common in autistic children. Research shows that this may be related to intolerance of uncertainty, which is a tendency to react negatively to uncertain situations. Understanding when, why and how autistic children respond to uncertainty is important in the development of anxiety programmes. We asked 53 (including 3 dyads) parents of autistic children about the types of uncertain situations that cause difficulties for their child and how uncertainty impacts on daily life for them and their families. We found that uncertain situations made autistic children and their families feel sad, worried, frustrated and angry through the themes: child's reactions to uncertainty, trying to reduce uncertainty, the impact of difficulties with uncertainty, the impact of uncertainty on parenting and the impact on parents. There are lots of situations that are anxiety provoking for autistic children because of uncertainty, such as school. Programmes to reduce anxiety and increase autistic children's ability to cope with everyday uncertain situations could improve quality of life for autistic children and their families. En ligne : https://dx.doi.org/10.1177/13623613211033757 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Co-design of an NHS primary care health check for autistic adults / Helen TAYLOR in Autism, 27-4 (May 2023)  

Public ISBD [article]  inAutism > 27-4 (May 2023) . - p.1079-1091 Titre : Co-design of an NHS primary care health check for autistic adults Type de document : texte imprimé Auteurs : Helen TAYLOR, Auteur ; Barry INGHAM, Auteur ; David MASON, Auteur ; Tracy FINCH, Auteur ; Colin WILSON, Auteur ; Clare SCARLETT, Auteur ; Sebastian MOSS, Auteur ; Carole BUCKLEY, Auteur ; Anna URBANOWICZ, Auteur ; Dora M. RAYMAKER, Auteur ; Charlotte SEIBOTH, Auteur ; Rhianna LEES, Auteur ; Deborah GARLAND, Auteur ; Malcolm OSBOURNE, Auteur ; Nicholas LENNOX, Auteur ; Sally-Ann COOPER, Auteur ; Christina NICOLAIDIS, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.1079-1091 Langues : Anglais (eng) Mots-clés : autism,autism spectrum disorders,health check,health services,qualitative research Index. décimale : PER Périodiques Résumé : Autistic people experience more health conditions and earlier mortality. This study investigated views about a primary care health check for autistic adults to inform its design. Fifty-one people participated in consultation groups and interviews, comprising autistic adults (some with co-occurring intellectual disabilities), adults with intellectual disabilities, supporters and health professionals. Participants wanted the health check to cover physical and mental health and social functioning. They emphasised the importance of sharing information about individual needs and associated adjustments before the health check. They highlighted the need to change the way healthcare services communicate with autistic people, such as reducing phone contact and booking appointments online. They wanted individual choice in how the health check was completed, with video call or email offered alongside face-to-face. Participants raised the need for further training of primary care staff on autism, to highlight the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently. Clinicians raised questions about the capacity of mental health and social care services to meet the additional needs potentially identified through the health check. This study represents a key step in the development and co-design of a UK primary care health check for autistic people.Lay abstractAutistic people are on average more likely to experience poor health than people who are not autistic. Health checks have been shown to improve access to effective healthcare. This study investigated people?s views about a primary care health check for autistic adults. We held discussion groups and interviewed autistic adults, adults with intellectual disabilities, supporters and health professionals. People wanted the health check to look at a person s physical and mental health, and how they were doing socially. They thought people should be able to share information about their needs and the reasonable adjustments they would like before the health check. They wanted healthcare services to change the way they communicate with autistic people, such as being able to book appointments online rather than by telephone. They wanted a choice in how the health check was completed, with video call or email