Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults / Sarah A. CASSIDY in Journal of Autism and Developmental Disorders, 50-10 (October 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Titre : Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.3477-3488 Langues : Anglais (eng) Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n?=?15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432 [article] Measurement Properties of the Suicidal Behaviour Questionnaire-Revised in Autistic Adults [Texte imprimé et/ou numérique] / Sarah A. CASSIDY, Auteur ; Louise BRADLEY, Auteur ; Heather COGGER-WARD, Auteur ; Rebecca SHAW, Auteur ; Erica BOWEN, Auteur ; Magdalena GLOD, Auteur ; Simon BARON-COHEN, Auteur ; Jacqui RODGERS, Auteur . - p.3477-3488. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-10 (October 2020) . - p.3477-3488 Mots-clés : Asperger syndrome  Autism spectrum condition  Autistic  Cosmin  Cognitive interview  Measurement invariance  Measurement properties  Self-harm  Suicidality  Suicide Index. décimale : PER Périodiques Résumé : We explored the appropriateness and measurement properties of a suicidality assessment tool (SBQ-R) developed for the general population, in autistic adults-a high risk group for suicide. 188 autistic adults and 183 general population adults completed the tool online, and a sub-sample (n?=?15) were interviewed while completing the tool. Multi-group factorial invariance analysis of the online survey data found evidence for metric non-invariance of the SBQ-R, particularly for items three (communication of suicidal intent) and four (likelihood of suicide attempt in the future). Cognitive interviews revealed that autistic adults did not interpret these items as intended by the tool designers. Results suggest autistic adults interpret key questions regarding suicide risk differently to the general population. Future research must adapt tools to better capture suicidality in autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04431-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=432

Sensory atypicalities in dyads of children with autism spectrum disorder (ASD) and their parents / Magdalena GLOD in Autism Research, 10-3 (March 2017)  

Public ISBD [article]  inAutism Research > 10-3 (March 2017) . - p.531-538 Titre : Sensory atypicalities in dyads of children with autism spectrum disorder (ASD) and their parents Type de document : Texte imprimé et/ou numérique Auteurs : Magdalena GLOD, Auteur ; Deborah M. RIBY, Auteur ; Emma HONEY, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.531-538 Langues : Anglais (eng) Mots-clés : sensory atypicality  parent-child dyads  autism spectrum disorder  broader autism phenotype Index. décimale : PER Périodiques Résumé : Sensory atypicalities are a common feature of autism spectrum disorder (ASD). To date, the relationship between sensory atypicalities in dyads of children with ASD and their parents has not been investigated. Exploring these relationships can contribute to an understanding of how phenotypic profiles may be inherited, and the extent to which familial factors might contribute towards children's sensory profiles and constitute an aspect of the broader autism phenotype (BAP). Parents of 44 children with ASD and 30 typically developing (TD) children, aged between 3 and 14 years, participated. Information about children's sensory experiences was collected through parent report using the Sensory Profile questionnaire. Information about parental sensory experiences was collected via self-report using the Adolescent/Adult Sensory Profile. Parents of children with ASD had significantly higher scores than parents of TD children in relation to low registration, over responsivity, and taste/smell sensory processing. Similar levels of agreement were obtained within ASD and TD parent-child dyads on a number of sensory atypicalities; nevertheless significant correlations were found between parents and children in ASD families but not TD dyads for sensation avoiding and auditory, visual, and vestibular sensory processing. The findings suggest that there are similarities in sensory processing profiles between parents and their children in both ASD and TD dyads. Familial sensory processing factors are likely to contribute towards the BAP. Further work is needed to explore genetic and environmental influences on the developmental pathways of the sensory atypicalities in ASD. En ligne : http://dx.doi.org/10.1002/aur.1680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304 [article] Sensory atypicalities in dyads of children with autism spectrum disorder (ASD) and their parents [Texte imprimé et/ou numérique] / Magdalena GLOD, Auteur ; Deborah M. RIBY, Auteur ; Emma HONEY, Auteur ; Jacqui RODGERS, Auteur . - p.531-538. Langues : Anglais (eng) in Autism Research > 10-3 (March 2017) . - p.531-538 Mots-clés : sensory atypicality  parent-child dyads  autism spectrum disorder  broader autism phenotype Index. décimale : PER Périodiques Résumé : Sensory atypicalities are a common feature of autism spectrum disorder (ASD). To date, the relationship between sensory atypicalities in dyads of children with ASD and their parents has not been investigated. Exploring these relationships can contribute to an understanding of how phenotypic profiles may be inherited, and the extent to which familial factors might contribute towards children's sensory profiles and constitute an aspect of the broader autism phenotype (BAP). Parents of 44 children with ASD and 30 typically developing (TD) children, aged between 3 and 14 years, participated. Information about children's sensory experiences was collected through parent report using the Sensory Profile questionnaire. Information about parental sensory experiences was collected via self-report using the Adolescent/Adult Sensory Profile. Parents of children with ASD had significantly higher scores than parents of TD children in relation to low registration, over responsivity, and taste/smell sensory processing. Similar levels of agreement were obtained within ASD and TD parent-child dyads on a number of sensory atypicalities; nevertheless significant correlations were found between parents and children in ASD families but not TD dyads for sensation avoiding and auditory, visual, and vestibular sensory processing. The findings suggest that there are similarities in sensory processing profiles between parents and their children in both ASD and TD dyads. Familial sensory processing factors are likely to contribute towards the BAP. Further work is needed to explore genetic and environmental influences on the developmental pathways of the sensory atypicalities in ASD. En ligne : http://dx.doi.org/10.1002/aur.1680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=304

Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children / Victoria GRAHAME in Autism, 29-8 (August 2025)  

Public ISBD [article]  inAutism > 29-8 (August 2025) . - p.1998-2015 Titre : Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Ehsan KHARATI, Auteur ; Ayesha MATHIAS, Auteur ; Chrissie BUTCHER, Auteur ; Linda DIXON, Auteur ; Sue FLETCHER-WATSON, Auteur ; Deborah GARLAND, Auteur ; Magdalena GLOD, Auteur ; Jane GOODWIN, Auteur ; Saoirse HERON, Auteur ; Emma HONEY, Auteur ; Ann LE COUTEUR, Auteur ; Leila MACKIE, Auteur ; Jessica MAXWELL, Auteur ; Lewis MONTGOMERY, Auteur ; Emmanuel OGUNDIMU, Auteur ; Helen PROBERT, Auteur ; Deborah RIBY, Auteur ; Priyanka ROB, Auteur ; Leanne ROGAN, Auteur ; Laura TAVERNOR, Auteur ; Luke VALE, Auteur ; Elspeth Imogen WEBB, Auteur ; Christopher WEETMAN, Auteur ; Jacqui RODGERS, Auteur Article en page(s) : p.1998-2015 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  interventions - psychosocial/behavioural  pre-school children  school-age children Index. décimale : PER Périodiques Résumé : Restricted and repetitive behaviours vary greatly between autistic people. Some are a source of pleasure or create opportunities for learning; others may be detrimental in day-to-day life or cause harm. We have developed, in close collaboration with parents/carers, the Understanding Repetitive Behaviours programme, designed for families of young autistic children, to help them recognise, understand and respond sensitively to their child?s impactful restricted and repetitive behaviours. This study is a clinical and cost-effectiveness, multi-site randomised controlled trial of the Understanding Repetitive Behaviours parent programme versus a psychoeducation programme (equivalent to current best practice), learning about autism. Participants were parents/carers, with an autistic child aged between 3-9?years and 11?months. The study was delivered across three sites in England and Scotland. Analyses were completed using intention-to-treat principles. Two hundred and twenty seven families were randomised (113 in LAA; 114 in Understanding Repetitive Behaviours arm). No differences were found between the arms on the primary outcome measure (The Clinical Global Impression - Improvement scale). Analysis of secondary outcomes indicated that children in the Understanding Repetitive Behaviours arm were more likely to be rated as responders in target impactful restricted and repetitive behaviours at 24?weeks but that this effect was not maintained at 52?weeks. Improvements in parent and family functioning were apparent, with no evidence of differences between the arms. The study reconfirms that it is important that clinicians consider both restricted and repetitive behaviours and social communication needs of autistic children with parents when planning appropriate support.Lay abstract Autistic children, frequently repeat the same behaviours over and over, have specific interests or like things to stay the same. These behaviours and interests are often fun and helpful. However, sometimes they can impact negatively on day-to-day life or put the child at risk of harm. Working closely with parents of autistic children, we developed an 8-week programme (Understanding Repetitive Behaviours) to help them recognise and understand these behaviours. This study aimed to find out whether the understanding repetitive behaviour programme was helpful and good value for money. Two hundred and twenty seven families were allocated by chance to receive either Understanding Repetitive Behaviours or a learning about autism programme. When experts made judgements about whether children showed positive changes across various measures, and these were analysed, there were no differences between the programmes. However, parents who attended the Understanding Repetitive Behaviours programme reported improvement in one of their child?s specific repetitive behaviour (selected to be the main focus of the Understanding Repetitive Behaviours programme) at 24?weeks after the end of the programme. Parents who attended either programme reported more confidence, greater wellbeing and less stress up to 1?year after the end of the study. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251333175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564 [article] Understanding Repetitive Behaviours: A clinical and cost-effectiveness, multi-site randomised controlled trial of a group for parents and carers of young autistic children [Texte imprimé et/ou numérique] / Victoria GRAHAME, Auteur ; Ashleigh KERNOHAN, Auteur ; Ehsan KHARATI, Auteur ; Ayesha MATHIAS, Auteur ; Chrissie BUTCHER, Auteur ; Linda DIXON, Auteur ; Sue FLETCHER-WATSON, Auteur ; Deborah GARLAND, Auteur ; Magdalena GLOD, Auteur ; Jane GOODWIN, Auteur ; Saoirse HERON, Auteur ; Emma HONEY, Auteur ; Ann LE COUTEUR, Auteur ; Leila MACKIE, Auteur ; Jessica MAXWELL, Auteur ; Lewis MONTGOMERY, Auteur ; Emmanuel OGUNDIMU, Auteur ; Helen PROBERT, Auteur ; Deborah RIBY, Auteur ; Priyanka ROB, Auteur ; Leanne ROGAN, Auteur ; Laura TAVERNOR, Auteur ; Luke VALE, Auteur ; Elspeth Imogen WEBB, Auteur ; Christopher WEETMAN, Auteur ; Jacqui RODGERS, Auteur . - p.1998-2015. Langues : Anglais (eng) in Autism > 29-8 (August 2025) . - p.1998-2015 Mots-clés : autism spectrum disorders  interventions - psychosocial/behavioural  pre-school children  school-age children Index. décimale : PER Périodiques Résumé : Restricted and repetitive behaviours vary greatly between autistic people. Some are a source of pleasure or create opportunities for learning; others may be detrimental in day-to-day life or cause harm. We have developed, in close collaboration with parents/carers, the Understanding Repetitive Behaviours programme, designed for families of young autistic children, to help them recognise, understand and respond sensitively to their child?s impactful restricted and repetitive behaviours. This study is a clinical and cost-effectiveness, multi-site randomised controlled trial of the Understanding Repetitive Behaviours parent programme versus a psychoeducation programme (equivalent to current best practice), learning about autism. Participants were parents/carers, with an autistic child aged between 3-9?years and 11?months. The study was delivered across three sites in England and Scotland. Analyses were completed using intention-to-treat principles. Two hundred and twenty seven families were randomised (113 in LAA; 114 in Understanding Repetitive Behaviours arm). No differences were found between the arms on the primary outcome measure (The Clinical Global Impression - Improvement scale). Analysis of secondary outcomes indicated that children in the Understanding Repetitive Behaviours arm were more likely to be rated as responders in target impactful restricted and repetitive behaviours at 24?weeks but that this effect was not maintained at 52?weeks. Improvements in parent and family functioning were apparent, with no evidence of differences between the arms. The study reconfirms that it is important that clinicians consider both restricted and repetitive behaviours and social communication needs of autistic children with parents when planning appropriate support.Lay abstract Autistic children, frequently repeat the same behaviours over and over, have specific interests or like things to stay the same. These behaviours and interests are often fun and helpful. However, sometimes they can impact negatively on day-to-day life or put the child at risk of harm. Working closely with parents of autistic children, we developed an 8-week programme (Understanding Repetitive Behaviours) to help them recognise and understand these behaviours. This study aimed to find out whether the understanding repetitive behaviour programme was helpful and good value for money. Two hundred and twenty seven families were allocated by chance to receive either Understanding Repetitive Behaviours or a learning about autism programme. When experts made judgements about whether children showed positive changes across various measures, and these were analysed, there were no differences between the programmes. However, parents who attended the Understanding Repetitive Behaviours programme reported improvement in one of their child?s specific repetitive behaviour (selected to be the main focus of the Understanding Repetitive Behaviours programme) at 24?weeks after the end of the programme. Parents who attended either programme reported more confidence, greater wellbeing and less stress up to 1?year after the end of the study. En ligne : https://journals.sagepub.com/doi/abs/10.1177/13623613251333175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=564

---

1 (1 - 3 / 3)