Age of Diagnosis of Autism Spectrum Disorder in Nepal / R. SHRESTHA in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2258-2267 Titre : Age of Diagnosis of Autism Spectrum Disorder in Nepal Type de document : Texte imprimé et/ou numérique Auteurs : R. SHRESTHA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.2258-2267 Langues : Anglais (eng) Mots-clés : Age of diagnosis  Autism spectrum disorder  Low- and middle-income countries  Nepal Index. décimale : PER Périodiques Résumé : The current study investigated the age of diagnosis (AoD) of autism spectrum disorder (ASD) in Nepal by using de-identified data on 246 children with a diagnosis of ASD registered at AutismCare Nepal Society from 2010 to 2015. The mean AoD in children was 58 months (range 14-187 months). Majority of children were male (76%), lived in the Kathmandu valley (75%), and were from upper caste groups (62%). The mean diagnostic age of ASD in Nepal is much later than the age at which a reliable diagnosis is possible, indicating the need to reduce the gap between the age at which it is possible to diagnose ASD, and the average age at which ASD is currently diagnosed. En ligne : https://dx.doi.org/10.1007/s10803-019-03884-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Age of Diagnosis of Autism Spectrum Disorder in Nepal [Texte imprimé et/ou numérique] / R. SHRESTHA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur . - p.2258-2267. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2258-2267 Mots-clés : Age of diagnosis  Autism spectrum disorder  Low- and middle-income countries  Nepal Index. décimale : PER Périodiques Résumé : The current study investigated the age of diagnosis (AoD) of autism spectrum disorder (ASD) in Nepal by using de-identified data on 246 children with a diagnosis of ASD registered at AutismCare Nepal Society from 2010 to 2015. The mean AoD in children was 58 months (range 14-187 months). Majority of children were male (76%), lived in the Kathmandu valley (75%), and were from upper caste groups (62%). The mean diagnostic age of ASD in Nepal is much later than the age at which a reliable diagnosis is possible, indicating the need to reduce the gap between the age at which it is possible to diagnose ASD, and the average age at which ASD is currently diagnosed. En ligne : https://dx.doi.org/10.1007/s10803-019-03884-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide / Maureen S. DURKIN in Autism Research, 8-5 (October 2015)  

Public ISBD [article]  inAutism Research > 8-5 (October 2015) . - p.473-476 Titre : Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide Type de document : Texte imprimé et/ou numérique Auteurs : Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur Article en page(s) : p.473-476 Langues : Anglais (eng) Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269 [article] Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide [Texte imprimé et/ou numérique] / Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur . - p.473-476. Langues : Anglais (eng) in Autism Research > 8-5 (October 2015) . - p.473-476 Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269

