Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure / Steve LUKITO in Journal of Child Psychology and Psychiatry, 66-10 (October 2025)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 66-10 (October 2025) . - p.1577-1592 Titre : Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure Type de document : texte imprimé Auteurs : Steve LUKITO, Auteur ; Susie CHANDLER, Auteur ; Myrofora KAKOULIDOU, Auteur ; Kirsty GRIFFITHS, Auteur ; Anna WYATT, Auteur ; Eloise FUNNELL, Auteur ; Georgia PAVLOPOULOU, Auteur ; Sylvan BAKER, Auteur ; Daniel STAHL, Auteur ; Edmund SONUGA-BARKE, Auteur ; R. E. Star team THE, Auteur Article en page(s) : p.1577-1592 Langues : Anglais (eng) Mots-clés : Autism  attention-deficit/hyperactivity disorder  emotional burden  emotion dysregulation  psychometrics Index. décimale : PER Périodiques Résumé : Background Mental health problems are elevated in adolescents with ADHD and/or autism. Emotion regulation deficits (ERD) have been hypothesised as a key driver of such difficulties. The Regulating Emotions ? Strengthening Adolescent Resilience (RE-STAR) programme is examining an alternative pathway from neurodivergence to mental health problems, mediated by elevated emotional burden (EB) resulting from the interplay of increased exposure and an unusually intense emotional reaction to commonly upsetting events (CUEs). We present the development and application of the My Emotions in School Inventory (MESI), a self-report questionnaire co-produced with neurodivergent young people, focusing on EB in schools ? a setting thought to be of particular significance in this regard. Methods The MESI, containing 25 school-related CUEs rated on their frequency and the intensity of negative emotions they induce, was completed by secondary school students meeting symptom cut-offs on clinically validated scales of ADHD (n 100), autism (n 104), ADHD+autism (n 79) and neurotypical students (n 452). Psychometric properties were examined. The ability of the MESI to discriminate adolescents with ADHD and/or autism from neurotypical adolescents, and to predict depression and anxiety, independently of ERD, was explored. Results Adolescents in the ADHD and/or autism groups experienced higher CUE frequency and intensity of reaction than their neurotypical peers. Overall levels of EB, most robustly indexed by 24 MESI CUEs, were higher in the three neurodivergent groups, though they did not differ from each other. EB in the autism and ADHD groups was generated by distinctly different CUEs. EB and ERD each contributed independently to the prediction of higher depression or anxiety. Conclusions Our findings illustrate the potential value of the MESI as an instrument to measure the contribution of EB alongside ERD in relation to adolescent mental health risks in ADHD and/or autism. Future studies need to investigate its role longitudinally. En ligne : https://doi.org/10.1111/jcpp.70003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure [texte imprimé] / Steve LUKITO, Auteur ; Susie CHANDLER, Auteur ; Myrofora KAKOULIDOU, Auteur ; Kirsty GRIFFITHS, Auteur ; Anna WYATT, Auteur ; Eloise FUNNELL, Auteur ; Georgia PAVLOPOULOU, Auteur ; Sylvan BAKER, Auteur ; Daniel STAHL, Auteur ; Edmund SONUGA-BARKE, Auteur ; R. E. Star team THE, Auteur . - p.1577-1592. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 66-10 (October 2025) . - p.1577-1592 Mots-clés : Autism  attention-deficit/hyperactivity disorder  emotional burden  emotion dysregulation  psychometrics Index. décimale : PER Périodiques Résumé : Background Mental health problems are elevated in adolescents with ADHD and/or autism. Emotion regulation deficits (ERD) have been hypothesised as a key driver of such difficulties. The Regulating Emotions ? Strengthening Adolescent Resilience (RE-STAR) programme is examining an alternative pathway from neurodivergence to mental health problems, mediated by elevated emotional burden (EB) resulting from the interplay of increased exposure and an unusually intense emotional reaction to commonly upsetting events (CUEs). We present the development and application of the My Emotions in School Inventory (MESI), a self-report questionnaire co-produced with neurodivergent young people, focusing on EB in schools ? a setting thought to be of particular significance in this regard. Methods The MESI, containing 25 school-related CUEs rated on their frequency and the intensity of negative emotions they induce, was completed by secondary school students meeting symptom cut-offs on clinically validated scales of ADHD (n 100), autism (n 104), ADHD+autism (n 79) and neurotypical students (n 452). Psychometric properties were examined. The ability of the MESI to discriminate adolescents with ADHD and/or autism from neurotypical adolescents, and to predict depression and anxiety, independently of ERD, was explored. Results Adolescents in the ADHD and/or autism groups experienced higher CUE frequency and intensity of reaction than their neurotypical peers. Overall levels of EB, most robustly indexed by 24 MESI CUEs, were