6 recherche sur le mot-clé 'long-term follow-up'

Long-term follow-up of a randomized controlled trial comparing systemic family therapy (FT-S) added to treatment as usual (TAU) with TAU alone in adolescents with anorexia nervosa / Nathalie GODART in Journal of Child Psychology and Psychiatry, 63-11 (November 2022)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1368-1380 Titre : Long-term follow-up of a randomized controlled trial comparing systemic family therapy (FT-S) added to treatment as usual (TAU) with TAU alone in adolescents with anorexia nervosa Type de document : texte imprimé Auteurs : Nathalie GODART, Auteur ; Géraldine DORARD, Auteur ; Jeanne DUCLOS, Auteur ; FLORENCE CURT, Auteur ; Irène KAGANSKI, Auteur ; Lisa MINIER, Auteur ; Maurice CORCOS, Auteur ; Bruno FALISSARD, Auteur ; Ivan EISLER, Auteur ; Philippe JEAMMET, Auteur ; Sylvie BERTHOZ, Auteur Article en page(s) : p.1368-1380 Langues : Anglais (eng) Mots-clés : Female  Adolescent  Humans  Anorexia Nervosa/therapy  Family Therapy/methods  Follow-Up Studies  Feeding and Eating Disorders  Ambulatory Care  Treatment Outcome  Randomized Controlled Trials as Topic  Anorexia nervosa  long-term follow-up  outcome  systemic family therapy Index. décimale : PER Périodiques Résumé : BACKGROUND: Randomized controlled trials showed the efficacy of family therapy for anorexia nervosa during adolescence, but studies examining its long-term beneficial effect are still needed. This article presents the results of a 54-month post-randomization follow-up of a previously reported randomized controlled trial that compared two post-hospitalization outpatient treatment programs: Treatment As Usual alone versus Systemic Family Therapy added to Treatment As Usual. METHODS: A consecutive series of 60 female adolescents with anorexia nervosa (DSM-IV) were randomized (30 per group). During the first 18 months, in the Treatment As Usual group, subjects received a multidisciplinary treatment. In the other group, Systemic Family Therapy sessions targeting intra-familial dynamics were added to Treatment As Usual. At 54 months, the primary outcome was defined using the Morgan and Russell global Outcome Categories (Good or Intermediate versus Poor). Secondary outcomes were the Global Outcome Assessment Schedule score, body mass index, amenorrhea, number of hospitalizations, eating disorder symptoms, psychopathological features, and family functioning. Analyses were carried out using an Intention-To-Treat with the Last Observation Carried Forward procedure. Data of 59/60 subjects were available. RESULTS: At 54 months, significant effects in favor of adding Systemic Family Therapy to Treatment As Usual were shown for the Global Outcome Categories (60% of Good/Intermediate versus 31% in the control group, p=.026), mean body mass index (p=.048), resumption of menses (70.0% vs. 40% p=.020), and mental state score (p=.010). Family cohesion scores were lower in the Systemic Family Therapy group (p = .040). CONCLUSIONS: Adding Systemic Family Therapy focusing on intra-familial dynamics to a multidimensional outpatient treatment program appeared to lead to a better long-term outcome in young women who suffered from severe anorexia nervosa during adolescence. En ligne : http://dx.doi.org/10.1111/jcpp.13583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490 [article] Long-term follow-up of a randomized controlled trial comparing systemic family therapy (FT-S) added to treatment as usual (TAU) with TAU alone in adolescents with anorexia nervosa [texte imprimé] / Nathalie GODART, Auteur ; Géraldine DORARD, Auteur ; Jeanne DUCLOS, Auteur ; FLORENCE CURT, Auteur ; Irène KAGANSKI, Auteur ; Lisa MINIER, Auteur ; Maurice CORCOS, Auteur ; Bruno FALISSARD, Auteur ; Ivan EISLER, Auteur ; Philippe JEAMMET, Auteur ; Sylvie BERTHOZ, Auteur . - p.1368-1380. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 63-11 (November 2022) . - p.1368-1380 Mots-clés : Female  Adolescent  Humans  Anorexia Nervosa/therapy  Family Therapy/methods  Follow-Up Studies  Feeding and Eating Disorders  Ambulatory Care  Treatment Outcome  Randomized Controlled Trials as Topic  Anorexia nervosa  long-term follow-up  outcome  systemic family therapy Index. décimale : PER Périodiques Résumé : BACKGROUND: Randomized controlled trials showed the efficacy of family therapy for anorexia nervosa during adolescence, but studies examining its long-term beneficial effect are still needed. This article presents the results of a 54-month post-randomization follow-up of a previously reported randomized controlled trial that compared two post-hospitalization outpatient treatment programs: Treatment As Usual alone versus Systemic Family Therapy added to Treatment As Usual. METHODS: A consecutive series of 60 female adolescents with anorexia nervosa (DSM-IV) were randomized (30 per group). During the first 18 months, in the Treatment As Usual group, subjects received a multidisciplinary treatment. In the other group, Systemic Family Therapy sessions targeting intra-familial dynamics were added to Treatment As Usual. At 54 months, the primary outcome was defined using the Morgan and Russell global Outcome Categories (Good or Intermediate versus Poor). Secondary outcomes were the Global Outcome Assessment Schedule score, body mass index, amenorrhea, number of hospitalizations, eating disorder symptoms, psychopathological features, and family functioning. Analyses were carried out using an Intention-To-Treat with the Last Observation Carried Forward procedure. Data of 59/60 subjects were available. RESULTS: At 54 months, significant effects in favor of adding Systemic Family Therapy to Treatment As Usual were shown for the Global Outcome Categories (60% of Good/Intermediate versus 31% in the control group, p=.026), mean body mass index (p=.048), resumption of menses (70.0% vs. 40% p=.020), and mental state score (p=.010). Family cohesion scores were lower in the Systemic Family Therapy group (p = .040). CONCLUSIONS: Adding Systemic Family Therapy focusing on intra-familial dynamics to a multidimensional outpatient treatment program appeared to lead to a better long-term outcome in young women who suffered from severe anorexia nervosa during adolescence. En ligne : http://dx.doi.org/10.1111/jcpp.13583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=490

