Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging / Ye In HWANG in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2326-2335 Titre : Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging Type de document : Texte imprimé et/ou numérique Auteurs : Ye In HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.2326-2335 Langues : Anglais (eng) Mots-clés : Activities of daily living  Adulthood  Aging  Aging well  Cognitive functioning  Education  Employment  Medical comorbidities  Physical functioning  Social participation  Successful aging  Theory Index. décimale : PER Périodiques Résumé : There is a gap in our knowledge of aging with autism. The present study examined the applicability of the popular gerontology concept of "aging well" to autistic adults. Using survey data, a model of "aging well" was operationalised and applied to 92 autistic adults and 60 controls. A very small proportion (3.3%) of autistic adults were found to be aging well. Significantly less autistic adults were "maintaining physical and cognitive functioning" and "actively engaging with life" in comparison to controls. Whilst important differences in health and functioning status were found, the current dominant model of "aging well" is limited for examining autistic individuals. Suggested adjustments include development of a broader, more flexible and strengths -based model. En ligne : http://dx.doi.org/10.1007/s10803-018-3596-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging [Texte imprimé et/ou numérique] / Ye In HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.2326-2335. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2326-2335 Mots-clés : Activities of daily living  Adulthood  Aging  Aging well  Cognitive functioning  Education  Employment  Medical comorbidities  Physical functioning  Social participation  Successful aging  Theory Index. décimale : PER Périodiques Résumé : There is a gap in our knowledge of aging with autism. The present study examined the applicability of the popular gerontology concept of "aging well" to autistic adults. Using survey data, a model of "aging well" was operationalised and applied to 92 autistic adults and 60 controls. A very small proportion (3.3%) of autistic adults were found to be aging well. Significantly less autistic adults were "maintaining physical and cognitive functioning" and "actively engaging with life" in comparison to controls. Whilst important differences in health and functioning status were found, the current dominant model of "aging well" is limited for examining autistic individuals. Suggested adjustments include development of a broader, more flexible and strengths -based model. En ligne : http://dx.doi.org/10.1007/s10803-018-3596-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Associations between coping strategies and mental health outcomes in autistic adults / Melanie MUNIANDY in Autism Research, 15-5 (May 2022)  