higher in the three neurodivergent groups, though they did not differ from each other. EB in the autism and ADHD groups was generated by distinctly different CUEs. EB and ERD each contributed independently to the prediction of higher depression or anxiety. Conclusions Our findings illustrate the potential value of the MESI as an instrument to measure the contribution of EB alongside ERD in relation to adolescent mental health risks in ADHD and/or autism. Future studies need to investigate its role longitudinally. En ligne : https://doi.org/10.1111/jcpp.70003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Research Review: Mechanisms of change and between-family differences in parenting interventions for children with ADHD - an individual participant data meta-analysis / Constantina PSYLLOU in Journal of Child Psychology and Psychiatry, 66-9 (September 2025)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 66-9 (September 2025) . - p.1304-1319 Titre : Research Review: Mechanisms of change and between-family differences in parenting interventions for children with ADHD - an individual participant data meta-analysis Type de document : texte imprimé Auteurs : Constantina PSYLLOU, Auteur ; Marjolein LUMAN, Auteur ; Barbara J. VAN DEN HOOFDAKKER, Auteur ; Saskia VAN DER OORD, Auteur ; Asma AGHEBATI, Auteur ; Bianca BOYER, Auteur ; Jan BUITELAAR, Auteur ; Andrea CHRONIS-TUSCANO, Auteur ; David DALEY, Auteur ; Tycho J. DEKKERS, Auteur ; George J. DUPAUL, Auteur ; Gregory A. FABIANO, Auteur ; Maite FERRIN, Auteur ; Nike FRANKE, Auteur ; Naama Gershy TSAHOR, Auteur ; Elizabeth HARVEY, Auteur ; Timo HENNIG, Auteur ; Sharonne HERBERT, Auteur ; Pieter J. HOEKSTRA, Auteur ; Lee KERN, Auteur ; Jennifer A. MAUTONE, Auteur ; Amori Yee MIKAMI, Auteur ; Sébastien NORMAND, Auteur ; Linda J. PFIFFNER, Auteur ; Shizuka SHIMABUKURO, Auteur ; Satyam Antonio SCHRAMM, Auteur ; Julie B. SCHWEITZER, Auteur ; Margaret H. SIBLEY, Auteur ; Edmund SONUGA-BARKE, Auteur ; Catherine THOMPSON, Auteur ; Margaret J. THOMPSON, Auteur ; Gail TRIPP, Auteur ; Carolyn WEBSTER-STRATTON, Auteur ; Yuhuan XIE, Auteur ; Patty LEIJTEN, Auteur ; Annabeth P. GROENMAN, Auteur Article en page(s) : p.1304-1319 Langues : Anglais (eng) Mots-clés : Parent training  ADHD  parenting  meta-analysis  structural equation modelling Index. décimale : PER Périodiques Résumé : Background Understanding the mechanisms of change and between-family differences in behavioural parenting interventions for children with attention-deficit/hyperactivity disorder (ADHD) may help personalise interventions. Therefore, we examined whether improvements in parenting are associated with changes in child behaviour and functional outcomes, and how these associations vary based on parents' baseline parenting levels. Methods We collected individual participant data including 19 randomised controlled trials focusing on children with ADHD (n 1,720). Immediate post-intervention measures of child ADHD and oppositional behaviour severity, reported by parents and functional impairment reported by either the parent or probably masked clinicians, were treated as outcomes. We estimated pathways from intervention (vs. control) to child outcomes, via immediate post-intervention parent reports of constructive parenting (e.g. praise), non-constructive parenting (e.g. physical punishment) and parent?child affection (e.g. warmth), while controlling for baseline values of both child outcomes and parenting levels. Baseline values of each parenting variable were used as moderators of the mediated pathways. Results Improvements in parenting behaviours and parent?child affection immediately following the intervention jointly explained concurrent improvements in children's ADHD severity, oppositional behaviour and functional impairment. Furthermore, when reversing the direction of the pathways, improvements in all child outcomes jointly explained improvements in each aspect of parenting. Improvements in non-constructive parenting and parent?child affection uniquely accounted for intervention effects on functional impairment, especially for families with higher baseline levels of non-constructive parenting. Conclusions Our findings might indicate that improvements in both the behavioural and affective aspects of parenting are associated with concurrent reductions in child behaviour problems and functional impairment. However, more research is necessary to explore the potential causal directionality between parenting and child outcomes. Nonetheless, supporting families with poorer parenting skills may be especially important, as reductions in non-constructive parenting in these families are linked to stronger treatment effects on child functional impairment. En ligne : https://doi.org/10.1111/jcpp.14120 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566 [article] Research Review: Mechanisms of change and between-family differences in parenting interventions for children with ADHD - an individual participant data meta-analysis [texte imprimé] / Constantina PSYLLOU, Auteur ; Marjolein