Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders / J. KUHN in Journal of Autism and Developmental Disorders, 48-3 (March 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.940-946 Titre : Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : J. KUHN, Auteur ; K. FORD, Auteur ; Leann S. DAWALT, Auteur Année de publication : 2018 Article en page(s) : p.940-946 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Ecological systems  Ecomaps  Parent psychological well-being  Service systems  Social supports Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents' connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers' ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden. En ligne : https://doi.org/10.1007/s10803-017-3381-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339 [article] Brief Report: Mapping Systems of Support and Psychological Well-Being of Mothers of Adolescents with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / J. KUHN, Auteur ; K. FORD, Auteur ; Leann S. DAWALT, Auteur . - 2018 . - p.940-946. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-3 (March 2018) . - p.940-946 Mots-clés : Autism spectrum disorder  Ecological systems  Ecomaps  Parent psychological well-being  Service systems  Social supports Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorders are generally known to experience elevated levels of stress and poorer psychological well-being. To provide treatments and resources that most effectively support parent mental health, it is critical to understand how parents' connections with various networks and systems impact their well-being. This study examined the relationship between the psychological well-being of mothers of adolescents with ASD (n = 20) and their systems of support from an ecological systems theoretical framework. Findings indicated that most connections across mothers' ecosystems were strong in nature. However, the presence of strong connections was not significantly related to psychological well-being. In contrast, stressful/weak connections were significantly related to elevated levels of depressive symptoms, perceived stress, and sense of burden. En ligne : https://doi.org/10.1007/s10803-017-3381-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=339

Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report / Natalie I. BERGER in Journal of Autism and Developmental Disorders, 52-1 (January 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.423-434 Titre : Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report Type de document : Texte imprimé et/ou numérique Auteurs : Natalie I. BERGER, Auteur ; Allison L. WAINER, Auteur ; J. KUHN, Auteur ; Karen E. BEARSS, Auteur ; S. ATTAR, Auteur ; Alice S. CARTER, Auteur ; L. V. IBANEZ, Auteur ; Brooke R. INGERSOLL, Auteur ; H. NEIDERMAN, Auteur ; S. SCOTT, Auteur ; W. L. STONE, Auteur Article en page(s) : p.423-434 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Covid-19  Caregivers  Child, Preschool  Humans  Pandemics  SARS-CoV-2  Assessment  Autism  Autism spectrum disorder (ASD)  Diagnosis  Remote assessment  Telehealth  Toddlers  Virtual Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic, and associated social distancing mandates, has placed significant limitations on in-person health services, requiring creative solutions for supporting clinicians engaged in the diagnosis of autism spectrum disorder (ASD). This report describes the five virtual instruments available at the time of manuscript development for use by experienced clinicians making diagnostic determinations of ASD for toddlers across the 12- to 36-months age range. We focus on synchronous virtual assessments in which clinicians guide the child's caregiver through a range of assessment activities and observe spontaneous and elicited behaviors. Assessments are compared on dimensions of targeted behavioral domains, specific activities and presses employed, scoring approaches, and other key logistical considerations to guide instrument selection for use in varied clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-04911-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Characterizing Available Tools for Synchronous Virtual Assessment of Toddlers with Suspected Autism Spectrum Disorder: A Brief Report [Texte imprimé et/ou numérique] / Natalie I. BERGER, Auteur ; Allison L. WAINER, Auteur ; J. KUHN, Auteur ; Karen E. BEARSS, Auteur ; S. ATTAR, Auteur ; Alice S. CARTER, Auteur ; L. V. IBANEZ, Auteur ; Brooke R. INGERSOLL, Auteur ; H. NEIDERMAN, Auteur ; S. SCOTT, Auteur ; W. L. STONE, Auteur . - p.423-434. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-1 (January 2022) . - p.423-434 Mots-clés : Autism Spectrum Disorder/diagnosis/epidemiology  Covid-19  Caregivers  Child, Preschool  Humans  Pandemics  SARS-CoV-2  Assessment  Autism  Autism spectrum disorder (ASD)  Diagnosis  Remote assessment  Telehealth  Toddlers  Virtual Index. décimale : PER Périodiques Résumé : The COVID-19 pandemic, and associated social distancing mandates, has placed significant limitations on in-person health services, requiring creative solutions for supporting clinicians engaged in the diagnosis of autism spectrum disorder (ASD). This report describes the five virtual instruments available at the time of manuscript development for use by experienced clinicians making diagnostic determinations of ASD for toddlers across the 12- to 36-months age range. We focus on synchronous virtual assessments in which clinicians guide the child's caregiver through a range of assessment activities and observe spontaneous and elicited behaviors. Assessments are compared on dimensions of targeted behavioral domains, specific activities and presses employed, scoring approaches, and other key logistical considerations to guide instrument selection for use in varied clinical and research contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-04911-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / E. J. HICKEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

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