Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance / Elizabeth O’NIONS in Journal of Child Psychology and Psychiatry, 55-7 (July 2014)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.758-768 Titre : Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance Type de document : texte imprimé Auteurs : Elizabeth O’NIONS, Auteur ; Phil CHRISTIE, Auteur ; Judith GOULD, Auteur ; Essi VIDING, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.758-768 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  ASD  pathological demand avoidance  PDA  pervasive developmental disorder  conduct problems  oppositional defiant disorder  ODD  disruptive behaviour Index. décimale : PER Périodiques Résumé : Background Pathological Demand Avoidance (PDA) is a term increasingly used in the United Kingdom to describe children who obsessively resist everyday demands, going to extreme lengths to avoid these. There is debate about its relationship with both autism spectrum disorder (ASD) and oppositional defiant disorder (ODD). Unlike ASD, children with PDA are said to use socially manipulative avoidance strategies; and unlike ODD, they resort to extreme, embarrassing or age-inappropriate behaviour. To date, there has been little research into PDA, and it remains contentious. Currently, there are no questionnaire instruments available to aid consistency in description. This study reports the development and preliminary validation of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q), designed to quantify PDA traits based on parent-reported information. Methods The validation study involved data from 326 parents of children aged 5-17 allocated to six groups based on information reported by parents about received diagnoses and behavioural difficulties: (a) typically developing children (N = 102), (b) children with ASD without disruptive behaviour (N = 36), (c) children with ASD with disruptive behaviour (N = 48), (d) children for whom PDA was suspected by parents (irrespective of other diagnoses) (N = 67), (e) children who had, according to parents, been identified as having PDA by a health professional, irrespective of other diagnoses (N = 50), and (6) disruptive behaviour or behavioural problems without suspected/identified ASD or PDA (N = 23). Results Although the Strengths and Difficulties Questionnaire (SDQ) did not differentiate PDA from those with ASD plus disruptive behaviour; score on the EDA-Q was significantly higher in PDA than all comparison groups. ROC analysis indicated good sensitivity (.80) and specificity (.85). Across all case groups, females scored higher than males on the EDA-Q. Separate cut-off scores were identified for older and younger age-groups. Conclusions Our findings highlight the potential utility of the EDA-Q to assist the identification of this unusual profile for future research. En ligne : http://dx.doi.org/10.1111/jcpp.12149 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235 [article] Development of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q): preliminary observations on a trait measure for Pathological Demand Avoidance [texte imprimé] / Elizabeth O’NIONS, Auteur ; Phil CHRISTIE, Auteur ; Judith GOULD, Auteur ; Essi VIDING, Auteur ; Francesca HAPPE, Auteur . - p.758-768. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 55-7 (July 2014) . - p.758-768 Mots-clés : Autism spectrum disorder  ASD  pathological demand avoidance  PDA  pervasive developmental disorder  conduct problems  oppositional defiant disorder  ODD  disruptive behaviour Index. décimale : PER Périodiques Résumé : Background Pathological Demand Avoidance (PDA) is a term increasingly used in the United Kingdom to describe children who obsessively resist everyday demands, going to extreme lengths to avoid these. There is debate about its relationship with both autism spectrum disorder (ASD) and oppositional defiant disorder (ODD). Unlike ASD, children with PDA are said to use socially manipulative avoidance strategies; and unlike ODD, they resort to extreme, embarrassing or age-inappropriate behaviour. To date, there has been little research into PDA, and it remains contentious. Currently, there are no questionnaire instruments available to aid consistency in description. This study reports the development and preliminary validation of the ‘Extreme Demand Avoidance Questionnaire’ (EDA-Q), designed to quantify PDA traits based on parent-reported information. Methods The validation study involved data from 326 parents of children aged 5-17 allocated to six groups based on information reported by parents about received diagnoses and behavioural difficulties: (a) typically developing children (N = 102), (b) children with ASD without disruptive behaviour (N = 36), (c) children with ASD with disruptive behaviour (N = 48), (d) children for whom PDA was suspected by parents (irrespective of other diagnoses) (N = 67), (e) children who had, according to parents, been identified as having PDA by a health professional, irrespective of other diagnoses (N = 50), and (6) disruptive behaviour or behavioural problems without suspected/identified ASD or PDA (N = 23). Results Although the Strengths and Difficulties Questionnaire (SDQ) did not differentiate PDA from those with ASD plus disruptive behaviour; score on the EDA-Q was significantly higher in PDA than all comparison groups. ROC analysis indicated good sensitivity (.80) and specificity (.85). Across all case groups, females scored higher than males on the EDA-Q. Separate cut-off scores were identified for older and younger age-groups. Conclusions Our findings highlight the potential utility of the EDA-Q to assist the identification of this unusual profile for future research. En ligne : http://dx.doi.org/10.1111/jcpp.12149 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=235