Toddlers to teenagers: Long-term follow-up study of outcomes in autism spectrum disorder / Esther BEN-ITZCHAK in Autism, 24-1 (January 2020)  

Public ISBD [article]  inAutism > 24-1 (January 2020) . - p.41-50 Titre : Toddlers to teenagers: Long-term follow-up study of outcomes in autism spectrum disorder Type de document : texte imprimé Auteurs : Esther BEN-ITZCHAK, Auteur ; Ditza A. ZACHOR, Auteur Article en page(s) : p.41-50 Langues : Anglais (eng) Mots-clés : adaptive behavior  adolescents  autism severity  autism spectrum disorders  cognitive ability  long-term follow-up  predictors  toddlers Index. décimale : PER Périodiques Résumé : This prospective study examined the developmental changes over time of adolescents diagnosed in toddlerhood with autism spectrum disorder and searched for child characteristics at toddlerhood that predict outcome at adolescence. The study included 65 participants who were divided into low cognitive (developmental quotient < 85; N = 41) and high cognitive (developmental quotient 85; N = 21) groups in adolescence. Participants underwent a comprehensive assessment of cognitive ability, adaptive skills, and autism severity. Significant differences in the current clinical phenotypes and in developmental changes over time were found between the two cognitive groups. At baseline, the high cognitive group had significantly less severe social communication deficits. Only the high cognitive group showed a decrease in social communication deficits over time. Although the two groups did not differ in their adaptive skills at the time of diagnosis, the high cognitive group had better adaptive skills at adolescence. Better adaptive communication skills in toddlerhood were associated with better outcome at adolescence in cognitive ability, adaptive skills, and fewer autism symptoms. Less impaired baseline social affect and better cognitive ability predicted higher cognitive level and adaptive skills at adolescence. Cognitive potential of individuals with autism spectrum disorder plays an important role in long-term outcome and comprehensive evaluations at toddlerhood have strong prognostic value in adolescence. En ligne : http://dx.doi.org/10.1177/1362361319840226 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414 [article] Toddlers to teenagers: Long-term follow-up study of outcomes in autism spectrum disorder [texte imprimé] / Esther BEN-ITZCHAK, Auteur ; Ditza A. ZACHOR, Auteur . - p.41-50. Langues : Anglais (eng) in Autism > 24-1 (January 2020) . - p.41-50 Mots-clés : adaptive behavior  adolescents  autism severity  autism spectrum disorders  cognitive ability  long-term follow-up  predictors  toddlers Index. décimale : PER Périodiques Résumé : This prospective study examined the developmental changes over time of adolescents diagnosed in toddlerhood with autism spectrum disorder and searched for child characteristics at toddlerhood that predict outcome at adolescence. The study included 65 participants who were divided into low cognitive (developmental quotient < 85; N = 41) and high cognitive (developmental quotient 85; N = 21) groups in adolescence. Participants underwent a comprehensive assessment of cognitive ability, adaptive skills, and autism severity. Significant differences in the current clinical phenotypes and in developmental changes over time were found between the two cognitive groups. At baseline, the high cognitive group had significantly less severe social communication deficits. Only the high cognitive group showed a decrease in social communication deficits over time. Although the two groups did not differ in their adaptive skills at the time of diagnosis, the high cognitive group had better adaptive skills at adolescence. Better adaptive communication skills