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Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder / Liezl SCHLEBUSCH in Journal of Autism and Developmental Disorders, 47-7 (July 2017)
[article]
Titre : Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Liezl SCHLEBUSCH, Auteur ; Shakila DADA, Auteur ; Alecia E. SAMUELS, Auteur Article en page(s) : p.1966-1977 Langues : Anglais (eng) Mots-clés : Appraisal of family income Autism Child characteristics Emotional well-being Family characteristics Unified theory of family quality of life Index. décimale : PER Périodiques Résumé : This article describes the family quality of life among families who are raising a young child with autism spectrum disorder. Survey research was conducted with 180 families of children with autism spectrum disorder who were receiving disability-related services in the Gauteng province of South Africa. The principle measure used was the Beach Center Family Quality of Life Scale to assess five subdomains: family interaction, parenting, emotional well-being, material/physical well-being, and disability-related support. Results indicated that families felt the most satisfied with disability-related support and the least satisfied with the family’s emotional well-being. Family income, family type, and the severity level of autism were significantly associated with how satisfied families felt about their quality of life. En ligne : https://doi.org/10.1007/s10803-017-3102-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=313
in Journal of Autism and Developmental Disorders > 47-7 (July 2017) . - p.1966-1977[article] Family Quality of Life of South African Families Raising Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Liezl SCHLEBUSCH, Auteur ; Shakila DADA, Auteur ; Alecia E. SAMUELS, Auteur . - p.1966-1977.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 47-7 (July 2017) . - p.1966-1977
Mots-clés : Appraisal of family income Autism Child characteristics Emotional well-being Family characteristics Unified theory of family quality of life Index. décimale : PER Périodiques Résumé : This article describes the family quality of life among families who are raising a young child with autism spectrum disorder. Survey research was conducted with 180 families of children with autism spectrum disorder who were receiving disability-related services in the Gauteng province of South Africa. The principle measure used was the Beach Center Family Quality of Life Scale to assess five subdomains: family interaction, parenting, emotional well-being, material/physical well-being, and disability-related support. Results indicated that families felt the most satisfied with disability-related support and the least satisfied with the family’s emotional well-being. Family income, family type, and the severity level of autism were significantly associated with how satisfied families felt about their quality of life. En ligne : https://doi.org/10.1007/s10803-017-3102-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=313 Patterns of intervention utilization among school-aged children on the autism spectrum: Findings from a multi-site research consortium / Aksheya SRIDHAR in Research in Autism Spectrum Disorders, 94 (June 2022)
[article]
Titre : Patterns of intervention utilization among school-aged children on the autism spectrum: Findings from a multi-site research consortium Type de document : Texte imprimé et/ou numérique Auteurs : Aksheya SRIDHAR, Auteur ; Jocelyn KUHN, Auteur ; Susan FAJA, Auteur ; Maura SABATOS-DEVITO, Auteur ; Julia I. NIKOLAEVA, Auteur ; Geraldine DAWSON, Auteur ; Charles A. NELSON, Auteur ; Sara J. WEBB, Auteur ; Raphael BERNIER, Auteur ; Shafali JESTE, Auteur ; Katarzyna CHAWARSKA, Auteur ; Catherine A. SUGAR, Auteur ; Frederick SHIC, Auteur ; Adam NAPLES, Auteur ; James DZIURA, Auteur ; James C. MCPARTLAND, Auteur ; THE A. B. C. C. T. CONSORTIUM, Auteur Article en page(s) : 101950 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Child characteristics Family characteristics Geographical location Intervention use Index. décimale : PER Périodiques Résumé : When designing and interpreting results from clinical trials evaluating treatments for children on the autism spectrum, a complicating factor is that most children receive a range of concurrent treatments. Thus, it is important to better understand the types and hours of interventions that participants typically receive as part of standard of care, as well as to understand the child, family, and geographic factors that are associated with different patterns of service utilization. In this multi-site study, we interviewed 280 caregivers of 6-to-11-year-old school-aged children on the autism spectrum about the types and amounts of interventions their children received in the prior 6 weeks. Reported interventions were coded as ?evidence-based practice? or ?other interventions,? reflecting the level of empirical support. Results indicated that children received a variety of interventions with varying levels of empirical evidence and a wide range of hours (0?79.3 h/week). Children with higher autism symptom levels, living in particular states, and who identified as non-Hispanic received more evidence-based intervention hours. Higher parental education level related to more hours of other interventions. Children who were younger, had lower cognitive ability, and with higher autism symptom levels received a greater variety of interventions overall. Thus, based on our findings, it would seem prudent when designing clinical trials to take into consideration a variety of factors including autism symptom levels, age, cognitive ability, ethnicity, parent education and geographic location. Future research should continue to investigate the ethnic, racial, and socioeconomic influences on school-aged intervention services. En ligne : https://doi.org/10.1016/j.rasd.2022.101950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476
