Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder / F. SCIBELLI in Autism Research, 14-9 (September 2021)  

Public ISBD [article]  inAutism Research > 14-9 (September 2021) . - p.1935-1947 Titre : Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : F. SCIBELLI, Auteur ; E. FUCÀ, Auteur ; S. GUERRERA, Auteur ; E. LUPI, Auteur ; Paolo ALFIERI, Auteur ; G. VALERI, Auteur ; S. VICARI, Auteur Article en page(s) : p.1935-1947 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder/complications  Child  Female  Humans  Mothers  Parenting  Parents  Problem Behavior  Stress, Psychological/complications  adolescence  autism symptoms  cognitive  emotional and behavioral problems  maternal stress  parent mediated therapy  socio-demographic features Index. décimale : PER Périodiques Résumé : Parents of people with autism spectrum disorder experience both negative stressful and positive events. Several clinical and socio-demographic features of children on the autism spectrum have been associated with parenting stress in their families. However, there have been few studies that focus on adolescents and the role of cognitive impairment has rarely been addressed. The main aim of the present research is to explore associations between autism symptoms, cognitive impairment, emotional and behavioral problems, socio-demographic features, and maternal stress in a sample of young adolescents with Autism Spectrum Disorder with and without cognitive impairment. Cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Maternal education and occupation are only associated with maternal stress in the group with cognitive impairment, while maternal age is stress-associated in the group of adolescents without cognitive impairment. Age-related implications for intervention and future research directions are discussed. LAY SUMMARY: Parents of individuals on the autism spectrum are exposed to both negative stressful and enriching experiences during their parenthood. While the influence of several child characteristics and socio-demographic features on parental stress during childhood has been widely explored in past studies, studies on teenagers are limited. The aim of the present research is to explore the influence of several characteristics on maternal stress levels in families with teenagers on the autism spectrum. We found that cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Socio-demographic features are not associated with maternal stress. Broadly speaking, the subjective perception of parental distress in both groups is less related to teenagers' characteristics then the perception of having a difficult interaction with the teenagers. We divided our participants into two groups (one group with cognitive impairment and the other group without). We found that mothers of teenagers with cognitive impairment are generally more stressed compared to the other group. Furthermore, we confirm that emotional and behavioral problems seem to play a major role in maternal stress (especially in the group without cognitive impairment), while autism symptoms seem to play a minor role. Furthermore, we found that maternal education/occupation and maternal age are associated with maternal stress in the group with and the group without cognitive impairment respectively. This research highlights the association between several variables and stress in mothers of adolescents on the spectrum. Results are discussed in the framework of previous findings highlighting the lack of adequate care and support services for families, especially for those of adolescents on the spectrum with cognitive impairment. En ligne : http://dx.doi.org/10.1002/aur.2539 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] Clinical and individual features associated with maternal stress in young adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / F. SCIBELLI, Auteur ; E. FUCÀ, Auteur ; S. GUERRERA, Auteur ; E. LUPI, Auteur ; Paolo ALFIERI, Auteur ; G. VALERI, Auteur ; S. VICARI, Auteur . - p.1935-1947. Langues : Anglais (eng) in Autism Research > 14-9 (September 2021) . - p.1935-1947 Mots-clés : Adolescent  Autism Spectrum Disorder/complications  Child  Female  Humans  Mothers  Parenting  Parents  Problem Behavior  Stress, Psychological/complications  adolescence  autism symptoms  cognitive  emotional and behavioral problems  maternal stress  parent mediated therapy  socio-demographic features Index. décimale : PER Périodiques Résumé : Parents of people with autism spectrum disorder experience