Public ISBD [article]  inAutism Research > 15-5 (May 2022) . - p.929-944 Titre : Associations between coping strategies and mental health outcomes in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Melanie MUNIANDY, Auteur ; Amanda L. RICHDALE, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur Article en page(s) : p.929-944 Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Adult  Autism Spectrum Disorder/complications/epidemiology  Autistic Disorder/complications/psychology  Humans  Mental Health  Outcome Assessment, Health Care  adults  autism spectrum disorders  coping strategies  well-being Index. décimale : PER Périodiques Résumé : Compared to the general population, mental health difficulties are commonly reported in autistic adults. However, the ways in which coping strategies are associated with mental health and well-being in this population remain unknown. Further, we do not know if, and if so, how these associations might differ to that of non-autistic adults. In this study, we hypothesized that in both our autistic (N = 255) and non-autistic (N = 165) adult samples, disengagement coping strategies (e.g., denial) would relate to poorer mental health and well-being, while engagement coping strategies (e.g., problem solving) would relate to better mental health and well-being. Regression analyses revealed that higher use of disengagement coping strategies was significantly associated with higher levels of anxiety and depression, and lower levels of well-being in both samples. In contrast, increased use of engagement coping strategies was associated with better well-being, but only in the autistic sample. Our results contribute to the characterization of negative and positive mental health outcomes in autistic adults from a coping perspective, with potential to offer novel information regarding coping strategies to consider when addressing support options for mental health difficulties in the autistic adult population. LAY SUMMARY: Mental health conditions (such as anxiety and depression) and poor well-being are commonly reported in autistic adults. Research suggests that how one copes with stress is associated with one's mental health and well-being. However, we have little information about how coping strategies relate to the mental health of autistic adults, and whether this might be different in non-autistic adults. In this study, we examined the relationship between coping strategies and mental health in a large group of autistic individuals aged 15-80?years. We then compared this with similar aged non-autistic individuals. We found that in both the autistic and non-autistic individuals, using more disengagement coping strategies (such as being in denial, blaming oneself) was related to poorer mental health and well-being. Additionally, using more engagement coping strategies (such as problem solving, acceptance) was related to better mental health and well-being, but only in the autistic individuals. These results can help inform support services, as they highlight the coping strategies that may need to be focused on (i.e., developing engagement coping strategies and reducing disengagement coping strategies) in order to better support the mental health of autistic individuals. En ligne : http://dx.doi.org/10.1002/aur.2694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Associations between coping strategies and mental health outcomes in autistic adults [Texte imprimé et/ou numérique] / Melanie MUNIANDY, Auteur ; Amanda L. RICHDALE, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur . - p.929-944. Langues : Anglais (eng) in Autism Research > 15-5 (May 2022) . - p.929-944 Mots-clés : Adaptation, Psychological  Adult  Autism Spectrum Disorder/complications/epidemiology  Autistic Disorder/complications/psychology  Humans  Mental Health  Outcome Assessment, Health Care  adults  autism spectrum disorders  coping strategies  well-being Index. décimale : PER Périodiques Résumé : Compared to the general population, mental health difficulties are commonly reported in autistic adults. However, the ways in which coping strategies are associated with mental health and well-being in this population remain unknown. Further, we do not know if, and if so, how these associations might differ to that of non-autistic adults. In this study, we hypothesized that in both our autistic (N = 255) and non-autistic (N = 165) adult samples, disengagement coping strategies (e.g., denial) would relate to poorer mental health and well-being, while engagement coping strategies (e.g., problem solving) would relate to better mental health and well-being. Regression analyses revealed that higher use of disengagement coping strategies was significantly associated with higher levels of anxiety and depression, and lower levels of well-being in both samples. In contrast, increased use of engagement coping strategies was associated with better well-being, but only in the autistic sample. Our results contribute to the characterization of negative and positive mental health outcomes in autistic adults from a coping perspective, with potential to offer novel information regarding coping strategies to consider when addressing support options for mental health difficulties in the autistic adult population. LAY SUMMARY: Mental health conditions (such as anxiety and depression) and poor well-being are commonly reported in autistic adults. Research suggests that how one copes with stress is associated with one's mental health and well-being. However, we have little information about how coping strategies relate to the mental health of autistic adults, and whether this might be different in non-autistic adults. In this study, we examined the relationship between coping strategies and mental health in a large group of autistic individuals aged 15-80?years. We then compared this with similar aged non-autistic individuals. We found that in both the autistic and non-autistic individuals, using more disengagement coping strategies (such as being in denial, blaming oneself) was related to poorer mental health and well-being. Additionally, using more engagement coping strategies (such as problem solving, acceptance) was related to better mental health and well-being, but only in the autistic individuals. These results can help inform support services, as they highlight the coping strategies that may need to be focused on (i.e., developing engagement coping strategies and reducing disengagement coping strategies) in order to better support the mental health of autistic individuals. En ligne : http://dx.doi.org/10.1002/aur.2694 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Autistic Adults' Experiences of Diagnosis Disclosure / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Titre : Autistic Adults' Experiences of Diagnosis Disclosure Type de document : Texte imprimé et/ou numérique Auteurs : Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur Année de publication : 2022 Article en page(s) : p.5301-5307 Langues : Anglais (eng) Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Autistic Adults' Experiences of Diagnosis Disclosure [Texte imprimé et/ou numérique] / Yunhe HUANG, Auteur ; Ye In Jane HWANG, Auteur ; Samuel R. C. ARNOLD, Auteur ; Lauren P LAWSON, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur . - 2022 . - p.5301-5307. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5301-5307 Mots-clés : Adult  Humans  Disclosure  Autistic Disorder/diagnosis  Autism Spectrum Disorder  Social Stigma  Prejudice  Adults  Autism  Diagnosis  Mixed-methods  Stigma Index. décimale : PER Périodiques Résumé : As autism is an invisible and often stigmatised condition, disclosing the diagnosis may lead to both support and/or discrimination. This mixed-methods questionnaire study examined autistic adults' experiences of disclosure in various contexts. The sample consisted of 393 participants aged 17-83 years from two longitudinal surveys. Almost all participants disclosed their diagnosis to someone, most commonly to friends. A significant minority of participants studying and/or working at the time had not disclosed to their education provider/employer. Content analysis of open-ended responses showed participants desired to gain understanding and support from disclosure but feared prejudice. While some received support, others encountered dismissiveness and misunderstanding. Findings highlight the need to improve autism understanding and reduce stigma within and beyond educational and employment contexts. En ligne : http://dx.doi.org/10.1007/s10803-021-05384-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Barriers to healthcare for Australian autistic adults / Georgia BRUCE ; Janelle WEISE ; Caroline J. MILLS ; Julian N. TROLLOR ; Kristy COXON in Autism, 28-2 (February 2024)  