How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis / Elizabeth O’NIONS in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1272-1286 Titre : How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis Type de document : texte imprimé Auteurs : Elizabeth O’NIONS, Auteur ; Francesca HAPPE, Auteur ; K. EVERS, Auteur ; H. BOONEN, Auteur ; I. NOENS, Auteur Article en page(s) : p.1272-1286 Langues : Anglais (eng) Mots-clés : Asd  Anxiety  Behaviour management  Challenging behaviour  Irritability  Non-compliance  Parenting strategies Index. décimale : PER Périodiques Résumé : Although there is increasing research interest in the parenting of children with ASD, at present, little is known about everyday strategies used to manage problem behaviour. We conducted a meta-synthesis to explore what strategies parents use to manage irritability, non-compliance, challenging behaviour and anxiety in their children with ASD. Approaches included: (1) accommodating the child; (2) modifying the environment; (3) providing structure, routine and occupation; (4) supervision and monitoring; (5) managing non-compliance with everyday tasks; (6) responding to problem behaviour; (7) managing distress; (8) maintaining safety and (9) analysing and planning. Results suggest complex parenting demands in children with ASD and problem behaviour. Findings will inform the development of a new measure to quantify parenting strategies relevant to ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3361-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 [article] How do Parents Manage Irritability, Challenging Behaviour, Non-Compliance and Anxiety in Children with Autism Spectrum Disorders? A Meta-Synthesis [texte imprimé] / Elizabeth O’NIONS, Auteur ; Francesca HAPPE, Auteur ; K. EVERS, Auteur ; H. BOONEN, Auteur ; I. NOENS, Auteur . - p.1272-1286. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1272-1286 Mots-clés : Asd  Anxiety  Behaviour management  Challenging behaviour  Irritability  Non-compliance  Parenting strategies Index. décimale : PER Périodiques Résumé : Although there is increasing research interest in the parenting of children with ASD, at present, little is known about everyday strategies used to manage problem behaviour. We conducted a meta-synthesis to explore what strategies parents use to manage irritability, non-compliance, challenging behaviour and anxiety in their children with ASD. Approaches included: (1) accommodating the child; (2) modifying the environment; (3) providing structure, routine and occupation; (4) supervision and monitoring; (5) managing non-compliance with everyday tasks; (6) responding to problem behaviour; (7) managing distress; (8) maintaining safety and (9) analysing and planning. Results suggest complex parenting demands in children with ASD and problem behaviour. Findings will inform the development of a new measure to quantify parenting strategies relevant to ASD. En ligne : http://dx.doi.org/10.1007/s10803-017-3361-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352

'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over / Hassan MANSOUR in Autism, 29-3 (March 2025)  