both negative stressful and positive events. Several clinical and socio-demographic features of children on the autism spectrum have been associated with parenting stress in their families. However, there have been few studies that focus on adolescents and the role of cognitive impairment has rarely been addressed. The main aim of the present research is to explore associations between autism symptoms, cognitive impairment, emotional and behavioral problems, socio-demographic features, and maternal stress in a sample of young adolescents with Autism Spectrum Disorder with and without cognitive impairment. Cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Maternal education and occupation are only associated with maternal stress in the group with cognitive impairment, while maternal age is stress-associated in the group of adolescents without cognitive impairment. Age-related implications for intervention and future research directions are discussed. LAY SUMMARY: Parents of individuals on the autism spectrum are exposed to both negative stressful and enriching experiences during their parenthood. While the influence of several child characteristics and socio-demographic features on parental stress during childhood has been widely explored in past studies, studies on teenagers are limited. The aim of the present research is to explore the influence of several characteristics on maternal stress levels in families with teenagers on the autism spectrum. We found that cognitive impairment and emotional and behavioral problems are associated with maternal stress, while autism symptoms seem to play a minor role. Socio-demographic features are not associated with maternal stress. Broadly speaking, the subjective perception of parental distress in both groups is less related to teenagers' characteristics then the perception of having a difficult interaction with the teenagers. We divided our participants into two groups (one group with cognitive impairment and the other group without). We found that mothers of teenagers with cognitive impairment are generally more stressed compared to the other group. Furthermore, we confirm that emotional and behavioral problems seem to play a major role in maternal stress (especially in the group without cognitive impairment), while autism symptoms seem to play a minor role. Furthermore, we found that maternal education/occupation and maternal age are associated with maternal stress in the group with and the group without cognitive impairment respectively. This research highlights the association between several variables and stress in mothers of adolescents on the spectrum. Results are discussed in the framework of previous findings highlighting the lack of adequate care and support services for families, especially for those of adolescents on the spectrum with cognitive impairment. En ligne : http://dx.doi.org/10.1002/aur.2539 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries / D. STEVANOVIC in Autism Research, 14-12 (December 2021)  

Public ISBD [article]  inAutism Research > 14-12 (December 2021) . - p.2544-2554 Titre : Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries Type de document : Texte imprimé et/ou numérique Auteurs : D. STEVANOVIC, Auteur ; F. COSTANZO, Auteur ; E. FUCÀ, Auteur ; G. VALERI, Auteur ; S. VICARI, Auteur ; Diana L. ROBINS, Auteur ; Maureen SAMMS-VAUGHAN, Auteur ; H. OZEK ERKURAN, Auteur ; F. YAYLACI, Auteur ; S. N. DESHPANDE, Auteur ; V. DESHMUKH, Auteur ; N. K. ARORA, Auteur ; Lilia ALBORES-GALLO, Auteur ; C. GARCÍA-LÓPEZ, Auteur ; G. GATICA-BAHAMONDE, Auteur ; M. GABUNIA, Auteur ; M. ZIRAKASHVILI, Auteur ; F. P. MACHADO, Auteur ; M. RADAN, Auteur ; Sayyed Ali SAMADI, Auteur ; T. H. TOH, Auteur ; W. GAYLE, Auteur ; L. BRENNAN, Auteur ; T. ZORCEC, Auteur ; Alejandra AUZA, Auteur ; M. DE JONGE, Auteur ; N. SHOQIRAT, Auteur ; A. MARINI, Auteur ; R. KNEZ, Auteur Article en page(s) : p.2544-2554 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Bayes Theorem  Child  Cross-Cultural Comparison  Humans  Psychometrics  United States  assessment  children  cross-cultural validity  differential item functioning Index. décimale : PER Périodiques Résumé : The Childhood Autism Rating Scale (CARS) is a simple and inexpensive tool for Autism spectrum disorder (ASD) assessments, with evidenced psychometric data from different countries. However, it is still unclear whether ASD symptoms are measured the same way across different societies and world regions with this tool, since data on its