Public ISBD [article]  inAutism > 28-2 (February 2024) . - p.301?315 Titre : Barriers to healthcare for Australian autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur Article en page(s) : p.301?315 Mots-clés : access  adult  autism  autistic  healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519 [article] Barriers to healthcare for Australian autistic adults [Texte imprimé et/ou numérique] / Georgia BRUCE, Auteur ; Janelle WEISE, Auteur ; Caroline J. MILLS, Auteur ; Julian N. TROLLOR, Auteur ; Kristy COXON, Auteur . - p.301?315. in Autism > 28-2 (February 2024) . - p.301?315 Mots-clés : access  adult  autism  autistic  healthcare Index. décimale : PER Périodiques Résumé : Barriers to healthcare experienced by Australian autistic adults have not been previously explored. We conducted a cross-sectional investigation of barriers to healthcare and associated factors from a subtle realism perspective. Perceived barriers to healthcare were obtained from the Barriers to Healthcare Checklist Short-Form (BHC). A total of 263 autistic and 70 non-autistic individuals completed the BHC. On average, autistic adults reported more barriers to healthcare (4.58) than non-autistic adults (0.76). Gender diversity, higher levels of generalised anxiety, greater global disability and less satisfaction with social support contributed to the experience of barriers to healthcare in autistic participants in regression modelling. Australian autistic adults face substantial barriers to healthcare. Understanding these barriers provides an opportunity to develop approaches to improve access; such as co-designing a healthcare access roadmap for autistic adults, with co-designed policies and practices which advocate for the needs of autistic adults. Lay abstract This study looked at how Australian autistic and non-autistic adults experience barriers to healthcare. We asked autistic and non-autistic adults to complete the Barriers to Healthcare Checklist Short-Form (BHC). We analysed data from 263 autistic adults and 70 non-autistic adults. We found that autistic adults experienced more barriers to healthcare than non-autistic adults. Gender diversity, feeling more anxious, having greater disability and feeling unsatisfied with social support contributed to barriers to healthcare in autistic participants. We recommend interventions such as developing and implementing a national action plan, similar to the National Roadmap for Improving the Health of People with Intellectual Disability (2021) to reduce barriers and address unmet healthcare needs of Australian autistic adults. We also recommend working with autistic adults to develop new policies and strategies, implementing environmental adaptations to health care facilities, and increasing Autism education opportunities for health professionals to address gaps in knowledge. En ligne : https://dx.doi.org/10.1177/13623613231168444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=519

Brief Report: Longitudinal Role of Coping Strategies on Mental Health Outcomes in Autistic Youth and Adults / Melanie MUNIANDY in Journal of Autism and Developmental Disorders, 55-3 (March 2025)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1146-1155 Titre : Brief Report: Longitudinal Role of Coping Strategies on Mental Health Outcomes in Autistic Youth and Adults Type de document : Texte imprimé et/ou numérique Auteurs : Melanie MUNIANDY, Auteur ; Amanda L. RICHDALE, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur Article en page(s) : p.1146-1155 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The stress literature suggests that coping strategies are implicated in mental health outcomes. However, the longitudinal relationship between coping strategies and mental health in the autistic adult population has not yet been examined. This 2-year longitudinal study examined the predictive role of both baseline and change in coping strategy use over time (i.e., an increase or decrease) on anxiety, depression, and well-being after 2-years in 87 autistic adults aged 16 to 80 years. Controlling for baseline mental health, both baseline and increase in disengagement coping strategies (e.g., denial, self-blame) predicted higher anxiety and depression, and lower well-being, while an increase in engagement coping strategies (e.g., problem solving, acceptance) predicted higher well-being. These findings extend the current coping literature in autistic adults, offering insight into mental health support and intervention options. En ligne : https://doi.org/10.1007/s10803-023-05953-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=549 [article] Brief Report: Longitudinal Role of Coping Strategies on Mental Health Outcomes in Autistic Youth and Adults [Texte imprimé et/ou numérique] / Melanie MUNIANDY, Auteur ; Amanda L. RICHDALE, Auteur ; Samuel R. C. ARNOLD, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur . - p.1146-1155. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 55-3 (March 2025) . - p.1146-1155 Index. décimale : PER Périodiques Résumé : The stress literature suggests that coping strategies are implicated in mental health outcomes. However, the longitudinal relationship between coping strategies and mental health in the autistic adult population has not yet been examined. This 2-year longitudinal study examined the predictive role of both baseline and change in coping strategy use over time (i.e., an increase or decrease) on anxiety, depression, and well-being after 2-years in 87 autistic adults aged 16 to 80 years. Controlling for baseline mental health, both baseline and increase in disengagement coping strategies (e.g., denial, self-blame) predicted higher anxiety and depression, and lower well-being, while an increase in engagement coping strategies (e.g., problem solving, acceptance) predicted higher well-being. These findings extend the current coping literature in autistic adults, offering insight into mental health support and intervention options. En ligne : https://doi.org/10.1007/s10803-023-05953-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=549

Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults / Samuel R. C. ARNOLD in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

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Choose your Own Adventure: Pathways to Adulthood Autism Diagnosis in Australia / Yunhe HUANG in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

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Cross-sectional and longitudinal predictors of quality of life in autistic individuals from adolescence to adulthood: The role of mental health and sleep quality / Lauren P. LAWSON in Autism, 24-4 (May 2020)  

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Diagnosis of autism in adulthood: A scoping review / Yunhe HUANG in Autism, 24-6 (August 2020)  

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Experiences of Support Following Autism Diagnosis in Adulthood / Samuel R. C. ARNOLD ; Kitty-Rose FOLEY ; Julian N. TROLLOR in Journal of Autism and Developmental Disorders, 54-2 (February 2024)  

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Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

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A Qualitative Study of Adults' and Support Persons' Experiences of Support After Autism Diagnosis / Yunhe HUANG in Journal of Autism and Developmental Disorders, 54-3 (March 2024)  

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The Suicide Assessment Kit-Modified Interview: Development and preliminary validation of a modified clinical interview for the assessment of suicidal thoughts and behavior in autistic adults / Darren HEDLEY in Autism, 29-3 (March 2025)  

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