Camouflaging Intent, First Impressions, and Age of ASC Diagnosis in Autistic Men and Women / Hannah L. BELCHER in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3413-3426 Titre : Camouflaging Intent, First Impressions, and Age of ASC Diagnosis in Autistic Men and Women Type de document : Texte imprimé et/ou numérique Auteurs : Hannah L. BELCHER, Auteur ; Sharon MOREIN-ZAMIR, Auteur ; Will MANDY, Auteur ; Ruth M. FORD, Auteur Article en page(s) : p.3413-3426 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Female  Humans  Intention  Male  Peer Group  Surveys and Questionnaires  Autism  Camouflaging  Female autism phenotype  First impressions  Gender differences  Masking Index. décimale : PER Périodiques Résumé : Camouflaging of autistic traits may make autism harder to diagnose. The current study evaluated the relations between camouflaging intent, first impressions, and age of autism diagnosis. Participants comprised autistic and non-autistic adults (n=80, 50% female) who completed the Camouflaging of Autistic Traits Questionnaire. They were later video-recorded having a conversation with a person unaware of their diagnostic status. Ten-second clips from half these videos were later shown to 127 non-autistic peers, who rated their first impressions of each participant. Results showed that autistic participants were rated more poorly on first impressions, males were rated less favourably than females, and male raters were particularly harsh in their evaluations of autistic males. Camouflaging intent did not predict first impressions but better first impressions were linked with a later age of diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-021-05221-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Camouflaging Intent, First Impressions, and Age of ASC Diagnosis in Autistic Men and Women [Texte imprimé et/ou numérique] / Hannah L. BELCHER, Auteur ; Sharon MOREIN-ZAMIR, Auteur ; Will MANDY, Auteur ; Ruth M. FORD, Auteur . - p.3413-3426. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3413-3426 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Female  Humans  Intention  Male  Peer Group  Surveys and Questionnaires  Autism  Camouflaging  Female autism phenotype  First impressions  Gender differences  Masking Index. décimale : PER Périodiques Résumé : Camouflaging of autistic traits may make autism harder to diagnose. The current study evaluated the relations between camouflaging intent, first impressions, and age of autism diagnosis. Participants comprised autistic and non-autistic adults (n=80, 50% female) who completed the Camouflaging of Autistic Traits Questionnaire. They were later video-recorded having a conversation with a person unaware of their diagnostic status. Ten-second clips from half these videos were later shown to 127 non-autistic peers, who rated their first impressions of each participant. Results showed that autistic participants were rated more poorly on first impressions, males were rated less favourably than females, and male raters were particularly harsh in their evaluations of autistic males. Camouflaging intent did not predict first impressions but better first impressions were linked with a later age of diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-021-05221-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Do women with eating disorders who have social and flexibility difficulties really have autism? A case series / Will MANDY in Molecular Autism, (May 2015)  

Public ISBD [article]  inMolecular Autism > (May 2015) . - p.1-10 Titre : Do women with eating disorders who have social and flexibility difficulties really have autism? A case series Type de document : Texte imprimé et/ou numérique Auteurs : Will MANDY, Auteur ; Kate TCHANTURIA, Auteur Article en page(s) : p.1-10 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Many women with eating disorders (EDs) have social impairments and difficulties with flexibility. It is unclear to what extent these are manifestations of an underlying autism spectrum disorder (ASD); or whether they are instead the consequence of starvation, anxiety, low mood or obsessive compulsive disorder, all of which are highly prevalent in EDs. The resolution of this clinically and theoretically important uncertainty will require the use of gold-standard ASD assessment measures. To date these have not been employed in ED research. This case series is the first report of a well-validated, direct-observational measure of ASD, the Autism Diagnostic Observation Schedule (ADOS), being administered to women with EDs. We aimed to learn about the feasibility of the ADOS in this population, and to contribute to debates about whether a sub-group with EDs really have ASD. En ligne : http://dx.doi.org/10.1186/2040-2392-6-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277 [article] Do women with eating disorders who have social and flexibility difficulties really have autism? A case series [Texte imprimé et/ou numérique] / Will MANDY, Auteur ; Kate TCHANTURIA, Auteur . - p.1-10. Langues : Anglais (eng) in Molecular Autism > (May 2015) . - p.1-10 Index. décimale : PER Périodiques Résumé : Many women with eating disorders (EDs) have social impairments and difficulties with flexibility. It is unclear to what extent these are manifestations of an underlying autism spectrum disorder (ASD); or whether they are instead the consequence of starvation, anxiety, low mood or obsessive compulsive disorder, all of which are highly prevalent in EDs. The resolution of this clinically and theoretically important uncertainty will require the use of gold-standard ASD assessment measures. To date these have not been employed in ED research. This case series is the first report of a well-validated, direct-observational measure of ASD, the Autism Diagnostic Observation Schedule (ADOS), being administered to women with EDs. We aimed to learn about the feasibility of the ADOS in this population, and to contribute to debates about whether a sub-group with EDs really have ASD. En ligne : http://dx.doi.org/10.1186/2040-2392-6-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=277