in toddlerhood were associated with better outcome at adolescence in cognitive ability, adaptive skills, and fewer autism symptoms. Less impaired baseline social affect and better cognitive ability predicted higher cognitive level and adaptive skills at adolescence. Cognitive potential of individuals with autism spectrum disorder plays an important role in long-term outcome and comprehensive evaluations at toddlerhood have strong prognostic value in adolescence. En ligne : http://dx.doi.org/10.1177/1362361319840226 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=414

Fifteen-Year Prospective Follow-Up Study of Adult Outcomes of Autism Spectrum Disorders Among Children Attending Centers in Five Regional Departments in France: The EpiTED Cohort / Amaria BAGHDADLI in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2243-2256 Titre : Fifteen-Year Prospective Follow-Up Study of Adult Outcomes of Autism Spectrum Disorders Among Children Attending Centers in Five Regional Departments in France: The EpiTED Cohort Type de document : texte imprimé Auteurs : Amaria BAGHDADLI, Auteur ; Cécile RATTAZ, Auteur ; Cécile MICHELON, Auteur ; Eric PERNON, Auteur ; Kerim M. MUNIR, Auteur Article en page(s) : p.2243-2256 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Cohort  France  Long-term follow-up  Longitudinal Index. décimale : PER Périodiques Résumé : There is limited data on long-term outcome of ASD with co-occurring intellectual disabilities (ID) and challenging behaviours in France. The EpiTED period cohort is a 15 years longitudinal study of the developmental trajectories of 281 children initially recruited at mean age of 5 years. Two contrasted developmental trajectories were identified. Low cognitive level, absence of language, and higher ASD scores at baseline were predictive of low growth at follow-up. As adults the participants were predisposed to persistent co-occurring challenging behaviours as well as underlying ID impacting their ability to function independently. The results underscore the need for development of services and supports for adults with ASD in France who may also have already lacked access to adequate interventions and support services. En ligne : https://dx.doi.org/10.1007/s10803-019-03901-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] Fifteen-Year Prospective Follow-Up Study of Adult Outcomes of Autism Spectrum Disorders Among Children Attending Centers in Five Regional Departments in France: The EpiTED Cohort [texte imprimé] / Amaria BAGHDADLI, Auteur ; Cécile RATTAZ, Auteur ; Cécile MICHELON, Auteur ; Eric PERNON, Auteur ; Kerim M. MUNIR, Auteur . - p.2243-2256. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2243-2256 Mots-clés : Autism spectrum disorders  Cohort  France  Long-term follow-up  Longitudinal Index. décimale : PER Périodiques Résumé : There is limited data on long-term outcome of ASD with co-occurring intellectual disabilities (ID) and challenging behaviours in France. The EpiTED period cohort is a 15 years longitudinal study of the developmental trajectories of 281 children initially recruited at mean age of 5 years. Two contrasted developmental trajectories were identified. Low cognitive level, absence of language, and higher ASD scores at baseline were predictive of low growth at follow-up. As adults the participants were predisposed to persistent co-occurring challenging behaviours as well as underlying ID impacting their ability to function independently. The results underscore the need for development of services and supports for adults with ASD in France who may also have already lacked access to adequate interventions and support services. En ligne : https://dx.doi.org/10.1007/s10803-019-03901-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

