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Auteur Laura CRANE |
Documents disponibles écrits par cet auteur (33)
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Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews / Jade Eloise NORRIS in Autism, 24-6 (August 2020)
[article]
Titre : Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews Type de document : Texte imprimé et/ou numérique Auteurs : Jade Eloise NORRIS, Auteur ; Laura CRANE, Auteur ; Katie MARAS, Auteur Article en page(s) : p.1506-1520 Langues : Anglais (eng) Mots-clés : autism criminal justice system employment episodic healthcare interviewing memory preparation recall task support Index. décimale : PER Périodiques Résumé : During many types of interviews (e.g. in employment, with the police, and in healthcare), we need to recall detailed memories of specific events, which can be difficult for autistic people in response to commonly used questions. This is especially because these tend to be open questions (i.e. very broad). Autistic people have disproportionately high rates of physical and mental health conditions, are more likely to interact with police, and are the most underemployed disability group. However, interviewers are often unsure about how to adapt their communication for autistic people.Our research tested whether different types of prompts enabled autistic people to recall specific memories (memories of a single event within one day). Participants were asked about situations relating to witnessing a crime (e.g. at the bank), physical or mental health scenarios and employment interviews (e.g. a time you've met a deadline).We tested the following:Open questions: basic questions only (e.g. 'tell me about a time you went to the cinema'),Semantic prompting: a general prompt (e.g. 'do you enjoy going to the cinema?') before asking for a specific instance ('tell me about a time you went to the cinema?'),Visual-verbal prompting: asking participants to recall when it happened, who was there, the actions that occurred, the setting, and any objects.With visual-verbal prompting, autistic and typically developing participants' memories were more specific and detailed. Semantic prompting was also effective for employment questions. Our study shows that autistic people can recall specific memories when they are appropriately prompted. Visual-verbal prompting may be effective across different situations. En ligne : http://dx.doi.org/10.1177/1362361320909174 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
in Autism > 24-6 (August 2020) . - p.1506-1520[article] Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews [Texte imprimé et/ou numérique] / Jade Eloise NORRIS, Auteur ; Laura CRANE, Auteur ; Katie MARAS, Auteur . - p.1506-1520.
Langues : Anglais (eng)
in Autism > 24-6 (August 2020) . - p.1506-1520
Mots-clés : autism criminal justice system employment episodic healthcare interviewing memory preparation recall task support Index. décimale : PER Périodiques Résumé : During many types of interviews (e.g. in employment, with the police, and in healthcare), we need to recall detailed memories of specific events, which can be difficult for autistic people in response to commonly used questions. This is especially because these tend to be open questions (i.e. very broad). Autistic people have disproportionately high rates of physical and mental health conditions, are more likely to interact with police, and are the most underemployed disability group. However, interviewers are often unsure about how to adapt their communication for autistic people.Our research tested whether different types of prompts enabled autistic people to recall specific memories (memories of a single event within one day). Participants were asked about situations relating to witnessing a crime (e.g. at the bank), physical or mental health scenarios and employment interviews (e.g. a time you've met a deadline).We tested the following:Open questions: basic questions only (e.g. 'tell me about a time you went to the cinema'),Semantic prompting: a general prompt (e.g. 'do you enjoy going to the cinema?') before asking for a specific instance ('tell me about a time you went to the cinema?'),Visual-verbal prompting: asking participants to recall when it happened, who was there, the actions that occurred, the setting, and any objects.With visual-verbal prompting, autistic and typically developing participants' memories were more specific and detailed. Semantic prompting was also effective for employment questions. Our study shows that autistic people can recall specific memories when they are appropriately prompted. Visual-verbal prompting may be effective across different situations. En ligne : http://dx.doi.org/10.1177/1362361320909174 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428
[article]
Titre : Is autism linked to criminality? Type de document : Texte imprimé et/ou numérique Auteurs : Katie MARAS, Auteur ; Sue MULCAHY, Auteur ; Laura CRANE, Auteur Article en page(s) : p.515-516 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361315583411 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261
in Autism > 19-5 (July 2015) . - p.515-516[article] Is autism linked to criminality? [Texte imprimé et/ou numérique] / Katie MARAS, Auteur ; Sue MULCAHY, Auteur ; Laura CRANE, Auteur . - p.515-516.
