Parental concerns of children with ASD by age: A qualitative analysis / Danika PFEIFFER in Research in Autism Spectrum Disorders, 86 (August 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 86 (August 2021) . - 101817 Titre : Parental concerns of children with ASD by age: A qualitative analysis Type de document : texte imprimé Auteurs : Danika PFEIFFER, Auteur ; Calliope HOLINGUE, Auteur ; Emily DILLON, Auteur ; Luke G. KALB, Auteur ; Rachel REETZKE, Auteur ; Rebecca LANDA, Auteur Article en page(s) : 101817 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Parental concerns  Children  Age  Qualitative Index. décimale : PER Périodiques Résumé : Background Eliciting parents’ concerns about their children is an important initial step in the ASD diagnostic process. This information is often collected through forced-choice questionnaires utilizing professional terminology and may limit the potential concerns that can be reported. Parent concern studies to date have largely used deductive qualitative methods with only one age group of children. Inductive qualitative studies are needed to examine parental concerns of children with ASD across age groups with one coding scheme. Method We used an inductive qualitative analysis process to analyze concerns reported by parents of children ages 1–11 years on intake forms (n = 455) at an urban outpatient ASD specialty clinic. Analyses were based on three age groups (toddler, preschooler, middle childhood). Results Using conventional content analysis, 12 categories of concerns emerged from parents’ responses: communication, social, behavioral/emotional, cognition, life skills, atypical behaviors, sensory, academic, health, seeking diagnostic clarity or resources, developmental, and motor skills. We found that parents reported the same concerns about their children across age groups in six of the 12 categories. The biggest difference in reported concerns across age groups was that parents of children in the preschooler and middle childhood groups reported a greater number of concerns related to mental health than parents of toddlers. Conclusion Our analysis yields specific information about similarities and differences in parents’ concerns depending on their child’s age. Ensuring that ASD evaluations are tailored to children’s unique needs has implications for timely diagnosis and access to care. En ligne : https://doi.org/10.1016/j.rasd.2021.101817 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Parental concerns of children with ASD by age: A qualitative analysis [texte imprimé] / Danika PFEIFFER, Auteur ; Calliope HOLINGUE, Auteur ; Emily DILLON, Auteur ; Luke G. KALB, Auteur ; Rachel REETZKE, Auteur ; Rebecca LANDA, Auteur . - 101817. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 86 (August 2021) . - 101817 Mots-clés : Autism spectrum disorders  Parental concerns  Children  Age  Qualitative Index. décimale : PER Périodiques Résumé : Background Eliciting parents’ concerns about their children is an important initial step in the ASD diagnostic process. This information is often collected through forced-choice questionnaires utilizing professional terminology and may limit the potential concerns that can be reported. Parent concern studies to date have largely used deductive qualitative methods with only one age group of children. Inductive qualitative studies are needed to examine parental concerns of children with ASD across age groups with one coding scheme. Method We used an inductive qualitative analysis process to analyze concerns reported by parents of children ages 1–11 years on intake forms (n = 455) at an urban outpatient ASD specialty clinic. Analyses were based on three age groups (toddler, preschooler, middle childhood). Results Using conventional content analysis, 12 categories of concerns emerged from parents’ responses: communication, social, behavioral/emotional, cognition, life skills, atypical behaviors, sensory, academic, health, seeking diagnostic clarity or resources, developmental, and motor skills. We found that parents reported the same concerns about their children across age groups in six of the 12 categories. The biggest difference in reported concerns across age groups was that parents of children in the preschooler and middle childhood groups reported a greater number of concerns related to mental health than parents of toddlers. Conclusion Our analysis yields specific information about similarities and differences in parents’ concerns depending on their child’s age. Ensuring that ASD evaluations are tailored to children’s unique needs has implications for timely diagnosis and access to care. En ligne : https://doi.org/10.1016/j.rasd.2021.101817 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Parental relationship status and age at autism spectrum disorder diagnosis of their child / L. G. KALB in Autism, 25-8 (November 2021)  