Tracking change: A follow-up on the culturally adapted ¡Iniciando! La Adultez program / Antonio F. PAGÁN in Research in Autism, 128 (October 2025)  

Public ISBD [article]  inResearch in Autism > 128 (October 2025) . - p.202716 Titre : Tracking change: A follow-up on the culturally adapted ¡Iniciando! La Adultez program Type de document : texte imprimé Auteurs : Antonio F. PAGÁN, Auteur ; Katherine A. LOVELAND, Auteur ; Ron ACIERNO, Auteur Article en page(s) : p.202716 Langues : Anglais (eng) Mots-clés : Long-term follow-up  Culturally adapted intervention  Latino young adults  Autism Spectrum Disorder  Program engagement Index. décimale : PER Périodiques Résumé : Introduction Research on interventions for Latino young adults with Autism Spectrum Disorder (ASD) and their families often faces challenges in long-term engagement. This study aimed to assess the feasibility and effectiveness of the culturally adapted ¡Iniciando! La Adultez program through a long-term follow-up. Methods A cohort of Latino young adults with ASD and their families who participated in the ¡Iniciando! La Adultez program were followed for six months post-intervention. Participants were assessed at three and six months to evaluate continued engagement and outcomes. Retention rates at each follow-up point were calculated. Results The study demonstrated high retention rates, with 48 out of 50 participants (96 %) completing the three-month follow-up and 40 out of 43 participants (93 %) completing the six-month follow-up. Beyond engagement, participants and parents reported significant and sustained improvements in multiple domains, including adaptive behavior, executive functioning, and quality of life for young adults. Parents also reported gains in their young adults adaptive functioning, executive functioning, and transition readiness. Discussion The high retention rates suggest that culturally adapted interventions like ¡Iniciando! La Adultez can effectively maintain long-term engagement within Latino families, a population often underrepresented in research. However, limitations including a small sample size, the potential for bias due to non-blinded data collection, and challenges with missing data that limited more complex analyses should be considered. Future research should prioritize larger, more diverse samples, employ independent raters, and implement robust strategies for managing missing data to strengthen the generalizability and rigor of findings in this area. En ligne : https://doi.org/10.1016/j.reia.2025.202716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570 [article] Tracking change: A follow-up on the culturally adapted ¡Iniciando! La Adultez program [texte imprimé] / Antonio F. PAGÁN, Auteur ; Katherine A. LOVELAND, Auteur ; Ron ACIERNO, Auteur . - p.202716. Langues : Anglais (eng) in Research in Autism > 128 (October 2025) . - p.202716 Mots-clés : Long-term follow-up  Culturally adapted intervention  Latino young adults  Autism Spectrum Disorder  Program engagement Index. décimale : PER Périodiques Résumé : Introduction Research on interventions for Latino young adults with Autism Spectrum Disorder (ASD) and their families often faces challenges in long-term engagement. This study aimed to assess the feasibility and effectiveness of the culturally adapted ¡Iniciando! La Adultez program through a long-term follow-up. Methods A cohort of Latino young adults with ASD and their families who participated in the ¡Iniciando! La Adultez program were followed for six months post-intervention. Participants were assessed at three and six months to evaluate continued engagement and outcomes. Retention rates at each follow-up point were calculated. Results The study demonstrated high retention rates, with 48 out of 50 participants (96 %) completing the three-month follow-up and 40 out of 43 participants (93 %) completing the six-month follow-up. Beyond engagement, participants and parents reported significant and sustained improvements in multiple domains, including adaptive behavior, executive functioning, and quality of life for young adults. Parents also reported gains in their young adults adaptive functioning, executive functioning, and transition readiness. Discussion The high retention rates suggest that culturally adapted interventions like ¡Iniciando! La Adultez can effectively maintain long-term engagement within Latino families, a population often underrepresented in research. However, limitations including a small sample size, the potential for bias due to non-blinded data collection, and challenges with missing data that limited more complex analyses should be considered. Future research should prioritize larger, more diverse samples, employ independent raters, and implement robust strategies for managing missing data to strengthen the generalizability and rigor of findings in this area. En ligne : https://doi.org/10.1016/j.reia.2025.202716 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=570

Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis / I. Carina GILLBERG in Journal of Autism and Developmental Disorders, 46-1 (January 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-1 (January 2016) . - p.74-82 Titre : Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis Type de document : texte imprimé Auteurs : I. Carina GILLBERG, Auteur ; Adam HELLES, Auteur ; Eva BILLSTEDT, Auteur ; Christopher GILLBERG, Auteur Année de publication : 2016 Article en page(s) : p.74-82 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Asperger syndrome  Psychiatric disorder  Depression  ADHD  DCD  Schizophrenia  Neurodevelopmental  Long-term follow-up Index. décimale : PER Périodiques Résumé : We examined comorbid psychiatric and neurodevelopmental disorders in fifty adult males (mean age 30 years) with Asperger syndrome (AS) diagnosed in childhood and followed up prospectively for almost two decades (13–26 years). Only three of the 50 men had never met criteria for an additional psychiatric/neurodevelopmental diagnosis and more than half had ongoing comorbidity (most commonly either ADHD or depression or both). Any psychiatric comorbidity increased the risk of poorer outcome. The minority of the AS group who no longer met criteria for a full diagnosis of an autism spectrum disorder were usually free of current psychiatric comorbidity. The high rate of psychiatric/neurodevelopmental comorbidities underscores the need for a full psychiatric/neurodevelopmental assessment at follow-up of males with AS. En ligne : http://dx.doi.org/10.1007/s10803-015-2544-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278 [article] Boys with Asperger Syndrome Grow Up: Psychiatric and Neurodevelopmental Disorders 20 Years After Initial Diagnosis [texte imprimé] / I. Carina GILLBERG, Auteur ; Adam HELLES, Auteur ; Eva BILLSTEDT, Auteur ; Christopher GILLBERG, Auteur . - 2016 . - p.74-82. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-1 (January 2016) . - p.74-82 Mots-clés : Autism spectrum disorder  Asperger syndrome  Psychiatric disorder  Depression  ADHD  DCD  Schizophrenia  Neurodevelopmental  Long-term follow-up Index. décimale : PER Périodiques Résumé : We examined comorbid psychiatric and neurodevelopmental disorders in fifty adult males (mean age 30 years) with Asperger syndrome (AS) diagnosed in childhood and followed up prospectively for almost two decades (13–26 years). Only three of the 50 men had never met criteria for an additional psychiatric/neurodevelopmental diagnosis and more than half had ongoing comorbidity (most commonly either ADHD or depression or both). Any psychiatric comorbidity increased the risk of poorer outcome. The minority of the AS group who no longer met criteria for a full diagnosis of an autism spectrum disorder were usually free of current psychiatric comorbidity. The high rate of psychiatric/neurodevelopmental comorbidities underscores the need for a full psychiatric/neurodevelopmental assessment at follow-up of males with AS. En ligne : http://dx.doi.org/10.1007/s10803-015-2544-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=278

The British Chinese Adoption Study: orphanage care, adoption and mid-life outcomes / Alan RUSHTON in Journal of Child Psychology and Psychiatry, 54-11 (November 2013)  

Permalink