Autistic Adults' Experiences of Diagnosis Disclosure / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Titre : Autistic Adults' Experiences of Diagnosis Disclosure Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur Année de publication : 2022 Article en page(s) : p.5301-5307 Langues : Anglais (eng) Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Autistic Adults' Experiences of Diagnosis Disclosure [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur . - 2022 . - p.5301-5307. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2984-2996 Titre : Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.2984-2996 Langues : Anglais (eng) Mots-clés : Adult  Australia  Autism Spectrum Disorder/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Communication  Humans  Surveys and Questionnaires  Adults  Autism  Diagnosis  Mixed-methods Index. décimale : PER Périodiques Résumé : Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics. En ligne : http://dx.doi.org/10.1007/s10803-021-05169-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 [article] Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.2984-2996. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2984-2996 Mots-clés : Adult  Australia  Autism Spectrum Disorder/diagnosis/psychology  Autistic Disorder/diagnosis/psychology  Communication  Humans  Surveys and Questionnaires  Adults  Autism  Diagnosis  Mixed-methods Index. décimale : PER Périodiques Résumé : Pathways to diagnosis in adulthood are poorly understood. Even less is known about undiagnosed adults who believe they may be autistic. This mixed-methods online survey examined adults' journeys from initial concern to receiving the diagnosis. Quantitative findings showed the diagnostic process to be highly heterogeneous. Qualitative analysis identified desires for explanation and support as motives for seeking diagnosis. Cost and fear of not being taken seriously were major barriers, echoed by qualitative responses that described the process as confusing, expensive and time-consuming. While most participants were satisfied with the diagnosis, their emotional reactions were complex. Findings support the need for thoroughly implementing national guidelines, and for improved knowledge and communication in mainstream clinicians encountering clients with possible autism characteristics. En ligne : http://dx.doi.org/10.1007/s10803-021-05169-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477

Diagnosis of autism in adulthood: A scoping review / Yunhe HUANG in Autism, 24-6 (August 2020)  

Public ISBD [article]  inAutism > 24-6 (August 2020) . - p.1311-1327 Titre : Diagnosis of autism in adulthood: A scoping review Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.1311-1327 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  carers  diagnosis  gender  health services  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : More adults are getting assessed for possible autism. Here, we give an overview on what is already known about autism diagnosis in adulthood and find areas that need more research. We divided results from the studies we found into six topics of (1) rates of autism in different groups; (2) the process of getting an autism diagnosis in adulthood; (3) gender; (4) personality traits, abilities and behaviours of diagnosed adults; (5) mental and physical health conditions that occur together with autism; and (6) how adults think and feel about being assessed and diagnosed. We found that adults often have strong emotions after being diagnosed, the process of getting a diagnosis can be unclear and different for everyone, and not many support services are available for adults. More research on diagnosing adults with intellectual disability, differences between early and late-diagnosed adults, and support after diagnosis would be useful. En ligne : http://dx.doi.org/10.1177/1362361320903128 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] Diagnosis of autism in adulthood: A scoping review [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.1311-1327. Langues : Anglais (eng) in Autism > 24-6 (August 2020) . - p.1311-1327 Mots-clés : adults  autism spectrum disorders  carers  diagnosis  gender  health services  psychiatric comorbidity Index. décimale : PER Périodiques Résumé : More adults are getting assessed for possible autism. Here, we give an overview on what is already known about autism diagnosis in adulthood and find areas that need more research. We divided results from the studies we found into six topics of (1) rates of autism in different groups; (2) the process of getting an autism diagnosis in adulthood; (3) gender; (4) personality traits, abilities and behaviours of diagnosed adults; (5) mental and physical health conditions that occur together with autism; and (6) how adults think and feel about being assessed and diagnosed. We found that adults often have strong emotions after being diagnosed, the process of getting a diagnosis can be unclear and different for everyone, and not many support services are available for adults. More research on diagnosing adults with intellectual disability, differences between early and late-diagnosed adults, and support after diagnosis would be useful. En ligne : http://dx.doi.org/10.1177/1362361320903128 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis / Yunhe HUANG in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1157-1170 Titre : A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.1157-1170 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families. En ligne : https://doi.org/10.1007/s10803-022-05828-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524 [article] A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.1157-1170. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-3 (March 2024) . - p.1157-1170 Index. décimale : PER Périodiques Résumé : Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults' post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families. En ligne : https://doi.org/10.1007/s10803-022-05828-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=524

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