Brief Report: Gender-Based Stereotypical Roles of Parents Caring for Autistic Children in Nigeria and South Africa / Olivia J. LINDLY ; Berrington NTOMBELA ; Caroll HERMANN in Journal of Autism and Developmental Disorders, 53-12 (December 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-12 (December 2023) . - p.4917-4928 Titre : Brief Report: Gender-Based Stereotypical Roles of Parents Caring for Autistic Children in Nigeria and South Africa Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Berrington NTOMBELA, Auteur ; Caroll HERMANN, Auteur Article en page(s) : p.4917-4928 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : In Nigeria and South Africa, women often have less voice and are less visible given cultural norms and related gender stereotypes. It is important to understand parents' gender roles in the context of caregiving for children with autism spectrum disorder because inequality in caregiving roles may influence the health of children with autism and that of their parents. We explored the lived caregiving experiences of male and female parents with autistic children in Nigeria (n=15) and South Africa (n=10) using structured and unstructured questionnaire. Results showed that women often experienced stress in relationship to multiple and substantial caregiving roles while men commonly limited their caregiving roles based on a patriarchal ideology related to their culture. En ligne : https://doi.org/10.1007/s10803-022-05582-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=515 [article] Brief Report: Gender-Based Stereotypical Roles of Parents Caring for Autistic Children in Nigeria and South Africa [texte imprimé] / Olivia J. LINDLY, Auteur ; Berrington NTOMBELA, Auteur ; Caroll HERMANN, Auteur . - p.4917-4928. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-12 (December 2023) . - p.4917-4928 Index. décimale : PER Périodiques Résumé : In Nigeria and South Africa, women often have less voice and are less visible given cultural norms and related gender stereotypes. It is important to understand parents' gender roles in the context of caregiving for children with autism spectrum disorder because inequality in caregiving roles may influence the health of children with autism and that of their parents. We explored the lived caregiving experiences of male and female parents with autistic children in Nigeria (n=15) and South Africa (n=10) using structured and unstructured questionnaire. Results showed that women often experienced stress in relationship to multiple and substantial caregiving roles while men commonly limited their caregiving roles based on a patriarchal ideology related to their culture. En ligne : https://doi.org/10.1007/s10803-022-05582-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=515

Healthcare access and services use among US children with autism spectrum disorder / Olivia J. LINDLY in Autism, 23-6 (August 2019)  

Public ISBD [article]  inAutism > 23-6 (August 2019) . - p.1419-1430 Titre : Healthcare access and services use among US children with autism spectrum disorder Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.1419-1430 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  emergency medical services  ethnicity  health services accessibility  healthcare disparities  preventive health services  race  socioeconomic status Index. décimale : PER Périodiques Résumé : This study aimed to determine associations of healthcare access problems with services use among US children with autism spectrum disorder. We analyzed 2011-2014 National Health Interview Survey data on 651 children with autism spectrum disorder aged 2-17 years. There were three measures of healthcare access problems: (1) delays accessing healthcare, (2) difficulty affording healthcare, and (3) trouble finding a primary care provider. There were five service use measures: (1) 4 office visits, (2) 1 well-child visit, (3) flu vaccine, (4) prescription medication, and (5) 1 emergency department visit. Multivariable regression models estimated associations of 1 healthcare access problem with each service use variable and effect modification by socioeconomic status and race and ethnicity. Twenty-nine percent of children with autism spectrum disorder had 1 healthcare access problem. Having 1 healthcare access problem was associated with lower adjusted odds of 1 well-child visit or prescription medication use but higher adjusted odds of 4 office visits or 1 emergency department visit. No significant association was found for flu vaccine. Associations of healthcare access problems with emergency department use were most pronounced for higher socioeconomic status and White, non-Hispanic subgroups. Intervention, such as insurance expansion, is needed to improve healthcare access for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318815237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403 [article] Healthcare access and services use among US children with autism spectrum disorder [texte imprimé] / Olivia J. LINDLY, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Karen A. KUHLTHAU, Auteur . - p.1419-1430. Langues : Anglais (eng) in Autism > 23-6 (August 2019) . - p.1419-1430 Mots-clés : autism spectrum disorder  emergency medical services  ethnicity  health services accessibility  healthcare disparities  preventive health services  race  socioeconomic status Index. décimale : PER Périodiques Résumé : This study aimed to determine associations of healthcare access problems with services use among US children with autism spectrum disorder. We analyzed 2011-2014 National Health Interview Survey data on 651 children with autism spectrum disorder aged 2-17 years. There were three measures of healthcare access problems: (1) delays accessing healthcare, (2) difficulty affording healthcare, and (3) trouble finding a primary care provider. There were five service use measures: (1) 4 office visits, (2) 1 well-child visit, (3) flu vaccine, (4) prescription medication, and (5) 1 emergency department visit. Multivariable regression models estimated associations of 1 healthcare access problem with each service use variable and effect modification by socioeconomic status and race and ethnicity. Twenty-nine percent of children with autism spectrum disorder had 1 healthcare access problem. Having 1 healthcare access problem was associated with lower adjusted odds of 1 well-child visit or prescription medication use but higher adjusted odds of 4 office visits or 1 emergency department visit. No significant association was found for flu vaccine. Associations of healthcare access problems with emergency department use were most pronounced for higher socioeconomic status and White, non-Hispanic subgroups. Intervention, such as insurance expansion, is needed to improve healthcare access for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318815237 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=403

