Addressing current barriers to autism diagnoses through a tiered diagnostic approach involving pediatric primary care providers / Andrea T. WIECKOWSKI in Autism Research, 15-12 (December 2022)  

Public ISBD [article]  inAutism Research > 15-12 (December 2022) . - p.2216-2222 Titre : Addressing current barriers to autism diagnoses through a tiered diagnostic approach involving pediatric primary care providers Type de document : texte imprimé Auteurs : Andrea T. WIECKOWSKI, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Diana L. ROBINS, Auteur Article en page(s) : p.2216-2222 Langues : Anglais (eng) Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder  Autism Spectrum Disorder/diagnosis/therapy  Primary Health Care  autism spectrum disorder  diagnosis  early detection  primary care Index. décimale : PER Périodiques Résumé : Formal autism diagnosis from a specialist trained in autism assessment is customary prior to a child accessing early, intensive autism-specific services. However, long wait lists for diagnostic evaluations and limited specialty workforce have created substantial delays. Additionally, lengthy multidisciplinary evaluations are costly to insurers, inconvenient to families, and disproportionally impact under-resourced families. Diagnostic delays can impede access to intervention services. These barriers, combined with evidence regarding the importance of receiving early, autism-specific treatment, demand new approaches enabling access to autism specific services before comprehensive evaluation. Pediatric primary care providers (PCPs) are often the only health care professionals with whom a family interacts during early childhood and can play a crucial role in helping children with autism symptoms access services. Many strategies for autism diagnosis in primary care are being developed and tested; however, they have yet to be broadly adopted by PCPs, primarily due to critical implementation barriers in primary care settings. There is also not enough evidence on the accuracy of PCPs' diagnostic impressions without extensive specialty support, resulting in PCP hesitancy in diagnosing ASD, as well as family and service provider hesitancy in accepting a PCP autism diagnosis. In this commentary, we explore the acute need for shortening waitlists for autism evaluations through a tiered diagnostic approach, in which PCPs can rule in or rule out autism in children, for whom diagnosis is clear, and refer more complex cases for specialist evaluations, and explore implementation challenges to this approach. En ligne : http://dx.doi.org/10.1002/aur.2832 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Addressing current barriers to autism diagnoses through a tiered diagnostic approach involving pediatric primary care providers [texte imprimé] / Andrea T. WIECKOWSKI, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Diana L. ROBINS, Auteur . - p.2216-2222. Langues : Anglais (eng) in Autism Research > 15-12 (December 2022) . - p.2216-2222 Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder  Autism Spectrum Disorder/diagnosis/therapy  Primary Health Care  autism spectrum disorder  diagnosis  early detection  primary care Index. décimale : PER Périodiques Résumé : Formal autism diagnosis from a specialist trained in autism assessment is customary prior to a child accessing early, intensive autism-specific services. However, long wait lists for diagnostic evaluations and limited specialty workforce have created substantial delays. Additionally, lengthy multidisciplinary evaluations are costly to insurers, inconvenient to families, and disproportionally impact under-resourced families. Diagnostic delays can impede access to intervention services. These barriers, combined with evidence regarding the importance of receiving early, autism-specific treatment, demand new approaches enabling access to autism specific services before comprehensive evaluation. Pediatric primary care providers (PCPs) are often the only health care professionals with whom a family interacts during early childhood and can play a crucial role in helping children with autism symptoms access services. Many strategies for autism diagnosis in primary care are being developed and tested; however, they have yet to be broadly adopted by PCPs, primarily due to critical implementation barriers in primary care settings. There is also not enough evidence on the accuracy of PCPs' diagnostic impressions without extensive specialty support, resulting in PCP hesitancy in diagnosing ASD, as well as family and service provider hesitancy in accepting a PCP autism diagnosis. In this commentary, we explore the acute need for shortening waitlists for autism evaluations through a tiered diagnostic approach, in which PCPs can rule in or rule out autism in children, for whom diagnosis is clear, and refer more complex cases for specialist evaluations, and explore implementation challenges to this approach. En ligne : http://dx.doi.org/10.1002/aur.2832 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Aggressive behavior problems in children with autism spectrum disorders: Prevalence and correlates in a large clinical sample / Alison P. HILL in Research in Autism Spectrum Disorders, 8-9 (September 2014)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 8-9 (September 2014) . - p.1121-1133 Titre : Aggressive behavior problems in children with autism spectrum disorders: Prevalence and correlates in a large clinical sample Type de document : texte imprimé Auteurs : Alison P. HILL, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Arlene D. HAGEN, Auteur ; Daniel J. KRIZ, Auteur ; Susanne W. DUVALL, Auteur ; Jan P.H. VAN SANTEN, Auteur ; Joel T. NIGG, Auteur ; Damien A. FAIR, Auteur ; Eric FOMBONNE, Auteur Article en page(s) : p.1121-1133 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Psychotropic drugs  Aggression  Sleep  Internalizing problems  Attention problems Index. décimale : PER Périodiques Résumé : Abstract Aggressive behavior problems (ABP) are frequent yet poorly understood in children with autism spectrum disorders (ASD) and are likely to co-vary significantly with comorbid problems. We examined the prevalence and sociodemographic correlates of ABP in a clinical sample of children with ASD (N = 400; 2–16.9 years). We also investigated whether children with ABP experience more intensive medical interventions, greater impairments in behavioral functioning, and more severe comorbid problems than children with ASD who do not have ABP. One in four children with ASD had Child Behavior Checklist scores on the Aggressive Behavior scale in the clinical range (T-scores ≥ 70). Sociodemographic factors (age, gender, parent education, race, ethnicity) were unrelated to ABP status. The presence of ABP was significantly associated with increased use of psychotropic drugs and melatonin, lower cognitive functioning, lower ASD severity, and greater comorbid sleep, internalizing, and attention problems. In multivariate models, sleep, internalizing, and attention problems were most strongly associated with ABP. These comorbid problems may hold promise as targets for treatment to decrease aggressive behavior and proactively identify high-risk profiles for prevention. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.05.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=238 [article] Aggressive behavior problems in children with autism spectrum disorders: Prevalence and correlates in a large clinical sample [texte imprimé] / Alison P. HILL, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Arlene D. HAGEN, Auteur ; Daniel J. KRIZ, Auteur ; Susanne W. DUVALL, Auteur ; Jan P.H. VAN SANTEN, Auteur ; Joel T. NIGG, Auteur ; Damien A. FAIR, Auteur ; Eric FOMBONNE, Auteur . - p.1121-1133. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 8-9 (September 2014) . - p.1121-1133 Mots-clés : Autism spectrum disorders  Psychotropic drugs  Aggression  Sleep  Internalizing problems  Attention problems Index. décimale : PER Périodiques Résumé : Abstract Aggressive behavior problems (ABP) are frequent yet poorly understood in children with autism spectrum disorders (ASD) and are likely to co-vary significantly with comorbid problems. We examined the prevalence and sociodemographic correlates of ABP in a clinical sample of children with ASD (N = 400; 2–16.9 years). We also investigated whether children with ABP experience more intensive medical interventions, greater impairments in behavioral functioning, and more severe comorbid problems than children with ASD who do not have ABP. One in four children with ASD had Child Behavior Checklist scores on the Aggressive Behavior scale in the clinical range (T-scores ≥ 70). Sociodemographic factors (age, gender, parent education, race, ethnicity) were unrelated to ABP status. The presence of ABP was significantly associated with increased use of psychotropic drugs and melatonin, lower cognitive functioning, lower ASD severity, and greater comorbid sleep, internalizing, and attention problems. In multivariate models, sleep, internalizing, and attention problems were most strongly associated with ABP. These comorbid problems may hold promise as targets for treatment to decrease aggressive behavior and proactively identify high-risk profiles for prevention. En ligne : http://dx.doi.org/10.1016/j.rasd.2014.05.006 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=238