in Research in Autism Spectrum Disorders > 94 (June 2022) . - 101950[article] Patterns of intervention utilization among school-aged children on the autism spectrum: Findings from a multi-site research consortium [Texte imprimé et/ou numérique] / Aksheya SRIDHAR, Auteur ; Jocelyn KUHN, Auteur ; Susan FAJA, Auteur ; Maura SABATOS-DEVITO, Auteur ; Julia I. NIKOLAEVA, Auteur ; Geraldine DAWSON, Auteur ; Charles A. NELSON, Auteur ; Sara J. WEBB, Auteur ; Raphael BERNIER, Auteur ; Shafali JESTE, Auteur ; Katarzyna CHAWARSKA, Auteur ; Catherine A. SUGAR, Auteur ; Frederick SHIC, Auteur ; Adam NAPLES, Auteur ; James DZIURA, Auteur ; James C. MCPARTLAND, Auteur ; THE A. B. C. C. T. CONSORTIUM, Auteur . - 101950.
Langues : Anglais (eng)
in Research in Autism Spectrum Disorders > 94 (June 2022) . - 101950
Mots-clés : Autism spectrum disorder Child characteristics Family characteristics Geographical location Intervention use Index. décimale : PER Périodiques Résumé : When designing and interpreting results from clinical trials evaluating treatments for children on the autism spectrum, a complicating factor is that most children receive a range of concurrent treatments. Thus, it is important to better understand the types and hours of interventions that participants typically receive as part of standard of care, as well as to understand the child, family, and geographic factors that are associated with different patterns of service utilization. In this multi-site study, we interviewed 280 caregivers of 6-to-11-year-old school-aged children on the autism spectrum about the types and amounts of interventions their children received in the prior 6 weeks. Reported interventions were coded as ?evidence-based practice? or ?other interventions,? reflecting the level of empirical support. Results indicated that children received a variety of interventions with varying levels of empirical evidence and a wide range of hours (0?79.3 h/week). Children with higher autism symptom levels, living in particular states, and who identified as non-Hispanic received more evidence-based intervention hours. Higher parental education level related to more hours of other interventions. Children who were younger, had lower cognitive ability, and with higher autism symptom levels received a greater variety of interventions overall. Thus, based on our findings, it would seem prudent when designing clinical trials to take into consideration a variety of factors including autism symptom levels, age, cognitive ability, ethnicity, parent education and geographic location. Future research should continue to investigate the ethnic, racial, and socioeconomic influences on school-aged intervention services. En ligne : https://doi.org/10.1016/j.rasd.2022.101950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 How developmental neuroscience can help address the problem of child poverty / Seth D. POLLAK in Development and Psychopathology, 32-5 (December 2020)
[article]
Titre : How developmental neuroscience can help address the problem of child poverty Type de document : Texte imprimé et/ou numérique Auteurs : Seth D. POLLAK, Auteur ; Barbara L. WOLFE, Auteur Article en page(s) : p.1640-1656 Langues : Anglais (eng) Mots-clés : Child *Family Family Characteristics Humans Income Infant *Poverty Socioeconomic Factors United States *brain *child poverty *development *socioeconomic status Index. décimale : PER Périodiques Résumé : Nearly 1 in 5 children in the United States lives in a household whose income is below the official federal poverty line, and more than 40% of children live in poor or near-poor households. Research on the effects of poverty on children's development has been a focus of study for many decades and is now increasing as we accumulate more evidence about the implications of poverty. The American Academy of Pediatrics recently added "Poverty and Child Health" to its Agenda for Children to recognize what has now been established as broad and enduring effects of poverty on child development. A recent addition to the field has been the application of neuroscience-based methods. Various techniques including neuroimaging, neuroendocrinology, cognitive psychophysiology, and epigenetics are beginning to document ways in which early experiences of living in poverty affect infant brain development. We discuss whether there are truly worthwhile reasons for adding neuroscience and related biological methods to study child poverty, and how might these perspectives help guide developmentally based and targeted interventions and policies for these children and their families. En ligne : http://dx.doi.org/10.1017/s0954579420001145 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437
in Development and Psychopathology > 32-5 (December 2020) . - p.1640-1656[article] How developmental neuroscience can help address the problem of child poverty [Texte imprimé et/ou numérique] / Seth D. POLLAK, Auteur ; Barbara L. WOLFE, Auteur . - p.1640-1656.