Langues : Anglais (eng)
in Autism > 19-5 (July 2015) . - p.515-516
Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361315583411 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England / Jade DAVIES in Autism, 28-3 (March 2024)
[article]
Titre : 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England Type de document : Texte imprimé et/ou numérique Auteurs : Jade DAVIES, Auteur ; Anna REMINGTON, Auteur ; Carole BUCKLEY, Auteur ; Laura CRANE, Auteur ; Katelyn SMALLEY, Auteur Article en page(s) : p.656-673 Langues : Anglais (eng) Mots-clés : autism behavioural science health checks healthcare policy preventive care Index. décimale : PER Périodiques Résumé : Autistic people in England face worse health outcomes than non-autistic people. Autism-specific annual health checks have been proposed as one solution to this issue. This study identified strategies to incentivise primary care providers to offer autism-specific annual health checks, using a behavioural science approach. In phase 1, we conducted interviews and focus groups with autistic people (n = 10) and primary care providers (n = 11). In phase 2, we conducted a national survey of primary care providers (n = 196). Qualitative data were analysed using a framework method and the Theoretical Domains Framework. Quantitative data were analysed descriptively, and comparisons between sub-groups of survey respondents were made using Mann-Whitney U and Kruskal-Wallis tests. The most salient theoretical domain was environmental context and resources. Participants identified lack of time and staff as key barriers to implementation. Delegating tasks to non-physician practitioners and automating processes were seen as key facilitators. Autism-specific knowledge was another relevant domain; education produced and delivered by autistic people was posited to increase health check uptake and quality. Overall, participants were enthusiastic about autism-specific annual health checks but were concerned about the practical aspects of implementation. We identified specific barriers and facilitators that can be addressed prior to policy adoption to maximise chances of success. Lay abstract Autistic people are more likely to have mental and physical health problems than non-autistic people. Annual health checks could reduce these problems by finding and treating them early. Annual health checks are yearly medical appointments where a primary healthcare provider (such as a doctor or nurse) can check things like a patient?s weight and heart rate and ask if they have any worries about their health. In this study, we wanted to understand what might encourage primary healthcare providers to use annual health checks with their autistic patients. First, we spoke to 10 autistic people and 11 primary healthcare providers. Using the findings from these conversations, we created an online survey for primary healthcare providers in England. We used the findings from the interviews and survey to help us understand what would encourage primary healthcare providers to offer annual health checks for autistic people. Our participants said that a lack of time and staff would make it hard to provide health checks. To help, they said other members of staff (such as nurses and healthcare assistants) could do the health checks, rather than doctors. They also said parts of the process could be made automatic to save time (e.g. sending automatic reminders). Knowledge about autism was important too (e.g. knowing about the common conditions autistic people have, and how to best support autistic patients). Participants said training on these topics, produced and delivered with autistic people, could encourage them to use annual health checks with their autistic patients. En ligne : https://dx.doi.org/10.1177/13623613231182011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.656-673[article] 'It seems like a luxury to be able to offer that': Factors influencing the implementation of annual health checks for autistic people in England [Texte imprimé et/ou numérique] / Jade DAVIES, Auteur ; Anna REMINGTON, Auteur ; Carole BUCKLEY, Auteur ; Laura CRANE, Auteur ; Katelyn SMALLEY, Auteur . - p.656-673.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.656-673
Mots-clés : autism behavioural science health checks healthcare policy preventive care Index. décimale : PER Périodiques Résumé : Autistic people in England face worse health outcomes than non-autistic people. Autism-specific annual health checks have been proposed as one solution to this issue. This study identified strategies to incentivise primary care providers to offer autism-specific annual health checks, using a behavioural science approach. In phase 1, we conducted interviews and focus groups with autistic people (n = 10) and primary care providers (n = 11). In phase 2, we conducted a national survey of primary care providers (n = 196). Qualitative data were analysed using a framework method and the Theoretical Domains Framework. Quantitative data were analysed descriptively, and comparisons between sub-groups of survey respondents were made using Mann-Whitney U and Kruskal-Wallis tests. The most salient theoretical domain was environmental context and resources. Participants identified lack of time and staff as key barriers to implementation. Delegating tasks to non-physician practitioners and automating processes were seen as key facilitators. Autism-specific knowledge was another relevant domain; education produced and delivered by autistic people was posited to increase health check uptake and quality. Overall, participants were enthusiastic about autism-specific annual health checks but were concerned about the practical aspects of implementation. We identified specific barriers and facilitators that can be addressed prior to policy adoption to maximise chances of success. Lay abstract Autistic people are more likely to have mental and physical health problems than non-autistic people. Annual health checks could reduce these problems by finding and treating them early. Annual health checks are yearly medical appointments where a primary healthcare provider (such as a doctor or nurse) can check things like a patient?s weight and heart rate and ask if they have any worries about their health. In this study, we wanted to understand what might encourage primary healthcare providers to use annual health checks with their autistic patients. First, we