Exploring autistic adults' psychosocial experiences affecting beginnings, continuity and change in camouflaging over time: A qualitative study in Singapore / Beatrice Rui Yi LOO in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.627-643 Titre : Exploring autistic adults' psychosocial experiences affecting beginnings, continuity and change in camouflaging over time: A qualitative study in Singapore Type de document : Texte imprimé et/ou numérique Auteurs : Beatrice Rui Yi LOO, Auteur ; Truman Jing Yang TEO, Auteur ; Melanie Jiamin LIANG, Auteur ; Dawn-Joy LEONG, Auteur ; Diana Weiting TAN, Auteur ; Sici ZHUANG, Auteur ; Laura HULL, Auteur ; Lucy A. LIVINGSTON, Auteur ; Will MANDY, Auteur ; Francesca HAPPE, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.627-643 Langues : Anglais (eng) Mots-clés : adults  autism  camouflaging  masking  mental health  well-being Index. décimale : PER Périodiques Résumé : Camouflaging (or otherwise referred to as masking or passing) involves hiding one?s autistic-related characteristics and differences to get by in social situations in predominantly non-autistic societies. Very little is known to date about the course of camouflaging motivations and strategies over time or the psychosocial factors that may influence autistic people?s camouflaging choices and trajectories. In an exploratory qualitative study within an Asian sociocultural context, we interviewed 11 Singaporean autistic adults (9 males, 2 females, aged 22-45?years) about their camouflaging experiences to better understand (1) their camouflaging motivations and strategies over time, and (2) related psychosocial influences. Organised across four phases (pre-camouflaging, beginnings, continuity and change over time), 17 themes relating to camouflaging motivations and 8 themes relating to strategies were identified. The earliest camouflaging motivations were predominantly relational, linked to a negative self-identity that had been shaped by adverse social experiences. Camouflaging strategies became increasingly complex and integrated into one?s sense of self over time. Our findings highlight the role of psychosocial pressures precipitating camouflaging and emphasise the need for individual and societal changes, including moving towards enhanced acceptance and inclusion to reduce psychosocial pressures on autistic people to camouflage. Lay Abstract Over their lifetimes, many autistic people learn to camouflage (hide or mask) their autism-related differences to forge relationships, find work and live independently in largely non-autistic societies. Autistic adults have described camouflaging as a 'lifetime of conditioning . . . to act normal' involving 'years of effort', suggesting that camouflaging develops over an autistic person?s lifetime and may start early on, in childhood or adolescence. Yet, we know very little about why and how autistic people start to camouflage, or why and how their camouflaging behaviours continue or change over time. We interviewed 11 Singaporean autistic adults (9 male, 2 female, 22-45?years old) who shared their camouflaging experiences. We found that autistic adults' earliest motivations to camouflage were largely related to the desire to fit in and connect with others. They also camouflaged to avoid difficult social experiences (such as being teased or bullied). Autistic adults shared that their camouflaging behaviours became more complex and that, for some, camouflaging became a part of their self-identity over time. Our findings suggest that society should not pathologise autistic differences, but instead accept and include autistic people, to reduce the pressure on autistic people to hide who they truly are. En ligne : https://dx.doi.org/10.1177/13623613231180075 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Exploring autistic adults' psychosocial experiences affecting beginnings, continuity and change in camouflaging over time: A qualitative study in Singapore [Texte imprimé et/ou numérique] / Beatrice Rui Yi LOO, Auteur ; Truman Jing Yang TEO, Auteur ; Melanie Jiamin LIANG, Auteur ; Dawn-Joy LEONG, Auteur ; Diana Weiting TAN, Auteur ; Sici ZHUANG, Auteur ; Laura HULL, Auteur ; Lucy A. LIVINGSTON, Auteur ; Will MANDY, Auteur ; Francesca HAPPE, Auteur ; Iliana MAGIATI, Auteur . - p.627-643. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.627-643 Mots-clés : adults  autism  camouflaging  masking  mental health  well-being Index. décimale : PER Périodiques Résumé : Camouflaging (or otherwise referred to as masking or passing) involves hiding one?s autistic-related characteristics and differences to get by in social situations in predominantly non-autistic societies. Very little is known to date about the course of camouflaging motivations and strategies over time or the psychosocial factors that may influence autistic people?s camouflaging choices and trajectories. In an exploratory qualitative study within an Asian sociocultural context, we interviewed 11 Singaporean autistic adults (9 males, 2 females, aged 22-45?years) about their camouflaging experiences to better understand (1) their camouflaging motivations and strategies over time, and (2) related psychosocial influences. Organised across four phases (pre-camouflaging, beginnings, continuity and change over time), 17 themes relating to camouflaging motivations and 8 themes relating to strategies were identified. The earliest camouflaging motivations were predominantly relational, linked to a negative self-identity that had been shaped by adverse social experiences. Camouflaging strategies became increasingly complex and integrated into one?s sense of self over time. Our findings highlight the role of psychosocial pressures precipitating camouflaging and emphasise the need for individual and societal changes, including moving towards enhanced acceptance and inclusion to reduce psychosocial pressures on autistic people to camouflage. Lay Abstract Over their lifetimes, many autistic people learn to camouflage (hide or mask) their autism-related differences to forge relationships, find work and live independently in largely non-autistic societies. Autistic adults have described camouflaging as a 'lifetime of conditioning . . . to act normal' involving 'years of effort', suggesting that camouflaging develops over an autistic person?s lifetime and may start early on, in childhood or adolescence. Yet, we know very little about why and how autistic people start to camouflage, or why and how their camouflaging behaviours continue or change over time. We interviewed 11 Singaporean autistic adults (9 male, 2 female, 22-45?years old) who shared their camouflaging experiences. We found that autistic adults' earliest motivations to camouflage were largely related to the desire to fit in and connect with others. They also camouflaged to avoid difficult social experiences (such as being teased or bullied). Autistic adults shared that their camouflaging behaviours became more complex and that, for some, camouflaging became a part of their self-identity over time. Our findings suggest that society should not pathologise autistic differences, but instead accept and include autistic people, to reduce the pressure on autistic people to hide who they truly are. En ligne : https://dx.doi.org/10.1177/13623613231180075 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