offered as well as face-to-face appointments. People thought further training of primary care staff on autism was needed, to increase awareness of the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently to non-autistic people. Clinicians raised questions about whether mental health and social care services could meet the additional needs that might be identified through the health check. We used this information to design an NHS primary care health check for autistic people in collaboration with autistic people, supporters and health professionals. En ligne : https://doi.org/10.1177/13623613221132921 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499 [article] Co-design of an NHS primary care health check for autistic adults [texte imprimé] / Helen TAYLOR, Auteur ; Barry INGHAM, Auteur ; David MASON, Auteur ; Tracy FINCH, Auteur ; Colin WILSON, Auteur ; Clare SCARLETT, Auteur ; Sebastian MOSS, Auteur ; Carole BUCKLEY, Auteur ; Anna URBANOWICZ, Auteur ; Dora M. RAYMAKER, Auteur ; Charlotte SEIBOTH, Auteur ; Rhianna LEES, Auteur ; Deborah GARLAND, Auteur ; Malcolm OSBOURNE, Auteur ; Nicholas LENNOX, Auteur ; Sally-Ann COOPER, Auteur ; Christina NICOLAIDIS, Auteur ; Jeremy R. PARR, Auteur . - p.1079-1091. Langues : Anglais (eng) in Autism > 27-4 (May 2023) . - p.1079-1091 Mots-clés : autism,autism spectrum disorders,health check,health services,qualitative research Index. décimale : PER Périodiques Résumé : Autistic people experience more health conditions and earlier mortality. This study investigated views about a primary care health check for autistic adults to inform its design. Fifty-one people participated in consultation groups and interviews, comprising autistic adults (some with co-occurring intellectual disabilities), adults with intellectual disabilities, supporters and health professionals. Participants wanted the health check to cover physical and mental health and social functioning. They emphasised the importance of sharing information about individual needs and associated adjustments before the health check. They highlighted the need to change the way healthcare services communicate with autistic people, such as reducing phone contact and booking appointments online. They wanted individual choice in how the health check was completed, with video call or email offered alongside face-to-face. Participants raised the need for further training of primary care staff on autism, to highlight the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently. Clinicians raised questions about the capacity of mental health and social care services to meet the additional needs potentially identified through the health check. This study represents a key step in the development and co-design of a UK primary care health check for autistic people.Lay abstractAutistic people are on average more likely to experience poor health than people who are not autistic. Health checks have been shown to improve access to effective healthcare. This study investigated people?s views about a primary care health check for autistic adults. We held discussion groups and interviewed autistic adults, adults with intellectual disabilities, supporters and health professionals. People wanted the health check to look at a person s physical and mental health, and how they were doing socially. They thought people should be able to share information about their needs and the reasonable adjustments they would like before the health check. They wanted healthcare services to change the way they communicate with autistic people, such as being able to book appointments online rather than by telephone. They wanted a choice in how the health check was completed, with video call or email offered as well as face-to-face appointments. People thought further training of primary care staff on autism was needed, to increase awareness of the diversity of experiences of autistic people and ways in which difficulties, such as pain, may present differently to non-autistic people. Clinicians raised questions about whether mental health and social care services could meet the additional needs that might be identified through the health check. We used this information to design an NHS primary care health check for autistic people in collaboration with autistic people, supporters and health professionals. En ligne : https://doi.org/10.1177/13623613221132921 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=499