Public ISBD [article]  inAutism > 25-8 (November 2021) . - p.2189-2198 Titre : Parental relationship status and age at autism spectrum disorder diagnosis of their child Type de document : texte imprimé Auteurs : L. G. KALB, Auteur ; C. HOLINGUE, Auteur ; D. PFEIFFER, Auteur ; R. REETZKE, Auteur ; Emily DILLON, Auteur ; Gazi F. AZAD, Auteur ; B. FREEDMAN, Auteur ; R. LANDA, Auteur Article en page(s) : p.2189-2198 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  United States  autism spectrum disorders  diagnosis  family functioning and support  of interest with respect to the research, authorship and/or publication of this  article. Conflict of interest: The authors have indicated they have no potential  conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) can be diagnosed as early as 18 months of age. However, the average age at diagnosis in the United States is over 2 years later. A lot has been written about the many barriers families face when seeking a diagnosis for their child. One area of research that has received no attention is whether separation between a child's biological parents affects the age at which a child is diagnosed with ASD. This study was conducted among 561 children who were receiving an ASD diagnosis for the first time. On average, these children were 5 years of age. The study took place in an urban, outpatient specialty autism clinic in the United States. Biological parents self-reported their relationship status during the evaluation. This was categorized as either "together" (married or living together but not married) or "not together" (separated, divorced, or never married). At the time of diagnosis, most children's biological parents were together (69%). We found children of parents who were together were diagnosed 1.4 years earlier than those who were not together. These findings have important implications for providing support to families that separate early in a child's life, with the goal of reducing the age at ASD evaluation among single parents and those who have been separated from their child's other biological parent. Providing support to these families is important since earlier age at diagnosis leads to earlier intervention, which can improve long-term outcomes for the child, family, and community as a whole. En ligne : http://dx.doi.org/10.1177/13623613211013683 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 [article] Parental relationship status and age at autism spectrum disorder diagnosis of their child [texte imprimé] / L. G. KALB, Auteur ; C. HOLINGUE, Auteur ; D. PFEIFFER, Auteur ; R. REETZKE, Auteur ; Emily DILLON, Auteur ; Gazi F. AZAD, Auteur ; B. FREEDMAN, Auteur ; R. LANDA, Auteur . - p.2189-2198. Langues : Anglais (eng) in Autism > 25-8 (November 2021) . - p.2189-2198 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Family  Humans  Parents  United States  autism spectrum disorders  diagnosis  family functioning and support  of interest with respect to the research, authorship and/or publication of this  article. Conflict of interest: The authors have indicated they have no potential  conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Autism spectrum disorder (ASD) can be diagnosed as early as 18 months of age. However, the average age at diagnosis in the United States is over 2 years later. A lot has been written about the many barriers families face when seeking a diagnosis for their child. One area of research that has received no attention is whether separation between a child's biological parents affects the age at which a child is diagnosed with ASD. This study was conducted among 561 children who were receiving an ASD diagnosis for the first time. On average, these children were 5 years of age. The study took place in an urban, outpatient specialty autism clinic in the United States. Biological parents self-reported their relationship status during the evaluation. This was categorized as either "together" (married or living together but not married) or "not together" (separated, divorced, or never married). At the time of diagnosis, most children's biological parents were together (69%). We found children of parents who were together were diagnosed 1.4 years earlier than those who were not together. These findings have important implications for providing support to families that separate early in a child's life, with the goal of reducing the age at ASD evaluation among single parents and those who have been separated from their child's other biological parent. Providing support to these families is important since earlier age at diagnosis leads to earlier intervention, which can improve long-term outcomes for the child, family, and community as a whole. En ligne : http://dx.doi.org/10.1177/13623613211013683 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451

Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis / Gazi F. AZAD in Journal of Autism and Developmental Disorders, 50-4 (April 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1269-1280 Titre : Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis Type de document : texte imprimé Auteurs : Gazi F. AZAD, Auteur ; Emily DILLON, Auteur ; Julie FEUERSTEIN, Auteur ; Luke G. KALB, Auteur ; Jason NEELY, Auteur ; Rebecca LANDA, Auteur Article en page(s) : p.1269-1280 Langues : Anglais (eng) Mots-clés : Autism  Autism spectrum disorder  Clinical services  Quality of life Index. décimale : PER Périodiques Résumé : We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5-17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients. En ligne : http://dx.doi.org/10.1007/s10803-019-04353-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis [texte imprimé] / Gazi F. AZAD, Auteur ; Emily DILLON, Auteur ; Julie FEUERSTEIN, Auteur ; Luke G. KALB, Auteur ; Jason NEELY, Auteur ; Rebecca LANDA, Auteur . - p.1269-1280. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-4 (April 2020) . - p.1269-1280 Mots-clés : Autism  Autism spectrum disorder  Clinical services  Quality of life Index. décimale : PER Périodiques Résumé : We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5-17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients. En ligne : http://dx.doi.org/10.1007/s10803-019-04353-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort / Emily DILLON in Journal of Autism and Developmental Disorders, 53-4 (April 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1305-1318 Titre : Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort Type de document : texte imprimé Auteurs : Emily DILLON, Auteur ; Stephen KANNE, Auteur ; Rebecca J. LANDA, Auteur ; Robert ANNETT, Auteur ; Raphael A. BERNIER, Auteur ; Catherine BRADLEY, Auteur ; Laura A. CARPENTER, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; Robert T. SCHULTZ, Auteur ; Ericka L. WODKA, Auteur ; Ericka L. WODKA, Auteur ; Spark consortium THE, Auteur Article en page(s) : p.1305-1318 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Discernment of possible sex-based variations in presentations of autism spectrum disorder (ASD) symptoms is limited by smaller female samples with ASD and confounds with ASD ascertainment. A large national cohort of individuals with autism, SPARK, allowed parent report data to be leveraged to examine whether intrinsic child characteristics and extrinsic factors differentially impact males and females with ASD. Small but consistent sex differences in individuals with ASD emerged related to both intrinsic and extrinsic factors, with different markers for males and females. Language concerns in males may make discernment of ASD more straightforward, while early motor concerns in females may hamper diagnosis as such delays are not identified within traditional ASD diagnostic criteria. En ligne : https://doi.org/10.1007/s10803-021-05385-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500 [article] Sex Differences in Autism: Examining Intrinsic and Extrinsic Factors in Children and Adolescents Enrolled in a National ASD Cohort [texte imprimé] / Emily DILLON, Auteur ; Stephen KANNE, Auteur ; Rebecca J. LANDA, Auteur ; Robert ANNETT, Auteur ; Raphael A. BERNIER, Auteur ; Catherine BRADLEY, Auteur ; Laura A. CARPENTER, Auteur ; So Hyun KIM, Auteur ; Julia PARISH-MORRIS, Auteur ; Robert T. SCHULTZ, Auteur ; Ericka L. WODKA, Auteur ; Ericka L. WODKA, Auteur ; Spark consortium THE, Auteur . - p.1305-1318. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-4 (April 2023) . - p.1305-1318 Index. décimale : PER Périodiques Résumé : Discernment of possible sex-based variations in presentations of autism spectrum disorder (ASD) symptoms is limited by smaller female samples with ASD and confounds with ASD ascertainment. A large national cohort of individuals with autism, SPARK, allowed parent report data to be leveraged to examine whether intrinsic child characteristics and extrinsic factors differentially impact males and females with ASD. Small but consistent sex differences in individuals with ASD emerged related to both intrinsic and extrinsic factors, with different markers for males and females. Language concerns in males may make discernment of ASD more straightforward, while early motor concerns in females may hamper diagnosis as such delays are not identified within traditional ASD diagnostic criteria. En ligne : https://doi.org/10.1007/s10803-021-05385-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=500

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