spoke to 10 autistic people and 11 primary healthcare providers. Using the findings from these conversations, we created an online survey for primary healthcare providers in England. We used the findings from the interviews and survey to help us understand what would encourage primary healthcare providers to offer annual health checks for autistic people. Our participants said that a lack of time and staff would make it hard to provide health checks. To help, they said other members of staff (such as nurses and healthcare assistants) could do the health checks, rather than doctors. They also said parts of the process could be made automatic to save time (e.g. sending automatic reminders). Knowledge about autism was important too (e.g. knowing about the common conditions autistic people have, and how to best support autistic patients). Participants said training on these topics, produced and delivered with autistic people, could encourage them to use annual health checks with their autistic patients. En ligne : https://dx.doi.org/10.1177/13623613231182011 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 Letter to the Editor: A possible threat to data integrity for online qualitative autism research / Elizabeth PELLICANO in Autism, 28-3 (March 2024)
[article]
Titre : Letter to the Editor: A possible threat to data integrity for online qualitative autism research Type de document : Texte imprimé et/ou numérique Auteurs : Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur Article en page(s) : p.786-792 Langues : Anglais (eng) Mots-clés : fraud imposter research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
in Autism > 28-3 (March 2024) . - p.786-792[article] Letter to the Editor: A possible threat to data integrity for online qualitative autism research [Texte imprimé et/ou numérique] / Elizabeth PELLICANO, Auteur ; Dawn ADAMS, Auteur ; Laura CRANE, Auteur ; Calliope HOLLINGUE, Auteur ; Connie ALLEN, Auteur ; Katherine ALMENDINGER, Auteur ; Monique BOTHA, Auteur ; Tori HAAR, Auteur ; Steven K. KAPP, Auteur ; Elizabeth WHEELEY, Auteur . - p.786-792.
Langues : Anglais (eng)
in Autism > 28-3 (March 2024) . - p.786-792
Mots-clés : fraud imposter research participation Index. décimale : PER Périodiques Résumé : Researchers are increasingly relying on online methods for data collection, including for qualitative research involving interviews and focus groups. In this letter, we alert autism researchers to a possible threat to data integrity in such studies: "scammer" participants, who may be posing as autistic people and/or parents of autistic children in research studies, presumably for financial gain. Here, we caution qualitative autism researchers to be vigilant of potential scammer participants in their online studies and invite a broader discussion about the implications of such fraudulent acts. Lay abstract Doing research online, via Zoom, Teams, or live chat, is becoming more and more common. It can help researchers to reach more people, including from different parts of the world. It can also make the research more accessible for participants, especially those with different communication preferences. However, online research can have its downsides too. We have recently been involved in three studies in which we had in-depth discussions with autistic people and/or parents of autistic children about various topics. It turns out, though, that some of these participants were not genuine. Instead, we believe they were "scammer participants": people posing as autistic people or parents of autistic children, possibly to gain money from doing the research. This is a real problem because we need research data that we can trust. In this letter, we encourage autism researchers to be wary of scammer participants in their own research. En ligne : https://dx.doi.org/10.1177/13623613231174543 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523
[article]
Titre : Loneliness in autistic adults: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Kana UMAGAMI, Auteur ; Anna REMINGTON, Auteur ; Brynmor LLOYD-EVANS, Auteur ; Jade DAVIES, Auteur ; Laura CRANE, Auteur Article en page(s) : p.2117-2135 Langues : Anglais (eng) Mots-clés : Adult Child Humans Adolescent Loneliness Autistic Disorder/complications Autism Spectrum Disorder/complications Anxiety Surveys and Questionnaires adults autism relationships systematic review Index. décimale : PER Périodiques Résumé : Recently, researchers have been interested in how autistic people experience loneliness. Yet, most of this research has focused on loneliness in autistic children and young people. We present the results of a systematic review on loneliness in autistic adults. A systematic review is a rigorous way of searching for all existing research on a topic and summarizing the findings about specific questions. We searched for all research published on this topic until 9 April 2021. We found 34 articles that investigated loneliness in autistic adults. This research showed that (1) there is fairly little research that has involved directly asking autistic adults about their first-hand experiences of loneliness (e.g. what loneliness feels like for them); (2) few research studies have used loneliness questionnaires specifically developed for autistic adults (this was attempted in just one research study); (3) collective loneliness (i.e. loneliness associated with how much an autistic person feels they 'fit in' to society) seems important to autistic adults but has not been investigated as commonly as other aspects of loneliness (e.g. loneliness associated with romantic relationships or friendships); (4) things that might increase loneliness in autistic adults include anxiety and depression, and a lack of autism understanding and acceptance, for example; and (5) things that might reduce loneliness in autistic adults include having relationships and self-acceptance, for example. In our article, we discuss the kinds of future research on loneliness in autistic adults that might be useful. En ligne : http://dx.doi.org/10.1177/13623613221077721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488
in Autism > 26-8 (November 2022) . - p.2117-2135[article] Loneliness in autistic adults: A systematic review [Texte imprimé et/ou numérique] / Kana UMAGAMI, Auteur ; Anna REMINGTON, Auteur ; Brynmor LLOYD-EVANS, Auteur ; Jade DAVIES, Auteur ; Laura CRANE, Auteur . - p.2117-2135.
