Brief Report: Agreement Between Parents and Day-Care Professionals on Early Symptoms Associated with Autism Spectrum Disorders / K. LARSEN in Journal of Autism and Developmental Disorders, 48-4 (April 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1063-1068 Titre : Brief Report: Agreement Between Parents and Day-Care Professionals on Early Symptoms Associated with Autism Spectrum Disorders Type de document : Texte imprimé et/ou numérique Auteurs : K. LARSEN, Auteur ; Astrid AASLAND, Auteur ; Trond H. DISETH, Auteur Article en page(s) : p.1063-1068 Langues : Anglais (eng) Mots-clés : Day-care centers  Early indentification  Parent professional partnership  Parents Index. décimale : PER Périodiques Résumé : Early identification of Autism Spectrum Disorders (ASD) has the potential to elicit effective early intervention, improving children's level of functioning and developmental trajectories as well as reducing parental stress. Multiple sources of information, including several informants may facilitate early identification. This study examined the agreement between parents and day-care professionals on how they retrospectively recall early symptoms associated with ASD. In this study, we found fair to excellent agreement on early symptoms between parents and day-care professionals. The finding indicates that day-care centres may be a supplementary area for early identification of ASD. More research is needed to explore day-care centers possible role in this early identification. En ligne : http://dx.doi.org/10.1007/s10803-017-3355-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351 [article] Brief Report: Agreement Between Parents and Day-Care Professionals on Early Symptoms Associated with Autism Spectrum Disorders [Texte imprimé et/ou numérique] / K. LARSEN, Auteur ; Astrid AASLAND, Auteur ; Trond H. DISETH, Auteur . - p.1063-1068. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-4 (April 2018) . - p.1063-1068 Mots-clés : Day-care centers  Early indentification  Parent professional partnership  Parents Index. décimale : PER Périodiques Résumé : Early identification of Autism Spectrum Disorders (ASD) has the potential to elicit effective early intervention, improving children's level of functioning and developmental trajectories as well as reducing parental stress. Multiple sources of information, including several informants may facilitate early identification. This study examined the agreement between parents and day-care professionals on how they retrospectively recall early symptoms associated with ASD. In this study, we found fair to excellent agreement on early symptoms between parents and day-care professionals. The finding indicates that day-care centres may be a supplementary area for early identification of ASD. More research is needed to explore day-care centers possible role in this early identification. En ligne : http://dx.doi.org/10.1007/s10803-017-3355-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=351

Identification of Symptoms of Autism Spectrum Disorders in the Second Year of Life at Day-Care Centres by Day-Care Staff: Step One in the Development of a Short Observation List / K. LARSEN in Journal of Autism and Developmental Disorders, 48-7 (July 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-7 (July 2018) . - p.2267-2277 Titre : Identification of Symptoms of Autism Spectrum Disorders in the Second Year of Life at Day-Care Centres by Day-Care Staff: Step One in the Development of a Short Observation List Type de document : Texte imprimé et/ou numérique Auteurs : K. LARSEN, Auteur ; Astrid AASLAND, Auteur ; Trond H. DISETH, Auteur Article en page(s) : p.2267-2277 Langues : Anglais (eng) Mots-clés : Autism  Autism spectrum disorder  Day-care centre  Early identification  Kindergarten  Screening Index. décimale : PER Périodiques Résumé : Early symptoms of ASD develop through the second year of life, making a stable ASD diagnosis possible at 24 months of age. However, in general, children with ASD have their diagnosis at an older age. This retrospective study, including 30 children with ASD and 30 control children aged 3-6 years, explored the possibility of developing a short observation list to be used in day care settings for children 12-24 months of age. From 73 symptoms selected from published screeners and observation tools, we were able to construct a list of six symptoms that retrospectively differentiated children with ASD from typically developing children at 12-24 months of age when recalled by day-care personnel. En ligne : http://dx.doi.org/10.1007/s10803-018-3489-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Identification of Symptoms of Autism Spectrum Disorders in the Second Year of Life at Day-Care Centres by Day-Care Staff: Step One in the Development of a Short Observation List [Texte imprimé et/ou numérique] / K. LARSEN, Auteur ; Astrid AASLAND, Auteur ; Trond H. DISETH, Auteur . - p.2267-2277. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-7 (July 2018) . - p.2267-2277 Mots-clés : Autism  Autism spectrum disorder  Day-care centre  Early identification  Kindergarten  Screening Index. décimale : PER Périodiques Résumé : Early symptoms of ASD develop through the second year of life, making a stable ASD diagnosis possible at 24 months of age. However, in general, children with ASD have their diagnosis at an older age. This retrospective study, including 30 children with ASD and 30 control children aged 3-6 years, explored the possibility of developing a short observation list to be used in day care settings for children 12-24 months of age. From 73 symptoms selected from published screeners and observation tools, we were able to construct a list of six symptoms that retrospectively differentiated children with ASD from typically developing children at 12-24 months of age when recalled by day-care personnel. En ligne : http://dx.doi.org/10.1007/s10803-018-3489-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