Langues : Anglais (eng)
in Development and Psychopathology > 32-5 (December 2020) . - p.1640-1656
Mots-clés : Child *Family Family Characteristics Humans Income Infant *Poverty Socioeconomic Factors United States *brain *child poverty *development *socioeconomic status Index. décimale : PER Périodiques Résumé : Nearly 1 in 5 children in the United States lives in a household whose income is below the official federal poverty line, and more than 40% of children live in poor or near-poor households. Research on the effects of poverty on children's development has been a focus of study for many decades and is now increasing as we accumulate more evidence about the implications of poverty. The American Academy of Pediatrics recently added "Poverty and Child Health" to its Agenda for Children to recognize what has now been established as broad and enduring effects of poverty on child development. A recent addition to the field has been the application of neuroscience-based methods. Various techniques including neuroimaging, neuroendocrinology, cognitive psychophysiology, and epigenetics are beginning to document ways in which early experiences of living in poverty affect infant brain development. We discuss whether there are truly worthwhile reasons for adding neuroscience and related biological methods to study child poverty, and how might these perspectives help guide developmentally based and targeted interventions and policies for these children and their families. En ligne : http://dx.doi.org/10.1017/s0954579420001145 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder / Cathina T. NGUYEN in Journal of Autism and Developmental Disorders, 46-12 (December 2016)
[article]
Titre : Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Cathina T. NGUYEN, Auteur ; Paula KRAKOWIAK, Auteur ; Robin HANSEN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Kathleen ANGKUSTSIRI, Auteur Article en page(s) : p.3729-3738 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Intervention services Utilization Family characteristics Index. décimale : PER Périodiques Résumé : This study investigates whether sociodemographic factors are associated with utilization of intervention services for children with autism spectrum disorder (ASD) enrolled in the Childhood Autism Risks from Genetics and the Environment Study. Maternal ethnicity, insurance status, and education for 696 families of children with ASD were available. Children of Black mothers entered intervention earlier compared to White mothers (2 vs. 2.6 years; p?=?0.001). Having public insurance was associated with receiving <15 h/week of individual services, while having a Bachelor degree was associated with receiving <15 h/week of classroom-based services. These differences suggest that SES may be a factor in utilization of services. Efforts should be made to ensure that interventions offered are culturally and linguistically accessible. En ligne : http://dx.doi.org/10.1007/s10803-016-2913-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297
in Journal of Autism and Developmental Disorders > 46-12 (December 2016) . - p.3729-3738[article] Sociodemographic Disparities in Intervention Service Utilization in Families of Children with Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Cathina T. NGUYEN, Auteur ; Paula KRAKOWIAK, Auteur ; Robin HANSEN, Auteur ; Irva HERTZ-PICCIOTTO, Auteur ; Kathleen ANGKUSTSIRI, Auteur . - p.3729-3738.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 46-12 (December 2016) . - p.3729-3738
Mots-clés : Autism spectrum disorder Intervention services Utilization Family characteristics Index. décimale : PER Périodiques Résumé : This study investigates whether sociodemographic factors are associated with utilization of intervention services for children with autism spectrum disorder (ASD) enrolled in the Childhood Autism Risks from Genetics and the Environment Study. Maternal ethnicity, insurance status, and education for 696 families of children with ASD were available. Children of Black mothers entered intervention earlier compared to White mothers (2 vs. 2.6 years; p?=?0.001). Having public insurance was associated with receiving <15 h/week of individual services, while having a Bachelor degree was associated with receiving <15 h/week of classroom-based services. These differences suggest that SES may be a factor in utilization of services. Efforts should be made to ensure that interventions offered are culturally and linguistically accessible. En ligne : http://dx.doi.org/10.1007/s10803-016-2913-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297