Clinical Profiles of Black and White Children Referred for Autism Diagnosis / Eric FOMBONNE in Journal of Autism and Developmental Disorders, 52-3 (March 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1120-1130 Titre : Clinical Profiles of Black and White Children Referred for Autism Diagnosis Type de document : texte imprimé Auteurs : Eric FOMBONNE, Auteur ; Katharine E. ZUCKERMAN, Auteur Article en page(s) : p.1120-1130 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/psychology  Autistic Disorder/diagnosis  Blacks  Child  Child, Preschool  Cross-Sectional Studies  Female  Humans  Male  Prevalence  Adaptive behavior  African-American  Autism  Behavioral problem  Emotional problem  Intellectual functioning  Race Index. décimale : PER Périodiques Résumé : Black children with autism are diagnosed at an older age. Whether or not late detection is paralleled by differing clinical presentation is not known. We evaluated symptom profiles of 245 Black and 488 sex- and age-matched White non-Hispanic participants (82.8% male; mean age: 4.2 years) referred for ASD diagnosis. Both groups showed similar overall levels of autistic symptoms. Black children had significantly but slightly lower scores on cognitive tests and on the Vineland communication domain than White children. Groups were comparable on internalizing and externalizing co-occurring problems. Given the largely similar clinical profiles, clinical differences in initial presentation may not be a primary reason for Black/White disparities in diagnostic and services use. Limitations of a cross-sectional referred sample are acknowledged. En ligne : http://dx.doi.org/10.1007/s10803-021-05019-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] Clinical Profiles of Black and White Children Referred for Autism Diagnosis [texte imprimé] / Eric FOMBONNE, Auteur ; Katharine E. ZUCKERMAN, Auteur . - p.1120-1130. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-3 (March 2022) . - p.1120-1130 Mots-clés : Autism Spectrum Disorder/psychology  Autistic Disorder/diagnosis  Blacks  Child  Child, Preschool  Cross-Sectional Studies  Female  Humans  Male  Prevalence  Adaptive behavior  African-American  Autism  Behavioral problem  Emotional problem  Intellectual functioning  Race Index. décimale : PER Périodiques Résumé : Black children with autism are diagnosed at an older age. Whether or not late detection is paralleled by differing clinical presentation is not known. We evaluated symptom profiles of 245 Black and 488 sex- and age-matched White non-Hispanic participants (82.8% male; mean age: 4.2 years) referred for ASD diagnosis. Both groups showed similar overall levels of autistic symptoms. Black children had significantly but slightly lower scores on cognitive tests and on the Vineland communication domain than White children. Groups were comparable on internalizing and externalizing co-occurring problems. Given the largely similar clinical profiles, clinical differences in initial presentation may not be a primary reason for Black/White disparities in diagnostic and services use. Limitations of a cross-sectional referred sample are acknowledged. En ligne : http://dx.doi.org/10.1007/s10803-021-05019-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Consensus recommendations for usability and acceptability of mobile health autism screening tools / Gabriella TANGKILISAN in Autism, 29-12 (December 2025)  