Commentary: The Broader Autism Phenotype: Implications for Research and Clinical Practice / Jeremy R. PARR

Public ISBD in Autism Spectrum Disorders / David G. AMARAL Titre : Commentary: The Broader Autism Phenotype: Implications for Research and Clinical Practice Type de document : texte imprimé Auteurs : Jeremy R. PARR, Auteur ; Kerstin WITTEMEYER, Auteur ; Ann LE COUTEUR, Auteur Année de publication : 2011 Importance : p.521-524 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=139 in Autism Spectrum Disorders / David G. AMARAL Commentary: The Broader Autism Phenotype: Implications for Research and Clinical Practice [texte imprimé] / Jeremy R. PARR, Auteur ; Kerstin WITTEMEYER, Auteur ; Ann LE COUTEUR, Auteur . - 2011 . - p.521-524. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=139

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Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians / Sarah WIGHAM in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.344-355 Titre : Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians Type de document : texte imprimé Auteurs : Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur Article en page(s) : p.344-355 Langues : Anglais (eng) Mots-clés : adult  autism  Delphi consensus  optimal services  post-diagnostic support  stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Consensus statements on optimal adult post-autism diagnosis support and services: Delphi process following a UK survey of autistic adults, relatives and clinicians [texte imprimé] / Sarah WIGHAM, Auteur ; Barry INGHAM, Auteur ; Ann LE COUTEUR, Auteur ; Colin WILSON, Auteur ; Ian ENSUM, Auteur ; Jeremy R. PARR, Auteur . - p.344-355. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.344-355 Mots-clés : adult  autism  Delphi consensus  optimal services  post-diagnostic support  stakeholder involvement Index. décimale : PER Périodiques Résumé : Opportunities for adults to access support following a clinical diagnosis of autism are limited. This study investigated perspectives of autistic adults, relatives and clinicians regarding characteristics of optimal adult autism post-diagnosis support and services. In Stage 1, key stakeholders were surveyed about recent experiences of UK adult autism post-diagnostic services immediately following assessment/up to 12 months afterwards. Information gathered from Stage 1 was used to devise a set of statements describing optimal post-autism diagnostic support/service characteristics. In Stage 2 statements were presented to clinicians in a modified Delphi process. Data analyses were non-parametric and descriptive. Three hundred forty-three autistic adults and 45 relatives completed the Stage 1 surveys. Thirty-five clinicians completed a parallel survey. Just over half of adults and relatives reported receiving a follow-up appointment. Fewer than 40% of autistic people received support/services 12 months after diagnosis. Eleven statements describing optimal post-autism diagnostic support/service provision were developed and consensus among clinicians was reached on all. Autistic adults, relatives and clinicians described some aspects of post-autism diagnosis support and services positively; however, there were significant opportunities for improvement. The study findings can be used to develop current UK post-diagnosis support and services and may be relevant internationally. En ligne : http://dx.doi.org/10.1177/13623613221097502 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

Coping with uncertainty in everyday situations (CUES©) to address intolerance of uncertainty in autistic children: an intervention feasibility trial / Jacqui RODGERS in Journal of Autism and Developmental Disorders, 53-9 (September 2023)  

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Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD) / Jacqui RODGERS in Autism Research, 9-11 (November 2016)  

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Early Developmental Regression in Autism Spectrum Disorder: Evidence from an International Multiplex Sample / Jeremy R. PARR in Journal of Autism and Developmental Disorders, 41-3 (March 2011)  

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Emotional and Behavioural Problems in Children with Autism Spectrum Disorder / Morag MASKEY in Journal of Autism and Developmental Disorders, 43-4 (April 2013)  

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Enhancing the Validity of a Quality of Life Measure for Autistic People / H. MCCONACHIE in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

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Evidence for ASD Recurrence Rates and Reproductive Stoppage From Large UK ASD Research Family Databases / Claire L. WOOD in Autism Research, 8-1 (February 2015)  

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Face processing abilities in relatives of individuals with ASD / Simon WALLACE in Autism Research, 3-6 (December 2010)  

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Factors Affecting Age at ASD Diagnosis in UK: No Evidence that Diagnosis Age has Decreased Between 2004 and 2014 / Denise BRETT in Journal of Autism and Developmental Disorders, 46-6 (June 2016)  

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Gender differences in parent-reported age at diagnosis of children with autism spectrum disorder / Alexandra M. PETROU in Research in Autism Spectrum Disorders, 50 (June 2018)  

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Generalisation of Social Communication Skills by Autistic Children During Play-Based Assessments Across Home, School and an Unfamiliar Research Setting / Tony CHARMAN ; Kathy LEADBITTER ; Ceri ELLIS ; Lauren TAYLOR ; Heather L. MOORE ; Carol TAYLOR ; Kirsty JAMES ; Matea BALABANOVSKA ; Sophie LANGHORNE ; Catherine ALDRED ; Vicky SLONIMS ; Vicki GRAHAME ; Patricia HOWLIN ; Helen MCCONACHIE ; Jeremy R. PARR ; Richard EMSLEY ; Ann LE COUTEUR ; Jonathan GREEN ; Andrew PICKLES ; THE PACT-G. TRIAL GROUP in Journal of Autism and Developmental Disorders, 55-7 (July 2025)  

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