Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study / Sarabeth BRODER-FINGERT in Autism, 23-3 (April 2019)  

Public ISBD [article]  inAutism > 23-3 (April 2019) . - p.653-664 Titre : Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study Type de document : Texte imprimé et/ou numérique Auteurs : Sarabeth BRODER-FINGERT, Auteur ; Alice S. CARTER, Auteur ; K. PIERCE, Auteur ; W. L. STONE, Auteur ; Amy M. WETHERBY, Auteur ; C. SCHELDRICK, Auteur ; C. SMITH, Auteur ; E. BACON, Auteur ; S. N. JAMES, Auteur ; L. IBANEZ, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.653-664 Langues : Anglais (eng) Mots-clés : autism  early intervention  implementation Index. décimale : PER Périodiques Résumé : In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment. En ligne : http://dx.doi.org/10.1177/1362361318766238 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392 [article] Implementing systems-based innovations to improve access to early screening, diagnosis, and treatment services for children with autism spectrum disorder: An Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services network study [Texte imprimé et/ou numérique] / Sarabeth BRODER-FINGERT, Auteur ; Alice S. CARTER, Auteur ; K. PIERCE, Auteur ; W. L. STONE, Auteur ; Amy M. WETHERBY, Auteur ; C. SCHELDRICK, Auteur ; C. SMITH, Auteur ; E. BACON, Auteur ; S. N. JAMES, Auteur ; L. IBANEZ, Auteur ; E. FEINBERG, Auteur . - p.653-664. Langues : Anglais (eng) in Autism > 23-3 (April 2019) . - p.653-664 Mots-clés : autism  early intervention  implementation Index. décimale : PER Périodiques Résumé : In 2013, the National Institute of Mental Health funded five trials of unique, multicomponent, systems-based innovations designed to improve access to early screening, diagnosis, and treatment of autism spectrum disorder-collectively known as the Autism Spectrum Disorder Pediatric, Early Detection, Engagement, and Services Network. As part of an ongoing effort to pool data and learn from shared experience, we collected information across all studies about innovation components and implementation strategies. First, each study group completed standardized checklists based on the Template for Intervention Description and Replication and the Expert Recommendation for Implementing Change. Then, we interviewed principal and co-investigators of each study (n = 9) to further explore innovation components and assess barriers and facilitators to implementation. Innovation strategies were diverse (five different autism spectrum disorder screeners were used, 40% included early intervention trainings, 60% involved new technology). Common implementation strategies included developing stakeholder relationships and provider trainings. Barriers included inefficient systems of care, difficulty engaging families in the innovations, provider attitudes, and organizational culture (e.g. difficulty changing clinic processes). These findings suggest that-despite diverse settings and a variety of innovation content-common facilitators and challenges exist in implementing innovations to enhance access to early autism spectrum disorder screening, diagnosis, and treatment. En ligne : http://dx.doi.org/10.1177/1362361318766238 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=392

A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder / Sarabeth BRODER-FINGERT in Autism, 23-5 (July 2019)  