cross-cultural validity are lacking. This study evaluated the cross-cultural measurement invariance of the CARS among children with ASD from six countries, for whom data were aggregated from previous studies in India (n = 101), Jamaica (n = 139), Mexico (n = 72), Spain (n = 99), Turkey (n = 150), and the United States of America (n = 186). We analyzed the approximate measurement invariance based on Bayesian structural equation modeling. The model did not fit the data and its measurement invariance did not hold, with all items found non-invariant across the countries. Items related to social communication and interaction (i.e., relating to people, imitation, emotional response, and verbal and nonverbal communication) displayed lower levels of cross-country non-invariance compared to items about stereotyped behaviors/sensory sensitivity (i.e., body and object use, adaptation to change, or taste, smell, and touch response). This study found that the CARS may not provide cross-culturally valid ASD assessments. Thus, cross-cultural comparisons with the CARS should consider first which items operate differently across samples of interest, since its cross-cultural measurement non-invariance could be a source of cross-cultural variability in ASD presentations. Additional studies are needed before drawing valid recommendations in relation to the cultural sensitivity of particular items. En ligne : http://dx.doi.org/10.1002/aur.2586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 [article] Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries [Texte imprimé et/ou numérique] / D. STEVANOVIC, Auteur ; F. COSTANZO, Auteur ; E. FUCÀ, Auteur ; G. VALERI, Auteur ; S. VICARI, Auteur ; Diana L. ROBINS, Auteur ; Maureen SAMMS-VAUGHAN, Auteur ; H. OZEK ERKURAN, Auteur ; F. YAYLACI, Auteur ; S. N. DESHPANDE, Auteur ; V. DESHMUKH, Auteur ; N. K. ARORA, Auteur ; Lilia ALBORES-GALLO, Auteur ; C. GARCÍA-LÓPEZ, Auteur ; G. GATICA-BAHAMONDE, Auteur ; M. GABUNIA, Auteur ; M. ZIRAKASHVILI, Auteur ; F. P. MACHADO, Auteur ; M. RADAN, Auteur ; Sayyed Ali SAMADI, Auteur ; T. H. TOH, Auteur ; W. GAYLE, Auteur ; L. BRENNAN, Auteur ; T. ZORCEC, Auteur ; Alejandra AUZA, Auteur ; M. DE JONGE, Auteur ; N. SHOQIRAT, Auteur ; A. MARINI, Auteur ; R. KNEZ, Auteur . - p.2544-2554. Langues : Anglais (eng) in Autism Research > 14-12 (December 2021) . - p.2544-2554 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder  Bayes Theorem  Child  Cross-Cultural Comparison  Humans  Psychometrics  United States  assessment  children  cross-cultural validity  differential item functioning Index. décimale : PER Périodiques Résumé : The Childhood Autism Rating Scale (CARS) is a simple and inexpensive tool for Autism spectrum disorder (ASD) assessments, with evidenced psychometric data from different countries. However, it is still unclear whether ASD symptoms are measured the same way across different societies and world regions with this tool, since data on its cross-cultural validity are lacking. This study evaluated the cross-cultural measurement invariance of the CARS among children with ASD from six countries, for whom data were aggregated from previous studies in India (n = 101), Jamaica (n = 139), Mexico (n = 72), Spain (n = 99), Turkey (n = 150), and the United States of America (n = 186). We analyzed the approximate measurement invariance based on Bayesian structural equation modeling. The model did not fit the data and its measurement invariance did not hold, with all items found non-invariant across the countries. Items related to social communication and interaction (i.e., relating to people, imitation, emotional response, and verbal and nonverbal communication) displayed lower levels of cross-country non-invariance compared to items about stereotyped behaviors/sensory sensitivity (i.e., body and object use, adaptation to change, or taste, smell, and touch response). This study found that the CARS may not provide cross-culturally valid ASD assessments. Thus, cross-cultural comparisons with the CARS should consider first which items operate differently across samples of interest, since its cross-cultural measurement non-invariance could be a source of cross-cultural variability in ASD presentations. Additional studies are needed before drawing valid recommendations in relation to the cultural sensitivity of particular items. En ligne : http://dx.doi.org/10.1002/aur.2586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450

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