Langues : Anglais (eng)
in Autism > 26-8 (November 2022) . - p.2117-2135
Mots-clés : Adult Child Humans Adolescent Loneliness Autistic Disorder/complications Autism Spectrum Disorder/complications Anxiety Surveys and Questionnaires adults autism relationships systematic review Index. décimale : PER Périodiques Résumé : Recently, researchers have been interested in how autistic people experience loneliness. Yet, most of this research has focused on loneliness in autistic children and young people. We present the results of a systematic review on loneliness in autistic adults. A systematic review is a rigorous way of searching for all existing research on a topic and summarizing the findings about specific questions. We searched for all research published on this topic until 9 April 2021. We found 34 articles that investigated loneliness in autistic adults. This research showed that (1) there is fairly little research that has involved directly asking autistic adults about their first-hand experiences of loneliness (e.g. what loneliness feels like for them); (2) few research studies have used loneliness questionnaires specifically developed for autistic adults (this was attempted in just one research study); (3) collective loneliness (i.e. loneliness associated with how much an autistic person feels they 'fit in' to society) seems important to autistic adults but has not been investigated as commonly as other aspects of loneliness (e.g. loneliness associated with romantic relationships or friendships); (4) things that might increase loneliness in autistic adults include anxiety and depression, and a lack of autism understanding and acceptance, for example; and (5) things that might reduce loneliness in autistic adults include having relationships and self-acceptance, for example. In our article, we discuss the kinds of future research on loneliness in autistic adults that might be useful. En ligne : http://dx.doi.org/10.1177/13623613221077721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 Mock Juror Perceptions of Child Witnesses on the Autism Spectrum: The Impact of Providing Diagnostic Labels and Information About Autism / Laura CRANE in Journal of Autism and Developmental Disorders, 50-5 (May 2020)
PermalinkNeurodiversity and community-led rights-based movements: Barriers and opportunities for global research partnerships / Yulin CHENG in Autism, 27-3 (April 2023)
PermalinkPatterns of Autobiographical Memory in Adults with Autism Spectrum Disorder / Laura CRANE in Journal of Autism and Developmental Disorders, 42-10 (October 2012)
PermalinkPerceptions of autistic and non-autistic adults in employment interviews: The role of impression management / Jade Eloise NORRIS in Research in Autism Spectrum Disorders, 112 (April 2024)
PermalinkSensory processing in adults with autism spectrum disorders / Laura CRANE in Autism, 13-3 (May 2009)
PermalinkSupporting Minimally Verbal Autistic Girls with Intellectual Disabilities Through Puberty: Perspectives of Parents and Educators / Clare CUMMINS in Journal of Autism and Developmental Disorders, 50-7 (July 2020)
PermalinkSupporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme / Laura CRANE in Journal of Autism and Developmental Disorders, 51-3 (March 2021)
PermalinkThe Development and Feasibility Study of a Multimodal 'Talking Wall' to Facilitate the Voice of Young People with Autism and Complex Needs: A Case Study in a Specialist Residential School / Norah RICHARDS in Journal of Autism and Developmental Disorders, 50-12 (December 2020)
PermalinkTowards reproducible and respectful autism research: Combining open and participatory autism research practices / Hannah HOBSON in Research in Autism Spectrum Disorders, 106 (August 2023)
PermalinkVerbal, Visual, and Intermediary Support for Child Witnesses with Autism During Investigative Interviews / Lucy A. HENRY in Journal of Autism and Developmental Disorders, 47-8 (August 2017)
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