Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences / Martina MICAI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Titre : Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences Type de document : texte imprimé Auteurs : Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.1623-1639 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences [texte imprimé] / Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur . - p.1623-1639. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study / Maria Luisa SCATTONI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Titre : Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study Type de document : texte imprimé Auteurs : Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.4129-4146 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study [texte imprimé] / Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur . - p.4129-4146. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Which terms should be used to describe autism? Perspectives from the UK autism community / Lorcan KENNY in Autism, 20-4 (May 2016)  

Public ISBD [article]  inAutism > 20-4 (May 2016) . - p.442-462 Titre : Which terms should be used to describe autism? Perspectives from the UK autism community Type de document : texte imprimé Auteurs : Lorcan KENNY, Auteur ; Caroline HATTERSLEY, Auteur ; Bonnie MOLINS, Auteur ; Carole BUCKLEY, Auteur ; Carol POVEY, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.442-462 Langues : Anglais (eng) Mots-clés : autism  terminology  disability  neurodiversity  quality of life Index. décimale : PER Périodiques Résumé : Recent public discussions suggest that there is much disagreement about the way autism is and should be described. This study sought to elicit the views and preferences of UK autism community members – autistic people, parents and their broader support network – about the terms they use to describe autism. In all, 3470 UK residents responded to an online survey on their preferred ways of describing autism and their rationale for such preferences. The results clearly show that people use many terms to describe autism. The most highly endorsed terms were ‘autism’ and ‘on the autism spectrum’, and to a lesser extent, ‘autism spectrum disorder’, for which there was consensus across community groups. The groups disagreed, however, on the use of several terms. The term ‘autistic’ was endorsed by a large percentage of autistic adults, family members/friends and parents but by considerably fewer professionals; ‘person with autism’ was endorsed by almost half of professionals but by fewer autistic adults and parents. Qualitative analysis of an open-ended question revealed the reasons underlying respondents’ preferences. These findings demonstrate that there is no single way of describing autism that is universally accepted and preferred by the UK’s autism community and that some disagreements appear deeply entrenched. En ligne : http://dx.doi.org/10.1177/1362361315588200 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287 [article] Which terms should be used to describe autism? Perspectives from the UK autism community [texte imprimé] / Lorcan KENNY, Auteur ; Caroline HATTERSLEY, Auteur ; Bonnie MOLINS, Auteur ; Carole BUCKLEY, Auteur ; Carol POVEY, Auteur ; Elizabeth PELLICANO, Auteur . - p.442-462. Langues : Anglais (eng) in Autism > 20-4 (May 2016) . - p.442-462 Mots-clés : autism  terminology  disability  neurodiversity  quality of life Index. décimale : PER Périodiques Résumé : Recent public discussions suggest that there is much disagreement about the way autism is and should be described. This study sought to elicit the views and preferences of UK autism community members – autistic people, parents and their broader support network – about the terms they use to describe autism. In all, 3470 UK residents responded to an online survey on their preferred ways of describing autism and their rationale for such preferences. The results clearly show that people use many terms to describe autism. The most highly endorsed terms were ‘autism’ and ‘on the autism spectrum’, and to a lesser extent, ‘autism spectrum disorder’, for which there was consensus across community groups. The groups disagreed, however, on the use of several terms. The term ‘autistic’ was endorsed by a large percentage of autistic adults, family members/friends and parents but by considerably fewer professionals; ‘person with autism’ was endorsed by almost half of professionals but by fewer autistic adults and parents. Qualitative analysis of an open-ended question revealed the reasons underlying respondents’ preferences. These findings demonstrate that there is no single way of describing autism that is universally accepted and preferred by the UK’s autism community and that some disagreements appear deeply entrenched. En ligne : http://dx.doi.org/10.1177/1362361315588200 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287

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