"For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women / Janina BREDE in Journal of Autism and Developmental Disorders, 50-12 (December 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Titre : "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women Type de document : Texte imprimé et/ou numérique Auteurs : Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; Will MANDY, Auteur Article en page(s) : p.4280-4296 Langues : Anglais (eng) Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434 [article] "For Me, the Anorexia is Just a Symptom, and the Cause is the Autism": Investigating Restrictive Eating Disorders in Autistic Women [Texte imprimé et/ou numérique] / Janina BREDE, Auteur ; Charli BABB, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; John FOX, Auteur ; Will MANDY, Auteur . - p.4280-4296. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-12 (December 2020) . - p.4280-4296 Mots-clés : Anorexia nervosa  Autism  Co-occurrence  Eating disorders  Females  Qualitative research Index. décimale : PER Périodiques Résumé : Autistic women are overrepresented among people in treatment for Anorexia Nervosa (AN). The current study aimed to: (1) better understand how AN develops and persists in autistic individuals from the perspective of autistic women, parents and healthcare professionals; (2) derive a theoretical model of restrictive eating difficulties in autism. We conducted 44 semi-structured interviews and used Thematic Analysis to identify patterns of meaning across the data. Themes related to sensory sensitivities, social interaction and relationships, sense of self and identity, difficulties with emotions, thinking styles, and a need for control and predictability. We developed a model of potential autism-specific mechanisms underlying restrictive eating difficulties. This study generated novel insights, which have the potential to inform treatment adaptations following empirical testing. En ligne : http://dx.doi.org/10.1007/s10803-020-04479-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=434

