16 recherche sur le mot-clé 'ethics'

Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families / Stephen G. POST in Journal of Autism and Developmental Disorders, 43-6 (June 2013)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Titre : Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families Type de document : Texte imprimé et/ou numérique Auteurs : Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur Article en page(s) : p.1473-1476 Langues : Anglais (eng) Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201 [article] Brief Report: Stony Brook Guidelines on the Ethics of the Care of People with Autism and Their Families [Texte imprimé et/ou numérique] / Stephen G. POST, Auteur ; John POMEROY, Auteur ; Carla C. KEIRNS, Auteur ; Virginia Isaacs COVER, Auteur ; Michael Leverett DORN, Auteur ; Louis BOROSON, Auteur ; Florence BOROSON, Auteur ; Anne COULEHAN, Auteur ; Jack COULEHAN, Auteur ; Kim COVELL, Auteur ; Kim KUBASEK, Auteur ; Elizabeth LUCHSINGER, Auteur ; Shana NICHOLS, Auteur ; James PARLES, Auteur ; Linda SCHREIBER, Auteur ; Samara PULVER TETENBAUM, Auteur ; Rose Ann WALSH, Auteur . - p.1473-1476. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 43-6 (June 2013) . - p.1473-1476 Mots-clés : Autism  Ethics  Clinical practice  Treatment  Social issues  Goals Index. décimale : PER Périodiques Résumé : The increased prevalence of autism spectrum disorders (ASD), with associated societal and clinical impacts, calls for a broad community-based dialogue on treatment related ethical and social issues. The Stony Brook Guidelines, based on a community dialogue process with affected individuals, families and professionals, identify and discuss the following topics: treatment goals and happiness, distributive justice, managing the hopes for a cure, sibling responsibilities, intimacy and sex, diagnostic ethics, and research ethics. Our guidelines, based not on “top-down” imposition of professional expertise but rather on “bottom-up” grass roots attention to the voices of affected individuals and families speaking from experience, can inform clinical practice and are also meaningful for the wider social conversation emerging over the treatment of individuals with ASD. En ligne : http://dx.doi.org/10.1007/s10803-012-1680-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=201

From Interdisciplinary to Integrated Care of the Child with Autism: the Essential Role for a Code of Ethics / David J. COX in Journal of Autism and Developmental Disorders, 42-12 (December 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-12 (December 2012) . - p.2729-2738 Titre : From Interdisciplinary to Integrated Care of the Child with Autism: the Essential Role for a Code of Ethics Type de document : Texte imprimé et/ou numérique Auteurs : David J. COX, Auteur Article en page(s) : p.2729-2738 Langues : Anglais (eng) Mots-clés : Interdisciplinary therapy  Integration of disciplines  Ethics Index. décimale : PER Périodiques Résumé : To address the developmental deficits of children with autism, several disciplines have come to the forefront within intervention programs. These are speech-pathologists, psychologists/counselors, occupational-therapists/physical-therapists, special-education consultants, behavior analysts, and physicians/medical personnel. As the field of autism therapy moves toward a more comprehensive, holistic and interdisciplinary model, the complexity of an interdisciplinary service delivery model could pose significant challenges. The difficulty of carrying out this approach could lead to sub-par programs being established. With integration among the disciplines a necessity, the ethical principles and language common to all the contributing disciplines is argued as the appropriate integrating force. An outline of these principles and a draft code of ethics are offered to introduce high standards and expectations for all participating in such a program. En ligne : http://dx.doi.org/10.1007/s10803-012-1530-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=184 [article] From Interdisciplinary to Integrated Care of the Child with Autism: the Essential Role for a Code of Ethics [Texte imprimé et/ou numérique] / David J. COX, Auteur . - p.2729-2738. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-12 (December 2012) . - p.2729-2738 Mots-clés : Interdisciplinary therapy  Integration of disciplines  Ethics Index. décimale : PER Périodiques Résumé : To address the developmental deficits of children with autism, several disciplines have come to the forefront within intervention programs. These are speech-pathologists, psychologists/counselors, occupational-therapists/physical-therapists, special-education consultants, behavior analysts, and physicians/medical personnel. As the field of autism therapy moves toward a more comprehensive, holistic and interdisciplinary model, the complexity of an interdisciplinary service delivery model could pose significant challenges. The difficulty of carrying out this approach could lead to sub-par programs being established. With integration among the disciplines a necessity, the ethical principles and language common to all the contributing disciplines is argued as the appropriate integrating force. An outline of these principles and a draft code of ethics are offered to introduce high standards and expectations for all participating in such a program. En ligne : http://dx.doi.org/10.1007/s10803-012-1530-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=184