Behaviour, cognition, and autism symptoms and their relationship with sleep problem severity in young children with autism spectrum disorder / Stephanie ROUSSIS in Research in Autism Spectrum Disorders, 83 (May 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 83 (May 2021) . - 101743 Titre : Behaviour, cognition, and autism symptoms and their relationship with sleep problem severity in young children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Stephanie ROUSSIS, Auteur ; Amanda L. RICHDALE, Auteur ; Terry KATZ, Auteur ; Beth A. MALOW, Auteur ; Josephine BARBARO, Auteur ; Nancy SADKA, Auteur Article en page(s) : 101743 Langues : Anglais (eng) Mots-clés : Sleep problem  Behaviour  Autism  Young children Index. décimale : PER Périodiques Résumé : Background In autism, poor sleep begins in early childhood, varies in severity and is associated with behavioural difficulties. We examined relationships between sleep and behaviour in young children with autism and no, mild/typical or severe/atypical sleep problems to determine behavioural profiles that may differentiate sleep problem severity. Method Parents of children with autism aged 2- to 5-years reported on their child’s sleep behaviour (CSHQ), including additional written descriptions of sleep behaviours. Children were then classified as good sleepers or as having mild/typical or severe/atypical sleep problems using National Sleep Foundation guidelines and current sleep literature. The three sleep groups were compared on autistic severity (ADOS), cognition (Mullen Scales of Early Leaning) and behaviour (BASC-3). Results Parents of 46 children aged 24- to 71-months participated. The severe/atypical sleep group were more likely to have multiple severe sleep difficulties. The sleep groups did not differ on autism severity or cognition. The BASC-3 withdrawal subscale differentiated severe problem sleepers from the other groups, while BASC-3 inattention differentiated problem sleepers from good sleepers. The severe/atypical sleep problem group also had more overall behaviour problems than good sleepers Conclusions Social withdrawal and multiple, severe sleep difficulties may underlie difficulties in treating poor sleep in some autistic children, suggesting that an individualised approach to treatment is needed to address severe sleep concerns. Early detection and intervention for poor sleep may reduce or prevent significant sleep and behavioural concerns continuing into later childhood. Sleep interventions that include targeting attention and withdrawal behaviours may assist in in this regard. En ligne : https://doi.org/10.1016/j.rasd.2021.101743 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446 [article] Behaviour, cognition, and autism symptoms and their relationship with sleep problem severity in young children with autism spectrum disorder [Texte imprimé et/ou numérique] / Stephanie ROUSSIS, Auteur ; Amanda L. RICHDALE, Auteur ; Terry KATZ, Auteur ; Beth A. MALOW, Auteur ; Josephine BARBARO, Auteur ; Nancy SADKA, Auteur . - 101743. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 83 (May 2021) . - 101743 Mots-clés : Sleep problem  Behaviour  Autism  Young children Index. décimale : PER Périodiques Résumé : Background In autism, poor sleep begins in early childhood, varies in severity and is associated with behavioural difficulties. We examined relationships between sleep and behaviour in young children with autism and no, mild/typical or severe/atypical sleep problems to determine behavioural profiles that may differentiate sleep problem severity. Method Parents of children with autism aged 2- to 5-years reported on their child’s sleep behaviour (CSHQ), including additional written descriptions of sleep behaviours. Children were then classified as good sleepers or as having mild/typical or severe/atypical sleep problems using National Sleep Foundation guidelines and current sleep literature. The three sleep groups were compared on autistic severity (ADOS), cognition (Mullen Scales of Early Leaning) and behaviour (BASC-3). Results Parents of 46 children aged 24- to 71-months participated. The severe/atypical sleep group were more likely to have multiple severe sleep difficulties. The sleep groups did not differ on autism severity or cognition. The BASC-3 withdrawal subscale differentiated severe problem sleepers from the other groups, while BASC-3 inattention differentiated problem sleepers from good sleepers. The severe/atypical sleep problem group also had more overall behaviour problems than good sleepers Conclusions Social withdrawal and multiple, severe sleep difficulties may underlie difficulties in treating poor sleep in some autistic children, suggesting that an individualised approach to treatment is needed to address severe sleep concerns. Early detection and intervention for poor sleep may reduce or prevent significant sleep and behavioural concerns continuing into later childhood. Sleep interventions that include targeting attention and withdrawal behaviours may assist in in this regard. En ligne : https://doi.org/10.1016/j.rasd.2021.101743 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=446

Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised / Hannah WADDINGTON in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5050-5057 Titre : Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised Type de document : Texte imprimé et/ou numérique Auteurs : Hannah WADDINGTON, Auteur ; Daniel SHEPHERD, Auteur ; Larah VAN DER MEER, Auteur ; Naomi POWELL-HECTOR, Auteur ; Eleanor WILSON, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.5050-5057 Langues : Anglais (eng) Mots-clés : Attention  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Clinical Competence  Communication  Humans  New Zealand  Autism spectrum disorder  Developmental surveillance  Early detection  Early identification  Knowledge Index. décimale : PER Périodiques Résumé : Universal developmental surveillance is considered best practice for early identification of autism. We analysed data from 175 New Zealand Well-Child/Tamariki Ora nurses who attended a 1-day training in developmental surveillance for autism using the social attention and communication surveillance-revised (SACS-R) tool. We used a survey to measure nurses' knowledge of typical development, knowledge of early signs of autism, general autism knowledge, and confidence in identifying and discussing early signs, prior to the workshop, after the workshop, and at follow-up. We measured perceived acceptability of the SACS-R after the workshop and at follow-up. Nurses showed improvements on all measures from pre-workshop to post-workshop and pre-workshop to follow-up. Implementation of the SACS-R across different contexts appears feasible and acceptable. En ligne : http://dx.doi.org/10.1007/s10803-021-05344-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Brief Report: Training New Zealand Well Child/Tamariki Ora Nurses on Early Autism Signs Using the Social Attention and Communication Surveillance-Revised [Texte imprimé et/ou numérique] / Hannah WADDINGTON, Auteur ; Daniel SHEPHERD, Auteur ; Larah VAN DER MEER, Auteur ; Naomi POWELL-HECTOR, Auteur ; Eleanor WILSON, Auteur ; Josephine BARBARO, Auteur . - p.5050-5057. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.5050-5057 Mots-clés : Attention  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Clinical Competence  Communication  Humans  New Zealand  Autism spectrum disorder  Developmental surveillance  Early detection  Early identification  Knowledge Index. décimale : PER Périodiques Résumé : Universal developmental surveillance is considered best practice for early identification of autism. We analysed data from 175 New Zealand Well-Child/Tamariki Ora nurses who attended a 1-day training in developmental surveillance for autism using the social attention and communication surveillance-revised (SACS-R) tool. We used a survey to measure nurses' knowledge of typical development, knowledge of early signs of autism, general autism knowledge, and confidence in identifying and discussing early signs, prior to the workshop, after the workshop, and at follow-up. We measured perceived acceptability of the SACS-R after the workshop and at follow-up. Nurses showed improvements on all measures from pre-workshop to post-workshop and pre-workshop to follow-up. Implementation of the SACS-R across different contexts appears feasible and acceptable. En ligne : http://dx.doi.org/10.1007/s10803-021-05344-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Caregivers’ knowledge of autism in a local peri-urban community of Nepal: A cross-sectional study in Kirtipur, Kathmandu / Rena SHRESTHA in Research in Autism Spectrum Disorders, 80 (February 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 80 (February 2021) . - p.101696 Titre : Caregivers’ knowledge of autism in a local peri-urban community of Nepal: A cross-sectional study in Kirtipur, Kathmandu Type de document : Texte imprimé et/ou numérique Auteurs : Rena SHRESTHA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur Article en page(s) : p.101696 Langues : Anglais (eng) Mots-clés : Autism  Knowledge  Caregivers  Nepal Index. décimale : PER Périodiques Résumé : Early markers of autism emerge during the first two years of life with a reliable diagnosis possible by 24 months of age. Caregivers’ knowledge about autism is crucial to facilitate the early identification of autism. However, research on caregivers’ knowledge of autism in low- and middle-income countries (LMICs) is scarce. The current study examined Nepalese caregivers’ knowledge about autism and potential differences in knowledge as a consequence of demographic characteristics. A population-based cross-sectional survey was conducted with 1895 caregivers (Mean age = 28 years, SD = 5.2) with children between 11–30 months of age in Kirtipur Municipality in Kathmandu, Nepal. Although Nepalese caregivers showed strong knowledge on early social attention and communication behaviours in infants/toddlers, only one-fourth reported any knowledge about autism. Moreover, knowledge on autism differed significantly by caregivers’ age, education and caste/ethnicity. Caregivers over 25 years of age, with more than secondary education and belonging to the upper caste and advantaged groups, had more knowledge about autism. The significant lack of knowledge regarding autism amongst Nepalese caregivers indicates the need to raise awareness, targeting caregivers from all ages, educational levels and caste/ethnic groups, to facilitate early recognition of autism. En ligne : https://doi.org/10.1016/j.rasd.2020.101696 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438 [article] Caregivers’ knowledge of autism in a local peri-urban community of Nepal: A cross-sectional study in Kirtipur, Kathmandu [Texte imprimé et/ou numérique] / Rena SHRESTHA, Auteur ; Cheryl DISSANAYAKE, Auteur ; Josephine BARBARO, Auteur . - p.101696. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 80 (February 2021) . - p.101696 Mots-clés : Autism  Knowledge  Caregivers  Nepal Index. décimale : PER Périodiques Résumé : Early markers of autism emerge during the first two years of life with a reliable diagnosis possible by 24 months of age. Caregivers’ knowledge about autism is crucial to facilitate the early identification of autism. However, research on caregivers’ knowledge of autism in low- and middle-income countries (LMICs) is scarce. The current study examined Nepalese caregivers’ knowledge about autism and potential differences in knowledge as a consequence of demographic characteristics. A population-based cross-sectional survey was conducted with 1895 caregivers (Mean age = 28 years, SD = 5.2) with children between 11–30 months of age in Kirtipur Municipality in Kathmandu, Nepal. Although Nepalese caregivers showed strong knowledge on early social attention and communication behaviours in infants/toddlers, only one-fourth reported any knowledge about autism. Moreover, knowledge on autism differed significantly by caregivers’ age, education and caste/ethnicity. Caregivers over 25 years of age, with more than secondary education and belonging to the upper caste and advantaged groups, had more knowledge about autism. The significant lack of knowledge regarding autism amongst Nepalese caregivers indicates the need to raise awareness, targeting caregivers from all ages, educational levels and caste/ethnic groups, to facilitate early recognition of autism. En ligne : https://doi.org/10.1016/j.rasd.2020.101696 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=438