Girls’ cortisol concentrations, mothers’ anxiety, and self- versus parent-ratings of autistic girls’ anxiety / Vicki BITSIKA in Research in Autism Spectrum Disorders, 81 (March 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 81 (March 2021) . - 101718 Titre : Girls’ cortisol concentrations, mothers’ anxiety, and self- versus parent-ratings of autistic girls’ anxiety Type de document : Texte imprimé et/ou numérique Auteurs : Vicki BITSIKA, Auteur ; Christopher F. SHARPLEY, Auteur ; Will MANDY, Auteur ; Mary E. MCMILLAN, Auteur ; Linda L. AGNEW, Auteur Article en page(s) : 101718 Langues : Anglais (eng) Mots-clés : Autism  Girls  Anxiety  Cortisol Index. décimale : PER Périodiques Résumé : Background Autistic girls’ change in salivary cortisol concentrations from morning to afternoon were compared with their parents’ own anxiety states as potential correlates of the autistic girls’ self-ratings of their anxiety and those given by their parents about their daughters’ anxiety. Methods Thirty-three autistic girls (6?yr to 10?yr, M?=?8.21?yr, SD?=?1.29?yr) and 19 autistic adolescent females (11?yr to 15?yr, M?=?12.74?yr, SD?=?1.52?yr) completed anxiety inventories about themselves and provided saliva samples in the morning and afternoon. Their mothers also rated their daughters’ anxiety and their own anxiety. Results There were no significant differences between mothers’ and daughters’ ratings of the latter’s GAD. The autistic girls’ self-ratings of their anxiety were more strongly influenced by their mothers’ anxiety in the younger girls, but more responsive to their own chronic stress state (i.e., cortisol) in the adolescent girls. Conclusions Mothers’ evaluations of their autistic daughters’ anxiety appear to be strongly influenced by their own anxiety. There was also some indication that autistic girls may disguise their anxiety. En ligne : https://doi.org/10.1016/j.rasd.2020.101718 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440 [article] Girls’ cortisol concentrations, mothers’ anxiety, and self- versus parent-ratings of autistic girls’ anxiety [Texte imprimé et/ou numérique] / Vicki BITSIKA, Auteur ; Christopher F. SHARPLEY, Auteur ; Will MANDY, Auteur ; Mary E. MCMILLAN, Auteur ; Linda L. AGNEW, Auteur . - 101718. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 81 (March 2021) . - 101718 Mots-clés : Autism  Girls  Anxiety  Cortisol Index. décimale : PER Périodiques Résumé : Background Autistic girls’ change in salivary cortisol concentrations from morning to afternoon were compared with their parents’ own anxiety states as potential correlates of the autistic girls’ self-ratings of their anxiety and those given by their parents about their daughters’ anxiety. Methods Thirty-three autistic girls (6?yr to 10?yr, M?=?8.21?yr, SD?=?1.29?yr) and 19 autistic adolescent females (11?yr to 15?yr, M?=?12.74?yr, SD?=?1.52?yr) completed anxiety inventories about themselves and provided saliva samples in the morning and afternoon. Their mothers also rated their daughters’ anxiety and their own anxiety. Results There were no significant differences between mothers’ and daughters’ ratings of the latter’s GAD. The autistic girls’ self-ratings of their anxiety were more strongly influenced by their mothers’ anxiety in the younger girls, but more responsive to their own chronic stress state (i.e., cortisol) in the adolescent girls. Conclusions Mothers’ evaluations of their autistic daughters’ anxiety appear to be strongly influenced by their own anxiety. There was also some indication that autistic girls may disguise their anxiety. En ligne : https://doi.org/10.1016/j.rasd.2020.101718 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=440

'It?s designed for someone who is not me': A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over / Hassan MANSOUR in Autism, 29-3 (March 2025)  

Permalink

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 25-5 (July 2021)  

Permalink

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 26-5 (July 2022)  

Permalink

Measurement invariance of the parent-reported Strengths and Difficulties Questionnaire in autistic adolescents / Chloe TURCAN in Autism, 28-10 (October 2024)  

Permalink

Mental health and social difficulties of late-diagnosed autistic children, across childhood and adolescence / Will MANDY in Journal of Child Psychology and Psychiatry, 63-11 (November 2022)  

Permalink

A new era for autism research, and for our journal / Liz PELLICANO in Autism, 22-2 (February 2018)  

Permalink

A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder / Kate GORDON in Journal of Child Psychology and Psychiatry, 56-4 (April 2015)  

Permalink

Sex differences in predictors and outcomes of camouflaging: Comparing diagnosed autistic, high autistic trait and low autistic trait young adults / Victoria MILNER in Autism, 27-2 (February 2023)  

Permalink

Short report: Evaluation of wider community support for a neurodiversity teaching programme designed using participatory methods / Reesha ZAHIR in Autism, 28-6 (June 2024)  

Permalink

Social Decision Making in Autistic Adolescents: The Role of Theory of Mind, Executive Functioning and Emotion Regulation / Kate Anne WOODCOCK in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

Permalink

---

1 2 (1 - 15 / 18) Par page : Tout afficher