Public ISBD [article]  inAutism > 23-5 (July 2019) . - p.1288-1299 Titre : A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Sarabeth BRODER-FINGERT, Auteur ; S. QIN, Auteur ; J. GOUPIL, Auteur ; J. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; N. BLUM, Auteur ; Amanda E. BENNETT, Auteur ; C. WEITZMAN, Auteur ; J. P. GUEVARA, Auteur ; A. FENICK, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1288-1299 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401 [article] A mixed-methods process evaluation of Family Navigation implementation for autism spectrum disorder [Texte imprimé et/ou numérique] / Sarabeth BRODER-FINGERT, Auteur ; S. QIN, Auteur ; J. GOUPIL, Auteur ; J. ROSENBERG, Auteur ; Marilyn AUGUSTYN, Auteur ; N. BLUM, Auteur ; Amanda E. BENNETT, Auteur ; C. WEITZMAN, Auteur ; J. P. GUEVARA, Auteur ; A. FENICK, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur . - p.1288-1299. Langues : Anglais (eng) in Autism > 23-5 (July 2019) . - p.1288-1299 Mots-clés : autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : There is growing interest in Family Navigation as an approach to improving access to care for children with autism spectrum disorder, yet little data exist on the implementation of Family Navigation. The aim of this study was to identify potential failures in implementing Family Navigation for children with autism spectrum disorder, using a failure modes and effects analysis. This mixed-methods study was set within a randomized controlled trial testing the effectiveness of Family Navigation in reducing the time from screening to diagnosis and treatment for autism spectrum disorder across three states. Using standard failure modes and effects analysis methodology, experts in Family Navigation for autism spectrum disorder (n = 9) rated potential failures in implementation on a 10-point scale in three categories: likelihood of the failure occurring, likelihood of not detecting the failure, and severity of failure. Ratings were then used to create a risk priority number for each failure. The failure modes and effects analysis detected five areas for potential "high priority" failures in implementation: (1) setting up community-based services, (2) initial family meeting, (3) training, (4) fidelity monitoring, and (5) attending testing appointments. Reasons for failure included families not receptive, scheduling, and insufficient training time. The process with the highest risk profile was "setting up community-based services." Failure in "attending testing appointment" was rated as the most severe potential failure. A number of potential failures in Family Navigation implementation-along with strategies for mitigation-were identified. These data can guide those working to implement Family Navigation for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361318808460 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=401

Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder / E. J. HICKEY in Autism, 25-6 (August 2021)  

Public ISBD [article]  inAutism > 25-6 (August 2021) . - p.1694-1708 Titre : Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.1694-1708 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parent stress and coping trajectories in Hispanic and non-Hispanic families of children at risk of autism spectrum disorder [Texte imprimé et/ou numérique] / E. J. HICKEY, Auteur ; M. STRANSKY, Auteur ; J. KUHN, Auteur ; J. E. ROSENBERG, Auteur ; H. J. CABRAL, Auteur ; C. WEITZMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; E. FEINBERG, Auteur . - p.1694-1708. Langues : Anglais (eng) in Autism > 25-6 (August 2021) . - p.1694-1708 Mots-clés : Adaptation, Psychological  Autism Spectrum Disorder  Child  Humans  Parenting  Parents  Stress, Psychological  autism risk  autism spectrum disorders  coping  developmental disabilities  family impact  parenting stress  trajectories Index. décimale : PER Périodiques Résumé : Little is known about parent experiences throughout the diagnostic process for autism or how these parent experiences may help explain the disparities that exist between Hispanic and non-Hispanic families in time-to-diagnosis among children identified as at risk for autism. The current study examined trajectories of parenting stress, coping, and perceived family impact over time, throughout the autism diagnostic process among Hispanic and non-Hispanic families. Hispanic families reported lower levels of parenting stress, coping, and negative family impact across time. Further, there were differences in the change in use of coping and the amount of negative family impact reported between Hispanic and non-Hispanic parents over time. These differences shed light on the unique experiences and strengths of Hispanic families demonstrate. Interventions that leverage those strengths and focus on education, empowerment, and resilience might be particularly beneficial for Hispanic families and may also better inform work to increase resilience. En ligne : http://dx.doi.org/10.1177/13623613211001611 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation / Y. VOLIOVITCH in Journal of Autism and Developmental Disorders, 51-10 (October 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3432-3442 Titre : Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation Type de document : Texte imprimé et/ou numérique Auteurs : Y. VOLIOVITCH, Auteur ; J. M. LEVENTHAL, Auteur ; A. M. FENICK, Auteur ; A. R. GUPTA, Auteur ; E. FEINBERG, Auteur ; E. J. HICKEY, Auteur ; V. SHABANOVA, Auteur ; C. WEITZMAN, Auteur Article en page(s) : p.3432-3442 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Cross-Sectional Studies  Humans  Parenting  Parents  Stress, Psychological/diagnosis  Autism spectrum disorder  Parenting stress  Pre-diagnostic Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression modeling evaluated the associations between parenting stress and parent and child factors. Parenting stress was negatively associated with social support and positively associated with active avoidance coping and parental worry. However, parenting stress was not associated with the child's ASD symptom severity or adaptive functioning, except for self-direction. Findings suggest parenting stress among parents of children at risk of ASD should be assessed prior to diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04804-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Parenting Stress and its Associated Components Prior to an Autism Spectrum Disorder (ASD) Diagnostic Evaluation [Texte imprimé et/ou numérique] / Y. VOLIOVITCH, Auteur ; J. M. LEVENTHAL, Auteur ; A. M. FENICK, Auteur ; A. R. GUPTA, Auteur ; E. FEINBERG, Auteur ; E. J. HICKEY, Auteur ; V. SHABANOVA, Auteur ; C. WEITZMAN, Auteur . - p.3432-3442. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-10 (October 2021) . - p.3432-3442 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Cross-Sectional Studies  Humans  Parenting  Parents  Stress, Psychological/diagnosis  Autism spectrum disorder  Parenting stress  Pre-diagnostic Index. décimale : PER Périodiques Résumé : Parents of children with autism spectrum disorder (ASD) show increased levels of parenting stress, but only one study has examined this association before a diagnostic evaluation. We conducted a cross-sectional study of parenting stress in 317 low SES parents with children at-risk for ASD before a diagnostic evaluation. Multiple regression modeling evaluated the associations between parenting stress and parent and child factors. Parenting stress was negatively associated with social support and positively associated with active avoidance coping and parental worry. However, parenting stress was not associated with the child's ASD symptom severity or adaptive functioning, except for self-direction. Findings suggest parenting stress among parents of children at risk of ASD should be assessed prior to diagnosis. En ligne : http://dx.doi.org/10.1007/s10803-020-04804-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Participant characteristics in autism intervention studies / Sarabeth BRODER-FINGERT in Autism, 23-1 (January 2019)  