Change in Autism Diagnoses Prior to and Following the Introduction of DSM-5 / Catherine A BENT in Journal of Autism and Developmental Disorders, 47-1 (January 2017)  

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Changes in Knowledge on the Signs of Autism in Young Children (11-30 Months) among Female Community Health Volunteers in Nepal / R. SHRESTHA in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

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Child and caregiver predictors of primary caregiver participation in families of school-aged Autistic children / Josephine BARBARO ; Katy UNWIN ; Megan CLARK ; Rachel JELLETT ; Perrin DATE ; Melanie MUNIANDY ; Cheryl DISSANAYAKE in Autism Research, 17-7 (July 2024)  

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Cognitive and behavioral differences in toddlers with autism spectrum disorder from multiplex and simplex families / Cheryl DISSANAYAKE in Autism Research, 12-4 (April 2019)  

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A Comparative Study of the Use and Understanding of Self-Presentational Display Rules in Children with High Functioning Autism and Asperger’s Disorder / Josephine BARBARO in Journal of Autism and Developmental Disorders, 37-7 (August 2007)  

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Continuity and Change in Cognition and Autism Severity from Toddlerhood to School Age / Megan L. E. CLARK in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

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Continuity of temperament subgroup classifications from infancy to toddlerhood in the context of early autism traits / Lacey CHETCUTI in Autism Research, 16-3 (March 2023)  

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Developmental Profiles of Infants and Toddlers with Autism Spectrum Disorders Identified Prospectively in a Community-Based Setting / Josephine BARBARO in Journal of Autism and Developmental Disorders, 42-9 (September 2012)  

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Diagnostic stability of autism spectrum disorder in toddlers prospectively identified in a community-based setting: Behavioural characteristics and predictors of change over time / Josephine BARBARO in Autism, 21-7 (October 2017)  

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Early detection for better outcomes: Universal developmental surveillance for autism across health and early childhood education settings / Beth MOZOLIC-STAUNTON in Research in Autism Spectrum Disorders, 71 (March 2020)  

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