Priorities for autism spectrum disorder risk communication and ethics / Michael YUDELL in Autism, 17-6 (November 2013)  

Public ISBD [article]  inAutism > 17-6 (November 2013) . - p.701-722 Titre : Priorities for autism spectrum disorder risk communication and ethics Type de document : Texte imprimé et/ou numérique Auteurs : Michael YUDELL, Auteur ; Holly K. TABOR, Auteur ; Geraldine DAWSON, Auteur ; John ROSSI, Auteur ; Craig J. NEWSCHAFFER, Auteur ; WORKING GROUP IN AUTISM RISK COMMUNICATION AND ETHICS 1,, Auteur Année de publication : 2013 Article en page(s) : p.701-722 Langues : Anglais (eng) Mots-clés : autism  ethics  risk communication Index. décimale : PER Périodiques Résumé : Autism spectrum disorders are an issue of increasing public health significance. The incidence of autism spectrum disorders has been increasing in recent years, and they are associated with significant personal and financial impacts for affected persons and their families. In recent years, a large number of scientific studies have been undertaken, which investigate genetic and environmental risk factors for autism, with more studies underway. At present, much remains unknown regarding autism spectrum disorder risk factors, but the emerging picture of causation is in many cases complex, with multiple genes and gene–environment interactions being at play. The complexity and uncertainty surrounding autism spectrum disorder risk factors raise a number of questions regarding the ethical considerations that should be taken into account when undertaking autism spectrum disorder risk communication. At present, however, little has been written regarding autism spectrum disorder risk communication and ethics. This article summarizes the findings of a recent conference investigating ethical considerations and policy recommendations in autism spectrum disorder risk communication, which to the authors’ knowledge is the first of its kind. Here, the authors discuss a number of issues, including uncertainty; comprehension; inadvertent harm; justice; and the appropriate roles of clinicians, scientists, and the media in autism spectrum disorder risk communication. En ligne : http://dx.doi.org/10.1177/1362361312453511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218 [article] Priorities for autism spectrum disorder risk communication and ethics [Texte imprimé et/ou numérique] / Michael YUDELL, Auteur ; Holly K. TABOR, Auteur ; Geraldine DAWSON, Auteur ; John ROSSI, Auteur ; Craig J. NEWSCHAFFER, Auteur ; WORKING GROUP IN AUTISM RISK COMMUNICATION AND ETHICS 1,, Auteur . - 2013 . - p.701-722. Langues : Anglais (eng) in Autism > 17-6 (November 2013) . - p.701-722 Mots-clés : autism  ethics  risk communication Index. décimale : PER Périodiques Résumé : Autism spectrum disorders are an issue of increasing public health significance. The incidence of autism spectrum disorders has been increasing in recent years, and they are associated with significant personal and financial impacts for affected persons and their families. In recent years, a large number of scientific studies have been undertaken, which investigate genetic and environmental risk factors for autism, with more studies underway. At present, much remains unknown regarding autism spectrum disorder risk factors, but the emerging picture of causation is in many cases complex, with multiple genes and gene–environment interactions being at play. The complexity and uncertainty surrounding autism spectrum disorder risk factors raise a number of questions regarding the ethical considerations that should be taken into account when undertaking autism spectrum disorder risk communication. At present, however, little has been written regarding autism spectrum disorder risk communication and ethics. This article summarizes the findings of a recent conference investigating ethical considerations and policy recommendations in autism spectrum disorder risk communication, which to the authors’ knowledge is the first of its kind. Here, the authors discuss a number of issues, including uncertainty; comprehension; inadvertent harm; justice; and the appropriate roles of clinicians, scientists, and the media in autism spectrum disorder risk communication. En ligne : http://dx.doi.org/10.1177/1362361312453511 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=218

Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science / Elizabeth PELLICANO in Journal of Child Psychology and Psychiatry, 63-4 (April 2022)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 63-4 (April 2022) . - p.381-396 Titre : Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth PELLICANO, Auteur ; Jacquiline DEN HOUTING, Auteur Article en page(s) : p.381-396 Langues : Anglais (eng) Mots-clés : Autism  ethics  medical model  neurodiversity  social model of disability Index. décimale : PER Périodiques Résumé : Since its initial description, the concept of autism has been firmly rooted within the conventional medical paradigm of child psychiatry. Increasingly, there have been calls from the autistic community and, more recently, nonautistic researchers, to rethink the way in which autism science is framed and conducted. Neurodiversity, where autism is seen as one form of variation within a diversity of minds, has been proposed as a potential alternative paradigm. In this review, we concentrate on three major challenges to the conventional medical paradigm - an overfocus on deficits, an emphasis on the individual as opposed to their broader context and a narrowness of perspective - each of which necessarily constrains what we can know about autism and how we are able to know it. We then outline the ways in which fundamental elements of the neurodiversity paradigm can potentially help researchers respond to the medical model's limitations. We conclude by considering the implications of a shift towards the neurodiversity paradigm for autism science. En ligne : http://dx.doi.org/10.1111/jcpp.13534 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Annual Research Review: Shifting from 'normal science' to neurodiversity in autism science [Texte imprimé et/ou numérique] / Elizabeth PELLICANO, Auteur ; Jacquiline DEN HOUTING, Auteur . - p.381-396. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 63-4 (April 2022) . - p.381-396 Mots-clés : Autism  ethics  medical model  neurodiversity  social model of disability Index. décimale : PER Périodiques Résumé : Since its initial description, the concept of autism has been firmly rooted within the conventional medical paradigm of child psychiatry. Increasingly, there have been calls from the autistic community and, more recently, nonautistic researchers, to rethink the way in which autism science is framed and conducted. Neurodiversity, where autism is seen as one form of variation within a diversity of minds, has been proposed as a potential alternative paradigm. In this review, we concentrate on three major challenges to the conventional medical paradigm - an overfocus on deficits, an emphasis on the individual as opposed to their broader context and a narrowness of perspective - each of which necessarily constrains what we can know about autism and how we are able to know it. We then outline the ways in which fundamental elements of the neurodiversity paradigm can potentially help researchers respond to the medical model's limitations. We conclude by considering the implications of a shift towards the neurodiversity paradigm for autism science. En ligne : http://dx.doi.org/10.1111/jcpp.13534 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Attitudes of the autism community to early autism research / Sue FLETCHER-WATSON in Autism, 21-1 (January 2017)  