Public ISBD [article]  inAutism > 29-3 (March 2025) . - p.754-765 Titre : 'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over Type de document : texte imprimé Auteurs : Hassan MANSOUR, Auteur ; Amy GILLIONS, Auteur ; Jude BROWN, Auteur ; Anoushka PATTENDEN, Auteur ; Susan HARTLEY, Auteur ; Sarifa PATEL, Auteur ; Stephanie JAMES, Auteur ; Martin STYLES, Auteur ; Will MANDY, Auteur ; Joshua STOTT, Auteur ; Elizabeth O’NIONS, Auteur Article en page(s) : p.754-765 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences ... En ligne : https://dx.doi.org/10.1177/13623613241291081 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] 'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over [texte imprimé] / Hassan MANSOUR, Auteur ; Amy GILLIONS, Auteur ; Jude BROWN, Auteur ; Anoushka PATTENDEN, Auteur ; Susan HARTLEY, Auteur ; Sarifa PATEL, Auteur ; Stephanie JAMES, Auteur ; Martin STYLES, Auteur ; Will MANDY, Auteur ; Joshua STOTT, Auteur ; Elizabeth O’NIONS, Auteur . - p.754-765. Langues : Anglais (eng) in Autism > 29-3 (March 2025) . - p.754-765 Index. décimale : PER Périodiques Résumé : Autistic people are more likely to experience physical and mental health difficulties across the lifespan, leading to an increased risk of premature mortality likely due to health disparities. At present, little is known about the healthcare experiences ... En ligne : https://dx.doi.org/10.1177/13623613241291081 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour / Elizabeth O’NIONS in Journal of Autism and Developmental Disorders, 50-2 (February 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.386-401 Titre : Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour Type de document : texte imprimé Auteurs : Elizabeth O’NIONS, Auteur ; Eva CEULEMANS, Auteur ; Francesca HAPPE, Auteur ; Paul R. BENSON, Auteur ; Kris EVERS, Auteur ; Ilse NOENS, Auteur Article en page(s) : p.386-401 Langues : Anglais (eng) Mots-clés : Asd  Accommodation  Extreme demand avoidance  Intolerance of Uncertainty  Parenting  Problem behaviour  Reactivity Index. décimale : PER Périodiques Résumé : Here, we explored the structure of the 'Parenting Strategies Questionnaire', a new scale designed to measure parenting strategies for problem behaviour in ASD. We then examined links between child behaviour and parenting in a sample of 222 predominantly-UK parents of ASD children exhibiting behaviour found difficult or challenging. Analysis revealed three parenting subscales: Accommodation, Reinforcement Approaches and Reducing Uncertainty. Both Accommodation and Reducing Uncertainty were linked to child problem behaviour. Child factors explained up to 29% of the variance in Accommodation, with Socially Inflexible Non-compliance the strongest predictor, and up to 24% of the variance in Reducing Uncertainty, with Intolerance of Uncertainty the strongest predictor. Child factors were not related to Reinforcement Approaches. Longitudinal studies investigating these relationships are needed. En ligne : http://dx.doi.org/10.1007/s10803-019-04219-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416 [article] Parenting Strategies Used by Parents of Children with ASD: Differential Links with Child Problem Behaviour [texte imprimé] / Elizabeth O’NIONS, Auteur ; Eva CEULEMANS, Auteur ; Francesca HAPPE, Auteur ; Paul R. BENSON, Auteur ; Kris EVERS, Auteur ; Ilse NOENS, Auteur . - p.386-401. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-2 (February 2020) . - p.386-401 Mots-clés : Asd  Accommodation  Extreme demand avoidance  Intolerance of Uncertainty  Parenting  Problem behaviour  Reactivity Index. décimale : PER Périodiques Résumé : Here, we explored the structure of the 'Parenting Strategies Questionnaire', a new scale designed to measure parenting strategies for problem behaviour in ASD. We then examined links between child behaviour and parenting in a sample of 222 predominantly-UK parents of ASD children exhibiting behaviour found difficult or challenging. Analysis revealed three parenting subscales: Accommodation, Reinforcement Approaches and Reducing Uncertainty. Both Accommodation and Reducing Uncertainty were linked to child problem behaviour. Child factors explained up to 29% of the variance in Accommodation, with Socially Inflexible Non-compliance the strongest predictor, and up to 24% of the variance in Reducing Uncertainty, with Intolerance of Uncertainty the strongest predictor. Child factors were not related to Reinforcement Approaches. Longitudinal studies investigating these relationships are needed. En ligne : http://dx.doi.org/10.1007/s10803-019-04219-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=416

Pathological demand avoidance: Exploring the behavioural profile / Elizabeth O’NIONS in Autism, 18-5 (July 2014)  