What are we optimizing for in autism screening? Examination of algorithmic changes in the M-CHAT / Synnve SCHJØLBERG in Autism Research, 15-2 (February 2022)  

Public ISBD [article]  inAutism Research > 15-2 (February 2022) . - p.296-304 Titre : What are we optimizing for in autism screening? Examination of algorithmic changes in the M-CHAT Type de document : Texte imprimé et/ou numérique Auteurs : Synnve SCHJØLBERG, Auteur ; F. SHIC, Auteur ; Fred R. VOLKMAR, Auteur ; Anders NORDAHL-HANSEN, Auteur ; N. STENBERG, Auteur ; T. TORSKE, Auteur ; K. LARSEN, Auteur ; K. RILEY, Auteur ; D. G. SUKHODOLSKY, Auteur ; J. F. LECKMAN, Auteur ; Katarzyna CHAWARSKA, Auteur ; Roald A. ØIEN, Auteur Article en page(s) : p.296-304 Langues : Anglais (eng) Mots-clés : children  early detection  psychometrics  (includes financial disclosures): None Index. décimale : PER Périodiques Résumé : The present study objectives were to examine the performance of the new M-CHAT-R algorithm to the original M-CHAT algorithm. The main purpose was to examine if the algorithmic changes increase identification of children later diagnosed with ASD, and to examine if there is a trade-off when changing algorithms. We included 54,463 screened cases from the Norwegian Mother and Child Cohort Study. Children were screened using the 23 items of the M-CHAT at 18?months. Further, the performance of the M-CHAT-R algorithm was compared to the M-CHAT algorithm on the 23-items. In total, 337 individuals were later diagnosed with ASD. Using M-CHAT-R algorithm decreased the number of correctly identified ASD children by 12 compared to M-CHAT, with no children with ASD screening negative on the M-CHAT criteria subsequently screening positive utilizing the M-CHAT-R algorithm. A nonparametric McNemar's test determined a statistically significant difference in identifying ASD utilizing the M-CHAT-R algorithm. The present study examined the application of 20-item MCHAT-R scoring criterion to the 23-item MCHAT. We found that this resulted in decreased sensitivity and increased specificity for identifying children with ASD, which is a trade-off that needs further investigation in terms of cost-effectiveness. However, further research is needed to optimize screening for ASD in the early developmental period to increase identification of false negatives. En ligne : http://dx.doi.org/10.1002/aur.2643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] What are we optimizing for in autism screening? Examination of algorithmic changes in the M-CHAT [Texte imprimé et/ou numérique] / Synnve SCHJØLBERG, Auteur ; F. SHIC, Auteur ; Fred R. VOLKMAR, Auteur ; Anders NORDAHL-HANSEN, Auteur ; N. STENBERG, Auteur ; T. TORSKE, Auteur ; K. LARSEN, Auteur ; K. RILEY, Auteur ; D. G. SUKHODOLSKY, Auteur ; J. F. LECKMAN, Auteur ; Katarzyna CHAWARSKA, Auteur ; Roald A. ØIEN, Auteur . - p.296-304. Langues : Anglais (eng) in Autism Research > 15-2 (February 2022) . - p.296-304 Mots-clés : children  early detection  psychometrics  (includes financial disclosures): None Index. décimale : PER Périodiques Résumé : The present study objectives were to examine the performance of the new M-CHAT-R algorithm to the original M-CHAT algorithm. The main purpose was to examine if the algorithmic changes increase identification of children later diagnosed with ASD, and to examine if there is a trade-off when changing algorithms. We included 54,463 screened cases from the Norwegian Mother and Child Cohort Study. Children were screened using the 23 items of the M-CHAT at 18?months. Further, the performance of the M-CHAT-R algorithm was compared to the M-CHAT algorithm on the 23-items. In total, 337 individuals were later diagnosed with ASD. Using M-CHAT-R algorithm decreased the number of correctly identified ASD children by 12 compared to M-CHAT, with no children with ASD screening negative on the M-CHAT criteria subsequently screening positive utilizing the M-CHAT-R algorithm. A nonparametric McNemar's test determined a statistically significant difference in identifying ASD utilizing the M-CHAT-R algorithm. The present study examined the application of 20-item MCHAT-R scoring criterion to the 23-item MCHAT. We found that this resulted in decreased sensitivity and increased specificity for identifying children with ASD, which is a trade-off that needs further investigation in terms of cost-effectiveness. However, further research is needed to optimize screening for ASD in the early developmental period to increase identification of false negatives. En ligne : http://dx.doi.org/10.1002/aur.2643 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