Public ISBD [article]  inAutism > 29-12 (December 2025) . - p.3100-3110 Titre : Consensus recommendations for usability and acceptability of mobile health autism screening tools Type de document : texte imprimé Auteurs : Gabriella TANGKILISAN, Auteur ; Luis Rivas VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Benjamin SANDERS, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Eric FOMBONNE, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Katharine E. ZUCKERMAN, Auteur Article en page(s) : p.3100-3110 Langues : Anglais (eng) Mots-clés : autism screening  autism spectrum disorder  Delphi consensus  developmental screening  disparities  mobile health  practice guidelines Index. décimale : PER Périodiques Résumé : Mobile health (mHealth; online phone or tablet-based) screening tools for autism are being increasingly used by parents, health care, and educational providers. However, it is unclear whether mHealth autism screening will improve the inequalities in autism or further help individuals already advantaged in autism care. To try to improve equity in mHealth autism screening, we conducted a modified Delphi consensus panel process with 14 panelists who were medical providers, parents, tool developers, and educational providers. Panelists participated in three asynchronous online voting rounds followed by online discussions. Panelists were provided a preliminary list of 28 recommendations for autism-screening tools that were compiled from previous qualitative interviews in the larger project. In each round, panelists were asked to vote for up to 10 recommendations from the preliminary list and discuss the voting results. After the third round of asynchronous voting, a final round of discussion with all the panelists was held live through Zoom to discuss the final asynchronous voting results. All voting and discussion took place on an online app called Slack. Voting and discussion yielded 19 recommendations in five conceptual categories: transparency, equity, access, product design and user experience, and development process. Tools adhering to these recommendations may increase equitable service use after screening.Lay abstract Families may use information online to learn more about autism. Families, health care, and educational providers may use online tools like checklists or web apps to screen for autism (measure whether a young child has autism symptoms or behaviors). However, we do not know whether the online autism-screening tools can be easily used by families and providers. It is possible that families who are culturally diverse, have lower education, or have lower income have trouble using online autism-screening tools. We conducted an online consensus panel with medical/educational providers, parents, and tool developers, asking them to vote and have discussions on suggestions for online screening tools for autism. The voting and discussions resulted in 19 suggestions for changes to make the tools easier to use. The top recommendations included directly linking to sources of information about autism, reading level that is less than or equal to fifth grade, and focusing on the diverse behavior/needs/strengths associated with autism. En ligne : https://dx.doi.org/10.1177/13623613251360276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572 [article] Consensus recommendations for usability and acceptability of mobile health autism screening tools [texte imprimé] / Gabriella TANGKILISAN, Auteur ; Luis Rivas VAZQUEZ, Auteur ; Plyce FUCHU, Auteur ; Benjamin SANDERS, Auteur ; Jill K. DOLATA, Auteur ; Steven BEDRICK, Auteur ; Eric FOMBONNE, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Katharine E. ZUCKERMAN, Auteur . - p.3100-3110. Langues : Anglais (eng) in Autism > 29-12 (December 2025) . - p.3100-3110 Mots-clés : autism screening  autism spectrum disorder  Delphi consensus  developmental screening  disparities  mobile health  practice guidelines Index. décimale : PER Périodiques Résumé : Mobile health (mHealth; online phone or tablet-based) screening tools for autism are being increasingly used by parents, health care, and educational providers. However, it is unclear whether mHealth autism screening will improve the inequalities in autism or further help individuals already advantaged in autism care. To try to improve equity in mHealth autism screening, we conducted a modified Delphi consensus panel process with 14 panelists who were medical providers, parents, tool developers, and educational providers. Panelists participated in three asynchronous online voting rounds followed by online discussions. Panelists were provided a preliminary list of 28 recommendations for autism-screening tools that were compiled from previous qualitative interviews in the larger project. In each round, panelists were asked to vote for up to 10 recommendations from the preliminary list and discuss the voting results. After the third round of asynchronous voting, a final round of discussion with all the panelists was held live through Zoom to discuss the final asynchronous voting results. All voting and discussion took place on an online app called Slack. Voting and discussion yielded 19 recommendations in five conceptual categories: transparency, equity, access, product design and user experience, and development process. Tools adhering to these recommendations may increase equitable service use after screening.Lay abstract Families may use information online to learn more about autism. Families, health care, and educational providers may use online tools like checklists or web apps to screen for autism (measure whether a young child has autism symptoms or behaviors). However, we do not know whether the online autism-screening tools can be easily used by families and providers. It is possible that families who are culturally diverse, have lower education, or have lower income have trouble using online autism-screening tools. We conducted an online consensus panel with medical/educational providers, parents, and tool developers, asking them to vote and have discussions on suggestions for online screening tools for autism. The voting and discussions resulted in 19 suggestions for changes to make the tools easier to use. The top recommendations included directly linking to sources of information about autism, reading level that is less than or equal to fifth grade, and focusing on the diverse behavior/needs/strengths associated with autism. En ligne : https://dx.doi.org/10.1177/13623613251360276 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572