LUMAN, Auteur ; Barbara J. VAN DEN HOOFDAKKER, Auteur ; Saskia VAN DER OORD, Auteur ; Asma AGHEBATI, Auteur ; Bianca BOYER, Auteur ; Jan BUITELAAR, Auteur ; Andrea CHRONIS-TUSCANO, Auteur ; David DALEY, Auteur ; Tycho J. DEKKERS, Auteur ; George J. DUPAUL, Auteur ; Gregory A. FABIANO, Auteur ; Maite FERRIN, Auteur ; Nike FRANKE, Auteur ; Naama Gershy TSAHOR, Auteur ; Elizabeth HARVEY, Auteur ; Timo HENNIG, Auteur ; Sharonne HERBERT, Auteur ; Pieter J. HOEKSTRA, Auteur ; Lee KERN, Auteur ; Jennifer A. MAUTONE, Auteur ; Amori Yee MIKAMI, Auteur ; Sébastien NORMAND, Auteur ; Linda J. PFIFFNER, Auteur ; Shizuka SHIMABUKURO, Auteur ; Satyam Antonio SCHRAMM, Auteur ; Julie B. SCHWEITZER, Auteur ; Margaret H. SIBLEY, Auteur ; Edmund SONUGA-BARKE, Auteur ; Catherine THOMPSON, Auteur ; Margaret J. THOMPSON, Auteur ; Gail TRIPP, Auteur ; Carolyn WEBSTER-STRATTON, Auteur ; Yuhuan XIE, Auteur ; Patty LEIJTEN, Auteur ; Annabeth P. GROENMAN, Auteur . - p.1304-1319. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 66-9 (September 2025) . - p.1304-1319 Mots-clés : Parent training  ADHD  parenting  meta-analysis  structural equation modelling Index. décimale : PER Périodiques Résumé : Background Understanding the mechanisms of change and between-family differences in behavioural parenting interventions for children with attention-deficit/hyperactivity disorder (ADHD) may help personalise interventions. Therefore, we examined whether improvements in parenting are associated with changes in child behaviour and functional outcomes, and how these associations vary based on parents' baseline parenting levels. Methods We collected individual participant data including 19 randomised controlled trials focusing on children with ADHD (n 1,720). Immediate post-intervention measures of child ADHD and oppositional behaviour severity, reported by parents and functional impairment reported by either the parent or probably masked clinicians, were treated as outcomes. We estimated pathways from intervention (vs. control) to child outcomes, via immediate post-intervention parent reports of constructive parenting (e.g. praise), non-constructive parenting (e.g. physical punishment) and parent?child affection (e.g. warmth), while controlling for baseline values of both child outcomes and parenting levels. Baseline values of each parenting variable were used as moderators of the mediated pathways. Results Improvements in parenting behaviours and parent?child affection immediately following the intervention jointly explained concurrent improvements in children's ADHD severity, oppositional behaviour and functional impairment. Furthermore, when reversing the direction of the pathways, improvements in all child outcomes jointly explained improvements in each aspect of parenting. Improvements in non-constructive parenting and parent?child affection uniquely accounted for intervention effects on functional impairment, especially for families with higher baseline levels of non-constructive parenting. Conclusions Our findings might indicate that improvements in both the behavioural and affective aspects of parenting are associated with concurrent reductions in child behaviour problems and functional impairment. However, more research is necessary to explore the potential causal directionality between parenting and child outcomes. Nonetheless, supporting families with poorer parenting skills may be especially important, as reductions in non-constructive parenting in these families are linked to stronger treatment effects on child functional impairment. En ligne : https://doi.org/10.1111/jcpp.14120 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=566

What Is Distinctive About Autism Arising Following Severe Institutional Deprivation? A Direct Comparison With a Community Sample of Early Diagnosed Autistic People / Susie CHANDLER ; Mark KENNEDY ; Tony CHARMAN ; Emily SIMONOFF ; Edmund SONUGA-BARKE in Autism Research, 18-5 (May 2025)  

Public ISBD [article]  inAutism Research > 18-5 (May 2025) . - p.1062-1076 Titre : What Is Distinctive About Autism Arising Following Severe Institutional Deprivation? A Direct Comparison With a Community Sample of Early Diagnosed Autistic People Type de document : texte imprimé Auteurs : Susie CHANDLER, Auteur ; Mark KENNEDY, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur ; Edmund SONUGA-BARKE, Auteur Article en page(s) : p.1062-1076 Langues : Anglais (eng) Mots-clés : autism  early adversity  institutional deprivation  longitudinal  Romanian adoptees Index. décimale : PER Périodiques Résumé : ABSTRACT In the English and Romanian Adoptees study, a substantial proportion of adoptees who suffered extended severe deprivation (26 of 101) displayed autistic characteristics termed quasi-autism (QA). Here we directly compare this group with a community sample of early diagnosed autistic individuals (community autism; CA). First, we characterized the QA autism symptom profile (61.5% females) by calculating which of the 32 Social Communication Questionnaire (SCQ) items were statistically more