What do parents of children with autism expect from participation in research? A community survey about early autism studies / Sue FLETCHER-WATSON in Autism, 23-1 (January 2019)  

Public ISBD [article]  inAutism > 23-1 (January 2019) . - p.175-186 Titre : What do parents of children with autism expect from participation in research? A community survey about early autism studies Type de document : Texte imprimé et/ou numérique Auteurs : Sue FLETCHER-WATSON, Auteur ; K. LARSEN, Auteur ; E. SALOMONE, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; S. BERANOVA, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; R. C. BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; I. C. CONCEICAO, Auteur ; K. DAVIES, Auteur ; T. FARONI, Auteur ; Marie GOMOT, Auteur ; E. JONES, Auteur ; A. KAALE, Auteur ; Katarzyna KAPICA, Auteur ; R. KAWA, Auteur ; A. KYLLIAINEN, Auteur ; J. LEFORT-BESNARD, Auteur ; J. MALVY, Auteur ; S. M. DE DIOS, Auteur ; S. MARKOVSKA-SIMOSKA, Auteur ; I. MILLO, Auteur ; N. MIRANDA, Auteur ; G. PASCO, Auteur ; E. PISULA, Auteur ; M. RALEVA, Auteur ; Bernadette ROGE, Auteur ; Synnve SCHJØLBERG, Auteur ; P. TOMALSKI, Auteur ; A. M. VICENTE, Auteur ; N. YIRMIYA, Auteur ; Cost Essea Working GRP, Auteur Article en page(s) : p.175-186 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  development  ethics  infancy  parents  spectrum  intervention  outcomes  adults  risk  Psychology Index. décimale : PER Périodiques Résumé : Engagement with stakeholders is an essential part of the research process. This is particularly the case for early autism research with infant cohorts and their families, where a range of ethical issues are pertinent. Here, we report on a large survey of parents who have a child on the autism spectrum (n = 1040) which specifically probed attitudes to early autism research. The large majority of parents showed positive attitudes overall, and these were associated with greater access to services, higher service quality ratings and higher rates of intellectual disability among their children. Parents valued the scientific goals of research, but half of parents also reported that an intervention component would be an essential prerequisite for them to participate in research. If enrolled in a study, parents were positive about most commonly used measures though less favourably disposed towards brain scans for children. They valued direct contact with the research team and openness in data sharing. We interpret our findings in terms of lessons for the early autism research community and for stakeholder engagement projects. En ligne : http://dx.doi.org/10.1177/1362361317728436 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 [article] What do parents of children with autism expect from participation in research? A community survey about early autism studies [Texte imprimé et/ou numérique] / Sue FLETCHER-WATSON, Auteur ; K. LARSEN, Auteur ; E. SALOMONE, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; S. BERANOVA, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; R. C. BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; I. C. CONCEICAO, Auteur ; K. DAVIES, Auteur ; T. FARONI, Auteur ; Marie GOMOT, Auteur ; E. JONES, Auteur ; A. KAALE, Auteur ; Katarzyna KAPICA, Auteur ; R. KAWA, Auteur ; A. KYLLIAINEN, Auteur ; J. LEFORT-BESNARD, Auteur ; J. MALVY, Auteur ; S. M. DE DIOS, Auteur ; S. MARKOVSKA-SIMOSKA, Auteur ; I. MILLO, Auteur ; N. MIRANDA, Auteur ; G. PASCO, Auteur ; E. PISULA, Auteur ; M. RALEVA, Auteur ; Bernadette ROGE, Auteur ; Synnve SCHJØLBERG, Auteur ; P. TOMALSKI, Auteur ; A. M. VICENTE, Auteur ; N. YIRMIYA, Auteur ; Cost Essea Working GRP, Auteur . - p.175-186. Langues : Anglais (eng) in Autism > 23-1 (January 2019) . - p.175-186 Mots-clés : autism spectrum disorder  development  ethics  infancy  parents  spectrum  intervention  outcomes  adults  risk  Psychology Index. décimale : PER Périodiques Résumé : Engagement with stakeholders is an essential part of the research process. This is particularly the case for early autism research with infant cohorts and their families, where a range of ethical issues are pertinent. Here, we report on a large survey of parents who have a child on the autism spectrum (n = 1040) which specifically probed attitudes to early autism research. The large majority of parents showed positive attitudes overall, and these were associated with greater access to services, higher service quality ratings and higher rates of intellectual disability among their children. Parents valued the scientific goals of research, but half of parents also reported that an intervention component would be an essential prerequisite for them to participate in research. If enrolled in a study, parents were positive about most commonly used measures though less favourably disposed towards brain scans for children. They valued direct contact with the research team and openness in data sharing. We interpret our findings in terms of lessons for the early autism research community and for stakeholder engagement projects. En ligne : http://dx.doi.org/10.1177/1362361317728436 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379

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