Public ISBD [article]  inAutism > 21-1 (January 2017) . - p.61-74 Titre : Attitudes of the autism community to early autism research Type de document : Texte imprimé et/ou numérique Auteurs : Sue FLETCHER-WATSON, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; Št?pánka BERANOVÁ, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; Inês C CONCEIÇÃO, Auteur ; Kim DAVIES, Auteur ; Teresa FARRONI, Auteur ; Marie GOMOT, Auteur ; Emily JONES, Auteur ; Anett KAALE, Auteur ; Katarzyna KAPICA, Auteur ; Rafal KAWA, Auteur ; Anneli KYLLIAINEN, Auteur ; Kenneth LARSEN, Auteur ; Jeremy LEFORT-BESNARD, Auteur ; Joëlle MALVY, Auteur ; Sara DIOS MANSO DE, Auteur ; Silvana MARKOVSKA-SIMOSKA, Auteur ; Inbal MILLO, Auteur ; Natercia MIRANDA, Auteur ; Greg PASCO, Auteur ; Ewa PISULA, Auteur ; Marija RALEVA, Auteur ; Bernadette ROGE, Auteur ; Erica SALOMONE, Auteur ; Synnve SCHJØLBERG, Auteur ; Przemys?aw TOMALSKI, Auteur ; Astrid M VICENTE, Auteur ; Nurit YIRMIYA, Auteur Article en page(s) : p.61-74 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  development  ethics  infancy  public engagement Index. décimale : PER Périodiques Résumé : Investigation into the earliest signs of autism in infants has become a significant sub-field of autism research. This work invokes specific ethical concerns such as use of ‘at-risk’ language, communicating study findings to parents and the future perspective of enrolled infants when they reach adulthood. This study aimed to ground this research field in an understanding of the perspectives of members of the autism community. Following focus groups to identify topics, an online survey was distributed to autistic adults, parents of children with autism and practitioners in health and education settings across 11 European countries. Survey respondents (n?=?2317) were positively disposed towards early autism research, and there was significant overlap in their priorities for the field and preferred language to describe infant research participants. However, there were also differences including overall less favourable endorsement of early autism research by autistic adults relative to other groups and a dislike of the phrase ‘at-risk’ to describe infant participants, in all groups except healthcare practitioners. The findings overall indicate that the autism community in Europe is supportive of early autism research. Researchers should endeavour to maintain this by continuing to take community perspectives into account. En ligne : http://dx.doi.org/10.1177/1362361315626577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 [article] Attitudes of the autism community to early autism research [Texte imprimé et/ou numérique] / Sue FLETCHER-WATSON, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; Št?pánka BERANOVÁ, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; Inês C CONCEIÇÃO, Auteur ; Kim DAVIES, Auteur ; Teresa FARRONI, Auteur ; Marie GOMOT, Auteur ; Emily JONES, Auteur ; Anett KAALE, Auteur ; Katarzyna KAPICA, Auteur ; Rafal KAWA, Auteur ; Anneli KYLLIAINEN, Auteur ; Kenneth LARSEN, Auteur ; Jeremy LEFORT-BESNARD, Auteur ; Joëlle MALVY, Auteur ; Sara DIOS MANSO DE, Auteur ; Silvana MARKOVSKA-SIMOSKA, Auteur ; Inbal MILLO, Auteur ; Natercia MIRANDA, Auteur ; Greg PASCO, Auteur ; Ewa PISULA, Auteur ; Marija RALEVA, Auteur ; Bernadette ROGE, Auteur ; Erica SALOMONE, Auteur ; Synnve SCHJØLBERG, Auteur ; Przemys?aw TOMALSKI, Auteur ; Astrid M VICENTE, Auteur ; Nurit YIRMIYA, Auteur . - p.61-74. Langues : Anglais (eng) in Autism > 21-1 (January 2017) . - p.61-74 Mots-clés : autism spectrum disorder  development  ethics  infancy  public engagement Index. décimale : PER Périodiques Résumé : Investigation into the earliest signs of autism in infants has become a significant sub-field of autism research. This work invokes specific ethical concerns such as use of ‘at-risk’ language, communicating study findings to parents and the future perspective of enrolled infants when they reach adulthood. This study aimed to ground this research field in an understanding of the perspectives of members of the autism community. Following focus groups to identify topics, an online survey was distributed to autistic adults, parents of children with autism and practitioners in health and education settings across 11 European countries. Survey respondents (n?=?2317) were positively disposed towards early autism research, and there was significant overlap in their priorities for the field and preferred language to describe infant research participants. However, there were also differences including overall less favourable endorsement of early autism research by autistic adults relative to other groups and a dislike of the phrase ‘at-risk’ to describe infant participants, in all groups except healthcare practitioners. The findings overall indicate that the autism community in Europe is supportive of early autism research. Researchers should endeavour to maintain this by continuing to take community perspectives into account. En ligne : http://dx.doi.org/10.1177/1362361315626577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297

Autism Scientists' Reflections on the Opportunities and Challenges of Public Engagement: A Qualitative Analysis / G. HOLLIN in Journal of Autism and Developmental Disorders, 49-3 (March 2019)  

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Bridging autism, science and society: moving toward an ethically informed approach to autism research / Elizabeth PELLICANO in Autism Research, 4-4 (August 2011)  

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Ethical Considerations in Conducting Research on Autism Spectrum Disorders in Low and Middle Income Countries / Tamara C. DALEY in Journal of Autism and Developmental Disorders, 43-9 (September 2013)  

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Ethical dimensions of translational developmental neuroscience research in autism / A. MANZINI in Journal of Child Psychology and Psychiatry, 62-11 (November 2021)  

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Ethical Issues in Early Intervention / Alan POLING

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