common in the QA group than in a control group of 52 non-deprived UK adoptees (UK Control, 34.6% females) at ages 11, 15, and/or 23 years of age. The latent structure of these QA-characteristic items was explored using confirmatory factor analyses. Second, we compared the QA symptom profiles with CA profiles using a sample from the QUEST study (Salazar et al. 2015). To do this, we identified two QUEST groups, one aged 11 years on average (n 21) and one aged 15 years (n 24). The former were compared to ERA SCQ scores at age 11, and the latter at age 15. Nineteen SCQ items were statistically significantly more common in the QA group than in the ERA UK control group at ages 11 and 15. Ten differences persisted into adulthood. These QA-characteristic items ranged across and mapped onto all three standard SCQ domains (social reciprocity, communication, repetitive and stereotyped behaviors). The age 11 CA group scored higher than QA at 11 years across each subscale when all items were considered. However, when only QA-characteristic items were included, only scores for the Repetitive and Stereotyped subscale differentiated QA and CA. When the age 15 comparison was made, no differences were found between CA and QA subscales. QA and CA were associated with similar levels of emotional and conduct problems and overactivity/inattention levels. QA shared many features with CA. QA difficulties extended across all autism domains and were associated to a similar degree with emotional and behavioral problems. However, there were some distinctive elements. Compared to the classic autism profile, the communication domain mainly comprised persistent abnormalities of linguistic expression. In contrast, social reciprocity problems were diffuse, less severe, and declined over time. QA-characteristic repetitive and stereotyped behaviors are broadly expressed and endure into adulthood. En ligne : https://doi.org/10.1002/aur.70026 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] What Is Distinctive About Autism Arising Following Severe Institutional Deprivation? A Direct Comparison With a Community Sample of Early Diagnosed Autistic People [texte imprimé] / Susie CHANDLER, Auteur ; Mark KENNEDY, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur ; Edmund SONUGA-BARKE, Auteur . - p.1062-1076. Langues : Anglais (eng) in Autism Research > 18-5 (May 2025) . - p.1062-1076 Mots-clés : autism  early adversity  institutional deprivation  longitudinal  Romanian adoptees Index. décimale : PER Périodiques Résumé : ABSTRACT In the English and Romanian Adoptees study, a substantial proportion of adoptees who suffered extended severe deprivation (26 of 101) displayed autistic characteristics termed quasi-autism (QA). Here we directly compare this group with a community sample of early diagnosed autistic individuals (community autism; CA). First, we characterized the QA autism symptom profile (61.5% females) by calculating which of the 32 Social Communication Questionnaire (SCQ) items were statistically more common in the QA group than in a control group of 52 non-deprived UK adoptees (UK Control, 34.6% females) at ages 11, 15, and/or 23 years of age. The latent structure of these QA-characteristic items was explored using confirmatory factor analyses. Second, we compared the QA symptom profiles with CA profiles using a sample from the QUEST study (Salazar et al. 2015). To do this, we identified two QUEST groups, one aged 11 years on average (n 21) and one aged 15 years (n 24). The former were compared to ERA SCQ scores at age 11, and the latter at age 15. Nineteen SCQ items were statistically significantly more common in the QA group than in the ERA UK control group at ages 11 and 15. Ten differences persisted into adulthood. These QA-characteristic items ranged across and mapped onto all three standard SCQ domains (social reciprocity, communication, repetitive and stereotyped behaviors). The age 11 CA group scored higher than QA at 11 years across each subscale when all items were considered. However, when only QA-characteristic items were included, only scores for the Repetitive and Stereotyped subscale differentiated QA and CA. When the age 15 comparison was made, no differences were found between CA and QA subscales. QA and CA were associated with similar levels of emotional and conduct problems and overactivity/inattention levels. QA shared many features with CA. QA difficulties extended across all autism domains and were associated to a similar degree with emotional and behavioral problems. However, there were some distinctive elements. Compared to the classic autism profile, the communication domain mainly comprised persistent abnormalities of linguistic expression. In contrast, social reciprocity problems were diffuse, less severe, and declined over time. QA-characteristic repetitive and stereotyped behaviors are broadly expressed and endure into adulthood. En ligne : https://doi.org/10.1002/aur.70026 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

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