Epidemiological Surveys of Autism Spectrum Disorders / Julianne MYERS

Public ISBD in Autism and Pervasive Developmental Disorders / Fred R. VOLKMAR Titre : Epidemiological Surveys of Autism Spectrum Disorders Type de document : texte imprimé Auteurs : Julianne MYERS, Auteur ; Alison E. CHAVEZ, Auteur ; Alison P. HILL, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Eric FOMBONNE, Auteur Année de publication : 2019 Importance : p.25-60 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 in Autism and Pervasive Developmental Disorders / Fred R. VOLKMAR Epidemiological Surveys of Autism Spectrum Disorders [texte imprimé] / Julianne MYERS, Auteur ; Alison E. CHAVEZ, Auteur ; Alison P. HILL, Auteur ; Katharine E. ZUCKERMAN, Auteur ; Eric FOMBONNE, Auteur . - 2019 . - p.25-60. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

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Épidémiologie de l’autisme : où en sommes-nous ? / Eric FOMBONNE in Enfance, 2019-1 (Mars 2019)  

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Healthcare access and services use among US children with autism spectrum disorder / Olivia J. LINDLY in Autism, 23-6 (August 2019)  

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Improving autism and developmental screening and referral in US primary care practices serving Latinos / Katharine E. ZUCKERMAN in Autism, 25-1 (January 2021)  

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Maternal beliefs about autism: A link between intervention services and autism severity in White and Latino mothers / Nuri M. REYES in Research in Autism Spectrum Disorders, 51 (July 2018)  

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Mobile and online consumer tools to screen for autism do not promote equity / Benjamin W. SANDERS in Autism, 27-3 (April 2023)  

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Overweight and Obesity: Prevalence and Correlates in a Large Clinical Sample of Children with Autism Spectrum Disorder / Katharine E. ZUCKERMAN in Journal of Autism and Developmental Disorders, 44-7 (July 2014)  

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Parent Perceptions of Community Autism Spectrum Disorder Stigma: Measure Validation and Associations in a Multi-site Sample / Katharine E. ZUCKERMAN in Journal of Autism and Developmental Disorders, 48-9 (September 2018)  

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Parents' Use of Complementary Health Approaches for Young Children with Autism Spectrum Disorder / Olivia J. LINDLY in Journal of Autism and Developmental Disorders, 48-5 (May 2018)  

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Pediatricians' role in healthcare for Latino autistic children: Shared decision-making versus "You?ve got to do everything on your own" / Amber M. ANGELL in Autism, 27-8 (November 2023)  

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To reduce the average age of autism diagnosis, screen preschoolers in primary care / Katharine E. ZUCKERMAN in Autism, 25-2 (February 2021)  

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