Public ISBD [article]  inAutism > 23-1 (January 2019) . - p.265-266 Titre : Participant characteristics in autism intervention studies Type de document : Texte imprimé et/ou numérique Auteurs : Sarabeth BRODER-FINGERT, Auteur ; C. SILVA, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur Article en page(s) : p.265-266 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  education services  family functioning and  support  health services  interventions-psychosocial/behavioral  policy  pre-school children  Psychology Index. décimale : PER Périodiques Résumé : The purpose of this Letter to the Editor is to discuss the recent paper, "Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research" by Ratto et al. Specifically, we are interested in further exploring the question of "who participates in autism spectrum disorder intervention research," and how this question may impact interpretation of Ratto and colleagues' paper. En ligne : http://dx.doi.org/10.1177/1362361317722306 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379 [article] Participant characteristics in autism intervention studies [Texte imprimé et/ou numérique] / Sarabeth BRODER-FINGERT, Auteur ; C. SILVA, Auteur ; M. SILVERSTEIN, Auteur ; E. FEINBERG, Auteur . - p.265-266. Langues : Anglais (eng) in Autism > 23-1 (January 2019) . - p.265-266 Mots-clés : autism spectrum disorders  education services  family functioning and  support  health services  interventions-psychosocial/behavioral  policy  pre-school children  Psychology Index. décimale : PER Périodiques Résumé : The purpose of this Letter to the Editor is to discuss the recent paper, "Lessons learned: Engaging culturally diverse families in neurodevelopmental disorders intervention research" by Ratto et al. Specifically, we are interested in further exploring the question of "who participates in autism spectrum disorder intervention research," and how this question may impact interpretation of Ratto and colleagues' paper. En ligne : http://dx.doi.org/10.1177/1362361317722306 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=379

Prevention and Management of Obesity in Children with Autism Spectrum Disorder Among Primary Care Pediatricians / M. WALLS in Journal of Autism and Developmental Disorders, 48-7 (July 2018)  

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