Public ISBD [article]  inAutism > 18-5 (July 2014) . - p.538-544 Titre : Pathological demand avoidance: Exploring the behavioural profile Type de document : texte imprimé Auteurs : Elizabeth O’NIONS, Auteur ; Essi VIDING, Auteur ; Corina U. GREVEN, Auteur ; Angelica RONALD, Auteur ; Francesca HAPPE, Auteur Article en page(s) : p.538-544 Langues : Anglais (eng) Mots-clés : atypical autism  autism spectrum disorder  conduct problems and callous-unemotional traits  pathological demand avoidance  phenotype Index. décimale : PER Périodiques Résumé : ‘Pathological Demand Avoidance’ is a term increasingly used by practitioners in the United Kingdom. It was coined to describe a profile of obsessive resistance to everyday demands and requests, with a tendency to resort to ‘socially manipulative’ behaviour, including outrageous or embarrassing acts. Pathological demand avoidance is thought to share aspects of social impairment with autism spectrum disorders, but autism spectrum disorder–appropriate strategies, such as routine and repetition, are described as unhelpful. Outrageous acts and lack of concern for their effects draw parallels with conduct problems and callous-unemotional traits. However, reward-based techniques, effective with conduct problems and callous-unemotional traits, seem not to work in pathological demand avoidance. Despite increasing interest and controversy over the pathological demand avoidance label, there is only one published study to date. We present the first systematic comparison of the behavioural profile of children receiving the term pathological demand avoidance (N = 25) to children with autism spectrum disorders (N = 39) or conduct problems and callous-unemotional traits (N = 28), using parent-report indices of psychopathology. The pathological demand avoidance group displayed comparable levels of autistic traits and peer problems to the autism spectrum disorders group and anti-social traits approaching those seen in the conduct problems and callous-unemotional traits group. Emotional symptoms in pathological demand avoidance exceeded both comparison groups. Findings highlight the extreme behavioural impairment associated with pathological demand avoidance and the need to explore whether behavioural overlap reflects a similar neurocognitive basis to existing groups. En ligne : http://dx.doi.org/10.1177/1362361313481861 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233 [article] Pathological demand avoidance: Exploring the behavioural profile [texte imprimé] / Elizabeth O’NIONS, Auteur ; Essi VIDING, Auteur ; Corina U. GREVEN, Auteur ; Angelica RONALD, Auteur ; Francesca HAPPE, Auteur . - p.538-544. Langues : Anglais (eng) in Autism > 18-5 (July 2014) . - p.538-544 Mots-clés : atypical autism  autism spectrum disorder  conduct problems and callous-unemotional traits  pathological demand avoidance  phenotype Index. décimale : PER Périodiques Résumé : ‘Pathological Demand Avoidance’ is a term increasingly used by practitioners in the United Kingdom. It was coined to describe a profile of obsessive resistance to everyday demands and requests, with a tendency to resort to ‘socially manipulative’ behaviour, including outrageous or embarrassing acts. Pathological demand avoidance is thought to share aspects of social impairment with autism spectrum disorders, but autism spectrum disorder–appropriate strategies, such as routine and repetition, are described as unhelpful. Outrageous acts and lack of concern for their effects draw parallels with conduct problems and callous-unemotional traits. However, reward-based techniques, effective with conduct problems and callous-unemotional traits, seem not to work in pathological demand avoidance. Despite increasing interest and controversy over the pathological demand avoidance label, there is only one published study to date. We present the first systematic comparison of the behavioural profile of children receiving the term pathological demand avoidance (N = 25) to children with autism spectrum disorders (N = 39) or conduct problems and callous-unemotional traits (N = 28), using parent-report indices of psychopathology. The pathological demand avoidance group displayed comparable levels of autistic traits and peer problems to the autism spectrum disorders group and anti-social traits approaching those seen in the conduct problems and callous-unemotional traits group. Emotional symptoms in pathological demand avoidance exceeded both comparison groups. Findings highlight the extreme behavioural impairment associated with pathological demand avoidance and the need to explore whether behavioural overlap reflects a similar neurocognitive basis to existing groups. En ligne : http://dx.doi.org/10.1177/1362361313481861 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=233

The Measurement of Adult Pathological Demand Avoidance Traits / V. EGAN in Journal of Autism and Developmental Disorders, 49-2 (February 2019)  

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