"I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611 Titre : "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children Type de document : texte imprimé Auteurs : Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur Article en page(s) : p.3598-3611 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/diagnosis/therapy  Child  Child, Preschool  Educational Status  Health Literacy  Humans  Parents/education  Autism  Children  Decision-making  Health literacy  Mixed methods  Parents  Services use  United States  interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] "I Don't Do Much Without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children [texte imprimé] / Olivia J. LINDLY, Auteur ; Jacqueline CABRAL, Auteur ; Ruqayah MOHAMMED, Auteur ; Ivonne GARBER, Auteur ; Kamila B. MISTRY, Auteur ; Karen A. KUHLTHAU, Auteur . - p.3598-3611. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3598-3611 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/diagnosis/therapy  Child  Child, Preschool  Educational Status  Health Literacy  Humans  Parents/education  Autism  Children  Decision-making  Health literacy  Mixed methods  Parents  Services use  United States  interests to disclose. Index. décimale : PER Périodiques Résumé : Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use. En ligne : http://dx.doi.org/10.1007/s10803-021-05240-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers / Nuri M. REYES in Research in Autism Spectrum Disorders, 51 (July 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 51 (July 2018) . - p.38-48 Titre : Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers Type de document : texte imprimé Auteurs : Nuri M. REYES, Auteur ; Olivia J. LINDLY, Auteur ; Alison E. CHAVEZ, Auteur ; Ann FOLAN, Auteur ; Kristy MACIAS, Auteur ; Kathryn A. SMITH, Auteur ; Ann REYNOLDS, Auteur ; Katharine E. ZUCKERMAN, Auteur Article en page(s) : p.38-48 Langues : Anglais (eng) Mots-clés : Autism  Maternal beliefs about ASD  Children  ASD severity  Intervention services use Index. décimale : PER Périodiques Résumé : Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD. En ligne : https://doi.org/10.1016/j.rasd.2018.04.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362 [article] Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers [texte imprimé] / Nuri M. REYES, Auteur ; Olivia J. LINDLY, Auteur ; Alison E. CHAVEZ, Auteur ; Ann FOLAN, Auteur ; Kristy MACIAS, Auteur ; Kathryn A. SMITH, Auteur ; Ann REYNOLDS, Auteur ; Katharine E. ZUCKERMAN, Auteur . - p.38-48. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 51 (July 2018) . - p.38-48 Mots-clés : Autism  Maternal beliefs about ASD  Children  ASD severity  Intervention services use Index. décimale : PER Périodiques Résumé : Variation in parental beliefs about Autism Spectrum Disorder (ASD) may impact subsequent service use profiles. This study aimed to examine (1) variation in beliefs about ASD among English language proficient White (EP-W) mothers, English language proficient Latino (EPL) mothers, and limited English language proficient Latino (LEP-L) mothers of children with ASD; (2) variation in beliefs about ASD in the context of the child's ASD severity, among EP White mothers, EP Latino others, and LEP Latino mothers; and (3) potential links between maternal beliefs about ASD and children's current ASD treatment. This multi-site study included 305 English or Spanish-speaking parents of children with ASD, ages 2–10 years, who completed a survey about their beliefs about their child's ASD, their child's ASD severity, and treatments used by their children. Results showed that mothers in the EP-W, EP-L, and LEP-L groups differed in their beliefs about viewing ASD as a mystery. Only maternal views of ASD severity in the EP-W group were linked to their beliefs about ASD. Finally, maternal beliefs about ASD having major consequences on their child's life, and ASD being a mystery were strongly associated with a child's use of ASD intervention services. These findings provide new knowledge of how maternal beliefs about ASD vary in linguistically diverse groups, how a child's ASD severity may influence such beliefs, and how maternal beliefs correlate with the amount of therapy children with ASD receive. Future research should address how these beliefs or views are formed, what factors influence them, or whether they are malleable. Understanding parents' beliefs or views of having a child with ASD can potentially help us increase use of ASD intervention services in families of children with ASD. En ligne : https://doi.org/10.1016/j.rasd.2018.04.001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=362

Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample / Katharine E. ZUCKERMAN in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3199-3209 Titre : Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample Type de document : texte imprimé Auteurs : Katharine E. ZUCKERMAN, Auteur ; Olivia J. LINDLY, Auteur ; Nuri M. REYES, Auteur ; Alison E. CHAVEZ, Auteur ; Maritza COBIAN, Auteur ; Kristy MACIAS, Auteur ; Ann REYNOLDS, Auteur ; Kahsi A. SMITH, Auteur Article en page(s) : p.3199-3209 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Developmental disability  Health care surveys  Healthcare disparities  Mental health services  Stigma Index. décimale : PER Périodiques Résumé : In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale's associations with service use may be useful to those attempting to measure or reduce ASD stigma. En ligne : http://dx.doi.org/10.1007/s10803-018-3586-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample [texte imprimé] / Katharine E. ZUCKERMAN, Auteur ; Olivia J. LINDLY, Auteur ; Nuri M. REYES, Auteur ; Alison E. CHAVEZ, Auteur ; Maritza COBIAN, Auteur ; Kristy MACIAS, Auteur ; Ann REYNOLDS, Auteur ; Kahsi A. SMITH, Auteur . - p.3199-3209. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-9 (September 2018) . - p.3199-3209 Mots-clés : Autism spectrum disorder  Developmental disability  Health care surveys  Healthcare disparities  Mental health services  Stigma Index. décimale : PER Périodiques Résumé : In this study we developed a brief, English/Spanish bilingual parent-reported scale of perceived community autism spectrum disorder (ASD) stigma and tested it in a multi-site sample of Latino and non-Latino white parents of children with ASD. Confirmatory factor analysis of the scale supported a single factor solution with 8 items showing good internal consistency. Regression modeling suggested that stigma score was associated with unmet ASD care needs but not therapy hours or therapy types. Child public insurance, parent nativity, number of children with ASD in the household, parent-reported ASD severity, and family structure, were associated with higher stigma score. The scale and the scale's associations with service use may be useful to those attempting to measure or reduce ASD stigma. En ligne : http://dx.doi.org/10.1007/s10803-018-3586-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

Parents' Use of Complementary Health Approaches for Young Children with Autism Spectrum Disorder / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

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Pediatricians' role in healthcare for Latino autistic children: Shared decision-making versus "You?ve got to do everything on your own" / Amber M. ANGELL in Autism, 27-8 (November 2023)  

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The impact of state policy on early autism diagnosis: A qualitative investigation / Olivia J. LINDLY in Autism, 29-8 (August 2025)  

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A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial / Karen A. KUHLTHAU in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

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Vision care among school-aged children with autism spectrum disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study / Olivia J. LINDLY in Autism, 25-3 (April 2021)  

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